Guest guest Posted July 30, 2008 Report Share Posted July 30, 2008 Ahh, the neighborhood streaker! That would be my child!!! I'm moving, but my current neighbors just laugh and help me coral her. The worst time was when she got out and I was in the shower with shampoo in my hair and I heard the door. You can imagine the scramble to throw on whatever clothes were closest. My new apartment manager has told me he will put on whatever locks I need to keep her in. It's nice to have a landlord that will with you. My current apartment the management told me that additional locks would be a fire hazard and they have the doorknobs that open from the inside even when locked...great for locking yourself out!!! And great for naked escape artists. It was kinda cute when she was 4...not so cute at six. > > From: pjrd67@... <pjrd67%40aol. com> <pjrd67@... <pjrd67%40aol. com> > > > Subject: night wandering? > To: Autism_in_Girls@ yahoogroups. com > Date: Tuesday, July 29, 2008, 3:19 PM > > Hello. I need help yet again. Juilanna, who is ten, is waking up at around > one in the morning and is just wandering everywhere being very destructive. > She used to get up and come find me. (the good old days) Now I don't sleep > so I can hear when she gets up. She has gotten up, let all the dogs out of > their crates (I'm in a rescue) took down all the gates to the bedrooms, let > the bird out (who was killed by one of the dogs), lost the hamster (haven't > found him yet) put yet another hole in her wall, and was just not herself at > all. She has broken everything in her room so she only has her bed and > dresser at this point. During the days she has started this high pitched > screaming (the kind that goes right through you) has become quite agitated > and doesn't hear me at all when I try to talk to her. When she does listen > to me she doesn't understand what I am saying.? She used to get really upset > when an animal died, but now she doesn't have any reaction > whatsoever. I don't get it. I cannot figure out what in the world is waking > her up. I have noticed that her fingernails are purple and she has dark > circles under her eyes and she is very pale. She does have seizures which > she takes medication and has the VNS for to help control them. It's so weird > because one minute she's fine, the next minute she's screaming, she hates > me, she's flailing all over the place?and I'm so afraid she's going to hurt > herself. She's hooked up for her feeds at night but she's been ripping that > out too. I'm trying to figure out a way to keep her in her room so she'll?be > safe but not seem inhumane at the same time. We have an appointment with the > Neurologist on Thursday but I wanted to post here because at least everyone > here understands. If anyone has any suggestions I would really, really > appreciate it! > Thanks! > Pam and nna 10 YRS. > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 30, 2008 Report Share Posted July 30, 2008 I don't know if you have ever seen a patient in brain surgery where they wake them up so they can place an electrode in the correct place. I have seen a few and it is interesting to watch what happens when they put it in the wrong place. This being an accute onset I would suspect it could definitely be related to the vns. It could produce the wrong effect as well as a positive effect. These sorts of devices are individual based. Do you have the ability to turn it off, to see if it could be a result of the DNS.....definitly I would start with her neurologist. As for suggestions on controlling the night prowling...my mother kept a slip lock on the outside of my bedroom door when I was little. I would sleep walk and somethimes pee somewhere other than the bathroom, wander outside, or wake up my sisters. I could open the door a few inches, but could not leave my room. I would not reccomend this due to risk of fire. But they do make alarms that can be turned on and off that would wake you up instantly if she opens a door or window. I'd reccommend one of these very inexpensive devises that can be found in the baby safety isle at most stores. I wish you luck! http://speakup.today.com autisticjessie > > From: pjrd67@... <pjrd67%40aol. com> <pjrd67@... <pjrd67%40aol. com> > > > Subject: night wandering? > To: Autism_in_Girls@ yahoogroups. com > Date: Tuesday, July 29, 2008, 3:19 PM > > Hello. I need help yet again. Juilanna, who is ten, is waking up at around > one in the morning and is just wandering everywhere being very destructive. > She used to get up and come find me. (the good old days) Now I don't sleep > so I can hear when she gets up. She has gotten up, let all the dogs out of > their crates (I'm in a rescue) took down all the gates to the bedrooms, let > the bird out (who was killed by one of the dogs), lost the hamster (haven't > found him yet) put yet another hole in her wall, and was just not herself at > all. She has broken everything in her room so she only has her bed and > dresser at this point. During the days she has started this high pitched > screaming (the kind that goes right through you) has become quite agitated > and doesn't hear me at all when I try to talk to her. When she does listen > to me she doesn't understand what I am saying.? She used to get really upset > when an animal died, but now she doesn't have any reaction > whatsoever. I don't get it. I cannot figure out what in the world is waking > her up. I have noticed that her fingernails are purple and she has dark > circles under her eyes and she is very pale. She does have seizures which > she takes medication