Guest guest Posted July 29, 2008 Report Share Posted July 29, 2008 I must tell you that I deeply sympathize with you position. I am on day three of an all nighter with evvie, and I am dead on my feet. I know I will only invite the wrath of our membership by suggesting this, but I think it is time you consider mood stablizers for your child. Even on nearly 300 mg. of seroquel, which is 1/2 the adult dose, once every four weeks my daughter goes through phases where she stays up all night and perpetrates unusual events. It used to be more. These kids are very sick and need help. I don't know how to interpret what you are seeing, but suffice to say, your child has a reason for her actions. Unfortunately, at this time. all we can do is to control it. I hope to God you find relief. Subject: night wandering? To: Autism_in_Girls Date: Tuesday, July 29, 2008, 3:19 PM Hello. I need help yet again. Juilanna, who is ten, is waking up at around one in the morning and is just wandering everywhere being very destructive. She used to get up and come find me. (the good old days) Now I don't sleep so I can hear when she gets up. She has gotten up, let all the dogs out of their crates (I'm in a rescue) took down all the gates to the bedrooms, let the bird out (who was killed by one of the dogs), lost the hamster (haven't found him yet) put yet another hole in her wall, and was just not herself at all. She has broken everything in her room so she only has her bed and dresser at this point. During the days she has started this high pitched screaming (the kind that goes right through you) has become quite agitated and doesn't hear me at all when I try to talk to her. When she does listen to me she doesn't understand what I am saying.? She used to get really upset when an animal died, but now she doesn't have any reaction whatsoever. I don't get it. I cannot figure out what in the world is waking her up. I have noticed that her fingernails are purple and she has dark circles under her eyes and she is very pale. She does have seizures which she takes medication and has the VNS for to help control them. It's so weird because one minute she's fine, the next minute she's screaming, she hates me, she's flailing all over the place?and I'm so afraid she's going to hurt herself. She's hooked up for her feeds at night but she's been ripping that out too. I'm trying to figure out a way to keep her in her room so she'll?be safe but not seem inhumane at the same time. We have an appointment with the Neurologist on Thursday but I wanted to post here because at least everyone here understands. If anyone has any suggestions I would really, really appreciate it! Thanks! Pam and nna 10 YRS. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 29, 2008 Report Share Posted July 29, 2008 I must tell you that I deeply sympathize with you position. I am on day three of an all nighter with evvie, and I am dead on my feet. I know I will only invite the wrath of our membership by suggesting this, but I think it is time you consider mood stablizers for your child. Even on nearly 300 mg. of seroquel, which is 1/2 the adult dose, once every four weeks my daughter goes through phases where she stays up all night and perpetrates unusual events. It used to be more. These kids are very sick and need help. I don't know how to interpret what you are seeing, but suffice to say, your child has a reason for her actions. Unfortunately, at this time. all we can do is to control it. I hope to God you find relief. Subject: night wandering? To: Autism_in_Girls Date: Tuesday, July 29, 2008, 3:19 PM Hello. I need help yet again. Juilanna, who is ten, is waking up at around one in the morning and is just wandering everywhere being very destructive. She used to get up and come find me. (the good old days) Now I don't sleep so I can hear when she gets up. She has gotten up, let all the dogs out of their crates (I'm in a rescue) took down all the gates to the bedrooms, let the bird out (who was killed by one of the dogs), lost the hamster (haven't found him yet) put yet another hole in her wall, and was just not herself at all. She has broken everything in her room so she only has her bed and dresser at this point. During the days she has started this high pitched screaming (the kind that goes right through you) has become quite agitated and doesn't hear me at all when I try to talk to her. When she does listen to me she doesn't understand what I am saying.? She used to get really upset when an animal died, but now she doesn't have any reaction whatsoever. I don't get it. I cannot figure out what in the world is waking her up. I have noticed that her fingernails are purple and she has dark circles under her eyes and she is very pale. She does have seizures which she takes medication and has the VNS for to help control them. It's so weird because one minute she's fine, the next minute she's screaming, she hates me, she's flailing all over the place?and I'm so afraid she's going to hurt herself. She's hooked up for her feeds at night but she's been ripping that out too. I'm trying to figure out a way to keep her in her room so she'll?be safe but not seem inhumane at the same time. We have an appointment with the Neurologist on Thursday but I wanted to post here because at least everyone here understands. If anyone has any suggestions I would really, really appreciate it! Thanks! Pam and nna 10 YRS. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 29, 2008 Report Share Posted July 29, 2008 I must tell you that I deeply sympathize with you position. I am on day three of an all nighter with evvie, and I am dead on my feet. I know I will only invite the wrath of our membership by suggesting this, but I think it is time you consider mood stablizers for your child. Even on nearly 300 mg. of seroquel, which is 1/2 the adult dose, once every four weeks my daughter goes through phases where she stays up all night and perpetrates unusual events. It used to be more. These kids are very sick and need help. I don't know how to interpret what you are seeing, but suffice to say, your child has a reason for her actions. Unfortunately, at this time. all we can do is to control it. I hope to God you find relief. Subject: night wandering? To: Autism_in_Girls Date: Tuesday, July 29, 2008, 3:19 PM Hello. I need help yet again. Juilanna, who is ten, is waking up at around one in the morning and is just wandering everywhere being very destructive. She used to get up and come find me. (the good old days) Now I don't sleep so I can hear when she gets up. She has gotten up, let all the dogs out of their crates (I'm in a rescue) took down all the gates to the bedrooms, let the bird out (who was killed by one of the dogs), lost the hamster (haven't found him yet) put yet another hole in her wall, and was just not herself at all. She has broken everything in her room so she only has her bed and dresser at this point. During the days she has started this high pitched screaming (the kind that goes right through you) has become quite agitated and doesn't hear me at all when I try to talk to her. When she does listen to me she doesn't understand what I am saying.? She used to get really upset when an animal died, but now she doesn't have any reaction whatsoever. I don't get it. I cannot figure out what in the world is waking her up. I have noticed that her fingernails are purple and she has dark circles under her eyes and she is very pale. She does have seizures which she takes medication and has the VNS for to help control them. It's so weird because one minute she's fine, the next minute she's screaming, she hates me, she's flailing all over the place?and I'm so afraid she's going to hurt herself. She's hooked up for her feeds at night but she's been ripping that out too. I'm trying to figure out a way to keep her in her room so she'll?be safe but not seem inhumane at the same time. We have an appointment with the Neurologist on Thursday but I wanted to post here because at least everyone here understands. If anyone has any suggestions I would really, really appreciate it! Thanks! Pam and nna 10 YRS. