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Great. there was a little girl in 's preschool who was planning a

birthday party and her mother called me first because she said if

couldn't come there wasn't going to be a party. If it was all left to the

little kids everything would work out fine. Jessie

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-

What a beautiful letter, thanks for sharing it with us.

It does help prove that inclusion works. We received

proof of our own when the mother of one of 's

classmates from first grade told me her daughter said

she didn't care who her second grade teacher was, as

long as was in her room. Isn't it great?!?!?

--

Sharon, Mom to (9, DS) and (5)

>

> Hi -

> I just had to share a letter my daughter, is (7DS) received from one of

> her classmates. I had sent home a letter to all the parents about DS and a

> couple of days later, in typical 1st grade spelling and writing . . .

>

> Dear is

> My mommy told me about you now I undrstand yore sbeshl (special) en your on

> (own) wa (way). I can be pashnt (patient) and teech u evreethng I kan and be

> yor frnd. Bijan

>

> I cried when I read this letter. I gave a copy to the teacher, and she was

> in tears as well. She then made copies of the letter and plans to give it to

> all the teachers in the school, and all the members of the team. She says

> that this is the reason that inclusion is so important in the schools today.

>

> I plan to write the parents and let them know what an impact that letter had.

> I wish everyone would react in this way.

>

>

>

>

>

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  • 1 year later...

Tim, I am sorry i missed it(the letter) I will look

for it, I have 3 projects i am working on and my baby

has been sick with 104 fever soooooooo i better not

committ to anything today but maybe in a day or so

things will slow down, and we should get all the

addresses in a file for the future mailings......

keep up the good work

hugs

cynthia

--- Tim Casey <realityab@...> wrote:

>

> Dear ,

>

> Dawn's lawyer advised against her getting in

> too heavy with the campaign against Eli Lilly so I

> did it all by myself. I posted a copy earlier today.

> That's the one I'm using. Comments and suggestions

> are tolerated, maybe even discussed. If I go at it

> all day, I'll send out another 30 letters for a

> total of 60 so far. Only 640 more to go as long as

> no one else signs the petition.

>

> I really could use some help gleaning the

> addresses off the petition. I'm at # 300 signature.

> Write me back if you can do a block of names so we

> can coordinate.

>

>

>

> Tim

>

>

>

> ---------------------------------

>

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,

Oh, sorry to hear your baby is still not doing well... did you have to miss

out on her baptism? I'll say a prayer for her and for you guys.. Think about

getting that other blessing...

The Avenging Angel

cynthia garcia wrote:

> Tim, I am sorry i missed it(the letter) I will look

> for it, I have 3 projects i am working on and my baby

> has been sick with 104 fever soooooooo i better not

> committ to anything today but maybe in a day or so

> things will slow down, and we should get all the

> addresses in a file for the future mailings......

>

> keep up the good work

>

> hugs

> cynthia

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,

Oh, sorry to hear your baby is still not doing well... did you have to miss

out on her baptism? I'll say a prayer for her and for you guys.. Think about

getting that other blessing...

The Avenging Angel

cynthia garcia wrote:

> Tim, I am sorry i missed it(the letter) I will look

> for it, I have 3 projects i am working on and my baby

> has been sick with 104 fever soooooooo i better not

> committ to anything today but maybe in a day or so

> things will slow down, and we should get all the

> addresses in a file for the future mailings......

>

> keep up the good work

>

> hugs

> cynthia

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  • 1 year later...

Dear Sylvia:

Thanks for digging up " The Letter. " I had lost my copy when my

computer crashed in November. It's a great thing to have on hand.

Take care!

Kathy (AIH)

Seattle area

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Thank you for, " The Letter " , it has touched my heart in a way that I

cannot describe. As of now I have not been diagnosed but I sure knoe

what it feels like to be extremely fatigued. My 18 month old takes

up every ounce I have and I have no qualms about giving it to her

even though it means that I can barely do anything else.

Thanks again,

Tammy

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  • 1 year later...
Guest guest

That is a fantastic letter. I don't see where anything needs to be changed. I

am going to get started on it right away. I want so badly to see a change in

the system. If we get the word out and many more follow us in our attempt to

have someone notice all the wrongs our government is doing, we might just get

something done. You really have a way with your words. Your letter stands out,

so I'm sure it will draw some attention.Take care. I'll let you all know if I

get any responses on this end.

