Guest guest Posted October 6, 2008 Report Share Posted October 6, 2008 Hi and a very warm welcome to you and yours.I was diagnosed after 4 years and thinking I was completely nuts! I have had Stills since forever it seems and yet I am still learning about it.When I found this group purely by accident it was better than winning the lottery.I hope you will find the frendships and info this group offers to be a soft place to fall when you feel bad.Please tell your new hubby (congrats) to feel free to ask for help in dealing with a Stills person,or simply to vent.We have all been where you are now and you do feel completely alone at times,or sick and tired of being sick and tired! LOL This group will be your second family and you will be taken under our wings along with your husband and daughter.We even have an official Mom and Dad, they are Bob (old goat) and Carole who bravely help us with everything from sending the correct e-mails to keeping our books.They lost a daughter to Stills sometime back and they are very valuable to us. Our symbol is the Dragon,because you never know when he will breath his fire on us and cause us to flare.We also often refer to the hospital as the resort.Probably because some of us have been there many times and everyone hates it.Just a little tongue in cheek humor! We need to laugh whenever possible sometimes to keep from screaming.Congrats on your approaching graduation,be proud and know we are for you. Elly Quote Link to comment Share on other sites More sharing options...
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