new member

[Guest guest]

hello to everybody, i want to introduce myself a little bit since i am new

here...

my name is nadine,i am 27 years old and i am from austria/europe.i was diagnosed

with SD in november 2007-thank god somebody found out what i have after i was

hospitalized last september for 4 weeks with fever of unknown origin.i came back

from around a world trip at that time and doctors were of course worried that i

might have some weird tropical desease...they tested me for EVERYTHING and i

have a long long list of deaeases i do NOT have :-)

last november this high fever,terrible sore throat, the rush and muscle pain

came again-an internist sat down and did some research and told me what he

thought i might have.he of course put me on 50 mg of prednislone.

i was down to 5 mg four weeks ago-had still some joint pain (never had swollen

joints though),but fell perfectly healthy.went on this rock-climbing trip with

friends,worked a lot and BANG-a couple days after that i found myself back in

hospital.unable to move,terrible pain...i don´t have to explain,becaue you all

know.

and again,the doctors gave me 75 mg of cortisone and it took a couple days until

i got a little better.right now i am also seeing a RD who had SD patients.he

suggested to get down from 75 to 25 mg.then from 25 to 20 (within a week),from

20 to 15 (within a week)and then we have to see.if i should relapse he wants to

put me on MTX or one of all the other meds..

today i decreased my dose from 25 to 20 and i am so tired...

so this is my story so far-i do not have any experiences with meds other than

prednislone and am curious to know if there is a med-combination that works best

and what you all do to avoid any relaps.

all the best,

nadine

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