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 30, 2008 Report Share Posted July 30, 2008 Hello Pam, My Daughter Sara is 6.5 years and has always wandered at night. I know those shrill screams and rages. My daughter too has a complicated seizure disorder (her neurologist has only mentioned the vns once, but I'm going to ask about it, she's still uncontrolled). I haven't noticed that her nails are purple, but she gets the pink circles under her eyes. My doctor keeps asking me if she takes a vitamin. She takes one about 50% of the time, she just doesn't like them. I notice the circles more when she is tired. I think a ot of the behaivor issue is sleep deprovation (just my opinion). Oh, Sara takes depacote and lamictal...for now. (We've tried her on a lot of other meds too.) My wandering issue is over feeding the fish, pulling everything out of the fridge, and she sometimes leaves the house, I can deal with the other messes she makes for now. I'm putting a padlock on the fridge, getting a new apartment that will put better locks on the doors, and going to start her back on meletonin again. Seriously for their own safety I have no problem locking them in their rooms at night...I just dread the clean up of body waste if she can't get to the bathroom and if someone new comes over sees the lock and might report me. You might want to ask the doctor (if not the neuro a developmental pedi) for a script for locks on the door or some good alternatives? If your doc reccomends something let me know please!!! I'd love to be able to fiz this problem too! Subject: night wandering? To: Autism_in_Girls Date: Tuesday, July 29, 2008, 3:19 PM Hello. I need help yet again. Juilanna, who is ten, is waking up at around one in the morning and is just wandering everywhere being very destructive. She used to get up and come find me. (the good old days) Now I don't sleep so I can hear when she gets up. She has gotten up, let all the dogs out of their crates (I'm in a rescue) took down all the gates to the bedrooms, let the bird out (who was killed by one of the dogs), lost the hamster (haven't found him yet) put yet another hole in her wall, and was just not herself at all. She has broken everything in her room so she only has her bed and dresser at this point. During the days she has started this high pitched screaming (the kind that goes right through you) has become quite agitated and doesn't hear me at all when I try to talk to her. When she does listen to me she doesn't understand what I am saying.? She used to get really upset when an animal died, but now she doesn't have any reaction whatsoever. I don't get it. I cannot figure out what in the world is waking her up. I have noticed that her fingernails are purple and she has dark circles under her eyes and she is very pale. She does have seizures which she takes medication and has the VNS for to help control them. It's so weird because one minute she's fine, the next minute she's screaming, she hates me, she's flailing all over the place?and I'm so afraid she's going to hurt herself. She's hooked up for her feeds at night but she's been ripping that out too. I'm trying to figure out a way to keep her in her room so she'll?be safe but not seem inhumane at the same time. We have an appointment with the Neurologist on Thursday but I wanted to post here because at least everyone here understands. If anyone has any suggestions I would really, really appreciate it! Thanks! Pam and nna 10 YRS. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 30, 2008 Report Share Posted July 30, 2008 Hello Pam, My Daughter Sara is 6.5 years and has always wandered at night. I know those shrill screams and rages. My daughter too has a complicated seizure disorder (her neurologist has only mentioned the vns once, but I'm going to ask about it, she's still uncontrolled). I haven't noticed that her nails are purple, but she gets the pink circles under her eyes. My doctor keeps asking me if she takes a vitamin. She takes one about 50% of the time, she just doesn't like them. I notice the circles more when she is tired. I think a ot of the behaivor issue is sleep deprovation (just my opinion). Oh, Sara takes depacote and lamictal...for now. (We've tried her on a lot of other meds too.) My wandering issue is over feeding the fish, pulling everything out of the fridge, and she sometimes leaves the house, I can deal with the other messes she makes for now. I'm putting a padlock on the fridge, getting a new apartment that will put better locks on the doors, and going to start her back on meletonin again. Seriously for their own safety I have no problem locking them in their rooms at night...I just dread the clean up of body waste if she can't get to the bathroom and if someone new comes over sees the lock and might report me. You might want to ask the doctor (if not the neuro a developmental pedi) for a script for locks on the door or some good alternatives? If your doc reccomends something let me know please!!! I'd love to be able to fiz this problem too! Subject: night wandering? To: Autism_in_Girls Date: Tuesday, July 29, 2008, 3:19 PM Hello. I need help yet again. Juilanna, who is ten, is waking up at around one in the morning and is just wandering everywhere being very destructive. She used to get up and come find me. (the good old days) Now I don't sleep so I can hear when she gets up. She has gotten up, let all the dogs out of their crates (I'm in a rescue) took down all the gates to the bedrooms, let the bird out (who was killed by one of the dogs), lost the hamster (haven't found him yet) put yet another hole in her wall, and was just not herself at all. She has broken everything in her room so she only has her bed and dresser at this point. During the days she has started this high pitched screaming (the kind that goes right through you) has become quite agitated and doesn't hear me at all when I try to talk to her. When she does listen to me she doesn't understand what I am saying.? She used to get really upset when an animal died, but now she doesn't have any reaction whatsoever. I don't get it. I cannot figure out what in the world is waking her up. I have noticed that her fingernails are purple and she has dark circles under her eyes and she is very pale. She does have seizures which she takes medication and has the VNS for to help control them. It's so weird because one minute she's fine, the next minute she's screaming, she hates me, she's flailing all over the place?and I'm so afraid she's going to hurt herself. She's hooked up for her feeds at night but she's been ripping that out too. I'm trying to figure out a way to keep her in her room so she'll?be safe but not seem inhumane at the same time. We have an appointment with the Neurologist on Thursday but I wanted to post here because at least everyone here understands. If anyone has any suggestions I would really, really appreciate it! Thanks! Pam and nna 10 YRS. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 30, 2008 Report Share Posted July 30, 2008 Every three or four weeks? Could it be parasites hatching and causing her grief on a regular cycle? Penny > > From: pjrd67@... pjrd67@... > Subject: night wandering? > To: Autism_in_Girls > Date: Tuesday, July 29, 2008, 3:19 PM > > > > > > > Hello. I need help yet again. Juilanna, who is ten, is waking up at around one in the morning and is just wandering everywhere being very destructive. She used to get up and come find me. (the good old days) Now I don't sleep so I can hear when she gets up. She has gotten up, let all the dogs out of their crates (I'm in a rescue) took down all the gates to the bedrooms, let the bird out (who was killed by one of the dogs), lost the hamster (haven't found him yet) put yet another hole in her wall, and was just not herself at all. She has broken everything in her room so she only has her bed and dresser at this point. During the days she has started this high pitched screaming (the kind that goes right through you) has become quite agitated and doesn't hear me at all when I try to talk to her. When she does listen to me she doesn't understand what I am saying.? She used to get really upset when an animal died, but now she doesn't have any reaction > whatsoever. I don't get it. I cannot figure out what in the world is waking her up. I have noticed that her fingernails are purple and she has dark circles under her eyes and she is very pale. She does have seizures which she takes medication and has the VNS for to help control them. It's so weird because one minute she's fine, the next minute she's screaming, she hates me, she's flailing all over the place?and I'm so afraid she's going to hurt herself. She's hooked up for her feeds at night but she's been ripping that out too. I'm trying to figure out a way to keep her in her room so she'll?be safe but not seem inhumane at the same time. We have an appointment with the Neurologist on Thursday but I wanted to post here because at least everyone here understands. If anyone has any suggestions I would really, really appreciate it! > Thanks! > Pam and nna 10 YRS. > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 30, 2008 Report Share Posted July 30, 2008 Every three or four weeks? Could it be parasites hatching and causing her grief on a regular cycle? Penny > > From: pjrd67@... pjrd67@... > Subject: night wandering? > To: Autism_in_Girls > Date: Tuesday, July 29, 2008, 3:19 PM > > > > > > > Hello. I need help yet again. Juilanna, who is ten, is waking up at around one in the morning and is just wandering everywhere being very destructive. She used to get up and come find me. (the good old days) Now I don't sleep so I can hear when she gets up. She has gotten up, let all the dogs out of