and has the VNS for to help control them. It's so weird > because one minute she's fine, the next minute she's screaming, she hates > me, she's flailing all over the place?and I'm so afraid she's going to hurt > herself. She's hooked up for her feeds at night but she's been ripping that > out too. I'm trying to figure out a way to keep her in her room so she'll?be > safe but not seem inhumane at the same time. We have an appointment with the > Neurologist on Thursday but I wanted to post here because at least everyone > here understands. If anyone has any suggestions I would really, really > appreciate it! > Thanks! > Pam and nna 10 YRS. > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 30, 2008 Report Share Posted July 30, 2008 I don't know if you have ever seen a patient in brain surgery where they wake them up so they can place an electrode in the correct place. I have seen a few and it is interesting to watch what happens when they put it in the wrong place. This being an accute onset I would suspect it could definitely be related to the vns. It could produce the wrong effect as well as a positive effect. These sorts of devices are individual based. Do you have the ability to turn it off, to see if it could be a result of the DNS.....definitly I would start with her neurologist. As for suggestions on controlling the night prowling...my mother kept a slip lock on the outside of my bedroom door when I was little. I would sleep walk and somethimes pee somewhere other than the bathroom, wander outside, or wake up my sisters. I could open the door a few inches, but could not leave my room. I would not reccomend this due to risk of fire. But they do make alarms that can be turned on and off that would wake you up instantly if she opens a door or window. I'd reccommend one of these very inexpensive devises that can be found in the baby safety isle at most stores. I wish you luck! http://speakup.today.com autisticjessie > > From: pjrd67@... <pjrd67%40aol. com> <pjrd67@... <pjrd67%40aol. com> > > > Subject: night wandering? > To: Autism_in_Girls@ yahoogroups. com > Date: Tuesday, July 29, 2008, 3:19 PM > > Hello. I need help yet again. Juilanna, who is ten, is waking up at around > one in the morning and is just wandering everywhere being very destructive. > She used to get up and come find me. (the good old days) Now I don't sleep > so I can hear when she gets up. She has gotten up, let all the dogs out of > their crates (I'm in a rescue) took down all the gates to the bedrooms, let > the bird out (who was killed by one of the dogs), lost the hamster (haven't > found him yet) put yet another hole in her wall, and was just not herself at > all. She has broken everything in her room so she only has her bed and > dresser at this point. During the days she has started this high pitched > screaming (the kind that goes right through you) has become quite agitated > and doesn't hear me at all when I try to talk to her. When she does listen > to me she doesn't understand what I am saying.? She used to get really upset > when an animal died, but now she doesn't have any reaction > whatsoever. I don't get it. I cannot figure out what in the world is waking > her up. I have noticed that her fingernails are purple and she has dark > circles under her eyes and she is very pale. She does have seizures which > she takes medication and has the VNS for to help control them. It's so weird > because one minute she's fine, the next minute she's screaming, she hates > me, she's flailing all over the place?and I'm so afraid she's going to hurt > herself. She's hooked up for her feeds at night but she's been ripping that > out too. I'm trying to figure out a way to keep her in her room so she'll?be > safe but not seem inhumane at the same time. We have an appointment with the > Neurologist on Thursday but I wanted to post here because at least everyone > here understands. If anyone has any suggestions I would really, really > appreciate it! > Thanks! > Pam and nna 10 YRS. > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 30, 2008 Report Share Posted July 30, 2008 > > >> I have noticed that her fingernails are > purple and she has dark circles under her eyes and she is very pale. Purple fingernails can indicate a severe B12 deficiency. Dark circles under the eyes can indicate food intolerances, yeast or allergies. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 30, 2008 Report Share Posted July 30, 2008 > > >> I have noticed that her fingernails are > purple and she has dark circles under her eyes and she is very pale. Purple fingernails can indicate a severe B12 deficiency. Dark circles under the eyes can indicate food intolerances, yeast or allergies. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 30, 2008 Report Share Posted July 30, 2008 > > >> I have noticed that her fingernails are > purple and she has dark circles under her eyes and she is very pale. Purple fingernails can indicate a severe B12 deficiency. Dark circles under the eyes can indicate food intolerances, yeast or allergies. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 30, 2008 Report Share Posted July 30, 2008 living in an apt. you probably couldn't do this, but for others, have you tried the double key dead-bolt lock? you need your key to open the door. We have one on each of our doors that lead to the outside. > > > > > > From: pjrd67@... <pjrd67%40aol. com> <pjrd67@... <pjrd67%40aol. com> > > > > > > > Subject: night wandering? > > > To: Autism_in_Girls@ yahoogroups. com > > > Date: Tuesday, July 29, 2008, 3:19 PM > > > > > > Hello. I need help yet again. Juilanna, who is ten, is waking up at around > > > one in the morning and is just wandering everywhere being very destructive. > > > She used to get up and come find me. (the good old days) Now I don't sleep > > > so I can hear when she gets up. She has gotten up, let all the dogs out of > > > their crates (I'm in a rescue) took down all the gates to the bedrooms, let > > > the bird out (who was killed by one of the dogs), lost the hamster (haven't > > > found him yet) put yet another hole in her wall, and was just not herself at > > > all. She has broken everything in her room so she only has her bed and > > > dresser at this point. During the days she has started this high pitched > > > screaming (the kind that goes right through you) has become quite agitated > > > and doesn't hear me at all when I try to talk to her. When she does listen > > > to me she doesn't understand what I am saying.? She used to get really upset > > > when an animal died, but now she doesn't have any reaction > > > whatsoever. I don't get it. I cannot figure out what in the world is waking > > > her up. I have noticed that her fingernails are purple and she has dark > > > circles under her eyes and she is very pale. She does have seizures which > > > she takes medication and has the VNS for to help control them. It's so weird > > > because one minute she's fine, the next minute she's screaming, she hates > > > me, she's flailing all over the place?and I'm so afraid she's going to hurt > > > herself. She's hooked up for her feeds at night but she's been ripping that > > > out too. I'm trying to figure out a way to keep her in her room so she'll?be > > > safe but not seem inhumane at the same time. We have an appointment with the > > > Neurologist on Thursday but I wanted to post here because at least everyone > > > here understands. If anyone has any suggestions I would really, really > > > appreciate it! > > > Thanks! > > > Pam and nna 10 YRS. > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 30, 2008 Report Share Posted July 30, 2008 living in an apt. you probably couldn't do this, but for others, have you tried the double key dead-bolt lock? you need your key to open the door. We have one on each of our doors that lead to the outside. > > > > > > From: pjrd67@... <pjrd67%40aol. com> <pjrd67@... <pjrd67%40aol. com> > > > > > > > Subject: night wandering? > > > To: Autism_in_Girls@ yahoogroups. com > > > Date: Tuesday, July 29, 2008, 3:19 PM > > > > > > Hello. I need help yet again. Juilanna, who is ten, is waking up at around > > > one in the morning and is just wandering everywhere being very destructive. > > > She used to get up and come find me. (the good old days) Now I don't sleep > > > so I can hear when she gets up. She has gotten up, let all the dogs out of > > > their crates (I'm in a rescue) took down all the gates to the bedrooms, let > > > the bird out (who was killed by one of the dogs), lost the hamster (haven't > > > found him yet) put yet another hole in her wall, and was just not herself at > > > all. She has broken everything in her room so she only has her bed and > > > dresser at this point. During the days she has started this high pitched > > > screaming (the kind that goes right through you) has become quite agitated > > > and doesn't hear me at all when I try to talk to her. When she does listen > > > to me she doesn't understand what I am saying.? She used to get really upset > > > when an animal died, but now she doesn't have any reaction > > > whatsoever. I don't get it. I cannot figure out what in the world is waking > > > her up. I have noticed that her fingernails are purple and she has dark > > > circles under her eyes and she is very pale. She does have seizures which > > > she takes medication and has the VNS for to help control them. It's so weird > > > because one minute she's fine, the next minute she's screaming, she hates > > > me, she's flailing all over the place?and I'm so afraid she's going to hurt > > > herself. She's hooked up for her feeds at night but she's been ripping that > > > out too. I'm trying to figure out a way to keep her in her room so she'll?be > > > safe but not seem inhumane at the same time. We have an appointment with the > > > Neurologist on Thursday but I wanted to post here because at least everyone > > > here understands. If anyone has any suggestions I would really, really > > > appreciate it! > > > Thanks! > > > Pam and nna 10 YRS. > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 30, 2008 Report Share Posted July 30, 2008 living in an apt. you probably couldn't do this, but for others, have you tried the double key dead-bolt lock? you need your key to open the door. We have one on each of our doors that lead to the outside. > > > > > > From: pjrd67@... <pjrd67%40aol. com> <pjrd67@... <pjrd67%40aol. com> > > > > > > > Subject: night wandering? > > > To: Autism_in_Girls@ yahoogroups. com > > > Date: Tuesday, July 29, 2008, 3:19 PM > > > > > > Hello. I need help yet again. Juilanna, who is ten, is waking up at around > > > one in the morning and is just wandering everywhere being very destructive. > > > She used to get up and come find me. (the good old days) Now I don't sleep > > > so I can hear when she gets up. She has gotten up, let all the dogs out of > > > their crates (I'm in a rescue) took down all the gates to the bedrooms, let > > > the bird out (who was killed by one of the dogs), lost the hamster (haven't > > > found him yet) put yet another hole in her wall, and was just not herself at > > > all. She