Self injurious behavior...again!!

[Guest guest]

My son has never had self-injurious behaviors unless you count picking a

scab on his arm. However, he has had undesirable behavior in the past which we

sought help for. We had a functional behavior assessment/analysis done by a

board certified behavior analyst. During the FBA two different BCBAs purposely

frustrated him to see what would trigger the targeted behavior we wanted to

work on. They say " behavior is communication. " My son was video taped and my

husband and I watched behind a two-way mirror so we could see what was

happening. After the FBA the BCBA gave us a report and

suggestions/recommendations

on what to work with him on. It was all about behavior modification.

CReece

**************Gas prices getting you down? Search AOL Autos for

fuel-efficient used cars.

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[Guest guest]

My son has never had self-injurious behaviors unless you count picking a

scab on his arm. However, he has had undesirable behavior in the past which we

sought help for. We had a functional behavior assessment/analysis done by a

board certified behavior analyst. During the FBA two different BCBAs purposely

frustrated him to see what would trigger the targeted behavior we wanted to

work on. They say " behavior is communication. " My son was video taped and my

husband and I watched behind a two-way mirror so we could see what was

happening. After the FBA the BCBA gave us a report and

suggestions/recommendations

on what to work with him on. It was all about behavior modification.

CReece

**************Gas prices getting you down? Search AOL Autos for

fuel-efficient used cars.

(http://autos.aol.com/used?ncid=aolaut00050000000007)

[Guest guest]

I have posted about 4 times the problems I have with self injurious

behavior and my child. I have had no help. I went to a

gastrointerologist, I have gone to a psychiatrist, I have gone to an

ENT, a medical doctor. I need help!!! I need to know what to do once

and for all to help my child. He can't progress in school, he can't be

around other children for long. He is 7 and this has only happened in

the past year. It won't stop. I have heard of DMG, probiotics, etc.

Doesn't anyone know anything to help me?

[Guest guest]

I wouldn't go by any of those specialists findings unless they are DAN

practitioners or other doctors in tune to the specific needs of kids on the

autism spectrum. I had the head of Texas Children's pediatric GI dept tell me

nothing was wrong with my child but I knew there was - we went through Dr.

Krigsman at the Thoughtfulhouse and my son had all sorts of GI issues diagnosed.

Don't give up on fixing his physical symptoms - I would also find therapists to

help you from a behavior standpoint as well. Hope this helps -

Self injurious behavior...again!!

I have posted about 4 times the problems I have with self injurious

behavior and my child. I have had no help. I went to a

gastrointerologist, I have gone to a psychiatrist, I have gone to an

ENT, a medical doctor. I need help!!! I need to know what to do once

and for all to help my child. He can't progress in school, he can't be

around other children for long. He is 7 and this has only happened in

the past year. It won't stop. I have heard of DMG, probiotics, etc.

Doesn't anyone know anything to help me?

[Guest guest]

Hi,

My daughter can be very self-injurious at times too. She is behavioral alot.

I thought for years it was because she was sick. But now I think most of the

time it is communication (she is verbal) but she loves our reaction. And she is

getting something out of it. Like an endorfin (sp.) release, ya know like kids

who cut themselves. My daughter is with MHMR services in Denton country, they

have contracted out ABA with UNT. So we have a couple of grad students working

with us. Right now they are observing and taking data and trust me she has

given them alot of data. By the way so have me and my husband. The best thing

is that it has made me more aware of how we are reacting. The more we are

reactive toward the behaviors...the more we see them and the more intense. I

hope this may help.

Best wishes.......I know hard hard it is to see our children hurt themselves.

amom2amanda

karirkb wrote:

I have posted about 4 times the problems I have with self injurious

behavior and my child. I have had no help. I went to a

gastrointerologist, I have gone to a psychiatrist, I have gone to an

ENT, a medical doctor. I need help!!! I need to know what to do once

and for all to help my child. He can't progress in school, he can't be

around other children for long. He is 7 and this has only happened in

the past year. It won't stop. I have heard of DMG, probiotics, etc.

Doesn't anyone know anything to help me?

......amom2amanda

(I can do all things through Him who strengthens me.)

