's post

[Guest guest]

Hello everyone, just wrote to me and besides the fact that she is so

very ill and at the Mayo center now this week undergoing so many tests she

cannot barely stand, her poor husband is beside himself as to how to cope or

help and is reaching out to others in hopes that someone that is a spouse,

maybe a man can visit with him in understanding and friendship. My

does not type so cannot email with him but I know this group has many

supportive members that have spouses that can help him and has

included his email if you would please help Rand by sending him your support

as well. Thank you our family,

Look to 's post below:

s - feel free to share this with the group - I just don't have the energy

to do it..

Thanks and take care

---------- Forwarded message ----------

allisonssong@...>

Date: Thu, Oct 16, 2008 at 3:34 PM

Subject: Re: conf

To: melt@...

Hi melly, it's past 4pm here and after just three days here, I feel

horrible. I can't take it... so many appts. They had me scheduled out

through next Friday. I thought I was going to lose it. I actually have...

every day. My poor husband. I think he could really use someone giving him

a lift... does ever email... (someone outside of the family).

So far, I have met with the RD (my feelings on him are still out for the

jury). He set up tons of apts and I was falling apart. My husband got the

brunt of it because the don't put you in the hospital - so crazy - I feel

horrible from trying to get to apt to apt.

Anyway -

so far - I have had the RD apt, 8 viles of blood after that, then a chest x

ray. That was day one. (Tues)

(Wed) I had a Dermatologist apt in the morning that took all morning and

they decided to take out a nodule to biopsy. It was an incision biopsy that

took about an hour. I didn't feel it at all - now just a tiny bit soar and

stitches with incision of about 3/4 inch.

in the afternoon, I had and endoscope, so I was not allowed to drink or eat

at all yesterday until that was over. We got back to the room at about 4

pm.

Today started at 7:30 with an injection of some sort of die for a whole body

scan. Then at 10:30 they did the scan, which took about 30 minutes, after

that I had a Pain Doctor Consult. That was pretty good, because I want to

get off of acted, but don't know how to. They think I should - I've been

on it too long and probably isn't helping anymore. I have to see a

different pain doc tomorrow at pm. Once I am off of it, then I can get

shots in my back or a pump (In Nashville to help with pain)...

After that we had a little time to get back to the room for a rest.

This afternoon I had an apt with an ENT to talk about my Right ear. He says

two surgeries and recommends the same doc in Nashville that I have an appt

set up for in Nov( around the 20th I think).

tomorrow is a CT ab/pelvis scan at 8:10 and then another pain doc at 1:00pm

The weekend is nothing

Monday I have a GI consult to go over the endoscope and CT scans and an MRI

of my Brain.

Tuesday I have an Infectious Disease doc appt.

After that I can go back to the RD and then done...

at first they had me scheduled through next Friday. We managed to get into

those apts this week by going to the desk and asking for them to fit me in

earlier. I think they took pity on me

We are hoping to get back on the road next wed. It's been really hard, but

I know it will be worth it. I am a pin cushion and have stitches on my

right arm.

I was pretty much wide awake during the endoscope and think they found

something with that, other than that - everything else is reviewed with the

RD at the end..

I am not sleeping well. I hurt all over from the fibro and I am going to

try to take less actiq and use other meds instead. So much fun. I've had

fevers of about 100 every day, even though my normal is around 96-96.5 so I

am freezing or sweating and always a mess. Insurance is crazy that they

don't just put you in the hospital to get this done. Poor rand, I have

basically blamed him for anything that has gone wrong every day because this

activity level is way more than I can handle. He was wanting a support

group for spouses. If your husband is up to it, can you ask him to email

him at Randme@.... I think it may help him through this.

thanks for everything.

Take care,

Hugs,

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