Guest guest Posted July 13, 2008 Report Share Posted July 13, 2008 Yes. Seizures. We ended up getting onto MDCP very quickly through the Rider 28 program. Geraldine _____ From: Texas-Autism-Advocacy [mailto:Texas-Autism-Advocacy ] On Behalf Of jade2x9 Sent: Sunday, July 13, 2008 7:21 PM To: Texas-Autism-Advocacy Subject: MDCP Has anyone been able to utilize Medically Dependent Children Program with an autism diagnosis? We are years away from getting CLASS or HCS but getting closer for MDCP. If you are willing to share - what qualified you if you were able to get into this program? Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 14, 2008 Report Share Posted July 14, 2008 In a message dated 7/13/2008 7:21:31 PM Central Daylight Time, jade2x9@... writes: Has anyone been able to utilize Medically Dependent Children Program with an autism diagnosis? We are years away from getting CLASS or HCS but getting closer for MDCP. If you are willing to share - what qualified you if you were able to get into this program? We are qualified for MDCP, but I don't know if it is related strictly related to his autism. He qualified/came off the waiting list June, 2007 when he was 11. His speech skills are 12-14 months. His gross and fine motor, which may be related to his mild hypotonic cerebral palsy, are at 12-14 months with scattering in 36 months for fine motor, 24-36 gross motor. He cannot prepare his own food to eat. He can go the bathroom during daytime hours with supervisor (i.e., if he has a bowel movement, he needs help wiping), and because he is growing, sometimes when he urinates, he overshoots (he is sitting for urination) and his clothes get wet and need changing. Because he has a seizure disorder and there is a possibility of him having a seizure while I'm not here, he can only have a nurse. This has made finding someone extremely difficult. We had someone from Oct to June and she quit in June and they've been running ads since mid-June when she gave notice and they haven't been able to find anybody " for what Medicaid pays. " The person who left was in school still and was about to sit for her licensing exams. Now that she has graduated, she wants to work in the hospital setting. I don't know how long we will go without somebody. It also took about 3 months for us to even find an agency to take us and then it took them almost 6 weeks to find someone for us. The caseworker is awful. I just found out from another parent that the diapers he uses at night still can be paid for, but we have no phone number to call our current caseworker to see what we need to do to get this. We pay about $1300 a year for diapers, so we can certainly use that money. If didn't need medication administered to him (even the slim possibility), then an attendant would have been easier to find. So I guess each program has its pluses and minuses. Hilda **************Get the scoop on last night's hottest shows and the live music scene in your area - Check out TourTracker.com! (http://www.tourtracker.com?NCID=aolmus00050000000112) Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 18, 2008 Report Share Posted July 18, 2008 Hilda, RE: Diapers paid for by medicaid... all you need is a script written by the doctor and a pharmacy that does medical supplies. Where are you located? I know of a pharmacy in San , and they deliver with UPS and they also charge that to medicaid as well. We all know the difficulty of going places with our kids, and one less place we have to go is much easier and much less trying, and is definitely worth it.. Good luck Ria Re: MDCP In a message dated 7/13/2008 7:21:31 PM Central Daylight Time, jade2x9yahoo (DOT) com writes: Has anyone been able to utilize Medically Dependent Children Program with an autism diagnosis? We are years away from getting CLASS or HCS but getting closer for MDCP. If you are willing to share - what qualified you if you were able to get into this program? We are qualified for MDCP, but I don't know if it is related strictly related to his autism. He qualified/came off the waiting list June, 2007 when he was 11. His speech skills are 12-14 months. His gross and fine motor, which may be related to his mild hypotonic cerebral palsy, are at 12-14 months with scattering in 36 months for fine motor, 24-36 gross motor. He cannot prepare his own food to eat. He can go the bathroom during daytime hours with supervisor (i.e., if he has a bowel movement, he needs help wiping), and because he is growing, sometimes when he urinates, he overshoots (he is sitting for urination) and his clothes get wet and need changing. Because he has a seizure disorder and there is a possibility of him having a seizure while I'm not here, he can only have a nurse. This has made finding someone extremely difficult. We had someone from Oct to June and she quit in June and they've been running ads since mid-June when she gave notice and they haven't been able to find anybody " for what Medicaid pays. " The person who left was in school still and was about to sit for her licensing exams. Now that she has graduated, she wants to work in the hospital setting. I don't know how long we will go without somebody. It also took about 3 months for us to even find an agency to take us and then it took them almost 6 weeks to find someone for us. The caseworker is awful. I just found out from another parent that the diapers he uses at night still can be paid for, but we have no phone number to call our current caseworker to see what we need to do to get this. We pay about $1300 a year for diapers, so we can certainly use that money. If didn't need medication administered to him (even the slim possibility) , then an attendant would have been easier to find. So I guess each program has its pluses and minuses. Hilda ************ **Get the scoop on last night's hottest shows and the live music scene in your area - Check out TourTracker. com! (http://www.tourtrac ker.com?NCID= aolmus0005000000 0112) Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 25, 2008 Report Share Posted July 25, 2008 Regarding MDCP...Certain areas can get children in on an emergency basis. That has been the case for a few families in West Texas. The children had seizures, asthma and other issues that complicated the AU DX...Also, as posted before, this is a good time for a MR DX. My guess is that children with AU test MR because they have a hard time comprehending what they read or they take the word literally. I have heard stories that if the tests for IQ were administered verbally with questions about how the words " fit " together that the child would actuall be in the normal/high IQ range. ....But those are just stories. Contact the local MDCP person and see if emergency funding is available. It might reduce the wait. PS...If you are on medicaid, there is a new program, PCS, that will provide hours for nurses/respite. Knott PARTNERS