has broken everything in her room so she only has her bed and > > > dresser at this point. During the days she has started this high pitched > > > screaming (the kind that goes right through you) has become quite agitated > > > and doesn't hear me at all when I try to talk to her. When she does listen > > > to me she doesn't understand what I am saying.? She used to get really upset > > > when an animal died, but now she doesn't have any reaction > > > whatsoever. I don't get it. I cannot figure out what in the world is waking > > > her up. I have noticed that her fingernails are purple and she has dark > > > circles under her eyes and she is very pale. She does have seizures which > > > she takes medication and has the VNS for to help control them. It's so weird > > > because one minute she's fine, the next minute she's screaming, she hates > > > me, she's flailing all over the place?and I'm so afraid she's going to hurt > > > herself. She's hooked up for her feeds at night but she's been ripping that > > > out too. I'm trying to figure out a way to keep her in her room so she'll?be > > > safe but not seem inhumane at the same time. We have an appointment with the > > > Neurologist on Thursday but I wanted to post here because at least everyone > > > here understands. If anyone has any suggestions I would really, really > > > appreciate it! > > > Thanks! > > > Pam and nna 10 YRS. > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 30, 2008 Report Share Posted July 30, 2008 I think the new manager would be willing to do the keyed dead bolt thing, but the back door is a sliding door...yeah, fun. but the front door has a dead bolt and I think he would be willing to make the change. I talked to him about our situation and he had a step daughter that had ODD/bipolar and something else, so he is concerned about my daughter's safety and is sympathetic. Unfortunately she knows exactly what keys are for and how to use them. But her fine motor skills are still really bad...which for this works to my advantage. My mom and dad have chain locks that you actually have to work around a sorta curved T-shaped thing, placed at the top of the door. Even if she puts a chair up to the door she can't get these undone...for now. Subject: Re: night wandering? To: Autism_in_Girls Date: Wednesday, July 30, 2008, 4:50 PM living in an apt. you probably couldn't do this, but for others, have you tried the double key dead-bolt lock? you need your key to open the door. We have one on each of our doors that lead to the outside. > > > > > > From: pjrd67@... <pjrd67%40aol. com> <pjrd67@... <pjrd67%40aol. com> > > > > > > > Subject: night wandering? > > > To: Autism_in_Girls@ yahoogroups. com > > > Date: Tuesday, July 29, 2008, 3:19 PM > > > > > > Hello. I need help yet again. Juilanna, who is ten, is waking up at around > > > one in the morning and is just wandering everywhere being very destructive. > > > She used to get up and come find me. (the good old days) Now I don't sleep > > > so I can hear when she gets up. She has gotten up, let all the dogs out of > > > their crates (I'm in a rescue) took down all the gates to the bedrooms, let > > > the bird out (who was killed by one of the dogs), lost the hamster (haven't > > > found him yet) put yet another hole in her wall, and was just not herself at > > > all. She has broken everything in her room so she only has her bed and > > > dresser at this point. During the days she has started this high pitched > > > screaming (the kind that goes right through you) has become quite agitated > > > and doesn't hear me at all when I try to talk to her. When she does listen > > > to me she doesn't understand what I am saying.? She used to get really upset > > > when an animal died, but now she doesn't have any reaction > > > whatsoever. I don't get it. I cannot figure out what in the world is waking > > > her up. I have noticed that her fingernails are purple and she has dark > > > circles under her eyes and she is very pale. She does have seizures which > > > she takes medication and has the VNS for to help control them. It's so weird > > > because one minute she's fine, the next minute she's screaming, she hates > > > me, she's flailing all over the place?and I'm so afraid she's going to hurt > > > herself. She's hooked up for her feeds at night but she's been ripping that > > > out too. I'm trying to figure out a way to keep her in her room so she'll?be > > > safe but not seem inhumane at the same time. We have an appointment with the > > > Neurologist on Thursday but I wanted to post here because at least everyone > > > here understands. If anyone has any suggestions I would really, really > > > appreciate it! > > > Thanks! > > > Pam and nna 10 YRS. > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 30, 2008 Report Share Posted July 30, 2008 I think the new manager would be willing to do the keyed dead bolt thing, but the back door is a sliding door...yeah, fun. but the front door has a dead bolt and I think he would be willing to make the change. I talked to him about our situation and he had a step daughter that had ODD/bipolar and something else, so he is concerned about my daughter's safety and is sympathetic. Unfortunately she knows exactly what keys are for and how to use them. But her fine motor skills are still really bad...which for this works to my advantage. My mom and dad have chain locks that you actually have to work around a sorta curved T-shaped thing, placed at the top of the door. Even if she puts a chair up to the door she can't get these undone...for