update and help

[Guest guest]

hi everyone, well it's been a long time since I've written anything on the

stills board. I've tried to keep up with everyone by reading the post, but

I haven't been feeling week and posting a msg just wasn't in me. My

Rhuematologist in Nashville (to rename nameless) has done nothing to change

or help me since moving to TN since last year. At that point my old RD said

that I needed to get off Kineret and on something else because he could tell

my back was starting to deteriarte. He also wanted a Liver Biopsy done,

another Bone Densisyt Done and a few biopsy of some lyphm nodes that are

getting bigger in amy arms and legs. This RD in Nashville hasn't changed

anything but a few NSAIDS and I've continued to get sicker and sicker as

time has gone on. Now I am besides myself in how to communicate with him

and how to get him to understand how sick I am every day and night by 2-3

pm. I tend to be so restless at night from fevers that I can't even sleep.

My GP has decided to send me to Mayo Clinic and I have an apt at the end of

Oct. I plan on going to a new RD when I get back. this doctor doesn't

listen and doesn't want to listen.

I'm searching to find out if anyone has recommendations for Doctors in the

nashivll in that the love, Doctors that listen and actually do thinks for

you instead of ones that don't do anything because they don't want to lift a

hand to write a letter on your behalf to get you on the write meds.

Anyone? Because when I come back from Mayo, I won't be going to him any

longer. He has to many strikes against him and I refuse to let my doctor be

the one that actually causes depression.

Sorry I haven't posted, I just haven't been able to keep my head above

water... I will, in addition to the normail stills stuff, most likely need

a second surgery in my right ear to cut out a cholestatom. I had one taken

out in Jan of 2007 - now it looks like I have it again, so it's frustrating

for me to deal with the vertigo that goes alone with that also.

I know everyon has there ups and downs, and I hope all of you are doing at

least a little better than I am

Thanks to anyone that can give me a good referall to a doctors (RD) in

Nasvhille

Hugs to all.