Re: [Stillsdisease( Rituxan )

December 6, 2008

Hi again ,

I hope you can stay even keel on your sympstoms till your next infusion.

Thanks for the extra inf. It is very helpfull to get some kind of idea on what

to expect.

I guess the price sounds outrageous compared to others, like $2.000 a mo.

etc. BUT it does last 6 mos. so It kind of evens out to about the same after

all!.

Yeah this current RD> is definaletly better than the old Rheumy that treated

me for Fibromyalgia for 11 yrs. and " should " ve picked UP on this other cond.

at some point ( I began the new symptoms 5 yr.s ago) the atacks were

" occacional as 5-7 mo's apart. Now for the last 2-+ yrs. they were every mo.(

almost

sure trigered by hormonal fluctualtions) & pretty much sick 3 weeks out of

the mo. with rest of miriad list of stuff, you problably well know. I left the

old RD. but not the way I wanted to. ( like informed him why & WHAT I had,

that he dismissed totally every time I mention any thing to him was F.M. This

new one even sent me to a Pain clinic, so I feel hopefull for the first time

in 2 yrs.that 'some'tings CAN get under control (enough)

You sound like you can make plans , trips & socialized . I'd be extremelly

appreciative if can once again participate in life.

I hope that what ever is causing you extra stress can stop soon , I know it

is absolutelly detremental to keep

the flares at bay.

I hate to get muy hopes up , but it is about time!!

I'm not even gonna read the side effect info. cause I don't want to get

discourage on what " ifs " . I'm just gonna do it, & worry about when & IF it

happens.

Wish you a great Sund, & weeks ahead.

Thank you

Vivien

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