now. Subject: Re: night wandering? To: Autism_in_Girls Date: Wednesday, July 30, 2008, 4:50 PM living in an apt. you probably couldn't do this, but for others, have you tried the double key dead-bolt lock? you need your key to open the door. We have one on each of our doors that lead to the outside. > > > > > > From: pjrd67@... <pjrd67%40aol. com> <pjrd67@... <pjrd67%40aol. com> > > > > > > > Subject: night wandering? > > > To: Autism_in_Girls@ yahoogroups. com > > > Date: Tuesday, July 29, 2008, 3:19 PM > > > > > > Hello. I need help yet again. Juilanna, who is ten, is waking up at around > > > one in the morning and is just wandering everywhere being very destructive. > > > She used to get up and come find me. (the good old days) Now I don't sleep > > > so I can hear when she gets up. She has gotten up, let all the dogs out of > > > their crates (I'm in a rescue) took down all the gates to the bedrooms, let > > > the bird out (who was killed by one of the dogs), lost the hamster (haven't > > > found him yet) put yet another hole in her wall, and was just not herself at > > > all. She has broken everything in her room so she only has her bed and > > > dresser at this point. During the days she has started this high pitched > > > screaming (the kind that goes right through you) has become quite agitated > > > and doesn't hear me at all when I try to talk to her. When she does listen > > > to me she doesn't understand what I am saying.? She used to get really upset > > > when an animal died, but now she doesn't have any reaction > > > whatsoever. I don't get it. I cannot figure out what in the world is waking > > > her up. I have noticed that her fingernails are purple and she has dark > > > circles under her eyes and she is very pale. She does have seizures which > > > she takes medication and has the VNS for to help control them. It's so weird > > > because one minute she's fine, the next minute she's screaming, she hates > > > me, she's flailing all over the place?and I'm so afraid she's going to hurt > > > herself. She's hooked up for her feeds at night but she's been ripping that > > > out too. I'm trying to figure out a way to keep her in her room so she'll?be > > > safe but not seem inhumane at the same time. We have an appointment with the > > > Neurologist on Thursday but I wanted to post here because at least everyone > > > here understands. If anyone has any suggestions I would really, really > > > appreciate it! > > > Thanks! > > > Pam and nna 10 YRS. > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 30, 2008 Report Share Posted July 30, 2008 I think the new manager would be willing to do the keyed dead bolt thing, but the back door is a sliding door...yeah, fun. but the front door has a dead bolt and I think he would be willing to make the change. I talked to him about our situation and he had a step daughter that had ODD/bipolar and something else, so he is concerned about my daughter's safety and is sympathetic. Unfortunately she knows exactly what keys are for and how to use them. But her fine motor skills are still really bad...which for this works to my advantage. My mom and dad have chain locks that you actually have to work around a sorta curved T-shaped thing, placed at the top of the door. Even if she puts a chair up to the door she can't get these undone...for now. Subject: Re: night wandering? To: Autism_in_Girls Date: Wednesday, July 30, 2008, 4:50 PM living in an apt. you probably couldn't do this, but for others, have you tried the double key dead-bolt lock? you need your key to open the door. We have one on each of our doors that lead to the outside. > > > > > > From: pjrd67@... <pjrd67%40aol. com> <pjrd67@... <pjrd67%40aol. com> > > > > > > > Subject: night wandering? > > > To: Autism_in_Girls@ yahoogroups. com > > > Date: Tuesday, July 29, 2008, 3:19 PM > > > > > > Hello. I need help yet again. Juilanna, who is ten, is waking up at around > > > one in the morning and is just wandering everywhere being very destructive. > > > She used to get up and come find me. (the good old days) Now I don't sleep > > > so I can hear when she gets up. She has gotten up, let all the dogs out of > > > their crates (I'm in a rescue) took down all the gates to the bedrooms, let > > > the bird out (who was killed by one of the dogs), lost the hamster (haven't > > > found him yet) put yet another hole in her wall, and was just not herself at > > > all. She has broken everything in her room so she only has her bed and > > > dresser at this point. During the days she has started this high pitched > > > screaming (the kind that goes right through you) has become quite agitated > > > and doesn't hear me at all when I try to talk to her. When she does listen > > > to me she doesn't understand what I am saying.? She used to get really upset > > > when an animal died, but now she doesn't have any reaction > > > whatsoever. I don't get it. I cannot figure out what in the world is waking > > > her up. I have noticed that her fingernails are purple and she has dark > > > circles under her eyes and she is very pale. She does have seizures which > > > she takes medication and has the VNS for to help control them. It's so weird > > > because one minute she's fine, the next minute she's screaming, she hates > > > me, she's flailing all over the place?and I'm so afraid she's going to hurt > > > herself. She's hooked up for her feeds at night but she's been ripping that > > > out too. I'm trying to figure out a way to keep her in her room so she'll?be > > > safe but not seem inhumane at the same time. We