Guest guest Posted April 4, 2008 Report Share Posted April 4, 2008 Joan, I know exactly how you feel...I'm newly diagnosed (Jan) and when my husband starts talking about taking a trip to Illinois to visit his family my heart starts racing, like how in the world am I supposed to manage this??? Myself is one thing but all the while we have a very independent two year old as well. Monday night I had to literally crawl from my bed to the bathroom because I was unable to walk for the first time ever. Each day is an unknown and sometimes others just don't get that. I dont have much advice as I'm right there with you on this one but I wanted you to know you where right in thinking others here would know exactly what you are going through. Mandi Florida In a message dated 4/4/2008 7:55:08 P.M. Eastern Daylight Time, joanuk@... writes: Hello Stilligans I hope you do not mind me off loading some of my concerns although I do feel guilty as a lot of you are suffering so much at the moment. I think I have mentioned in the past that we have been thinking of moving to be nearer my son and maybe buy a cheaper house so that we can release some money to get help in the house etc. Well we are going to stay with Toby (my son) from next Tuesday for approx. 2 months to see if we feel we would fit in and would like to live there. My problem is that I have lost all my confidence. My husband is talking about things we can join in to integrate into the community and I am just so scared even though he has said that if I am unhappy we can come home again straight away and I do really want to see what it would be like to live in Yorkshire. I do feel that although my family are very supportive especially my husband that I can suffer from stills and depression at home but when a holiday or this move comes about all arrangements are made as if I am fully fit and I seem to get caught up in it and therefore dread it if I feel after doing very little I have had enough. I know I only have to say - hang on a minute you are going too fast but they still do not actually understand how it makes me feel which is why I am posting this to my family as I am sure you will know exactly what I mean. I am finding it very difficult to cope with as it is not that I don't want to go but the stress is making me feel quite ill. I would appreciate it if anyone has any ideas on this or whether you think I am getting in a state for nothing. I hope that you are all getting through your pain and problems as I know you have many. Best wishes Joan U.K. [Non-text portions of this message have been removed] **************Planning your summer road trip? Check out AOL Travel Guides. (http://travel.aol.com/travel-guide/united-states?ncid=aoltrv00030000000016) Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 4, 2008 Report Share Posted April 4, 2008 Joan, I can empathize with you. It is stressful to spend 2 months with your son and thinking about moving at the same time. And worrying that you will take on more than you really need to. And feeling guilty if you don't do as much as they think you can at this time. Sometimes I can start to do something and have to quit rather quickly because of the stress and pain. If I overwork myself I pay for it the next day with pain and fatige. My neighbor says she understands my disease, yet she expects me to do a lot if I'm heping her with something. Sometimes I just can't do what she wants. Then I stop and don't worry about what she thinks. You have to take care of yourself and don't worry about what your family thinks. If you are able to help out without hurting yourself - - great. If not, please try to not do so much. I've been planning on moving to Houston, Texas for the past year. But the stress of the move has held me back, and I'm single. But pretty soon I'm going to bite the bullet and do it. Anyway, be more kind and forgiving with yourself. I don't think anyone else truly understands this disease but those of us who have it. They say they understand, and I think they really believe that they do. That's why they think we can do more than we can. Well, I'm just running on and on. My thoughts are with you, and I hope you can do this with as little stress as possible. Moving rates on a stress level right up there with changing jobs and divorce. Please take care of yorself and don't over do. I'm one who has a tendency to over do sometimes, too. So I really know what you're talking about. My love and support to you, Welynda Messages in this topic (1) Reply (via web post) | Start a new topic Messages | Files | Photos | Members | Calendar Visit the Still's Disease Message Board http://disc.server.com/Indices/148599.html The materials and information contained in this message are not intended to replace the services of a trained health professional or to be a substitute for medical advice of physicians and/or other health care professionals. The International Still's Disease Foundation is not engaged in rendering medical or professional medical services. You should consult your physician on specific medical questions, particularly in matters requiring diagnosis or medical attention. The International Still's Disease Foundation makes no representations or warranties with respect to any treamedication or preparation by any person following the information offered or provided within this support form. ion by any person following the information offered or provided within this support form. Change settings via the Web (Yahoo! ID required) Change settings via email: Switch delivery to Daily Digest | Switch format to Traditional Visit Your Group | Yahoo! Groups Terms of Use | Unsubscribe Recent Activity 5 New Members Visit Your Group Yahoo! Health Healthy Aging Improve your quality of life. Meditation and Lovingkindness A Yahoo! Group to share and learn. Sitebuilder Build a web site quickly & easily with Sitebuilder. . --------------------------------- You rock. That's why Blockbuster's offering you one month of Blockbuster Total Access, No Cost. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 4, 2008 Report Share Posted April 4, 2008 Joan, I can empathize with you. It is stressful to spend 2 months with your son and thinking about moving at the same time. And worrying that you will take on more than you really need to. And feeling guilty if you don't do as much as they think you can at this time. Sometimes I can start to do something and have to quit rather quickly because of the stress and pain. If I overwork myself I pay for it the next day with pain and fatige. My neighbor says she understands my disease, yet she expects me to do a lot if I'm heping her with something. Sometimes I just can't do what she wants. Then I stop and don't worry about what she thinks. You have to take care of yourself and don't worry about what your family thinks. If you are able to help out without hurting yourself - - great. If not, please try to not do so much. I've been planning on moving to Houston, Texas for the past year. But the stress of the move has held me back, and I'm single. But pretty soon I'm going to bite the bullet and do it. Anyway, be more kind and forgiving with yourself. I don't think anyone else truly understands this disease but those of us who have it. They say they understand, and I think they really believe that they do. That's why they think we can do more than we can. Well, I'm just running on and on. My thoughts are with you, and I hope you can do this with as little stress as possible. Moving rates on a stress level right up there with changing jobs and divorce. Please take care of yorself and don't over do. I'm one who has a tendency to over do sometimes, too. So I really know what you're talking about. My love and support to you, Welynda Messages in this topic (1) Reply (via web post) | Start a new topic Messages | Files | Photos | Members | Calendar Visit the Still's Disease Message Board http://disc.server.com/Indices/148599.html The materials and information contained in this message are not intended to replace the services of a trained health professional or to be a substitute for medical advice of physicians and/or other health care professionals. The International Still's Disease Foundation is not engaged in rendering medical or professional medical services. You should consult your physician on specific medical questions, particularly in matters requiring diagnosis or medical attention. The International Still's Disease Foundation makes no representations or warranties with respect to any treamedication or preparation by any person following the information offered or provided within this support form. ion by any person following the information offered or provided within this support form. Change settings via the Web (Yahoo! ID required) Change settings via email: Switch delivery to Daily Digest | Switch format to Traditional Visit Your Group | Yahoo! Groups Terms of Use | Unsubscribe Recent Activity 5 New Members Visit Your Group Yahoo! Health Healthy Aging Improve your quality of life. Meditation and Lovingkindness A Yahoo! Group to share and learn. Sitebuilder Build a web site quickly & easily with Sitebuilder. . --------------------------------- You rock. That's why Blockbuster's offering you one month of Blockbuster Total Access, No Cost. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 5, 2008 Report Share Posted April 5, 2008 Hello Joan I too get very anxious when plans are made even if it's only a day out so understand how you feel. My only concern for you is that two months in Yorkshire in the Summer can be very different from two months there in the Winter. I was there as a child and it can get very cold. If you want a chat...you have my telephone number. Try not to get too stressed. Best wishes. Carole (UK) Temporary Move OT Hello Stilligans I hope you do not mind me off loading some of my concerns although I do feel guilty as a lot of you are suffering so much at the moment. I think I have mentioned in the past that we have been thinking of moving to be nearer my son and maybe buy a cheaper house so that we can release some money to get help in the house etc. Well we are going to stay with Toby (my son) from next Tuesday for approx. 2 months to see if we feel we would fit in and would like to live there. My problem is that I have lost all my confidence. My husband is talking about things we can join in to integrate into the community and I am just so scared even though he has said that if I am unhappy we can come home again straight away and I do really want to see what it would be like to live in Yorkshire. I do feel that although my family are very supportive especially my husband that I can suffer from stills and depression at home but when a holiday or this move comes about all arrangements are made as if I am fully fit and I seem to get caught up in it and therefore dread it if I feel after doing very little I have had enough. I know I only have to say - hang on a minute you are going too fast but they still do not actually understand how it makes me feel which is why I am posting this to my family as I am sure you will know exactly what I mean. I am finding it very difficult to cope with as it is not that I don't want to go but the stress is making me feel quite ill. I would appreciate it if anyone has any ideas on this or whether you think I am getting in a state for nothing. I hope that you are all getting through your pain and problems as I know you have many. Best wishes Joan U.K. Quote Link to comment Share on other sites More sharing options...
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