PHILIPIANS 4:13

[Guest guest]

My son hits his head with his hands..sometimes a slap and sometimes a

fist. It can be at any time. It can be quiet and he is relaxed and

all of a sudden it starts or he can be in the middle of something and

it starts or he can be sleeping and it starts. I lived in Pearland

and now in Tomball. I need a DAN doctor. Can I afford that? Do they

take insurance and if not how much is it? I am a single mom with

three boys and the my 9 year old has Aspergers and my 7 year old is

non verbal. He is the one hitting himself. DMG, magnesium, yeast,

probiotcs...I have no idea what to do or how much to give or where to

go. I feel like I know so much and at the same time with each new

happening I again know nothing. This just started last year and was

told it was sinus but it is not anymore. Someone guide me...please!!

Kari

Is anyone in Tomball experienced enough to watch my children for the

rest of the summer and after school? I really need someone.

Again...someone guide me!!

>

> >

> > Subject: Self injurious behavior...again!!

> > To: Texas-Autism-Advocacy

> > Date: Monday, June 30, 2008, 7:13 PM

> > I have posted about 4 times the problems I have with self

> > injurious

> > behavior and my child. I have had no help. I went to a

> > gastrointerologist, I have gone to a psychiatrist, I have

> > gone to an

> > ENT, a medical doctor. I need help!!! I need to know what

> > to do once

> > and for all to help my child. He can't progress in

> > school, he can't be

> > around other children for long. He is 7 and this has only

> > happened in

> > the past year. It won't stop. I have heard of DMG,

> > probiotics, etc.

> > Doesn't anyone know anything to help me?

> >

> >

> > ------------------------------------

> >

> > Texas Autism Advocacy

> > www.TexasAutismAdvocacy.org

> >

> > Texas Disability Network

> > Calendar of Events

> > www.TexasAutismAdvocacy.org

[Guest guest]

ditto to some of below. mine chews on his finger. it's been knawed almost to

the bone and has the appearance of a broken & unset bone - but it's not broken,

it's just that the skin is ten times as thick now.

sometimes he knawes related to stress and sometimes comfort - like a kid sucks

their thumb.

i have noticed over the years that the more we say, get your hands out of your

mouth, the more he does it. what has worked better is to simply hand him an

item that he likes so he's forced to remove the hand and then play with the

item. also, i put gloves on his hands - leather, cloth, they don't taste very

good so the behavior is reduced.

i know a lot of people focus on eliminating food from the diet but i still say

it's just as important to see what they are not getting. don't change it, just

track the diet for several weeks and see if you notice when behavior gets bad or

good compared to foods ingested.

i'd also look into a neurologist. there may be some insight gained there as

well. in houston, both hermann & tch have neuro staff but there's a waiting

list.

I have posted about 4 times the problems I have with self injurious

behavior and my child. I have had no help. I went to a

gastrointerologist, I have gone to a psychiatrist, I have gone to an

ENT, a medical doctor. I need help!!! I need to know what to do once

and for all to help my child. He can't progress in school, he can't be

around other children for long. He is 7 and this has only happened in

the past year. It won't stop. I have heard of DMG, probiotics, etc.

Doesn't anyone know anything to help me?

......amom2ama nda

(I can do all things through Him who strengthens me.)

PHILIPIANS 4:13

[Guest guest]

ditto to some of below. mine chews on his finger. it's been knawed almost to

the bone and has the appearance of a broken & unset bone - but it's not broken,

it's just that the skin is ten times as thick now.

sometimes he knawes related to stress and sometimes comfort - like a kid sucks

their thumb.

i have noticed over the years that the more we say, get your hands out of your

mouth, the more he does it. what has worked better is to simply hand him an

item that he likes so he's forced to remove the hand and then play with the

item. also, i put gloves on his hands - leather, cloth, they don't taste very

good so the behavior is reduced.

i know a lot of people focus on eliminating food from the diet but i still say

it's just as important to see what they are not getting. don't change it, just

track the diet for several weeks and see if you notice when behavior gets bad or

good compared to foods ingested.

i'd also look into a neurologist. there may be some insight gained there as

well. in houston, both hermann & tch have neuro staff but there's a waiting

list.