have an appointment with the > > > Neurologist on Thursday but I wanted to post here because at least everyone > > > here understands. If anyone has any suggestions I would really, really > > > appreciate it! > > > Thanks! > > > Pam and nna 10 YRS. > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 30, 2008 Report Share Posted July 30, 2008 , When my daughter worked out how to pull something over to the door to undo the chain locks, my husband got a small screw and wing nut, the screw having a head just small enough to fit into the hole and slide down the slot and then the wing nut is used to tighten it down so that she could not undo that and then take the chain off. It saved me from having to chase her down many times. Of course it only worked when everyone remembered to put it back after using the door! Theresa Oh yeah, and they have several different types of locks for sliders that you can look into. Anything from spring loaded rods that to up at the top, or a pin that goes through both doors, and another that is like a flat piece of hinged metal and you flip the one hinge and it prevents the door from opening... All those wouldn't last long if she figures out how to undo them though, if she can reach them they're easily figured out. > > I think the new manager would be willing to do the keyed dead bolt > thing, but the back door is a sliding door...yeah, fun. but the front door > has a dead bolt and I think he would be willing to make the change. I > talked to him about our situation and he had a step daughter that had > ODD/bipolar and something else, so he is concerned about my daughter's > safety and is sympathetic. Unfortunately she knows exactly what keys are > for and how to use them. But her fine motor skills are still really > bad...which for this works to my advantage. My mom and dad have chain locks > that you actually have to work around a sorta curved T-shaped thing, placed > at the top of the door. Even if she puts a chair up to the door she can't > get these undone...for now. > > > From: <mamamia_miasmommy@... <mamamia_miasmommy%40yahoo.com> > > > Subject: Re: night wandering? > To: Autism_in_Girls <Autism_in_Girls%40yahoogroups.com> > Date: Wednesday, July 30, 2008, 4:50 PM > > living in an apt. you probably couldn't do this, but for others, have > > you tried the double key dead-bolt lock? you need your key to open > > the door. We have one on each of our doors that lead to the outside. > > > > > > > > > > > > > > > > From: pjrd67@... <pjrd67%40aol. com> <pjrd67@... <pjrd67%40aol. > > com> > > > > > > > > > > > > > > > Subject: night wandering? > > > > > > > To: Autism_in_Girls@ yahoogroups. com > > > > > > > Date: Tuesday, July 29, 2008, 3:19 PM > > > > > > > > > > > > > > Hello. I need help yet again. Juilanna, who is ten, is waking up > > at around > > > > > > > one in the morning and is just wandering everywhere being very > > destructive. > > > > > > > She used to get up and come find me. (the good old days) Now I > > don't sleep > > > > > > > so I can hear when she gets up. She has gotten up, let all the > > dogs out of > > > > > > > their crates (I'm in a rescue) took down all the gates to the > > bedrooms, let > > > > > > > the bird out (who was killed by one of the dogs), lost the > > hamster (haven't > > > > > > > found him yet) put yet another hole in her wall, and was just not > > herself at > > > > > > > all. She has broken everything in her room so she only has her > > bed and > > > > > > > dresser at this point. During the days she has started this high > > pitched > > > > > > > screaming (the kind that goes right through you) has become quite > > agitated > > > > > > > and doesn't hear me at all when I try to talk to her. When she > > does listen > > > > > > > to me she doesn't understand what I am saying.? She used to get > > really upset > > > > > > > when an animal died, but now she doesn't have any reaction > > > > > > > whatsoever. I don't get it. I cannot figure out what in the world > > is waking > > > > > > > her up. I have noticed that her fingernails are purple and she > > has dark > > > > > > > circles under her eyes and she is very pale. She does have > > seizures which > > > > > > > she takes medication and has the VNS for to help control them. > > It's so weird > > > > > > > because one minute she's fine, the next minute she's screaming, > > she hates > > > > > > > me, she's flailing all over the place?and I'm so afraid she's > > going to hurt > > > > > > > herself. She's hooked up for her feeds at night but she's been > > ripping that > > > > > > > out too. I'm trying to figure out a way to keep her in her room > > so she'll?be > > > > > > > safe but not seem inhumane at the same time. We have an > > appointment with the > > > > > > > Neurologist on Thursday but I wanted to post here because at > > least everyone > > > > > > > here understands. If anyone has any suggestions I would really, > > really > > > > > > > appreciate it! > > > > > > > Thanks! > > > > > > > Pam and nna 10 YRS. > > > > > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 30, 2008 Report Share Posted July 30, 2008 Just popping in, please forgive if this has been suggested. Seems I once read of an alarm to put on doors that had recordings the parents could make. So like, you could have it say, " No outside, inside. " or what ever. Also, there are those alarm things at Walmart where they use adhesive to put on doors & windows, are they called First Alert? Could it be if a horrific, ear-piercing noise went off a time or two that it would be a good negative reinforcement to