their crates (I'm in a rescue) took down all the gates to the bedrooms, let the bird out (who was killed by one of the dogs), lost the hamster (haven't found him yet) put yet another hole in her wall, and was just not herself at all. She has broken everything in her room so she only has her bed and dresser at this point. During the days she has started this high pitched screaming (the kind that goes right through you) has become quite agitated and doesn't hear me at all when I try to talk to her. When she does listen to me she doesn't understand what I am saying.? She used to get really upset when an animal died, but now she doesn't have any reaction > whatsoever. I don't get it. I cannot figure out what in the world is waking her up. I have noticed that her fingernails are purple and she has dark circles under her eyes and she is very pale. She does have seizures which she takes medication and has the VNS for to help control them. It's so weird because one minute she's fine, the next minute she's screaming, she hates me, she's flailing all over the place?and I'm so afraid she's going to hurt herself. She's hooked up for her feeds at night but she's been ripping that out too. I'm trying to figure out a way to keep her in her room so she'll?be safe but not seem inhumane at the same time. We have an appointment with the Neurologist on Thursday but I wanted to post here because at least everyone here understands. If anyone has any suggestions I would really, really appreciate it! > Thanks! > Pam and nna 10 YRS. > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 30, 2008 Report Share Posted July 30, 2008 Every three or four weeks? Could it be parasites hatching and causing her grief on a regular cycle? Penny > > From: pjrd67@... pjrd67@... > Subject: night wandering? > To: Autism_in_Girls > Date: Tuesday, July 29, 2008, 3:19 PM > > > > > > > Hello. I need help yet again. Juilanna, who is ten, is waking up at around one in the morning and is just wandering everywhere being very destructive. She used to get up and come find me. (the good old days) Now I don't sleep so I can hear when she gets up. She has gotten up, let all the dogs out of their crates (I'm in a rescue) took down all the gates to the bedrooms, let the bird out (who was killed by one of the dogs), lost the hamster (haven't found him yet) put yet another hole in her wall, and was just not herself at all. She has broken everything in her room so she only has her bed and dresser at this point. During the days she has started this high pitched screaming (the kind that goes right through you) has become quite agitated and doesn't hear me at all when I try to talk to her. When she does listen to me she doesn't understand what I am saying.? She used to get really upset when an animal died, but now she doesn't have any reaction > whatsoever. I don't get it. I cannot figure out what in the world is waking her up. I have noticed that her fingernails are purple and she has dark circles under her eyes and she is very pale. She does have seizures which she takes medication and has the VNS for to help control them. It's so weird because one minute she's fine, the next minute she's screaming, she hates me, she's flailing all over the place?and I'm so afraid she's going to hurt herself. She's hooked up for her feeds at night but she's been ripping that out too. I'm trying to figure out a way to keep her in her room so she'll?be safe but not seem inhumane at the same time. We have an appointment with the Neurologist on Thursday but I wanted to post here because at least everyone here understands. If anyone has any suggestions I would really, really appreciate it! > Thanks! > Pam and nna 10 YRS. > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 30, 2008 Report Share Posted July 30, 2008 Every three or four weeks? Could it be parasites hatching and causing her grief on a regular cycle? Penny > > From: pjrd67@... pjrd67@... > Subject: night wandering? > To: Autism_in_Girls > Date: Tuesday, July 29, 2008, 3:19 PM > > > > > > > Hello. I need help yet again. Juilanna, who is ten, is waking up at around one in the morning and is just wandering everywhere being very destructive. She used to get up and come find me. (the good old days) Now I don't sleep so I can hear when she gets up. She has gotten up, let all the dogs out of their crates (I'm in a rescue) took down all the gates to the bedrooms, let the bird out (who was killed by one of the dogs), lost the hamster (haven't found him yet) put yet another hole in her wall, and was just not herself at all. She has broken everything in her room so she only has her bed and dresser at this point. During the days she has started this high pitched screaming (the kind that goes right through you) has become quite agitated and doesn't hear me at all when I try to talk to her. When she does listen to me she doesn't understand what I am saying.? She used to get really upset when an animal died, but now she doesn't have any reaction > whatsoever. I don't get it. I cannot figure out what in the world is waking her up. I have noticed that her fingernails are purple and she has dark circles under her eyes and she is very pale. She does have seizures which she takes medication and has the VNS for to help control them. It's so weird because one minute she's fine, the next minute she's screaming, she hates me, she's flailing all over the place?and I'm so afraid she's going to hurt herself. She's hooked up for her feeds at night but she's been ripping that out too. I'm trying to figure out a way to keep her in her room so she'll?be safe but not seem inhumane at the same time. We have an appointment with the Neurologist on Thursday but I wanted to post here because at least everyone here understands. If anyone has any suggestions I would really, really appreciate it! > Thanks! > Pam and nna 10 YRS. > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 30, 2008 Report Share Posted July 30, 2008 Sara has been on mood stabalizers...they didn't help. The seizures disrupt their brain wves during sleep and for my child her seizures are what is causing the problem. If her daughter has a VNS, she has a pretty severe seizure disorder... I'd type more but I have to go find a maitanece guy for my apt(it just turned 8am and if I don't catch them first thing I'm screwed)...We are moving, such fun!!!! Subject: night wandering? To: Autism_in_Girls@ yahoogroups. com Date: Tuesday, July 29, 2008, 3:19 PM Hello. I need help yet again. Juilanna, who is ten, is waking up at around one in the morning and is just wandering everywhere being very destructive. She used to get up and come find me. (the good old days) Now I don't sleep so I can hear when she gets up. She has gotten up, let all the dogs out of their crates (I'm in a rescue) took down all the gates to the bedrooms, let the bird out (who was killed by one of the dogs), lost the hamster (haven't found him yet) put yet another hole in her wall, and was just not herself at all. She has broken everything in her room so she only has her bed and dresser at this point. During the days she has started this high pitched screaming (the kind that goes right through you) has become quite agitated and doesn't hear me at all when I try to talk to her. When she does listen to me she doesn't understand what I am saying.? She used to get really upset when an animal died, but now she doesn't have any reaction whatsoever. I don't get it. I cannot figure out what in the world is waking her up. I have noticed that her fingernails are purple and she has dark circles under her eyes and she is very pale. She does have seizures which she takes medication and has the VNS for to help control them. It's so weird because one minute she's fine, the next minute she's screaming, she hates me, she's flailing all over the place?and I'm so afraid she's going to hurt herself. She's hooked up for her feeds at night but she's been ripping that out too. I'm trying to figure out a way to keep her in her room so she'll?be safe but not seem inhumane at the same time. We have an appointment with the Neurologist on Thursday but I wanted to post here because at least everyone here understands. If anyone has any suggestions I would really, really appreciate it! Thanks! Pam and nna 10 YRS. