Guest guest Posted April 19, 2008 Report Share Posted April 19, 2008 Hi everyone I was wondering if any of you have had negative results from Etanercept/Enbrel. Phil has been on this weekly injection for about 3 months and although his Doc. said it would improve everything, it hasnt if anything the dragon seems to be rampaging even more. He is still having daily flares lasting anything from 7-10 hours and ii getting frustrated by the increased level of fatigue. Take today for example he got up at 8.30 sat down and slept again until 12 woke up and forced himself to do a couple of things (washing up, and making a sandwich for the boys) sat down again and slept until 2. He is constantly falling asleep mid sentence, a couple of days ago had a cup of coffee and fell asleep with it in his hand I just managed to grap it before it went all over him. He is breathless has tingling in his right fingers, and has know developed more joint pain. Before it was his left ankle, wrist, elbow and occasionally his hip now it is in every joint on the right hand side of his body. I know the the nature of the illness is progressive but is it normal to progress so fast, what can we expect from the future is there any other drugs that people have found helped that we can ask for. We finally had to get a wheelchair because going out as a family was impossible. He is also still on 30mg of predisinole a day and when they have tried to reduce them he isnt good. I am sorry this is so long winded and that the only time I ever really contact all of you lovelies is when the going gets tough and frustrating but you really are the only with any answers. Take care all of you lots of love (UK) --------------------------------- Sent from Yahoo! Mail. A Smarter Email. Quote Link to comment Share on other sites More sharing options...
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