stop the behavior? Also, service dogs can be trained to herd and bark to be a signal to the person they have gone to far, as well as to alert you to what's going on. Dunno, just brainstorming. Debi Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 30, 2008 Report Share Posted July 30, 2008 Just popping in, please forgive if this has been suggested. Seems I once read of an alarm to put on doors that had recordings the parents could make. So like, you could have it say, " No outside, inside. " or what ever. Also, there are those alarm things at Walmart where they use adhesive to put on doors & windows, are they called First Alert? Could it be if a horrific, ear-piercing noise went off a time or two that it would be a good negative reinforcement to stop the behavior? Also, service dogs can be trained to herd and bark to be a signal to the person they have gone to far, as well as to alert you to what's going on. Dunno, just brainstorming. Debi Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 31, 2008 Report Share Posted July 31, 2008 When I was younger I always had purple fingernails due to a heart murmur. I did outgrow it, but doctors watched me carefully as a child (poor circulation). I would have it checked out, but don't get too alarmed. Angie Kaylin's (4, ASD) Mom In a message dated 7/30/2008 12:55:30 P.M. Central Daylight Time, priscillasmum04@... writes: I agreee with that in this situation you should probably try mood stabilizers or medicine and also immediately start investigating the purple finger nails. I remember at some point hearing this was related to oxygen somehow. You're in our thoughts and prayers. -Dana Priscilla's mom > > Hello. I need help yet again. Juilanna, who is ten, is waking up at around one in the morning and is just wandering everywhere being very destructive. She used to get up and come find me. (the good old days) Now I don't sleep so I can hear when she gets up. She has gotten up, let all the dogs out of their crates (I'm in a rescue) took down all the gates to the bedrooms, let the bird out (who was killed by one of the dogs), lost the hamster (haven't found him yet) put yet another hole in her wall, and was just not herself at all. She has broken everything in her room so she only has her bed and dresser at this point. During the days she has started this high pitched screaming (the kind that goes right through you) has become quite agitated and doesn't hear me at all when I try to talk to her. When she does listen to me she doesn't understand what I am saying.? She used to get really upset when an animal died, but now she doesn't have any reaction whatsoever. I don't get it. I cannot figure out what in the world is waking her up. I have noticed that her fingernails are purple and she has dark circles under her eyes and she is very pale. She does have seizures which she takes medication and has the VNS for to help control them. It's so weird because one minute she's fine, the next minute she's screaming, she hates me, she's flailing all over the place?and I'm so afraid she's going to hurt herself. She's hooked up for her feeds at night but she's been ripping that out too. I'm trying to figure out a way to keep her in her room so she'll?be safe but not seem inhumane at the same time. We have an appointment with the Neurologist on Thursday but I wanted to post here because at least everyone here understands. If anyone has any suggestions I would really, really appreciate it! > Thanks! > Pam and nna 10 YRS. > > > [Non-text portions of this message have been removed] > **************Get fantasy football with free live scoring. Sign up for FanHouse Fantasy Football today. (http://www.fanhouse.com/fantasyaffair?ncid=aolspr00050000000020) Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 31, 2008 Report Share Posted July 31, 2008 When I was younger I always had purple fingernails due to a heart murmur. I did outgrow it, but doctors watched me carefully as a child (poor circulation). I would have it checked out, but don't get too alarmed. Angie Kaylin's (4, ASD) Mom In a message dated 7/30/2008 12:55:30 P.M. Central Daylight Time, priscillasmum04@... writes: I agreee with that in this situation you should probably try mood stabilizers or medicine and also immediately start investigating the purple finger nails. I remember at some point hearing this was related to oxygen somehow. You're in our thoughts and prayers. -Dana Priscilla's mom > > Hello. I need help yet again. Juilanna, who is ten, is waking up at around one in the morning and is just wandering everywhere being very destructive. She used to get up and come find me. (the good old days) Now I don't sleep so I can hear when she gets up. She has gotten up, let all the dogs out of their crates (I'm in a rescue) took down all the gates to the bedrooms, let the bird out (who was killed by one of the dogs), lost the hamster (haven't found him yet) put yet another hole in her wall, and was just not herself at all. She has broken everything in her room so she only has her bed and dresser at this point. During the days she has started this high pitched screaming (the kind that goes right through you) has become quite agitated and doesn't hear me at all when I try to talk to her. When she does listen to me she doesn't understand what I am saying.? She used to get really upset when an animal died, but now she doesn't have any reaction whatsoever. I don't get it. I cannot figure out what in the world is waking her up. I have noticed that her fingernails are purple and she has dark circles under her eyes and she is very