Alisa

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> I'll let you all know if I get any responses on this end <

Sounds great Alisa...keep us updated!

I am very busy today and tomorrow but do plan on getting mine out on Wednesday.

Viv in GA

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  • 2 years later...
Guest guest

Damn, who wrote this letter and where was it sent or posted?

Lorie, YOU ROCK!

>

> Eva,

> I don't think the letter can be accessed from the website, only

from e-mail messages. Here it is:

>

> I recently attended the American Society of Addiction Medicine's

Medical-Scientific Conference in San Diego. There was a two-hour

workshop on ethyl glucuronide (EtG) testing organized by

Skipper, MD, which presented some very interesting information.

Skipper described it as the first workshop of its type since EtG

testing was introduced in healthcare professional monitoring

programs nearly two years ago.

> Most interesting was the information on " innocent positives " --

positive EtG tests in the absence of any alcoholic beverage

consumption or other significant alcohol source. As Doug , a

forensic toxicologist and President/Scientific Director of US Drug

Testing Laboratories put it so succinctly, " A positive EtG is not

unequivocal evidence of alcohol consumption. " also presented

in-house testing results on a female employee using Purell hand

sanitizer, which yielded an EtG over 700ng/ml.

>

> Skipper, MD, has a registry for those who have had

positive EtG tests yet denied any alcohol consumption. There are 61

people registered to date. I am sure the number is much higher than

this. These are only representative of those who found Skipper's

website. He also presented a comprehensive list of all non-food

household products that contain ethyl alcohol. It was extremely long!

>

> Liepman, MD, presented a very interesting study also

involving Purell. Seems in the Michigan HPRP, they were having

problems with low-level positive EtG tests. Specifically, they had

two registered nurses, both pregnant, testing positive for EtG at

levels of 150 and 270ng/ml, and both denying any alcohol except

Purell (30 times per shift) and perfume. Liepman noticed after

applying Purell himself that he felt a bit light-headed, so he did a

BAC and it was 0.02! He then had others try this and after a single

application, BAC's ranged from 0.01 to 0.035. So he did a Purell

study, with 24 participants. He divided them into four groups: skin

plus inhalation, inhalation only, skin only (used a laminar flow

hood to prevent inhalation of Purell fumes) and control group. They

then drew BACs at 20, 40, 60, and 90 minutes. The group with both

skin and inhalation of Purell showed significant rises in BACs. What

it showed them was that INHALATION is a major absorption route for

Purell, not skin absorption. They are trying to get this study

published. The implications here go further than just

Purell.hairspray, perfume, even gasoline fumes.any inhaled source of

ethanol.

>

> Following the workshop, the group of speakers gathered for an

informal meeting with Dr. H. Westley , Director of SAMHSA's

Center for Substance Abuse Treatment. In short, is a real ally

and advocate for raising the cutoff being used for EtG and promoting

its responsible use. It has inherent limitations and is meant to be

used as a TOOL in determining relapse, NOT a DIAGNOSTIC indicator.

He spoke passionately about the labs promoting this for something

that it is not and again, about the incidental alcohol and cutoff

issues. It was suggested that the misleading advertising surrounding

EtG (such as being the " gold standard " or " only positive after

alcohol ingestion " ) be taken up with the FTC and/or FDA. Dr.

acknowledged the need for a neutral body that does not have a

proprietary or financial interest in the test to issue a neutral

opinion on the use of EtG. He has committed that SAMHSA will do just

that by issuing an advisory within the next three months. A reporter

from Elsevier also attended this meeting, hopefully prompting some

media attention to the issue.

>

> In short, it is no longer disputed that there are major

problematic issues with EtG testing! Simply stated, the test is

being used and interpreted inappropriately. The only thing that can

be done prior to SAMHSA's authoritative warning/advisory is to

educate those who are promoting/advertising the test (labs and

TPA's) and those interpreting test results (MRO's). I think it is

the legal and ethical responsibility of those offering the test to

notify their clients of this new information.

