Guest guest Posted April 25, 2008 Report Share Posted April 25, 2008 Hi Liz, Thank you for the support, yes it has been rough so I haven't responded as quickly to the posts lately. I feel a bit behind. I do have both Still's and B-cell lymphoma. It seems that it has developed due to one of the medications I was taking for Still's. I have to get better info before I release the name of the drug but that is what they are telling me. I was on Kineret, Imuran, Plaquenil and Prednisone. I am off all except for the Prednisone while I go through chemo. I just completed my first cycle of 6. I am hoping it will get better. I feel like crap. I have lots of support from my family as well as my work. They have offered to help out with my expenses while I'm off work. I have been staying at my parents because I live by myself and they don't want me home alone. My Still's so far has been OK. They are hoping the Retuximab will keep the Still's at bay while I go through this. They haven't treated anyone with Still's and B- cell at the same time so this is new territory. I am scared but have no choice but to fight through it. Thank you so much and take care! > > > > > > Thank God you have the energy to post and seek out support. Believe me, > people read than answer. Sometimes, I don't answer or read for a few days....but > I saw you started Chemo...even tho I am a nurse, and have not worked in 15 > years, I did Cardiac stuff and saw Chemo infusions, but not too much...after > the infusion. > > Now > > do you have Stills and B cell lymphoma all at once??? > > or one before and one now??? Whatever how devastating!!!! > > > I bet you are sick as a dog right now > > answer me when you can > > > and thanks for joining > > you are a smart girl > > God Bless sorry if it offends anyone > I just had to say it > > I just had > to say it > > love > liz > > > > > > **************Need a new ride? Check out the largest site for U.S. used car > listings at AOL Autos. > (http://autos.aol.com/used?NCID=aolcmp00300000002851) > > > Quote Link to comment Share on other sites More sharing options...
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