~ My short story and frustrated

[Guest guest]

Mine went somthing like this. I had a hystorectomy in Feb (was able to keep

ovories) of 2006 recovered 6 months later started to feel so tired all the time

low back pain and hip pain wrist pain. Off and on stiff neck felt like coming

down with the flu. Saw my doctor he said I must be getting over a virus of some

kind. I was still dealing with wrist pain with hand going numb and tired all the

time. October of 2007 I came down with sore throat with the stiff neck pain and

joints in wrist, elbows, and shoulders also involved bad fever of 103 felt

terrible. Er Dr said high sedrate suspected Auto ammunine and needed to see RD.

I saw my primary first and he looked at blood work and said no its Hypothroid

put me on Lythroxine it seemed to give me more engergy but joint pain got worse

and now going into knees and having hot flashes and warm off in on all day

feeling ill. No rash yet but then switched to actualy sinthroid for Hypo and

then started to see a red

rash on my throat thought it had something to do with my thyroid didn't think

much off it. Noticed it getting bigger over days and then more often when I

would take a shower or get overheated and having those hot flashes. Getting

weaker by the day in and out of Er not finding anything wrong but high sedrate

could hardly walk sore throat before a real bad time and stiff neck. The rash

then started on my upper arms and back all over neck and throat. Took pictures

tried to see only RD in town he was booked also taking no new patints.

I then went out of town Feb the first week of Feb through a snow storm so I

would not miss my appoint ment the next morning. I got a hotel room with huby to

see RD Dr out of town for the next morning.

I was on the internet and found Stills web sight 2 days before Apt with RD

looked at rashes and read all about it sounded just like me, rashes looked like

mine. My husband thought the one picture was of my chest and I said no its

another womens. He was shocked said we need to take you out of town

RD out of town told me I did have Stills and He said I did good searching on

Google LOLt! That t I was right on the money with that diagnoses. I also since

then saw RD doctor localy got apt last Friday and he agreed with his secound

opionion that it indeed was AOS. I start 20 mg of Methotrexate on Friday and

down to was lowered off 40 since January from Primary Dr. MY new 25 Mg of pred

this week started a few flares over the weekend with lowering from 30 to 25 but

hanging in. Im being lowered on Sinthyroid now to from 50 mg to 25 and 5 of

cytemel wich is a t3 helper for the sinthyroid im a slower converter of the t3.

RD DR said that I should lower Sinthyroid because the Methotrexate might kick my

thyroid in gear also and I will over do it and get the shakes amd or go

hyperthyroid.

Any how, my story is a bit diffrent because I started with Joint pain first then

the rash and fevers came next.Thas this happend to? Anyone else? Is this odd for

Stills or does this disease menifest itself diffrent in dirrent people?

you can email me at rainofawildflowe@...

Also new stuff is happening and wondered if anyone else has leg pain and arm

pain like in the muscles and this is driving me nuts! maybe the Pred is doing it

but I get deep leg and back spasms like twiches feels like a baby kicking me. oh

it goes on all night soo frustrating!! I could show it to my husband the other

night it was so bad I had him watched my left leg, looked like there was a bug

in it trying to get out! Anyone else get these?

Thanks Stills buds

Ann Fultz

Re: Stills Symptoms??

Mandi...I didn't feel well for about 2 months prior to getting hammered,

but I just felt like it was a flu or something. Than I awoke @ 3:30 AM in

mid January of '04 unable to move, with uncontrollable chills and a

devastating headache, unable to speak as my throat was swollen almost

shut..etc. Add to that a fever over 105.

For me it is hard to say, as I am about positive that I've had a variant

of this since I became violently ill after receiving my vaccinations in the

military in late June of 1990.

Hope this answers your question. Adios, Kirk.

>

> Morning all I have been wondering if your Stills disease symptoms came

> on

> all at once or slowly over a period of time?

>

>

> In my case it took a few months short of two years for all my symptoms to

> come full circle. Rash was first many months later a swollen gland, months

>

> later a large swollen lymph node on the right side of the neck, a few more

>

> months then the wrist pain which would come and go. And then in mid

> January the

> fever, sore throat, weight loss, night sweats, and joint pain all came at

> once.

>

>

>

> Just wondering what everyone else experienced.

>

> As for me know I can go a few days with no fever or sore throat and then

> its

> right back. The rash is gone but I'm sure that is due to the 5mg of pred.

> Any one have their symptoms change week to week?

>

>

> Mandi

> Florida

>

> ************ **It's Tax Time! Get tips, forms, and advice on AOL Money &

> Finance. (http://money. aol.com/tax? NCID=aolprf00030 000000001)

>

>

[Guest guest]

,

I don't know if you were just having a muscle reaction but I have been told many

years ago that Still's can and does affect the muscles, tendons and linings of

any parts of our bodies, so given that I wouldn't be surprised that you may have

these symptoms as well but you should write down your symptoms to share with

your doctor, especially when newer diagnosed so they can see if it's the Stills

perhaps or make sure it's not anything else. I have had the inflammation of the

muscles and it is very painful as well and do get muscle spasms at times.

Hoping your day is better, Melt

----- Original Message -----

From: Fultz

Also new stuff is happening and wondered if anyone else has leg pain and arm

pain like in the muscles and this is driving me nuts!

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[Guest guest]

,

I don't know if you were just having a muscle reaction but I have been told many

years ago that Still's can and does affect the muscles, tendons and linings of

any parts of our bodies, so given that I wouldn't be surprised that you may have

these symptoms as well but you should write down your symptoms to share with

your doctor, especially when newer diagnosed so they can see if it's the Stills

perhaps or make sure it's not anything else. I have had the inflammation of the

muscles and it is very painful as well and do get muscle spasms at times.

Hoping your day is better, Melt

----- Original Message -----

From: Fultz

Also new stuff is happening and wondered if anyone else has leg pain and arm

pain like in the muscles and this is driving me nuts!

Recent Activity

a.. 2New Members

b.. 2New Photos

Visit Your Group

Meditation and

Lovingkindness

A Yahoo! Group

to share and learn.

Yahoo! Health

Heartburn or Worse

What symptoms

are most serious?

Y! Groups blog

The place to go

to stay informed

on Groups news!

.