Re: question about the Stills Rash

[Guest guest]

MY rash was very itchy with the third flare...ea it was th third flare.

Each flare was a bit different than the other, The first was the worst. But

that's me. Usually, the rash was lacey and not itchy.

I hope that helps

Hugs

Liz

Ps

Have you heard at all from Kirk? He has been quiet..or away..maybe

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[Guest guest]

I am sure he will get better. It just is maddening. Tell him to rest/...I

believe that is one of the biggest helps. Really!! HUgs Liz

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[Guest guest]

n's was exactly as you described. She is 19.

> Hi everyone. Can anyone advise me if they had a VERY ITCHY rash

> when they were first diagnosed with their original big flare?? My

> son's rash was very severe, over his arms and legs and so itchy it

> made him go crazy. We have read that the Stills rash is not

> itchy...so we are getting confused a bit. (Many of you know he was

> recently diagnosed...but perhaps it's not really Stills??? ) Anyone

> else who experienced the severe itch with the rash? (His rash now

> is being treated by some type of cream from the dermatologist and

> it is no longer itchy nor hardly visible at all)...

>

> Thanks everyone. You are the experts.

>

> Re: AGGGH my throat **Larry and Ellen "

>

> Hi guys, I admire your view on things. I'm getting there but some

> days are

> harder than others.

> Today I had a setback. My throat swelled way up. Got a shot of

> Decadron

> and a prednisone pack.

> Well, hopefully tomorrow will be a better day.

> The GP didn't know if it was an infection or Still's. She thought

> Still's.

> The throat swab was negative for strep but she ordered me an

> antibiotic

> anyway. She thought if it helps, great, if not, I see the RD on Wed

> (2 days) and

> he can decide if I do or don't need it.

> OK, I'm beat, hope you are all having a blessed day.

>

> hugs

> Jo

> **************One site has it all. Your email accounts, your social

> networks,

> and the things you love. Try the new AOL.com

> today!(http://pr.atwola.com/promoclk/

> 100000075x1212962939x1200825291/aol?redir=http://www.aol.com/?

> optin=new-dp

> %26icid=aolcom40vanity%26ncid=emlcntaolcom00000001)

>

>

[Guest guest]

thank you very much! I have forwarded your response to my son.

Again...thanks!

[Guest guest]

My rash was VERY very very itchy!!!! I always thought that description on the

Still's

Sight should be changed. It was quite red and painful and I often would scratch

Until there was blood. It would wake me up at night also. Anyway hope that

helps!

Lori in Cali

Sent from my iPhone

Hi everyone. Can anyone advise me if they had a VERY ITCHY rash when they were

first diagnosed with their original big flare?? My son's rash was very severe,

over his arms and legs and so itchy it made him go crazy. We have read that the

Stills rash is not itchy...so we are getting confused a bit. (Many of you know

he was recently diagnosed...but perhaps it's not really Stills??? ) Anyone else

who experienced the severe itch with the rash? (His rash now is being treated by

some type of cream from the dermatologist and it is no longer itchy nor hardly

visible at all)...

Thanks everyone. You are the experts.

Re: AGGGH my throat **Larry and Ellen "

Hi guys, I admire your view on things. I'm getting there but some days are

harder than others.

Today I had a setback. My throat swelled way up. Got a shot of Decadron

and a prednisone pack.

Well, hopefully tomorrow will be a better day.

The GP didn't know if it was an infection or Still's. She thought Still's.

The throat swab was negative for strep but she ordered me an antibiotic

anyway. She thought if it helps, great, if not, I see the RD on Wed (2 days) and

he can decide if I do or don't need it.

OK, I'm beat, hope you are all having a blessed day.

hugs

Jo

**************One site has it all. Your email accounts, your social networks,

and the things you love. Try the new AOL.com

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[Guest guest]

My rash was VERY very very itchy!!!! I always thought that description on the

Still's

Sight should be changed. It was quite red and painful and I often would scratch

Until there was blood. It would wake me up at night also. Anyway hope that

helps!

Lori in Cali

Sent from my iPhone

Hi everyone. Can anyone advise me if they had a VERY ITCHY rash when they were

first diagnosed with their original big flare?? My son's rash was very severe,

over his arms and legs and so itchy it made him go crazy. We have read that the

Stills rash is not itchy...so we are getting confused a bit. (Many of you know

he was recently diagnosed...but perhaps it's not really Stills??? ) Anyone else

who experienced the severe itch with the rash? (His rash now is being treated by

some type of cream from the dermatologist and it is no longer itchy nor hardly

visible at all)...

Thanks everyone. You are the experts.

Re: AGGGH my throat **Larry and Ellen "

Hi guys, I admire your view on things. I'm getting there but some days are

harder than others.

Today I had a setback. My throat swelled way up. Got a shot of Decadron

and a prednisone pack.

Well, hopefully tomorrow will be a better day.

The GP didn't know if it was an infection or Still's. She thought Still's.

The throat swab was negative for strep but she ordered me an antibiotic

anyway. She thought if it helps, great, if not, I see the RD on Wed (2 days) and

he can decide if I do or don't need it.

OK, I'm beat, hope you are all having a blessed day.

hugs

Jo

**************One site has it all. Your email accounts, your social networks,

and the things you love. Try the new AOL.com

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[Guest guest]

Hi,

I had a horrible rash when I was first diagnosed, but it didnt itch 'bad' until

I started scratching it..

