-rash etc.

[Guest guest]

Hi , first of all like Larry said,you can never ask too many questions,I

have had Stills for 17 years or longer, since I had some mysterious symptoms

long before I knew anything was wrong other than normal aches and pains.I found

with my rash,the first time it covered most of my body it itched like crazy,and

I went to the ER and got a benedryl IV,thinking I was allergic to something.What

a rude awakening the next time when I couldn't be touched except on my hands or

I would scream with pain! I am not a screamer,but that pain did me in.

As for appitite,I was on 1,000 mg of pred. for four days and gained forty

pounds!I wanted to eat anything that was not moving! (No I didn't add too many

zeros,I got 4,000 mg. in four days) I was a very thin person when I got sick.My

normal weight was 118 and I am 5'8 " .I am older than many people in this

group,and I had 3 grown children and 5 grandchildren and am married to my High

School sweetheart for 40 years in March.I have a ton of family support,but

without this group and some closer than others friends I would be in a deep

depression,I am depressed,but coping.I am so happy you found us and that you are

completing your studies,who knows maybe you or another member will find a gene

or a cure for future sufferers.We already have much earlier diagnosis since I

joined.It took 4 years to diagnose me! Not good because this disease is still

unknow to many medical people,which makes you think you're crazy when noone else

thinks you are sick.Ok I've now

managed to write a fair size novel,so I will sign off.Please feel free to

contact anyone here for more questions you will come up with.No doubt there will

be someone who knows what you're talking about.

Elly