I have posted about 4 times the problems I have with self injurious

behavior and my child. I have had no help. I went to a

gastrointerologist, I have gone to a psychiatrist, I have gone to an

ENT, a medical doctor. I need help!!! I need to know what to do once

and for all to help my child. He can't progress in school, he can't be

around other children for long. He is 7 and this has only happened in

the past year. It won't stop. I have heard of DMG, probiotics, etc.

Doesn't anyone know anything to help me?

......amom2ama nda

(I can do all things through Him who strengthens me.)

PHILIPIANS 4:13

[Guest guest]

ditto to some of below. mine chews on his finger. it's been knawed almost to

the bone and has the appearance of a broken & unset bone - but it's not broken,

it's just that the skin is ten times as thick now.

sometimes he knawes related to stress and sometimes comfort - like a kid sucks

their thumb.

i have noticed over the years that the more we say, get your hands out of your

mouth, the more he does it. what has worked better is to simply hand him an

item that he likes so he's forced to remove the hand and then play with the

item. also, i put gloves on his hands - leather, cloth, they don't taste very

good so the behavior is reduced.

i know a lot of people focus on eliminating food from the diet but i still say

it's just as important to see what they are not getting. don't change it, just

track the diet for several weeks and see if you notice when behavior gets bad or

good compared to foods ingested.

i'd also look into a neurologist. there may be some insight gained there as

well. in houston, both hermann & tch have neuro staff but there's a waiting

list.

I have posted about 4 times the problems I have with self injurious

behavior and my child. I have had no help. I went to a

gastrointerologist, I have gone to a psychiatrist, I have gone to an

ENT, a medical doctor. I need help!!! I need to know what to do once

and for all to help my child. He can't progress in school, he can't be

around other children for long. He is 7 and this has only happened in

the past year. It won't stop. I have heard of DMG, probiotics, etc.

Doesn't anyone know anything to help me?

......amom2ama nda

(I can do all things through Him who strengthens me.)

PHILIPIANS 4:13

[Guest guest]

I know that there are some in the group that strongly oppose

medication for behavioral issues. While I understand their

reservations, sometimes it's to the benefit of the child. My

daughter has had self injury issues since the age of 2 (she is now

10). We've used ABA principles for years, strict GF/CF diet, DMG,

CLO, and countless other supplements. These can be beneficial for

some kids, but mine never responded favorably to anything other than

ABA, and even then the self injury never seemed to abate. When my

daughter's SI behavior got to the point where she just couldn't seem

to stop herself and I feared a detached retina or other serious

injury, I found a good psychiatrist and started her on Risperdal.

It did help. I am not advocating for medication, it is most

certainly a last resort effort, but some of us are at the point of

last resort.

Read up on medications before you give them to your child.

Understand that there are benefits and potential side effects. Make

sure you consult with a psychiatrist that understands about

medicating kids with ASDs.

Aliza

[Guest guest]

The main thing on these cases is to get a proper workup. Do NOT just start

giving supplements, even though that might seem easy. Find a provider that you

are comfortable with and take the DAN approach. I do not know where you live,

but if you are anywhere near a large city, you will be able to find a provider

that will aid you. You can contact me offline and I will help you find someone

to get you a definitive diagnosis.

Jeff Cunningham, DC

, TX

www.zoesplaceclinic.com

Self injurious behavior...again!!

>

>

> I have posted about 4 times the problems I have with self

injurious

> behavior and my child. I have had no help. I went to a

> gastrointerologist, I have gone to a psychiatrist, I have gone to

an

> ENT, a medical doctor. I need help!!! I need to know what to do

once

> and for all to help my child. He can't progress in school, he

can't be

> around other children for long. He is 7 and this has only

happened in

> the past year. It won't stop. I have heard of DMG, probiotics,

etc.

> Doesn't anyone know anything to help me?

>

>

>

>

>

>

[Guest guest]

Very true.

and the self injurious behavior could have nothing to do with autism. it could

be a completely separate issue - tourette's for example.

although the drugs can change the child's personality, better to have a subdued

child and a safe household than the alternative.

Subject: Re: Self injurious behavior...again!!