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 30, 2008 Report Share Posted July 30, 2008 Sara has been on mood stabalizers...they didn't help. The seizures disrupt their brain wves during sleep and for my child her seizures are what is causing the problem. If her daughter has a VNS, she has a pretty severe seizure disorder... I'd type more but I have to go find a maitanece guy for my apt(it just turned 8am and if I don't catch them first thing I'm screwed)...We are moving, such fun!!!! Subject: night wandering? To: Autism_in_Girls@ yahoogroups. com Date: Tuesday, July 29, 2008, 3:19 PM Hello. I need help yet again. Juilanna, who is ten, is waking up at around one in the morning and is just wandering everywhere being very destructive. She used to get up and come find me. (the good old days) Now I don't sleep so I can hear when she gets up. She has gotten up, let all the dogs out of their crates (I'm in a rescue) took down all the gates to the bedrooms, let the bird out (who was killed by one of the dogs), lost the hamster (haven't found him yet) put yet another hole in her wall, and was just not herself at all. She has broken everything in her room so she only has her bed and dresser at this point. During the days she has started this high pitched screaming (the kind that goes right through you) has become quite agitated and doesn't hear me at all when I try to talk to her. When she does listen to me she doesn't understand what I am saying.? She used to get really upset when an animal died, but now she doesn't have any reaction whatsoever. I don't get it. I cannot figure out what in the world is waking her up. I have noticed that her fingernails are purple and she has dark circles under her eyes and she is very pale. She does have seizures which she takes medication and has the VNS for to help control them. It's so weird because one minute she's fine, the next minute she's screaming, she hates me, she's flailing all over the place?and I'm so afraid she's going to hurt herself. She's hooked up for her feeds at night but she's been ripping that out too. I'm trying to figure out a way to keep her in her room so she'll?be safe but not seem inhumane at the same time. We have an appointment with the Neurologist on Thursday but I wanted to post here because at least everyone here understands. If anyone has any suggestions I would really, really appreciate it! Thanks! Pam and nna 10 YRS. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 30, 2008 Report Share Posted July 30, 2008 My daughter, who will be 7 in two weeks, stays up until about 3am everynight if I don't give her meletonin. She still sometimes wakes up very early (4am) if she has to go to the bathroom or something wakes her up, then she's usually up for a few hours and then tries to crash back to sleep around 6am, this goes over real well on school days, I'm lucky that the only thing she does is turn on the computer or tv. She will pour herself a cup of milk and usually leaves the door open with the milk on the counter though. She has realized how to insert the key into the deadbolt to get out of the house though. We have deadbolts on the inside of our doors so you need a key to get out, so we've had to move the keys, I'm scared she will try to leave in the middle of the night. I honestly think she would just sit in my car and wait for someone and if no one came she;d come back in. The only advice I could offer would be meletonin and door alarms. Putting them on her bedroom door might keep her from opening it or at least it would wake you up to put her back to bed. Good Luck! > > Hello. I need help yet again. Juilanna, who is ten, is waking up at around one in the morning and is just wandering everywhere being very destructive. She used to get up and come find me. (the good old days) Now I don't sleep so I can hear when she gets up. She has gotten up, let all the dogs out of their crates (I'm in a rescue) took down all the gates to the bedrooms, let the bird out (who was killed by one of the dogs), lost the hamster (haven't found him yet) put yet another hole in her wall, and was just not herself at all. She has broken everything in her room so she only has her bed and dresser at this point. During the days she has started this high pitched screaming (the kind that goes right through you) has become quite agitated and doesn't hear me at all when I try to talk to her. When she does listen to me she doesn't understand what I am saying.? She used to get really upset when an animal died, but now she doesn't have any reaction whatsoever. I don't get it. I cannot figure out what in the world is waking her up. I have noticed that her fingernails are purple and she has dark circles under her eyes and she is very pale. She does have seizures which she takes medication and has the VNS for to help control them. It's so weird because one minute she's fine, the next minute she's screaming, she hates me, she's flailing all over the place?and I'm so afraid she's going to hurt herself. She's hooked up for her feeds at night but she's been ripping that out too. I'm trying to figure out a way to keep her in her room so she'll?be safe but not seem inhumane at the same time. We have an appointment with the Neurologist on Thursday but I wanted to post here because at least everyone here understands. If anyone has any suggestions I would really, really appreciate it! > Thanks! > Pam and nna 10 YRS. > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 30, 2008 Report Share Posted July 30, 2008 My daughter, who will be 7 in two weeks, stays up until about 3am everynight if I don't give her meletonin. She still sometimes wakes up very early (4am) if she has to go to the bathroom or something wakes her up, then she's usually up for a few hours and then tries to crash back to sleep around 6am, this goes over real well on school days, I'm lucky that the only thing she does is turn on the computer or tv. She will pour herself a cup of milk and usually leaves the door open with the milk on the counter though. She has realized how to insert the key into the deadbolt to get out of the house though. We have deadbolts on the inside of our doors so you need a key to get out, so we've had to move the keys, I'm scared she will try to leave in the middle of the night. I honestly think she would just sit in my car and wait for someone and if no one came she;d come back in. The only advice I could offer would be meletonin and door alarms. Putting them on her bedroom door might keep her from opening it or at least it would wake you up to put her back to bed. Good Luck! > > Hello. I need help yet again. Juilanna, who is ten, is waking up at around one in the morning and is just wandering everywhere being very destructive. She used to get up and come find me. (the good old days) Now I don't sleep so I can hear when she gets up. She has gotten up, let all the dogs out of their crates (I'm in a rescue) took down all the gates to the bedrooms, let the bird out (who was killed by one of the dogs), lost the hamster (haven't found him yet) put yet another hole in her wall, and was just not herself at all. She has broken everything in her room so she only has her bed and dresser at this point. During the days she has started this high pitched screaming (the kind that goes right through you) has become quite agitated and doesn't hear me at all when I try to talk to her. When she does listen to me she doesn't understand what I am saying.? She used to get really upset when an animal died, but now she doesn't have any reaction whatsoever. I don't get it. I cannot figure out what in the world is waking her up. I have noticed that her fingernails are purple and she has dark circles under her eyes and she is very pale. She does have seizures which she takes medication and has the VNS for to help control them. It's so weird because one minute she's fine, the next minute she's screaming, she hates me, she's flailing all over the place?and I'm so afraid she's going to hurt herself. She's hooked up for her feeds at night but she's been ripping that out too. I'm trying to figure out a way to keep her in her room so she'll?be safe but not seem inhumane at the same time. We have an appointment with the Neurologist on Thursday but I wanted to post here because at least everyone here understands. If anyone has any suggestions I would really, really appreciate it! > Thanks! > Pam and nna 10 YRS. > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 30, 2008 Report Share Posted July 30, 2008 Night wandering is a serious problem, I would do what ever is necessary to keep you child safe. My friends son with autism was a night wanderer, she would sleep with her bed against his bedroom door so she would wake if he got up. The last time he was up for three days straight, mom fell asleep on the couch around 3-4 am with him in her arms. At 5 am she awoke to the front door open. Long story short, he left the house went down the dirt road on to a major road and was hit by a truck around 5 am. He died instantly. He was on a lot of meds, including chloral hydrate for sleeping and it did not help, if he wanted to be awake he would. On another note, my godson is having VNS surgery tomorrow. He has multiple seizures daily and is on a lot of seizure meds. Dr. say this is not a cure but will help reduce them also VNS helps to stabilize mood- they are now using it as a treatment for depression and other mood disorders. night wandering? To: Autism_in_Girls@ yahoogroups. com Date: Tuesday, July 29, 2008, 3:19 PM Hello. I need help yet again. Juilanna, who is