What is the medicine's name your son got from the Dr.?

thanks..

Diane....42

question about the Stills Rash

[Guest guest]

Hi,

I had a horrible rash when I was first diagnosed, but it didnt itch 'bad' until

I started scratching it..

What is the medicine's name your son got from the Dr.?

thanks..

Diane....42

question about the Stills Rash

[Guest guest]

When I was first diagnosed my rash was not itchy. Since then I have had

some outbreaks that were and some that weren't. It's as crazy as this

illness....

Angelia

ville, AR

[Guest guest]

When I was first diagnosed my rash was not itchy. Since then I have had

some outbreaks that were and some that weren't. It's as crazy as this

illness....

Angelia

ville, AR

[Guest guest]

Yes, actually I had at least twice and this was years before I was actually

diagnosed. It was such a bad, horribly itchy rash I almost though it was

poison ivy, which was hard to believe since it happened end of January here in

NJ. And I wasn't outside at that time, the docs eventaully just said " contact

dermatitis " which means, itchy rash that they have no idea what caused it!!!

that happened to me twice, and it was so bad I couldn't sleep (Amen for

Benedryl!).

Hope this helps....

-Jo

In a message dated 11/24/2008 10:51:37 P.M. Eastern Standard Time,

lrhorner@... writes:

Hi everyone. Can anyone advise me if they had a VERY ITCHY rash when they

were first diagnosed with their original big flare?? My son's rash was very

severe, over his arms and legs and so itchy it made him go crazy. We have read

that the Stills rash is not itchy...

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and the things you love. Try the new AOL.com

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[Guest guest]

My rash was also extremely itchy and covered both arms and legs. I had an ER doc

tell me it was poison ivy. My PCP

was baffled by it and tried Singulair a very high dose of Allegra and

triamcinolone ointment. Was sent to a dermatologist

who told me it was dermatitis or a false negative for lymes. Then when I started

having the joint swelling and pain my PCP

decided I needed to see the town rheumatolgist who had luckily seen two cases of

it and started treating me. But the

itching was probably the most awful part for the first 2 months I thought I was

going to scratch the skin from my

entire body and go crazy from lack of sleep.

Jennie

To: Stillsdisease

From: SmoochRN@...

Date: Tue, 25 Nov 2008 15:30:59 -0500

Subject: Re: question about the Stills Rash

Yes, actually I had at least twice and this was years before I was

actually

diagnosed. It was such a bad, horribly itchy rash I almost though it was

poison ivy, which was hard to believe since it happened end of January here in

NJ. And I wasn't outside at that time, the docs eventaully just said " contact

dermatitis " which means, itchy rash that they have no idea what caused it!!!

that happened to me twice, and it was so bad I couldn't sleep (Amen for

Benedryl!).

Hope this helps....

-Jo

In a message dated 11/24/2008 10:51:37 P.M. Eastern Standard Time,

lrhorner@... writes:

Hi everyone. Can anyone advise me if they had a VERY ITCHY rash when they

were first diagnosed with their original big flare?? My son's rash was very

severe, over his arms and legs and so itchy it made him go crazy. We have read

that the Stills rash is not itchy...

**************One site has it all. Your email accounts, your social networks,

and the things you love. Try the new AOL.com

today!(http://pr.atwola.com/promoclk/100000075x1212962939x1200825291/aol?redir=h\

ttp://www.aol.com/?optin=new-dp

%26icid=aolcom40vanity%26ncid=emlcntaolcom00000001)

[Guest guest]

My rash was also extremely itchy and covered both arms and legs. I had an ER doc

tell me it was poison ivy. My PCP

was baffled by it and tried Singulair a very high dose of Allegra and

triamcinolone ointment. Was sent to a dermatologist

who told me it was dermatitis or a false negative for lymes. Then when I started

having the joint swelling and pain my PCP

decided I needed to see the town rheumatolgist who had luckily seen two cases of

it and started treating me. But the

itching was probably the most awful part for the first 2 months I thought I was

going to scratch the skin from my

entire body and go crazy from lack of sleep.

Jennie

To: Stillsdisease

From: SmoochRN@...

Date: Tue, 25 Nov 2008 15:30:59 -0500

Subject: Re: question about the Stills Rash

Yes, actually I had at least twice and this was years before I was

actually

diagnosed. It was such a bad, horribly itchy rash I almost though it was

poison ivy, which was hard to believe since it happened end of January here in

NJ. And I wasn't outside at that time, the docs eventaully just said " contact

dermatitis " which means, itchy rash that they have no idea what caused it!!!

that happened to me twice, and it was so bad I couldn't sleep (Amen for

Benedryl!).

Hope this helps....

-Jo

In a message dated 11/24/2008 10:51:37 P.M. Eastern Standard Time,

lrhorner@... writes:

Hi everyone. Can anyone advise me if they had a VERY ITCHY rash when they

were first diagnosed with their original big flare?? My son's rash was very

severe, over his arms and legs and so itchy it made him go crazy. We have read

that the Stills rash is not itchy...

**************One site has it all. Your email accounts, your social networks,

and the things you love. Try the new AOL.com

today!(http://pr.atwola.com/promoclk/100000075x1212962939x1200825291/aol?redir=h\

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