Guest guest Posted November 16, 2004 Report Share Posted November 16, 2004 Hey guys, I am new here. I have been looking for a good surgeon to explant in the Denver area. I have heard the names Huang and Grossman mentioned a few times. Can anyone give me more information on them? I would be willing to travel to find a doctor. Honestly, I just want the best doctor I can find for explanting. Is it worth traveling? thanks, kathleen Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 20, 2005 Report Share Posted October 20, 2005 We're in Boulder and were also told to "live with" our son's asymmetry at Children's in Denver. Their orthotist is not very sympathetic and treats only very severe cases of plagio. His name is Greg Smidt and when he met with him, he refused to even measure my son. So, I started taking him to CT in Phoenix. Good luck and let me know if you find anyone closer. Mom to Ava, 3 years old and , 7 months, Right tort. outbackyak2 wrote: I'm looking for information on a clinic that produces and treats with bands in Colorado. I have a 5 1/2 month old daughter with torticollis, mild facial asymmetry, but severe ear asymmetry. Neurosurgeon at Children's told us to just live with it, it couldn't be improved. We realize that there are many more severe cases out there, and that the doctors frequently see much worse. Fortunately, I only have to worry about my daughter. If there's a way to correct her headshape, we feel like we should give it a try. The Cranial Facial Clinic nurse said she will send us more information, but we also want to know more about the bands they use, and anyone's experience there. Thanks! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 20, 2005 Report Share Posted October 20, 2005 We're in Boulder and were also told to "live with" our son's asymmetry at Children's in Denver. Their orthotist is not very sympathetic and treats only very severe cases of plagio. His name is Greg Smidt and when he met with him, he refused to even measure my son. So, I started taking him to CT in Phoenix. Good luck and let me know if you find anyone closer. Mom to Ava, 3 years old and , 7 months, Right tort. outbackyak2 wrote: I'm looking for information on a clinic that produces and treats with bands in Colorado. I have a 5 1/2 month old daughter with torticollis, mild facial asymmetry, but severe ear asymmetry. Neurosurgeon at Children's told us to just live with it, it couldn't be improved. We realize that there are many more severe cases out there, and that the doctors frequently see much worse. Fortunately, I only have to worry about my daughter. If there's a way to correct her headshape, we feel like we should give it a try. The Cranial Facial Clinic nurse said she will send us more information, but we also want to know more about the bands they use, and anyone's experience there. Thanks! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 20, 2005 Report Share Posted October 20, 2005 Hello and welcome to the group! I see that has responded w/her experience which sounds pretty disappointing. I have one other contact in Denver: Hanger Prosthetics & Orthotics West, Inc., 2005 lin Street, Suite 660 Denver, CO 80205 Greg Penfold (303) 863-9090 I'm not familiar with this location but perhaps you can call them and set up an appt for information. Here is the email address of another member who used them boomgirl79 (remove spaces before and after @) Please keep us posted. Natasha Atlanta > > I'm looking for information on a clinic that produces and treats with > bands in Colorado. I have a 5 1/2 month old daughter with > torticollis, mild facial asymmetry, but severe ear asymmetry. > Neurosurgeon at Children's told us to just live with it, it couldn't > be improved. We realize that there are many more severe cases out > there, and that the doctors frequently see much worse. Fortunately, I > only have to worry about my daughter. If there's a way to correct her > headshape, we feel like we should give it a try. The Cranial Facial > Clinic nurse said she will send us more information, but we also want > to know more about the bands they use, and anyone's experience there. > Thanks! > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 20, 2005 Report Share Posted October 20, 2005 Hello and welcome to the group! I see that has responded w/her experience which sounds pretty disappointing. I have one other contact in Denver: Hanger Prosthetics & Orthotics West, Inc., 2005 lin Street, Suite 660 Denver, CO 80205 Greg Penfold (303) 863-9090 I'm not familiar with this location but perhaps you can call them and set up an appt for information. Here is the email address of another member who used them boomgirl79 (remove spaces before and after @) Please keep us posted. Natasha Atlanta > > I'm looking for information on a clinic that produces and treats with > bands in Colorado. I have a 5 1/2 month old daughter with > torticollis, mild facial asymmetry, but severe ear asymmetry. > Neurosurgeon at Children's told us to just live with it, it couldn't > be improved. We realize that there are many more severe cases out > there, and that the doctors frequently see much worse. Fortunately, I > only have to worry about my daughter. If there's a way to correct her > headshape, we feel like we should give it a try. The Cranial Facial > Clinic nurse said she will send us more information, but we also want > to know more about the bands they use, and anyone's experience there. > Thanks! > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 21, 2005 Report Share Posted October 21, 2005 Hi! I am in Denver also. I spent an hour with Dr. Handler and he also told us to live with it. But I knew he did not support bands before I visisted with him. We received our Hanger band last week for my 6 mos old boy. Helmets are not common practice in Denver but we decided to do something before his head fused. The address below is the correct one. Hanger is located downtown across the street from Pres./St. Lukes. If you have any other questions I would love to help. > > > > I'm looking for information on a clinic that produces and treats > with > > bands in Colorado. I have a 5 1/2 month old daughter with > > torticollis, mild facial asymmetry, but severe ear asymmetry. > > Neurosurgeon at Children's told us to just live with it, it > couldn't > > be improved. We realize that there are many more severe cases out > > there, and that the doctors frequently see much worse. > Fortunately, I > > only have to worry about my daughter. If there's a way to correct > her > > headshape, we feel like we should give it a try. The Cranial > Facial > > Clinic nurse said she will send us more information, but we also > want > > to know more about the bands they use, and anyone's experience > there. > > Thanks! > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 21, 2005 Report Share Posted October 21, 2005 Hi! I am in Denver also. I spent an hour with Dr. Handler and he also told us to live with it. But I knew he did not support bands before I visisted with him. We received our Hanger band last week for my 6 mos old boy. Helmets are not common practice in Denver but we decided to do something before his head fused. The address below is the correct one. Hanger is located downtown across the street from Pres./St. Lukes. If you have any other questions I would love to help. > > > > I'm looking for information on a clinic that produces and treats > with > > bands in Colorado. I have a 5 1/2 month old daughter with > > torticollis, mild facial asymmetry, but severe ear asymmetry. > > Neurosurgeon at Children's told us to just live with it, it > couldn't > > be improved. We realize that there are many more severe cases out > > there, and that the doctors frequently see much worse. > Fortunately, I > > only have to worry about my daughter. If there's a way to correct > her > > headshape, we feel like we should give it a try. The Cranial > Facial > > Clinic nurse said she will send us more information, but we also > want > > to know more about the bands they use, and anyone's experience > there. > > Thanks! > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 21, 2005 Report Share Posted October 21, 2005 Hi - thanks for the information. Have you had a good experience with that office? I'm a little nervous about the overall lack of enthusiasm for this type of treatment in CO. My daughter's plagio is fairly mild, but I want to be confident that the treatment will work the first time. I'm worried about trying something, then having to go try something else. Also, from the small amount of information I have been able to find, it seems that the Hanger band takes a little longer than the DOC band. Maybe the people posting about that band were just more severe to start with? I can't find a picture of the Hanger Band. Is it the same as the Nic Band I saw on one site? Tammywally72_99 <wall04@...> wrote: Hi! I am in Denver also. I spent an hour with Dr. Handler and he also told us to live with it. But I knew he did not support bands before I visisted with him. We received our Hanger band last week for my 6 mos old boy. Helmets are not common practice in Denver but we decided to do something before his head fused. The address below is the correct one. Hanger is located downtown across the street from Pres./St. Lukes. If you have any other questions I would love to help.