Wow (OT)

[Guest guest]

Greeting Mark,

Sorry to see that you see no connection between the

suffering that many other SD patients like myself have

endured or the past 45 years and the misdirection of

our tax dollars away from medical research that I

believe could improve the quality of our lives. I just

have an education that gives me a different way of

seeing SD than you do.

Last time I looked I didn't think that this was based

in Red China, denying one the privilege of expressing

one's views as to how I see a connection between SD

and U.S. medical services. Hurrah for the U.S.A. and

may the freedom of speech that our forefathers fought

so hard to protect not be lost.

Hopefully, November will help bring more Americans out

of their all too ubiquitous state of denial concerning

how our health system deals with SD and many other

orphan diseases. (I happened to have personally worked

for Senator McCain's first senatorial campaign

while living in Arizona and still believe he's a great

candidate for President, among others.) My apologies

for this political aside.

And by the way, I have also received positive

responses about my views. Who was that great American

debater who said: " I may not agree with your views,

but I will fight to the death for your right to

express them. " ?

No one is forcing anyone to read these posts. So why

not allow others the personal freedom to discuss SD in

a way that we understand it?

C.M.J.

--- Jody Klein wrote:

> Wow!!! I thought this was a Stills discussion group

> not a political opinion discussion group. Maybe

> since I have not been following emails in awhile

> things have changed.

>

Edited By Moderator