Guest guest Posted June 2, 2008 Report Share Posted June 2, 2008 Hi , Carole, all, I had been a regular poster a while back the needed t o drop out for awhile and now just sort of lurk. I think it is important to share ourselves and be as real as we can, but also the lightness is necessary. If we sit and focus on the negative ( and I am not saying anyone is, has been or will be) sometimes it can get real dark and depressing. For me at least. It is not that I don't feel for everyone here and have wanted to hug Kirk so many times and kick some peoples rear ends...ahem etc. but I find myself wallowing sometimes in the immense pain and sorrow that others here are feeling and it can get to be too much. Is this making sense? If you feel it, express it, be it pain, love, rage or giddiness. I guess I just need to see that others with this disease are truckin on as normally as possible so I can be brave enough to do it to. Make any sense? g.of the f.m. Sutton, MA Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 2, 2008 Report Share Posted June 2, 2008 Welcome home Cyn!!!!! Our Godess of the Full Moon. I miss you so much. For so many members that are new to the group, our Cyn is a wonderful person full of life, love and says it like it is so well. We often over the years have had special cyber parties with dancing, food, games and mahem abounds. So I just wanted to fill you in on the type of light heartedness she is talking about when she shares the other end of the spectrum of our support group as well. And how we miss those times and often long for many of our family to come home and teach others how to do it as well. Oh, my addy is Boerner PO Box 760 Idyllwild, CA 92549 Good to see you silly woman, Lots of love and biggest hugs to you and the family, ----- Original Message ----- From: cynthia@... Hi , Carole, all, I had been a regular poster a while back the needed t o drop out for awhile and now just sort of lurk. I think it is important to share ourselves and be as real as we can, but also the lightness is necessary. Recent Activity a.. 4New Members b.. 32New Photos c.. 1New Files Visit Your Group Yahoo! Health Achy Joint? Common arthritis myths debunked. Meditation and Lovingkindness A Yahoo! Group to share and learn. Yahoo! Groups w/ McEnroe Join the All-Bran Day 10 Club. . Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 3, 2008 Report Share Posted June 3, 2008 Well honestly I do not read every post, maybe half..depending on my energy level. But I do have an opinion on some of the things I read. This is a support group...so...if someone needs to share an emotion...from A to Z or soup to nuts etc etc...that's what this is about. We then can share that emotion back ..be it..sadness or pain...joy or laughter problems or achievements..and so on and so on ( like the old song) The Life of Everyday People.. .which we are . with a big....BUT ...We have a horrible chronic illness that can at times be invisible and no one sees it. How rotten is that! We need to cry and our family's are burdened.. Ok my arms are out to hug cry or laugh...what ever anyone needs and I know that if I need someone..my friends are here. Love you all Liz NJ **************Get trade secrets for amazing burgers. Watch " Cooking with Tyler Florence " on AOL Food. (http://food.aol.com/tyler-florence?video=4? & NCID=aolfod00030000000002) Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 3, 2008 Report Share Posted June 3, 2008 > Good topic! I'm especially worried that someone in the group might post a message about needing emotional support at a very critical time and get overlooked. Maybe a few emails or phone calls to specific group members would work better, or you could create a " buddy system " with a couple of members. I'm not shy about pissing and moaning on this listserv. The venting helps, and I think anger is an emotion I don't have trouble expressing! However, I do have trouble giving out cyber hugs and love on this board--mostly because I don't feel like I " know " you guys. My reading/posting is sporadic, and I've never been to the Vegas conference to meet in person, so it feels fake to me to say " love you " or say that you're my " friends. " That said, even without the close bonds, the folks on this group provide a huge service to me--I don't feel Still's-isolated any more, I have a place to go for information and experience, and I can contribute something back to others. /Maine > > In a message dated 6/3/2008 4:08:59 A.M. Eastern Daylight Time, > allison@... writes: > > I was hoping I > could help break the ice, but the lack of number of response shows that > people are afraid to or don't know how to respond. > > > > Well, I see that you're up in the middle of the night too - my legs are > killing me. You know what, as I was reading your post, it dawned on me that some > people really don't know how to respond. , you are quite " talented " at > putting into words all that you're feeling. Not everyone does or is able. > > Quote Link to comment Share on other sites More sharing options...
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