> >> > I'm looking for information on a clinic that produces and treats > with > > bands in Colorado. I have a 5 1/2 month old daughter with > > torticollis, mild facial asymmetry, but severe ear asymmetry. > > Neurosurgeon at Children's told us to just live with it, it > couldn't > > be improved. We realize that there are many more severe cases out > > there, and that the doctors frequently see much worse. > Fortunately, I > > only have to worry about my daughter. If there's a way to correct > her > > headshape, we feel like we should give it a try. The Cranial > Facial > > Clinic nurse said she will send us more information, but we also > want > > to know more about the bands they use, and anyone's experience > there. > > Thanks!> >> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 21, 2005 Report Share Posted October 21, 2005 Hi - thanks for the information. Have you had a good experience with that office? I'm a little nervous about the overall lack of enthusiasm for this type of treatment in CO. My daughter's plagio is fairly mild, but I want to be confident that the treatment will work the first time. I'm worried about trying something, then having to go try something else. Also, from the small amount of information I have been able to find, it seems that the Hanger band takes a little longer than the DOC band. Maybe the people posting about that band were just more severe to start with? I can't find a picture of the Hanger Band. Is it the same as the Nic Band I saw on one site? Tammywally72_99 <wall04@...> wrote: Hi! I am in Denver also. I spent an hour with Dr. Handler and he also told us to live with it. But I knew he did not support bands before I visisted with him. We received our Hanger band last week for my 6 mos old boy. Helmets are not common practice in Denver but we decided to do something before his head fused. The address below is the correct one. Hanger is located downtown across the street from Pres./St. Lukes. If you have any other questions I would love to help.> >> > I'm looking for information on a clinic that produces and treats > with > > bands in Colorado. I have a 5 1/2 month old daughter with > > torticollis, mild facial asymmetry, but severe ear asymmetry. > > Neurosurgeon at Children's told us to just live with it, it > couldn't > > be improved. We realize that there are many more severe cases out > > there, and that the doctors frequently see much worse. > Fortunately, I > > only have to worry about my daughter. If there's a way to correct > her > > headshape, we feel like we should give it a try. The Cranial > Facial > > Clinic nurse said she will send us more information, but we also > want > > to know more about the bands they use, and anyone's experience > there. > > Thanks!> >> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 21, 2005 Report Share Posted October 21, 2005 Hi Tammy, I could not agree with you more! Children's Hospital in Denver is one of the finest in the country yet they are so far behind in the area of banding. It was also a huge disappointment for us. After we had a kind of bad experience with the orthotist I mentioned at Children's and then read about how orthotists do all sorts of orthotics for the body and may or may not be experienced with helmets or STAR bands (STAR band is what they use at Children's in Denver by the way), we just decided to go with Cranial Technologies since all they do are bands and it seemed like a lot of folks had good experiences with them. We were told that in our son's case, a passive helmet (such as HANGER) would not be very effective compared to an active pressure band, such as DOC or STAR. I AM NOT trying to sell Cranial Technologies to you though. You have to make your own choice as to what is right for your daughter and your family. For us, it's a struggle to make the trips to Phoenix but we decided early on that we'd rather do this once the right way during a rather narrow window of opportunity for correction instead of taking a chance with an orthotist who may or may not be able to help our son with his mild plagio and facial asymmetry (a result of torticollis). Good luck to you in whatever your decision is. I know it's not easy. PS Do you know about Angel Flight? We assumed that we would not qualify since Grffin's case is so mild but it may be worth looking into. They provide free flights for plagio babies. I think there is info. about them on this Web site and I am sure other members could give you more information as well. in Boulder Mom to Ava, 3 years old and , 7 months, Right tort. resolving, mild plagio and facial asymmetry Tammy Tucker wrote: Thanks for the information! I'm so disappointed in Children's approach. They're one of the best hospitals in the country, and the Physical Therapy has been excellent. They promote great, equal care for all children...except only the most severe plagio kids. Doesn't seem to fit. Did you look into any of the local facilities before going to CT? Just curious why you decided to travel vs. staying local. Right now I'm more inclined to make the trip as well, but not sure. Thanks! ", , Ava & Basch" <BaschTribe@...