ten, is waking up at around one in the morning and is just wandering everywhere being very destructive. She used to get up and come find me. (the good old days) Now I don't sleep so I can hear when she gets up. She has gotten up, let all the dogs out of their crates (I'm in a rescue) took down all the gates to the bedrooms, let the bird out (who was killed by one of the dogs), lost the hamster (haven't found him yet) put yet another hole in her wall, and was just not herself at all. She has broken everything in her room so she only has her bed and dresser at this point. During the days she has started this high pitched screaming (the kind that goes right through you) has become quite agitated and doesn't hear me at all when I try to talk to her. When she does listen to me she doesn't understand what I am saying.? She used to get really upset when an animal died, but now she doesn't have any reaction whatsoever. I don't get it. I cannot figure out what in the world is waking her up. I have noticed that her fingernails are purple and she has dark circles under her eyes and she is very pale. She does have seizures which she takes medication and has the VNS for to help control them. It's so weird because one minute she's fine, the next minute she's screaming, she hates me, she's flailing all over the place?and I'm so afraid she's going to hurt herself. She's hooked up for her feeds at night but she's been ripping that out too. I'm trying to figure out a way to keep her in her room so she'll?be safe but not seem inhumane at the same time. We have an appointment with the Neurologist on Thursday but I wanted to post here because at least everyone here understands. If anyone has any suggestions I would really, really appreciate it! Thanks! Pam and nna 10 YRS. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 30, 2008 Report Share Posted July 30, 2008 Night wandering is a serious problem, I would do what ever is necessary to keep you child safe. My friends son with autism was a night wanderer, she would sleep with her bed against his bedroom door so she would wake if he got up. The last time he was up for three days straight, mom fell asleep on the couch around 3-4 am with him in her arms. At 5 am she awoke to the front door open. Long story short, he left the house went down the dirt road on to a major road and was hit by a truck around 5 am. He died instantly. He was on a lot of meds, including chloral hydrate for sleeping and it did not help, if he wanted to be awake he would. On another note, my godson is having VNS surgery tomorrow. He has multiple seizures daily and is on a lot of seizure meds. Dr. say this is not a cure but will help reduce them also VNS helps to stabilize mood- they are now using it as a treatment for depression and other mood disorders. night wandering? To: Autism_in_Girls@ yahoogroups. com Date: Tuesday, July 29, 2008, 3:19 PM Hello. I need help yet again. Juilanna, who is ten, is waking up at around one in the morning and is just wandering everywhere being very destructive. She used to get up and come find me. (the good old days) Now I don't sleep so I can hear when she gets up. She has gotten up, let all the dogs out of their crates (I'm in a rescue) took down all the gates to the bedrooms, let the bird out (who was killed by one of the dogs), lost the hamster (haven't found him yet) put yet another hole in her wall, and was just not herself at all. She has broken everything in her room so she only has her bed and dresser at this point. During the days she has started this high pitched screaming (the kind that goes right through you) has become quite agitated and doesn't hear me at all when I try to talk to her. When she does listen to me she doesn't understand what I am saying.? She used to get really upset when an animal died, but now she doesn't have any reaction whatsoever. I don't get it. I cannot figure out what in the world is waking her up. I have noticed that her fingernails are purple and she has dark circles under her eyes and she is very pale. She does have seizures which she takes medication and has the VNS for to help control them. It's so weird because one minute she's fine, the next minute she's screaming, she hates me, she's flailing all over the place?and I'm so afraid she's going to hurt herself. She's hooked up for her feeds at night but she's been ripping that out too. I'm trying to figure out a way to keep her in her room so she'll?be safe but not seem inhumane at the same time. We have an appointment with the Neurologist on Thursday but I wanted to post here because at least everyone here understands. If anyone has any suggestions I would really, really appreciate it! Thanks! Pam and nna 10 YRS. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 30, 2008 Report Share Posted July 30, 2008 Oh my! How horrible for your friend! We've had several cases over the last few years where a child with autism has gotten away from their caregivers at night and wandered into area lakes and drowned. Breaks my heart. My daughter sleeps with me. Not something I ever really wanted to start, but it just kinda happened out of necessity. When she was a baby she slept in a bassinet near my bed then moved into her crib in her room, when her seizures started at 7mo. we moved her crib into our room and it stayed there till she out grew it (Tent and all) We've tried moving her back to her room a few times and moved her big sister in with her. But finding out she was having seizures at night we moved her back in with me. She has stopped getting up in the night for awhile now, which I'm so thankful for, because I was getting so exhausted with the waking up so much. But I knew that with her in my bed, I would wake up if she was getting out of the bed. We also have our alarm system set to chime when any exterior door is opened and Dad is a very light sleeper and would hear it for sure. Otherwise we can set our alarm to a STAY feature and if the door is opened it sets the alarm off right away and would scare her enough to stall her till one of us reached her and got her inside and turn off the alarm. We also put chain locks on the doors up high, but it didn't take long before she realized that she just needed to climb up on something to get it off. Thankfully she has passed that stage too and doesn't really try to go out now without us. Used to be that if you turned your back for a few seconds she'd be out the door, naked! LOL She hated to wear clothes and would strip down to nothing within minutes of you putting them on her. Then i'd have to chase her around the yard while she squealed with delight! LOL Theresa > > Night wandering is a serious problem, I would do what ever is necessary > to keep you child safe. My friends son with autism was a night wanderer, she > would sleep with her bed against his bedroom door so she would wake if he > got up. The last time he was up for three days straight, mom fell asleep on > the couch around 3-4 am with him in her arms. At 5 am she awoke to the front > door open. Long story short, he left the house went down the dirt road on to > a major road and was hit by a truck around 5 am. He died instantly. He was > on a lot of meds, including chloral hydrate for sleeping and it did not > help, if he wanted to be awake he would. > > On another note, my godson is having VNS surgery tomorrow. He has multiple > seizures daily and is on a lot of seizure meds. Dr. say this is not a cure > but will help reduce them also VNS helps to stabilize mood- they are now > using it as a treatment for depression and other mood disorders. > > > > night wandering? > To: Autism_in_Girls@ yahoogroups. com > Date: Tuesday, July 29, 2008, 3:19 PM > > Hello. I need help yet again. Juilanna, who is ten, is waking up at around > one in the morning and is just wandering everywhere being very destructive. > She used to get up and come find me. (the good old days) Now I don't sleep > so I can hear when she gets up. She has gotten up, let all the dogs out of > their crates (I'm in a rescue) took down all the gates to the bedrooms, let > the bird out (who was killed by one of the dogs), lost the hamster (haven't > found him yet) put yet another hole in her wall, and was just not herself at > all. She has broken everything in her room so she only has her bed and > dresser at this point. During the days she has started this high pitched > screaming (the kind that goes right through you) has become quite agitated > and doesn't hear me at all when I try to talk to her. When she does listen > to me she doesn't understand what I am saying.? She used to get really upset > when an animal died, but now she doesn't have any reaction > whatsoever. I don't get it. I cannot figure out what in the world is waking > her up. I have noticed that her fingernails are purple and she has dark > circles under her eyes and she is very pale. She does have seizures which > she takes medication and has the VNS