our family

[Guest guest]

,

I have to agree... I think men have it harder when adjusting to this disease.

Of course I dont know since I haven't experienced life with Still's as a man,

but I have imagined it before and thought about how our culture does not support

a man saying he 'cant' do something physical... " oh he must be some kind of wuss

or something!? " Its just that much more important to educate people and put up

boundaries.

Lori

>

> Subject: Re: our family

> To: Stillsdisease

> Date: Wednesday, October 29, 2008, 6:25 PM

> ________________________________

>

>

> To: Stillsdisease

> Sent: Wednesday, October 29, 2008 8:55:45 PM

> Subject: Re: our family

>

> Thank you for the welcome, .  I think the mental

> part of this is much harder on men than women.  I don't

> think they have as easy a time dealing with the

> overwhelming fatigue and the fact that you just can't

> and maybe more importantly, shouldn't, do all that

> you've been doing before the illness came on.  Women, I

> think, are more use to adjusting there level of

> " doing " based upon how our time of the months hits

> us!  It's not such a mental stretch for us to say

> " I'm just not going to do as much today: " , and

> be OK with that decision. 

> I know this must be hard on you, as well.  We all wish we

> could take our children's pain away for them. And this

> stuff just hurts so much!  I am truly lucky and blessed

> that my meds are handling the pain and I'm just left

> with " discomfort " to varying degrees and varying

> places.  But then I'm real new to this and tomorrow

> could be another story!!

>

> I'm glad you found us and I'm glad I found them!

>

>

>

>  

> Hi

>

> Welcome stranger. My son was just diagnosed a week or so

> ago. I'm also a " newbie " . I'm trying to

> gather as much information for him and his wife as

> possible...as he is not only on the sidelines.... he is in a

> different football field. I think the field is called

> " Denial " if you know what I mean. I'll be

> patient and sooner or later he will be emailing you all

> himself. He is a wonderful young man and I hope you will all

> welcome him as warmly as you've welcomed me.

> I look forward to reading your posts,

>

>