>

> I appreciate any feedback you might be able to give me on this

topic. I will offer the following contact information if you would

like to verify any of the information I have presented:

gregskipper@..., douglas.lewis@..., mikeliepman@...,

Westley.@..., t.kirn@... There is also an online EtG discussion

group that I would invite anyone to join to stay abreast of the

issues surrounding EtG testing. It can be found at

Ethylglucuronide-EtG/.

>

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Guest guest

I went back and read about this letter! Again, this is so exciting

that there has been some real progress! Have you heard anymore from

that reporter? I'm not sure if my email was acknowledged or not,

for some dumb reason I decided to clear what I thought was spam

rather quickly the following day AND clear my trash mail! Aghhh, I

was so pissed when I realized I had done that!

> >

> > Eva,

> > I don't think the letter can be accessed from the website, only

> from e-mail messages. Here it is:

> >

> > I recently attended the American Society of Addiction Medicine's

> Medical-Scientific Conference in San Diego. There was a two-hour

> workshop on ethyl glucuronide (EtG) testing organized by

> Skipper, MD, which presented some very interesting information.

> Skipper described it as the first workshop of its type since EtG

> testing was introduced in healthcare professional monitoring

> programs nearly two years ago.

> > Most interesting was the information on " innocent positives " --

> positive EtG tests in the absence of any alcoholic beverage

> consumption or other significant alcohol source. As Doug , a

> forensic toxicologist and President/Scientific Director of US Drug

> Testing Laboratories put it so succinctly, " A positive EtG is not

> unequivocal evidence of alcohol consumption. " also presented

> in-house testing results on a female employee using Purell hand

> sanitizer, which yielded an EtG over 700ng/ml.

> >

> > Skipper, MD, has a registry for those who have had

> positive EtG tests yet denied any alcohol consumption. There are

61

> people registered to date. I am sure the number is much higher

than

> this. These are only representative of those who found Skipper's

> website. He also presented a comprehensive list of all non-food

> household products that contain ethyl alcohol. It was extremely

long!

> >

> > Liepman, MD, presented a very interesting study also

> involving Purell. Seems in the Michigan HPRP, they were having

> problems with low-level positive EtG tests. Specifically, they had

> two registered nurses, both pregnant, testing positive for EtG at

> levels of 150 and 270ng/ml, and both denying any alcohol except

> Purell (30 times per shift) and perfume. Liepman noticed after

> applying Purell himself that he felt a bit light-headed, so he did

a

> BAC and it was 0.02! He then had others try this and after a

single

> application, BAC's ranged from 0.01 to 0.035. So he did a Purell

> study, with 24 participants. He divided them into four groups:

skin

> plus inhalation, inhalation only, skin only (used a laminar flow

> hood to prevent inhalation of Purell fumes) and control group.

They

> then drew BACs at 20, 40, 60, and 90 minutes. The group with both

> skin and inhalation of Purell showed significant rises in BACs.

What

> it showed them was that INHALATION is a major absorption route for

> Purell, not skin absorption. They are trying to get this study

> published. The implications here go further than just

> Purell.hairspray, perfume, even gasoline fumes.any inhaled source

of

> ethanol.

> >

> > Following the workshop, the group of speakers gathered for an

> informal meeting with Dr. H. Westley , Director of SAMHSA's

> Center for Substance Abuse Treatment. In short, is a real

ally

> and advocate for raising the cutoff being used for EtG and

promoting

> its responsible use. It has inherent limitations and is meant to

be

> used as a TOOL in determining relapse, NOT a DIAGNOSTIC indicator.

> He spoke passionately about the labs promoting this for something

> that it is not and again, about the incidental alcohol and cutoff

> issues. It was suggested that the misleading advertising

surrounding

> EtG (such as being the " gold standard " or " only positive after

> alcohol ingestion " ) be taken up with the FTC and/or FDA. Dr.

> acknowledged the need for a neutral body that does not have a

> proprietary or financial interest in the test to issue a neutral

> opinion on the use of EtG. He has committed that SAMHSA will do

just

> that by issuing an advisory within the next three months. A

reporter

> from Elsevier also attended this meeting, hopefully prompting some

> media attention to the issue.