for to help control them. It's so weird > because one minute she's fine, the next minute she's screaming, she hates > me, she's flailing all over the place?and I'm so afraid she's going to hurt > herself. She's hooked up for her feeds at night but she's been ripping that > out too. I'm trying to figure out a way to keep her in her room so she'll?be > safe but not seem inhumane at the same time. We have an appointment with the > Neurologist on Thursday but I wanted to post here because at least everyone > here understands. If anyone has any suggestions I would really, really > appreciate it! > Thanks! > Pam and nna 10 YRS. > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 30, 2008 Report Share Posted July 30, 2008 Oh my! How horrible for your friend! We've had several cases over the last few years where a child with autism has gotten away from their caregivers at night and wandered into area lakes and drowned. Breaks my heart. My daughter sleeps with me. Not something I ever really wanted to start, but it just kinda happened out of necessity. When she was a baby she slept in a bassinet near my bed then moved into her crib in her room, when her seizures started at 7mo. we moved her crib into our room and it stayed there till she out grew it (Tent and all) We've tried moving her back to her room a few times and moved her big sister in with her. But finding out she was having seizures at night we moved her back in with me. She has stopped getting up in the night for awhile now, which I'm so thankful for, because I was getting so exhausted with the waking up so much. But I knew that with her in my bed, I would wake up if she was getting out of the bed. We also have our alarm system set to chime when any exterior door is opened and Dad is a very light sleeper and would hear it for sure. Otherwise we can set our alarm to a STAY feature and if the door is opened it sets the alarm off right away and would scare her enough to stall her till one of us reached her and got her inside and turn off the alarm. We also put chain locks on the doors up high, but it didn't take long before she realized that she just needed to climb up on something to get it off. Thankfully she has passed that stage too and doesn't really try to go out now without us. Used to be that if you turned your back for a few seconds she'd be out the door, naked! LOL She hated to wear clothes and would strip down to nothing within minutes of you putting them on her. Then i'd have to chase her around the yard while she squealed with delight! LOL Theresa > > Night wandering is a serious problem, I would do what ever is necessary > to keep you child safe. My friends son with autism was a night wanderer, she > would sleep with her bed against his bedroom door so she would wake if he > got up. The last time he was up for three days straight, mom fell asleep on > the couch around 3-4 am with him in her arms. At 5 am she awoke to the front > door open. Long story short, he left the house went down the dirt road on to > a major road and was hit by a truck around 5 am. He died instantly. He was > on a lot of meds, including chloral hydrate for sleeping and it did not > help, if he wanted to be awake he would. > > On another note, my godson is having VNS surgery tomorrow. He has multiple > seizures daily and is on a lot of seizure meds. Dr. say this is not a cure > but will help reduce them also VNS helps to stabilize mood- they are now > using it as a treatment for depression and other mood disorders. > > > > night wandering? > To: Autism_in_Girls@ yahoogroups. com > Date: Tuesday, July 29, 2008, 3:19 PM > > Hello. I need help yet again. Juilanna, who is ten, is waking up at around > one in the morning and is just wandering everywhere being very destructive. > She used to get up and come find me. (the good old days) Now I don't sleep > so I can hear when she gets up. She has gotten up, let all the dogs out of > their crates (I'm in a rescue) took down all the gates to the bedrooms, let > the bird out (who was killed by one of the dogs), lost the hamster (haven't > found him yet) put yet another hole in her wall, and was just not herself at > all. She has broken everything in her room so she only has her bed and > dresser at this point. During the days she has started this high pitched > screaming (the kind that goes right through you) has become quite agitated > and doesn't hear me at all when I try to talk to her. When she does listen > to me she doesn't understand what I am saying.? She used to get really upset > when an animal died, but now she doesn't have any reaction > whatsoever. I don't get it. I cannot figure out what in the world is waking > her up. I have noticed that her fingernails are purple and she has dark > circles under her eyes and she is very pale. She does have seizures which > she takes medication and has the VNS for to help control them. It's so weird > because one minute she's fine, the next minute she's screaming, she hates > me, she's flailing all over the place?and I'm so afraid she's going to hurt > herself. She's hooked up for her feeds at night but she's been ripping that > out too. I'm trying to figure out a way to keep her in her room so she'll?be > safe but not seem inhumane at the same time. We have an appointment with the > Neurologist on Thursday but I wanted to post here because at least everyone > here understands. If anyone has any suggestions I would really, really > appreciate it! > Thanks! > Pam and nna 10 YRS. > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 30, 2008 Report Share Posted July 30, 2008 It devastated my friend he was her only child and her life. It has taken along time for her to start living again. My godson, has lots of seizures and used to get up at night and bang his head on the floor, he could not open doors. His teacher wanted to teach him to open doors but his mom told her absolutely not. (Just one of many disagreements with that teacher). He now sleeps in a tent, with the mattress inside the tent on the bed. He is zipped in at night so he won't get up or fall out. He is unable to unzip the tent. night wandering? > To: Autism_in_Girls@ yahoogroups. com > Date: Tuesday, July 29, 2008, 3:19 PM > > Hello. I need help yet again. Juilanna, who is ten, is waking up at around > one in the morning and is just wandering everywhere being very destructive. > She used to get up and come find me. (the good old days) Now I don't sleep > so I can hear when she gets up. She has gotten up, let all the dogs out of > their crates (I'm in a rescue) took down all the gates to the bedrooms, let > the bird out (who was killed by one of the dogs), lost the hamster (haven't > found him yet) put yet another hole in her wall, and was just not herself at > all. She has broken everything in her room so she only has her bed and > dresser at this point. During the days she has started this high pitched > screaming (the kind that goes right through you) has become quite agitated > and doesn't hear me at all when I try to talk to her. When she does listen > to me she doesn't understand what I am saying.? She used to get really upset > when an animal died, but now she doesn't have any reaction > whatsoever. I don't get it. I cannot figure out what in the world is waking > her up. I have noticed that her fingernails are purple and she has dark > circles under her eyes and she is very pale. She does have seizures which > she takes medication and has the VNS for to help control them. It's so weird > because one minute she's fine, the next minute she's screaming, she hates > me, she's flailing all over the place?and I'm so afraid she's going to hurt > herself. She's hooked up for her feeds at night but she's been ripping that > out too. I'm trying to figure out a way to keep her in her room so she'll?be > safe but not seem inhumane at the same time. We have an appointment with the > Neurologist on Thursday but I wanted to post here because at least everyone > here understands. If anyone has any suggestions I would really, really > appreciate it! > Thanks! > Pam and nna 10 YRS. > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 30, 2008 Report Share Posted July 30, 2008 It devastated my friend he was her only child and her life. It has taken along time for her to start living again. My godson, has lots of seizures and used to get up at night and bang his head on the floor, he could not open doors. His teacher wanted to teach him to open doors but his mom told her absolutely not. (Just one of many disagreements with that teacher). He now sleeps in a tent, with the mattress inside the tent on the bed. He is zipped in at night so he won't get up or fall out. He is unable to unzip the tent. night wandering? > To: Autism_in_Girls@ yahoogroups. com > Date: Tuesday, July 29, 2008, 3:19 PM > > Hello. I need help yet again. Juilanna, who is ten, is waking up at around > one in the morning and is just wandering everywhere