Guest guest Posted October 5, 2008 Report Share Posted October 5, 2008 Hello all - I am , I am a 25-year-old clinical microbiology student. I live in Nassau Bay, Texas with my (very new) husband/partner for the last six years, M. We share my seven-year-old prodigious daughter, " Bird " . I was recently diagnosed with Still's after a massive 'flare' that lasted from July until September of this year. It started with the rash, then 104 fevers, and finally completely debilitating joint pain. The rheumatologist could not decide on what it was until I spoke with a family friend who happens to be a retired neurologist, and he said Still's immediately after I presented my symptoms. I had never heard of it. I told my rheum, and she decided to do an abdominal ultrasound to confirm. As it turns out, the margins of my spleen are about 16 cm, which is just about insane, especially for someone of my petite stature. She said that this, in combination with the rest of the clinical picture, cemented Still's, and so, here I am. Pharm therapy has rid me of the febrile & urticarial symptoms, however, the joint pain is incredibly persistent, tho not nearly as ridiculous as it once was. Also, every time we try to taper off the Prednisone and hope the Plaquenil will take up the slack, the fever & rash return (this is my fourth attempt at tapering). This part really sucks cos I am set to graduate (finally!) in May 2009, and immune-suppression REALLY does not mix well with micro. Is there some other option?? I am very happy to have found the group - nobody I know has ever heard of Still's, and it's getting kinda lonely out here... -- A free race cannot be born of slave mothers. - Margaret Sanger Quote Link to comment Share on other sites More sharing options...
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