> wrote: We're in Boulder and were also told to "live with" our son's asymmetry at Children's in Denver. Their orthotist is not very sympathetic and treats only very severe cases of plagio. His name is Greg Smidt and when he met with him, he refused to even measure my son. So, I started taking him to CT in Phoenix. Good luck and let me know if you find anyone closer. Mom to Ava, 3 years old and , 7 months, Right tort. outbackyak2 wrote: I'm looking for information on a clinic that produces and treats with bands in Colorado. I have a 5 1/2 month old daughter with torticollis, mild facial asymmetry, but severe ear asymmetry. Neurosurgeon at Children's told us to just live with it, it couldn't be improved. We realize that there are many more severe cases out there, and that the doctors frequently see much worse. Fortunately, I only have to worry about my daughter. If there's a way to correct her headshape, we feel like we should give it a try. The Cranial Facial Clinic nurse said she will send us more information, but we also want to know more about the bands they use, and anyone's experience there. Thanks! FareChase - Search multiple travel sites in one click. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 21, 2005 Report Share Posted October 21, 2005 Hi Tammy, I could not agree with you more! Children's Hospital in Denver is one of the finest in the country yet they are so far behind in the area of banding. It was also a huge disappointment for us. After we had a kind of bad experience with the orthotist I mentioned at Children's and then read about how orthotists do all sorts of orthotics for the body and may or may not be experienced with helmets or STAR bands (STAR band is what they use at Children's in Denver by the way), we just decided to go with Cranial Technologies since all they do are bands and it seemed like a lot of folks had good experiences with them. We were told that in our son's case, a passive helmet (such as HANGER) would not be very effective compared to an active pressure band, such as DOC or STAR. I AM NOT trying to sell Cranial Technologies to you though. You have to make your own choice as to what is right for your daughter and your family. For us, it's a struggle to make the trips to Phoenix but we decided early on that we'd rather do this once the right way during a rather narrow window of opportunity for correction instead of taking a chance with an orthotist who may or may not be able to help our son with his mild plagio and facial asymmetry (a result of torticollis). Good luck to you in whatever your decision is. I know it's not easy. PS Do you know about Angel Flight? We assumed that we would not qualify since Grffin's case is so mild but it may be worth looking into. They provide free flights for plagio babies. I think there is info. about them on this Web site and I am sure other members could give you more information as well. in Boulder Mom to Ava, 3 years old and , 7 months, Right tort. resolving, mild plagio and facial asymmetry Tammy Tucker wrote: Thanks for the information! I'm so disappointed in Children's approach. They're one of the best hospitals in the country, and the Physical Therapy has been excellent. They promote great, equal care for all children...except only the most severe plagio kids. Doesn't seem to fit. Did you look into any of the local facilities before going to CT? Just curious why you decided to travel vs. staying local. Right now I'm more inclined to make the trip as well, but not sure. Thanks! ", , Ava & Basch" <BaschTribe@...> wrote: We're in Boulder and were also told to "live with" our son's asymmetry at Children's in Denver. Their orthotist is not very sympathetic and treats only very severe cases of plagio. His name is Greg Smidt and when he met with him, he refused to even measure my son. So, I started taking him to CT in Phoenix. Good luck and let me know if you find anyone closer. Mom to Ava, 3 years old and , 7 months, Right tort. outbackyak2 wrote: I'm looking for information on a clinic that produces and treats with bands in Colorado. I have a 5 1/2 month old daughter with torticollis, mild facial asymmetry, but severe ear asymmetry. Neurosurgeon at Children's told us to just live with it, it couldn't be improved. We realize that there are many more severe cases out there, and that the doctors frequently see much worse. Fortunately, I only have to worry about my daughter. If there's a way to correct her headshape, we feel like we should give it a try. The Cranial Facial Clinic nurse said she will send us more information, but we also want to know more about the bands they use, and anyone's experience there. Thanks! FareChase - Search multiple travel sites in one click. Quote Link to comment Share on other sites More sharing options...
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