being very destructive. > She used to get up and come find me. (the good old days) Now I don't sleep > so I can hear when she gets up. She has gotten up, let all the dogs out of > their crates (I'm in a rescue) took down all the gates to the bedrooms, let > the bird out (who was killed by one of the dogs), lost the hamster (haven't > found him yet) put yet another hole in her wall, and was just not herself at > all. She has broken everything in her room so she only has her bed and > dresser at this point. During the days she has started this high pitched > screaming (the kind that goes right through you) has become quite agitated > and doesn't hear me at all when I try to talk to her. When she does listen > to me she doesn't understand what I am saying.? She used to get really upset > when an animal died, but now she doesn't have any reaction > whatsoever. I don't get it. I cannot figure out what in the world is waking > her up. I have noticed that her fingernails are purple and she has dark > circles under her eyes and she is very pale. She does have seizures which > she takes medication and has the VNS for to help control them. It's so weird > because one minute she's fine, the next minute she's screaming, she hates > me, she's flailing all over the place?and I'm so afraid she's going to hurt > herself. She's hooked up for her feeds at night but she's been ripping that > out too. I'm trying to figure out a way to keep her in her room so she'll?be > safe but not seem inhumane at the same time. We have an appointment with the > Neurologist on Thursday but I wanted to post here because at least everyone > here understands. If anyone has any suggestions I would really, really > appreciate it! > Thanks! > Pam and nna 10 YRS. > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 30, 2008 Report Share Posted July 30, 2008 the dark circles could be food allergies. very common with asd. my daughter is severe and has always had severe sensory problems and gastrointestinal issues the go along with her diagnosis that cause sleep issues. we used to use med's to help her sleep but took many years and healed up her gut, and have her almost totally weaned from prescription meds. melatonin caused the opposite affect.............. sleeplessness. this can happen. my nt daughter tried it a few times and she said she had vivid dreams and woke up and could not go back to sleep the rest of the night. i have found that using L-theanine in combo with inositol has been very, very calming and effective. she sleeps from about 9 pm till 5 or 6 am, no waking. also i found in the past that constipation or any discomfort has caused night waking........... kathy new to group, but used to be a member. mom of abby, 13 with asd, and hannah 17, nt night wandering? To: Autism_in_Girls Date: Tuesday, July 29, 2008, 3:19 PM Hello. I need help yet again. Juilanna, who is ten, is waking up at around one in the morning and is just wandering everywhere being very destructive. She used to get up and come find me. (the good old days) Now I don't sleep so I can hear when she gets up. She has gotten up, let all the dogs out of their crates (I'm in a rescue) took down all the gates to the bedrooms, let the bird out (who was killed by one of the dogs), lost the hamster (haven't found him yet) put yet another hole in her wall, and was just not herself at all. She has broken everything in her room so she only has her bed and dresser at this point. During the days she has started this high pitched screaming (the kind that goes right through you) has become quite agitated and doesn't hear me at all when I try to talk to her. When she does listen to me she doesn't understand what I am saying.? She used to get really upset when an animal died, but now she doesn't have any reaction whatsoever. I don't get it. I cannot figure out what in the world is waking her up. I have noticed that her fingernails are purple and she has dark circles under her eyes and she is very pale. She does have seizures which she takes medication and has the VNS for to help control them. It's so weird because one minute she's fine, the next minute she's screaming, she hates me, she's flailing all over the place?and I'm so afraid she's going to hurt herself. She's hooked up for her feeds at night but she's been ripping that out too. I'm trying to figure out a way to keep her in her room so she'll?be safe but not seem inhumane at the same time. We have an appointment with the Neurologist on Thursday but I wanted to post here because at least everyone here understands. If anyone has any suggestions I would really, really appreciate it! Thanks! Pam and nna 10 YRS. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 30, 2008 Report Share Posted July 30, 2008 the dark circles could be food allergies. very common with asd. my daughter is severe and has always had severe sensory problems and gastrointestinal issues the go along with her diagnosis that cause sleep issues. we used to use med's to help her sleep but took many years and healed up her gut, and have her almost totally weaned from prescription meds. melatonin caused the opposite affect.............. sleeplessness. this can happen. my nt daughter tried it a few times and she said she had vivid dreams and woke up and could not go back to sleep the rest of the night. i have found that using L-theanine in combo with inositol has been very, very calming and effective. she sleeps from about 9 pm till 5 or 6 am, no waking. also i found in the past that constipation or any discomfort has caused night waking........... kathy new to group, but used to be a member. mom of abby, 13 with asd, and hannah 17, nt night wandering? To: Autism_in_Girls Date: Tuesday, July 29, 2008, 3:19 PM Hello. I need help yet again. Juilanna, who is ten, is waking up at around one in the morning and is just wandering everywhere being very destructive. She used to get up and come find me. (the good old days) Now I don't sleep so I can hear when she gets up. She has gotten up, let all the dogs out of their crates (I'm in a rescue) took down all the gates to the bedrooms, let the bird out (who was killed by one of the dogs), lost the hamster (haven't found him yet) put yet another hole in her wall, and was just not herself at all. She has broken everything in her room so she only has her bed and dresser at this point. During the days she has started this high pitched screaming (the kind that goes right through you) has become quite agitated and doesn't hear me at all when I try to talk to her. When she does listen to me she doesn't understand what I am saying.? She used to get really upset when an animal died, but now she doesn't have any reaction whatsoever. I don't get it. I cannot figure out what in the world is waking her up. I have noticed that her fingernails are purple and she has dark circles under her eyes and she is very pale. She does have seizures which she takes medication and has the VNS for to help control them. It's so weird because one minute she's fine, the next minute she's screaming, she hates me, she's flailing all over the place?and I'm so afraid she's going to hurt herself. She's hooked up for her feeds at night but she's been ripping that out too. I'm trying to figure out a way to keep her in her room so she'll?be safe but not seem inhumane at the same time. We have an appointment with the Neurologist on Thursday but I wanted to post here because at least everyone here understands. If anyone has any suggestions I would really, really appreciate it! Thanks! Pam and nna 10 YRS. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 30, 2008 Report Share Posted July 30, 2008 I agreee with that in this situation you should probably try mood stabilizers or medicine and also immediately start investigating the purple finger nails. I remember at some point hearing this was related to oxygen somehow. You're in our thoughts and prayers. -Dana Priscilla's mom > > Hello. I need help yet again. Juilanna, who is ten, is waking up at around one in the morning and is just wandering everywhere being very destructive. She used to get up and come find me. (the good old days) Now I don't sleep so I can hear when she gets up. She has gotten up, let all the dogs out of their crates (I'm in a rescue) took down all the gates to the bedrooms, let the bird out (who was killed by one of the dogs), lost the hamster (haven't found him yet) put yet another hole in her wall, and was just not herself at all. She has broken everything in her room so she only has her bed and dresser at this point. During the days she has started this high pitched screaming (the kind that goes right through you) has become quite agitated and doesn't hear me at all when I try to talk to her. When she does listen to me she doesn't understand what I am saying.? She used to get really upset when an animal died, but now she doesn't have any reaction whatsoever. I don't get it. I cannot figure out