-new member

[Guest guest]

Hi and welcome home.Pull up a chair and put your feet up.You will learn

so much so fast.Unlike most Drs. we have gone through most or all of the things

you are experiencing.We consider ourselves family.We come in many sizes shapes

and colors,but we all know what it's like to suffer with Stills.We are here for

you to vent complain, ask for advice or just listen and support you. We share

info on the meds we are on,side affects and Drs.,tests etc.You will feel good

here because we don't judge, we listen and try to boost your morale.So

welcome,share a little with us about your family,job,where you live,how you're

feeling that day,your likes and dislikes,special events in your life etc.If what

you are sharing,is not Stills related,please be kind and put O.T. in the subject

line so members of our family who are very ill and are looking for medical

advice won't have to read every post.Once again , welcome to the

family.Please do not give medical

advice,simply tell us what you are experiencing and ask that they contact their

Dr.

Elly

 

[Guest guest]

Hi ,

I'm Ellen. I live in South Florida after growing up in New York

State. After my diagnosis I was told to move someplace warm and I

have to admit it's been wonderful. Certainly not pain free but

wonderful for the most part. I haven't had a moment to read your

post but seeing Elly's I thought I'd say " hi " .

She's right you know. We are a family, an unusual one at that but

what family isn't. One thing I will tell you is that for the next

few days you won't see much of me on here. It's the High Holy Days

for us (Jewish tradition) but I will be back like a bad rash once I'm

not in Shul so much.

I would love to know more about you when you have an opportuntiy. As

you look at the top of the posting you will find personal email

addresses of the person posting to you. You are more than welcome to

privately email anyone and it's encouraged to do so. That way you

may make more of a connection with some of us.

Welcome to the fold. Relax, you're with family now and we understand

you better than you may think. Everyone shares the good and bad and

the in between here. When my father passed away I can't even begin

to tell you how wonderful it was to have all those cyber hugs!

Now, enough of this. Go rest. We'll be waiting here when you're

ready.

Take care and be well.

Ellen

[Guest guest]

Hi ,

I'm Ellen. I live in South Florida after growing up in New York

State. After my diagnosis I was told to move someplace warm and I

have to admit it's been wonderful. Certainly not pain free but

wonderful for the most part. I haven't had a moment to read your

post but seeing Elly's I thought I'd say " hi " .

She's right you know. We are a family, an unusual one at that but

what family isn't. One thing I will tell you is that for the next

few days you won't see much of me on here. It's the High Holy Days

for us (Jewish tradition) but I will be back like a bad rash once I'm

not in Shul so much.

I would love to know more about you when you have an opportuntiy. As

you look at the top of the posting you will find personal email

addresses of the person posting to you. You are more than welcome to

privately email anyone and it's encouraged to do so. That way you

may make more of a connection with some of us.

Welcome to the fold. Relax, you're with family now and we understand

you better than you may think. Everyone shares the good and bad and

the in between here. When my father passed away I can't even begin

to tell you how wonderful it was to have all those cyber hugs!

Now, enough of this. Go rest. We'll be waiting here when you're

ready.

Take care and be well.

Ellen