To: Texas-Autism-Advocacy

Date: Wednesday, July 2, 2008, 6:29 AM

I know that there are some in the group that strongly oppose

medication for behavioral issues. While I understand their

reservations, sometimes it's to the benefit of the child. My

daughter has had self injury issues since the age of 2 (she is now

10). We've used ABA principles for years, strict GF/CF diet, DMG,

CLO, and countless other supplements. These can be beneficial for

some kids, but mine never responded favorably to anything other than

ABA, and even then the self injury never seemed to abate. When my

daughter's SI behavior got to the point where she just couldn't seem

to stop herself and I feared a detached retina or other serious

injury, I found a good psychiatrist and started her on Risperdal.

It did help. I am not advocating for medication, it is most

certainly a last resort effort, but some of us are at the point of

last resort.

Read up on medications before you give them to your child.

Understand that there are benefits and potential side effects. Make

sure you consult with a psychiatrist that understands about

medicating kids with ASDs.

Aliza

[Guest guest]

Depending on where the hitting is - head - stomach - knuckles, etc..

Sorry most of the time its gut related. It could be uppper Intestine,

small intestine, pain in the stomach, reflux, etc..

These kids are not hitting for no reason -- please look into

some of the books out there. Your child is having physcial symptoms

that need to be addressed. You need a good DAN DR - please don't give

up, there is help now days.

In the mean time - you can always give some good probotics -- thats

going to help - no matter what. Does your child burp a lot? Distended

stomach? Loose stools, color and form are important. Is your child

even having BM's everyday? That can also cause lots of discomfort.

What foods are eatten each day, wbat is he/she drinking?

These are all important questions.

What part of TX are you in? This will help direct you to someone

who can help.

Raise the head of your son's bed - slide a pillow at between

the mattress and box springs-- just enough to elevate the head

slightly at night.

www.thoughtfulhouse.org -- they deal with lots of gut issues.

Can you get your hands on some raw goats milk? From a local farm?

this will help too.

- In Texas-Autism-Advocacy , " Dr. Jeff Cunningham "

wrote:

>

> The main thing on these cases is to get a proper workup. Do NOT

just start giving supplements, even though that might seem easy.

Find a provider that you are comfortable with and take the DAN

approach. I do not know where you live, but if you are anywhere near

a large city, you will be able to find a provider that will aid you.

You can contact me offline and I will help you find someone to get

you a definitive diagnosis.

>

> Jeff Cunningham, DC

> , TX

> www.zoesplaceclinic.com

> Self injurious

behavior...again!!

> >

> >

> > I have posted about 4 times the problems I have with self

> injurious

> > behavior and my child. I have had no help. I went to a

> > gastrointerologist, I have gone to a psychiatrist, I have gone

to

> an

> > ENT, a medical doctor. I need help!!! I need to know what to do

> once

> > and for all to help my child. He can't progress in school, he

> can't be

> > around other children for long. He is 7 and this has only

> happened in

> > the past year. It won't stop. I have heard of DMG, probiotics,

> etc.

> > Doesn't anyone know anything to help me?

> >

> >

> >

> >

> >

> >

[Guest guest]

Aliza,

I agree about the meds. My daughter does take respidol and now there are

issues. Unfortunately the body changes and meds can take on issues.

Example.........my daughter has taken respirdol for along time. She started

showing signs of " tardive disconesha " spelling wrong? So we took her off but

had to put her back on. Other meds didn't work. So then we added " cogenton "

spelling again. Now she has been having a large spike in her prolactin levels

to the point of her breast swelling and lactating.........we did go to a endro

specialist and had a MRI which showed there wasn't not a putuitory tumor.

Yeah... We cut back on the amount of respedol and changed birth control pills

from Apri to Yaz...can only hope this helps! She is thirteen and it was hard

to explain. She kept saying " my boobs are broken, make the leak go away "

Now we sit in wait on the next issue that arises..

I am thankful that I am a true believer in Christ, I don't think I could get

through this without HIM!

amom2amanda

alizaratterree wrote:

I know that there are some in the group that strongly oppose

medication for behavioral issues. While I understand their

reservations, sometimes it's to the benefit of the child. My

daughter has had self injury issues since the age of 2 (she is now

10). We've used ABA principles for years, strict GF/CF diet, DMG,

CLO, and countless other supplements. These can be beneficial for

some kids, but mine never responded favorably to anything other than

ABA, and even then the self injury never seemed to abate. When my

daughter's SI behavior got to the point where she just couldn't seem

to stop herself and I feared a detached retina or other serious

injury, I found a good psychiatrist and started her on Risperdal.