RESOURCE NETWORK PEN PROJECT REGIONAL COORDINATOR Toll Free: www.partnerstx.org INFORMATION is POWER and you know your child best. The information contained may include confidential information. If you received this document in error, please notify us immediately at the number listed above, and destroy this e-mail immediately. Re: MDCP My son was able to get it with autism as his dx, but they also asked about other labels and i gave them. Au, Si, Mr (MR b/c of low IQ) but that got him in and they will get a detailed analysis of what he can and cannot do. And be honest- I know you hate for it to look as if they can hardly function w/o supervision/ help, but if that's the case by all means tell them. I felt really bad because of everything they were asking me there were so many no's, so I tried to clean it up by masking some of his limitations, but in the end it hurt him. the amount they award is based on the level of need, and he really needed it. If you have medicaid, you can also contact them for diapers. I think the company some use is medcare or medco?? i'm not sure, but there is a seperate division of medicaid that will also pay for him to have home-health services which is different than respite. So get your respite through mdcp and home health through (i think it's called PCCM)?? Call medicaid and ask them and they will tell you how to go about that. Sorry I didn't have more information, but I hope this can help you. ~Keisha > > > In a message dated 7/13/2008 7:21:31 PM Central Daylight Time, > jade2x9@... writes: > > Has anyone been able to utilize Medically Dependent Children Program > with an autism diagnosis? We are years away from getting CLASS or HCS > but getting closer for MDCP. If you are willing to share - what > qualified you if you were able to get into this program? > > > > We are qualified for MDCP, but I don't know if it is related strictly > related to his autism. He qualified/came off the waiting list June, 2007 when he > was 11. His speech skills are 12-14 months. His gross and fine motor, which > may be related to his mild hypotonic cerebral palsy, are at 12-14 months with > scattering in 36 months for fine motor, 24-36 gross motor. He cannot > prepare his own food to eat. He can go the bathroom during daytime hours with > supervisor (i.e., if he has a bowel movement, he needs help wiping), and because > he is growing, sometimes when he urinates, he overshoots (he is sitting for > urination) and his clothes get wet and need changing. Because he has a > seizure disorder and there is a possibility of him having a seizure while I'm not > here, he can only have a nurse. This has made finding someone extremely > difficult. We had someone from Oct to June and she quit in June and they've been > running ads since mid-June when she gave notice and they haven't been able to > find anybody " for what Medicaid pays. " The person who left was in school > still and was about to sit for her licensing exams. Now that she has > graduated, she wants to work in the hospital setting. I don't know how long we will > go without somebody. It also took about 3 months for us to even find an > agency to take us and then it took them almost 6 weeks to find someone for us. > The caseworker is awful. I just found out from another parent that the diapers > he uses at night still can be paid for, but we have no phone number to call > our current caseworker to see what we need to do to get this. We pay about > $1300 a year for diapers, so we can certainly use that money. If > didn't need medication administered to him (even the slim possibility) , then an > attendant would have been easier to find. > > So I guess each program has its pluses and minuses. > > Hilda > > > > ************ **Get the scoop on last night's hottest shows and the live music > scene in your area - Check out TourTracker. com! > (http://www.tourtrac ker.com?NCID= aolmus0005000000 0112) > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 22, 2009 Report Share Posted July 22, 2009 Has anyone ever used their MDCP funds or medicaid to purchase a big kid stroller? If so please share your experience and advice. And any advice on different strollers!! Thanks!!Sent via BlackBerry by AT&TFrom: "Colleen Hunter" Date: Wed, 22 Jul 2009 19:29:02 -0500 (Central Daylight Time)To: <Texas-Autism-Advocacy >Subject: Re: Schools Where in south Louisiana did you move from?We looked at Monarch because I really like the RDI program, but I just didn't get a good feel about where Monarch is academically. Colleen -- Schools Hi,We are from southern Louisiana and are considering a move to Texas or, actually, wherever we can find a good school for our son . He is 11 years old and has been attending a private school with a full-time shadow. He has an autism diagnosis but has some great strengths (music and math) and deficits (social and language, specifically reading comprehension). We've done a lot of different types of therapy but our main focus now is the school setting and social deficits. From reading the emails in this group, I am very hopeful about the services Texas has generally. Does anyone know of a good private school or public school district????ThanksColleen Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 22, 2009 Report Share Posted July 22, 2009 Medicaid covered a Convaid E-Z Rider stroller/wheelchair for my son. We have been very happy with it. It's very easy to transport, compared to a regular wheelchair, and there is a transit model available. I'm not sure MDCP would cover it, since it's covered by Medicaid as a medical benefit (durable medical equipment). My son's Convaid was considered medically necessary, since he has been having so many seizures. I'm sure there are probably many conditions for which a stroller/wheelchair would be considered medically necessary - the thing to do would be to call a good DME company and talk to them about your child's needs. They should know how to do all the coding for Medicaid. The DME company will probably require your child's OT or PT to do some paperwork. We used Rehab Specialties in Houston. Geraldine Schools Hi, We are from southern Louisiana and are considering a move to Texas or, actually, wherever we can find a good school for our son . He is 11 years old and has been attending a private school with a full-time shadow. He has an autism diagnosis but has some great strengths (music and math) and deficits (social and language, specifically reading comprehension). We've done a lot of different types of therapy but our main focus now is the school setting and social deficits. From reading the emails in this group, I am very hopeful about the services Texas has generally. Does anyone know of a good private school or public school district???? Thanks Colleen Quote Link to comment Share on other sites More sharing options...
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