Guest guest Posted March 28, 2008 Report Share Posted March 28, 2008 Jessie- Welcome back! I am sorry that you have been going through so much. But we are here for like always. Take care! Love and Support, Keri in CA Introduction Hello everyone, My name is Wisniowski. I used to be a member of this online family a while ago. I stopped my involvement because the doctors thought I had Lupus and not Stills. Now they say I have a mutated version of Sills that acts like Lupus. Anyway, I just felt like a fraud being a part of the group if I didn't have Stills officially. In the time I was gone I really began to understand just how important this group is. The support that was offered to me here has been unparalleled. You all understand exactly what I have been through. Thank you all so much for welcoming me back. It means more to me that you can possibly know. Please if I can help or support any of you in anyway don't hesitate to ask. I'm here for whatever you need. I have been through the mill. Since diagnosis in Aug 06 I have had severe ups and downs. I have lost my hair and grown it back. I have broken my back in 30 places and went through severe rehabilitation. I have had Chushings Syndrome brought on by devil steroids. I have had 6 full flairs from 6/05 until present and I have been hospitalized for two of them. Right now my biggest problem is necrosis in my joints caused by the steroids. I currently only taking Kineret to suppress flairs. I've been through the spectrum of this disease. My flairs take the form of inflammation on my heart and lungs. Sometimes I get pneumonia too. So far I've been able to get most of my life back. I am 24 years old and I live a fairly normal life now. I work very hard to live with this disease and I will be there for anyone that is stuck at home because they have Stills. I've been there and it is no fun. Thank you all again for having me back. Jessie By the way my birthday is July 8. Quote Link to comment Share on other sites More sharing options...
Recommended Posts
Join the conversation
You are posting as a guest. If you have an account, sign in now to post with your account.
Note: Your post will require moderator approval before it will be visible.