> >

> > In short, it is no longer disputed that there are major

> problematic issues with EtG testing! Simply stated, the test is

> being used and interpreted inappropriately. The only thing that

can

> be done prior to SAMHSA's authoritative warning/advisory is to

> educate those who are promoting/advertising the test (labs and

> TPA's) and those interpreting test results (MRO's). I think it is

> the legal and ethical responsibility of those offering the test to

> notify their clients of this new information.

> >

> > I appreciate any feedback you might be able to give me on this

> topic. I will offer the following contact information if you would

> like to verify any of the information I have presented:

> gregskipper@, douglas.lewis@, mikeliepman@,

> Westley.@, t.kirn@ There is also an online EtG discussion

> group that I would invite anyone to join to stay abreast of the

> issues surrounding EtG testing. It can be found at

> Ethylglucuronide-EtG/.

> >

>

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  • 1 year later...
Guest guest

Dear ,

You may be tired of hearing from me, hehe..But I SO enjoy

your posts!!! This one about the letter was so lovely! You just

never know, do you? ;) Thank you and Blessings! LUNA

>

> Letter, The

> by: Author Unknown, Source Unknown

>

>

> Ruth went to her mail box and there was only one letter. She picked

> it up and looked at it before opening, but then she looked at the

> envelope again. There was no stamp, no postmark, only her name and

> address.

>

> She read the letter:

>

> Dear Ruth,

>

> I'm going to be in your neighborhood Saturday afternoon and I'd

like

> to stop by for a visit.

>

> Love Always, Jesus

>

> Her hands were shaking as she placed the letter on the table. " Why

> would the Lord want to visit me? I'm nobody special. I don't have

> anything to offer. " With that thought, Ruth remembered her empty

> kitchen cabinets. " Oh my goodness, I really don't have anything to

> offer. I'll have to run down to the store and buy something for

> dinner. " She reached for her purse and counted out its contents.

Five

> dollars and forty cents.

>

> " Well, I can get some bread and cold cuts, at least. " She threw on

> her coat and hurried out the door. A loaf of french bread, a half-

> pound of sliced turkey, and a carton of milk...leaving Ruth with a

> grand total of twelve cents to last her until Monday.

>

> Nonetheless, she felt good as she headed home, her meager offerings

> tucked under her arm. " Hey lady, can you help us, lady? " Ruth had

> been so absorbed in her dinner plans, she hadn't even noticed two

> figures huddled in the alleyway. A man and a woman, both of them

> dressed in little more than rags. " Look lady, I ain't got a job, ya

> know, and my wife and I have been living out here on the street,

and,

> well, now it's getting cold and we're getting kinda hungry and,

well,

> if you could help us, lady, we'd really appreciate it. " Ruth looked

> at them both. They were dirty, they smelled bad and, frankly, she

was

> certain that they could get some kind of work if they really wanted

> to. " Sir, I'd like to help you, but I'm a poor woman myself. All I

> have is a few cold cuts and some bread, and I'm having an important

> guest for dinner tonight and I was planning on serving that to

Him. "

>

> " Yeah, well, okay lady, I understand. Thanks anyway. " The man put

his

> arm around the woman's shoulders, turned and headed back into the

> alley.

>

> As she watched them leave, Ruth felt a familiar twinge in her

> heart. " Sir, wait! " The couple stopped and turned as she ran down

the

> alley after them. " Look, why don't you take this food. I'll figure

> out something else to serve my guest. " She handed the man her

grocery

> bag.

>

> " Thank you lady. Thank you very much! " " Yes, thank you! " It was the

> man's wife, and Ruth could see now that she was shivering.

>

> " You know, I've got another coat at home. Here, why don't you take

> this one. " Ruth unbuttoned her jacket and slipped it over the

woman's

> shoulders. Then smiling, she turned and walked back to the

> street...without her coat and with nothing to serve her guest.

Thank

> you lady! Thank you very much! "

>

> Ruth was chilled by the time she reached her front door, and

worried

> too. The Lord was coming to visit and she didn't have anything to

> offer Him. She fumbled through her purse for the door key. But as

she

> did, she noticed another envelope in her mailbox. " That's odd. The

> mailman doesn't usually come twice in one day. " She took the

envelope

> out of the box and opened it.

>

> Dear Ruth,

>

> I'm was in the neighborhood today and I want to thank you for the

> dinner and the coat. It was my great pleasure to have had our visit.

>

> Love Always, Jesus

>

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