what to do, where to go to get help

[Guest guest]

OK Guys - I need guidance. I have great doctors, but I'm really not getting

all the answers I need. It's been over 7 years now of fevers every night,

and many other very disturbing symptoms, I also have gotten many new things

as time has gone on. I have swollen glands on my arms and legs that are the

size of quarters that the doctors all say - lets watch, well, they use to be

the size of a pea, now they are reallly big, and just in the last year. My

back in the last year has gone from worse to horrible. It causes me from

going having a pain scale of 10 when I try to walk, stand in one place or

sit in a normal chair for just 15 minutes, the longer I do it, the worse it

is. I have a bone marrow problem with my right foot that is documented in

my file and a big bump on my right foot that hurts all the time, but no one

knows what it means.

So, my question... What places have you guys gone to for longer diagnoses.

Like Mayo Clinic and NIH... I'm just starting to look for ideas....

Please help. This is just the beginning. I'll be out of town for three

weeks starting june 28th and back July 21th, so nothing will happen expect

research until then, but I'd love your input and help.

I'm just tired of hearing you are complicated or you are at the end of the

scale.....

Help me please.....

Thanks all

Hugs