Re: Re: [Stillsdiseas About Rituxan ()

[Guest guest]

Hey Vivien,

I think just about anything is worth a chance, so you go girl, I will keep you

in my prayers that this will work for you!!!!

Another question? I saw the same show and have been trying to get a download

from TLC, my rheumy wanted to see it also, but we have not had much luck. We may

have to wait until the season is over to actually be able to download it.

Keep in touch

Lots of Hugs and Prayers

________________________________

To: Stillsdisease

Sent: Saturday, December 6, 2008 10:55:26 PM

Subject: Re: [stillsdiseas About Rituxan ()

HI , Welcome & thanks for taking the time to answer. If you read

muy answer to " " today you'll get a better idea about muy case. I

change Rd's afetr being in treatment wt. one that treated my F.M. Things changed

drastically 5 yrs. ago when I began habing episodes of severe chills, sweats,

heart racing , shorteness of breath & other stuff " ALL at the same time going

from bouts of 30 mins. at first to 24-28 straight. I landed at the ER of

coures but they were clueless. I didn't even know who I needed to see. ^ mos.

ago I saw the Mystery diagnosis & saw the show on Stills & believed it was

exacly like muy symptoms, but I get NO fever. Feel very hot during have a rash &

muy body temp. is higher than MY norman, wish runs very low on average, but

not a fever. So I foound a new RD> recomended by one of the stiills group

patiens in my city & she has tryed me on 3,4 dif. pills forms. She doesn't think

it is stills but the treatment for autoimmune deseases is about the same .She

was afraid to put me on the new biological cause I had TB. but last visit

told me that Rituxan is the one wt. the least dangers about lung infections. So

I feel I got to take the chance.... Can't not endure this one more time... I

feel the first symptom & tremble.

It helps tremendously thet you can tell me it's help someone, there are 2

more in the group that feel it helped, so MY hopes are up. I just hope to get

better enough to start living again, driving, be able to make plans...I got a

grand baby o the way.Any, any more improvements for me would be a gift from

God.

I'll sure keep you in the loop.

Big hugs

Vivien.

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