It did help. I am not advocating for medication, it is most

certainly a last resort effort, but some of us are at the point of

last resort.

Read up on medications before you give them to your child.

Understand that there are benefits and potential side effects. Make

sure you consult with a psychiatrist that understands about

medicating kids with ASDs.

Aliza

......amom2amanda

(I can do all things through Him who strengthens me.)

PHILIPIANS 4:13

[Guest guest]

I live in Tomball. Everyone keeps saying you need a good DAN doctor

but no one gives any recommendations. I can't travel far because I

have no help and I have to work. I have to get this under control. I

have to find someone to watch my children after school and and school

holidays and holidays like Christmas vacation. Does anyone know

anyone that knows or is willing to watch an autistic child and his

older 9 year old brother?

> > >

> > > I wouldn't go by any of those specialists findings unless

they

> are

> > DAN practitioners or other doctors in tune to the specific

needs

> of

> > kids on the autism spectrum. I had the head of Texas Children's

> > pediatric GI dept tell me nothing was wrong with my child but I

> knew

> > there was - we went through Dr. Krigsman at the Thoughtfulhouse

> and

> > my son had all sorts of GI issues diagnosed. Don't give up on

> fixing

> > his physical symptoms - I would also find therapists to help

you

> from

> > a behavior standpoint as well. Hope this helps -

> > > Self injurious

> behavior...again!!

> > >

> > >

> > > I have posted about 4 times the problems I have with self

> > injurious

> > > behavior and my child. I have had no help. I went to a

> > > gastrointerologist, I have gone to a psychiatrist, I have

gone

> to

> > an

> > > ENT, a medical doctor. I need help!!! I need to know what to

do

> > once

> > > and for all to help my child. He can't progress in school, he

> > can't be

> > > around other children for long. He is 7 and this has only

> > happened in

> > > the past year. It won't stop. I have heard of DMG,

probiotics,

> > etc.

> > > Doesn't anyone know anything to help me?

> > >

> > >

> > >

> > >

> > >

> > >

[Guest guest]

Can someone help me find a DAN? How many of you have a DAN doctor?

Also does anyone know someone that watches autistic children? I am

desperate here?

>

> I agree that if you can find a reputable DAN! physician, go see

> him/her, it is worth a try- absolutely! However, from my personal

> experience, it can be very expensive (our insurance would not cover

> any related expenses other than a portion of the first visit),

there

> can be a lot of lab tests to run, etc.

>

> Our lab tests- and there were a great many- didn't reveal very

useful

> information, apparently. We followed the recommended supplement

> schedule, adhered strictly to the dietary recommendations, and

there

> was no improvement. After a year the DAN! physician prescribed...

> Risperdal.

>

> Go to a DAN! physician, by all means. But don't expect him/her to

> wave a magic wand and make the child well. Have realistic

> expectations. It may help, and it may not. Just like every other

> treatment and therapy.

>

> Our child has no gut problems, no fungal or yeast problems, no

other

> apparent physiological underpinnings for her behaviors.

>

> NOT every child will respond favorably to supplements and/or a

> holistic approach. Do not be made to feel guilty if you need to

> administer psychotropic medications. As I've said before,

sometimes

> it is necessary for the child's quality of life and for the sanity

of

> the entire family.

>

> Aliza

>

[Guest guest]

I am in Tomball, TX

>

> Where are u located?

> Sent via BlackBerry from T-Mobile

>

> Re: Self injurious

behavior...again!!

>

>

> Can someone help me find a DAN? How many of you have a DAN doctor?

> Also does anyone know someone that watches autistic children? I am

> desperate here?

>

>

[Guest guest]

I am in Tomball, TX

>

> Where are u located?

> Sent via BlackBerry from T-Mobile

>

> Re: Self injurious

behavior...again!!

>

>

> Can someone help me find a DAN? How many of you have a DAN doctor?

> Also does anyone know someone that watches autistic children? I am

> desperate here?

>

>