pale. She does have seizures which she takes medication and has the VNS for to help control them. It's so weird because one minute she's fine, the next minute she's screaming, she hates me, she's flailing all over the place?and I'm so afraid she's going to hurt herself. She's hooked up for her feeds at night but she's been ripping that out too. I'm trying to figure out a way to keep her in her room so she'll?be safe but not seem inhumane at the same time. We have an appointment with the Neurologist on Thursday but I wanted to post here because at least everyone here understands. If anyone has any suggestions I would really, really appreciate it! > Thanks! > Pam and nna 10 YRS. > > > [Non-text portions of this message have been removed] > **************Get fantasy football with free live scoring. Sign up for FanHouse Fantasy Football today. (http://www.fanhouse.com/fantasyaffair?ncid=aolspr00050000000020) Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 31, 2008 Report Share Posted July 31, 2008 Yuck! What do u do if that is the caase? a protocol? and how would you find out if that is the case? Just curious... Dana Priscillas mom > > > > From: pjrd67@ pjrd67@ > > Subject: night wandering? > > To: Autism_in_Girls > > Date: Tuesday, July 29, 2008, 3:19 PM > > > > > > > > > > > > > > Hello. I need help yet again. Juilanna, who is ten, is waking up at > around one in the morning and is just wandering everywhere being very > destructive. She used to get up and come find me. (the good old days) > Now I don't sleep so I can hear when she gets up. She has gotten up, let > all the dogs out of their crates (I'm in a rescue) took down all the > gates to the bedrooms, let the bird out (who was killed by one of the > dogs), lost the hamster (haven't found him yet) put yet another hole in > her wall, and was just not herself at all. She has broken everything in > her room so she only has her bed and dresser at this point. During the > days she has started this high pitched screaming (the kind that goes > right through you) has become quite agitated and doesn't hear me at all > when I try to talk to her. When she does listen to me she doesn't > understand what I am saying.? She used to get really upset when an > animal died, but now she doesn't have any reaction > > whatsoever. I don't get it. I cannot figure out what in the world is > waking her up. I have noticed that her fingernails are purple and she > has dark circles under her eyes and she is very pale. She does have > seizures which she takes medication and has the VNS for to help control > them. It's so weird because one minute she's fine, the next minute she's > screaming, she hates me, she's flailing all over the place?and I'm so > afraid she's going to hurt herself. She's hooked up for her feeds at > night but she's been ripping that out too. I'm trying to figure out a > way to keep her in her room so she'll?be safe but not seem inhumane at > the same time. We have an appointment with the Neurologist on Thursday > but I wanted to post here because at least everyone here understands. If > anyone has any suggestions I would really, really appreciate it! > > Thanks! > > Pam and nna 10 YRS. > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 31, 2008 Report Share Posted July 31, 2008 Yuck! What do u do if that is the caase? a protocol? and how would you find out if that is the case? Just curious... Dana Priscillas mom > > > > From: pjrd67@ pjrd67@ > > Subject: night wandering? > > To: Autism_in_Girls > > Date: Tuesday, July 29, 2008, 3:19 PM > > > > > > > > > > > > > > Hello. I need help yet again. Juilanna, who is ten, is waking up at > around one in the morning and is just wandering everywhere being very > destructive. She used to get up and come find me. (the good old days) > Now I don't sleep so I can hear when she gets up. She has gotten up, let > all the dogs out of their crates (I'm in a rescue) took down all the > gates to the bedrooms, let the bird out (who was killed by one of the > dogs), lost the hamster (haven't found him yet) put yet another hole in > her wall, and was just not herself at all. She has broken everything in > her room so she only has her bed and dresser at this point. During the > days she has started this high pitched screaming (the kind that goes > right through you) has become quite agitated and doesn't hear me at all > when I try to talk to her. When she does listen to me she doesn't > understand what I am saying.? She used to get really upset when an > animal died, but now she doesn't have any reaction > > whatsoever. I don't get it. I cannot figure out what in the world is > waking her up. I have noticed that her fingernails are purple and she > has dark circles under her eyes and she is very pale. She does have > seizures which she takes medication and has the VNS for to help control > them. It's so weird because one minute she's fine, the next minute she's > screaming, she hates me, she's flailing all over the place?and I'm so > afraid she's going to hurt herself. She's hooked up for her feeds at > night but she's been ripping that out too. I'm trying to figure out a > way to keep her in her room so she'll?be safe but not seem inhumane at > the same time. We have an appointment with the Neurologist on Thursday > but I wanted to post here because at least everyone here understands. If > anyone has any suggestions I would really, really appreciate it! > > Thanks! > > Pam and nna 10 YRS. > > > > Quote Link to comment Share on other sites More sharing options...
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