[Fwd: Re: Thank youstills Doctor Harry]

[Guest guest]

Sorry I posted twice, This computer is new to me and the email is

different. This wound up being an emotional complaint session. It was

not my

intention.I feel like I am bardging in because I really do read the

posts but don't post much due to the pain of just plain sitting at the

computer. I feel like Cort is showing us a pie chart and statistics with

out thinking of our feelings. Sometimes just saying Yes, That Sucks But

We Are Here For You, or even give some advice that sounds like it was

coming from a human and not a clinical robot is what we need sometimes.

There are good and bad doctors everywhere. I would not want to be

anything but an American and to hear someone who doesnt even live here

tell us about (our problems???) is something you would not get if you

dont live here. I was not told I had Stills until a flare hit me 5 years

ago and crippled me for a year. I am still lost a lot of the time, but I

know I can rely on the kindness and honesty from the hearts of the

people here. My boyfriend supports Stills and reads the posts also

as do many of the loved ones in our lives. We talk about the people and

I even update him. The people here are a family and I would rather have

a family of people to make me laugh or feel comfortable enough to open

up when they need to. I have had a good cry several times just because

so many people in my life don't believe me, but there are people going

thru the same crap and CARE. I take 15 meds a day and my medical bills

and meds are mostly paid for. I did have a problem getting methatrexate

but I got it and I am thankful. I like my doctor who is not able to cure

a disease that affects me and she does as much as she can and is

responsible and caring, like so many in the world. I have had crappy

doctors along the way and great ones I really miss. It is sad that

instead of being warm and comforting, which I have always been treated

here, that someone comes in to tell us WHY we feel the way we do, as if

we did not know in the 1st place. I know why I feel upset and depressed

and enraged and even confused or just plain petrified. I do not work

anymore from Stills, but I do receive SSDI and insurance to cover all I

need. I had RA before the Stills. Stills is much worse, in my case and

the crappy auto immune diseases just piled up. I in no way feel that I

am worse off or more deserving of empathy than anyone. We all

individually feel the pain we have no matter what condition. I do

complain about insurance here because people understand and get me out

of my rut.

My father is a Marine and Veteran, from Viet Nam. He was a weapons

specialst and his helicopter crashed in the ocean. As much as my Dad has

put me thru I love and respect him. I am 35 but was dx w/ JRA at 11. My

Dad got me into Shriner's hospital for free. There were many crippled

children flown in to come here to Shriners from all over the world. The

day I was addmitted I realized just how lucky I was to get to be

American. I also went to St. s for children for visits.

I am sorry, Stills has no country, so leave Americans out of it. I am

American and couldnt be prouder.

Thank you I love you guys Sharon xxoo