what in the world is waking her up. I have noticed that her fingernails are purple and she has dark circles under her eyes and she is very pale. She does have seizures which she takes medication and has the VNS for to help control them. It's so weird because one minute she's fine, the next minute she's screaming, she hates me, she's flailing all over the place?and I'm so afraid she's going to hurt herself. She's hooked up for her feeds at night but she's been ripping that out too. I'm trying to figure out a way to keep her in her room so she'll?be safe but not seem inhumane at the same time. We have an appointment with the Neurologist on Thursday but I wanted to post here because at least everyone here understands. If anyone has any suggestions I would really, really appreciate it! > Thanks! > Pam and nna 10 YRS. > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 30, 2008 Report Share Posted July 30, 2008 I agreee with that in this situation you should probably try mood stabilizers or medicine and also immediately start investigating the purple finger nails. I remember at some point hearing this was related to oxygen somehow. You're in our thoughts and prayers. -Dana Priscilla's mom > > Hello. I need help yet again. Juilanna, who is ten, is waking up at around one in the morning and is just wandering everywhere being very destructive. She used to get up and come find me. (the good old days) Now I don't sleep so I can hear when she gets up. She has gotten up, let all the dogs out of their crates (I'm in a rescue) took down all the gates to the bedrooms, let the bird out (who was killed by one of the dogs), lost the hamster (haven't found him yet) put yet another hole in her wall, and was just not herself at all. She has broken everything in her room so she only has her bed and dresser at this point. During the days she has started this high pitched screaming (the kind that goes right through you) has become quite agitated and doesn't hear me at all when I try to talk to her. When she does listen to me she doesn't understand what I am saying.? She used to get really upset when an animal died, but now she doesn't have any reaction whatsoever. I don't get it. I cannot figure out what in the world is waking her up. I have noticed that her fingernails are purple and she has dark circles under her eyes and she is very pale. She does have seizures which she takes medication and has the VNS for to help control them. It's so weird because one minute she's fine, the next minute she's screaming, she hates me, she's flailing all over the place?and I'm so afraid she's going to hurt herself. She's hooked up for her feeds at night but she's been ripping that out too. I'm trying to figure out a way to keep her in her room so she'll?be safe but not seem inhumane at the same time. We have an appointment with the Neurologist on Thursday but I wanted to post here because at least everyone here understands. If anyone has any suggestions I would really, really appreciate it! > Thanks! > Pam and nna 10 YRS. > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 30, 2008 Report Share Posted July 30, 2008 Ahh, the neighborhood streaker! That would be my child!!! I'm moving, but my current neighbors just laugh and help me coral her. The worst time was when she got out and I was in the shower with shampoo in my hair and I heard the door. You can imagine the scramble to throw on whatever clothes were closest. My new apartment manager has told me he will put on whatever locks I need to keep her in. It's nice to have a landlord that will with you. My current apartment the management told me that additional locks would be a fire hazard and they have the doorknobs that open from the inside even when locked...great for locking yourself out!!! And great for naked escape artists. It was kinda cute when she was 4...not so cute at six. > > From: pjrd67@... <pjrd67%40aol. com> <pjrd67@... <pjrd67%40aol. com> > > > Subject: night wandering? > To: Autism_in_Girls@ yahoogroups. com > Date: Tuesday, July 29, 2008, 3:19 PM > > Hello. I need help yet again. Juilanna, who is ten, is waking up at around > one in the morning and is just wandering everywhere being very destructive. > She used to get up and come find me. (the good old days) Now I don't sleep > so I can hear when she gets up. She has gotten up, let all the dogs out of > their crates (I'm in a rescue) took down all the gates to the bedrooms, let > the bird out (who was killed by one of the dogs), lost the hamster (haven't > found him yet) put yet another hole in her wall, and was just not herself at > all. She has broken everything in her room so she only has her bed and > dresser at this point. During the days she has started this high pitched > screaming (the kind that goes right through you) has become quite agitated > and doesn't hear me at all when I try to talk to her. When she does listen > to me she doesn't understand what I am saying.? She used to get really upset > when an animal died, but now she doesn't have any reaction > whatsoever. I don't get it. I cannot figure out what in the world is waking > her up. I have noticed that her fingernails are purple and she has dark > circles under her eyes and she is very pale. She does have seizures which > she takes medication and has the VNS for to help control them. It's so weird > because one minute she's fine, the next minute she's screaming, she hates > me, she's flailing all over the place?and I'm so afraid she's going to hurt > herself. She's hooked up for her feeds at night but she's been ripping that > out too. I'm trying to figure out a way to keep her in her room so she'll?be > safe but not seem inhumane at the same time. We have an appointment with the > Neurologist on Thursday but I wanted to post here because at least everyone > here understands. If anyone has any suggestions I would really, really > appreciate it! > Thanks! > Pam and nna 10 YRS. > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 30, 2008 Report Share Posted July 30, 2008 Ahh, the neighborhood streaker! That would be my child!!! I'm moving, but my current neighbors just laugh and help me coral her. The worst time was when she got out and I was in the shower with shampoo in my hair and I heard the door. You can imagine the scramble to throw on whatever clothes were closest. My new apartment manager has told me he will put on whatever locks I need to keep her in. It's nice to have a landlord that will with you. My current apartment the management told me that additional locks would be a fire hazard and they have the doorknobs that open from the inside even when locked...great for locking yourself out!!! And great for naked escape artists. It was kinda cute when she was 4...not so cute at six. > > From: pjrd67@... <pjrd67%40aol. com> <pjrd67@... <pjrd67%40aol. com> > > > Subject: night wandering? > To: Autism_in_Girls@ yahoogroups. com > Date: Tuesday, July 29, 2008, 3:19 PM > > Hello. I need help yet again. Juilanna, who is ten, is waking up at around > one in the morning and is just wandering everywhere being very destructive. > She used to get up and come find me. (the good old days) Now I don't sleep > so I can hear when she gets up. She has gotten up, let all the dogs out of > their crates (I'm in a rescue) took down all the gates to the bedrooms, let > the bird out (who was killed by one of the dogs), lost the hamster (haven't > found him yet) put yet another hole in her wall, and was just not herself at > all. She has broken everything in her room so she only has her bed and > dresser at this point. During the days she has started this high pitched > screaming (the kind that goes right through you) has become quite agitated > and doesn't hear me at all when I try to talk to her. When she does listen > to me she doesn't understand what I am saying.? She used to get really upset > when an animal died, but now she doesn't have any reaction > whatsoever. I don't get it. I cannot figure out what in the world is waking > her up. I have noticed that her fingernails are purple and she has dark > circles under her eyes and she is very pale. She does have seizures which > she takes medication and has the VNS for to help control them. It's so weird > because one minute she's fine, the next minute she's screaming, she hates > me, she's flailing all over the place?and I'm so afraid she's going to hurt > herself. She's hooked up for her feeds at night but she's been ripping that > out too. I'm trying to figure out a way to keep her in her room so she'll?be > safe but not seem inhumane at the same time. We have an appointment with the > Neurologist on Thursday but I wanted to post here because at least everyone > here understands. If anyone has any suggestions I would really, really > appreciate it! > Thanks! > Pam and nna 10 YRS. > > Quote Link to comment Share on other sites More sharing options...
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