Re: Stacey: Lynda, double lumin implants

[Guest guest]

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lea

You are a very strong courageous lady.You have been through so much

yet you have an indomitable spirit. That is such good news that you

are doing better. How wonderful it would be if you are in

remission! If you aren't, at least you know you are headed in that

direction. I know what you are saying about stress. I have been

very stressed lately about a family situation and it has really made

me flare. But it is so hard not to stress out ---especially if you

have the kind of mercurial temperment I do. I have often wished

that I was one of those calm, steady, slow to get excited types. I

think too much, worry too much, and don't trust enough, and often

forget the words " be still and know that I am God " . Take care and

God bless

kathy

-- In , " Lea " <devans@c...> wrote:

>

> My Dear :

>

> My symptoms were like a very bad asthma and chronic

bronchitis attack. They were not typical of pulmonary embolisms! I

had no chest pain and did not cough up any blood, but I was in

respiratory distress. called an ambulance, and they hooked me

up to everything while taking instructions from my doctor. When I

arrived at the hospital, I could not remember what day it was or

where I was. They took me to have a VQ-scan, and that was when they

knew that I had pulmonary embolisms. They started me on a Heparin

drip, and then put me on Coumadin as well. They gave me 50mg of

Prednisone, and, of course, I was on oxygen and on the nebulizer. I

had been on the nebulizer since 2000, because that was when I went

into full respiratory distress for the first time. For years, I was

so short of breath that I could hardly do anything. I had this funny

little cough in the morning. I have never smoked, and my does

not smoke. I have been on blood thinners for almost one year and

antibiotics for the rest of my life. The h-pylori keeps coming back,

but has never contracted it from me. It is a serious

infectious disease, and it picked on me because my immune system is

destroyed.

>

> This is the first that I have not had to use the nebulizer,

and I'm off Prednisone. We think that the blood thinners have put me

into remission, but who knows. I just had many tests done one week

ago by my wonderful rheumatologist, but I still must be seen by my

pulmonary specialist. She will do another echocardiogram to see if

my heart is still enlarged. It was enlarged on both sides, and had a

stiffening of the right ventricle. I have Crest syndrome, MVP,

lupus, MS and osteoporosis...among other diseases. The list goes on,

but I am having some quality of life. My main problem is fatigue and

low back pain. I have difficulty walking, but the more I move the

better it gets. I have mild kidney disease as well, with a cystic

lesion on my left kidney.

> You have forced me to continue my story, bless your heart! I

have scanned some of my records in, and I will send them to anyone

who wants them. In 1985, I had a tumour on my liver, but it went

away, and now my liver is fine!

>

> I know that some things are getting better, and that one day

I might be well. Stress is very bad for me, so I try to avoid this

killer. I wish that I were a stronger person, but I'm so very

sensitive.

>

> Much love to all.............Lea

> ~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~`

>

>