Re: What a Ride! Update

[Guest guest]

Larry,

I am glad that you made it to the ER in time. I completely understand how easy

it is to overlook symptoms, especially in our case where we are always sick. I

will definitely keep my eyes open, thanks for keeping all of us on our toes. I

am very sorry that you had to go through such an ordeal and I am glad that you

are on your way to feeling better.

Love and Care,

Angie

Los Angeles, CA

What a Ride! Update

Hello My Friends and Famiy!

I apologize for my absence...I see that I have something like 350 emails to

read...welcome to all the new folks...you have found agroup that is closer than

any family...for me it is a new family...more understanding and compassionate

than my " actual " family...I spent the first part of May on a vent in ICU damn

near death...I was purposely paralyzed because I pulled out the vent twice!  I

am glad that I do not remember...As it turned out, I had a particularly nasty

infection that was seeping out through my eyes and had filled my lungs with

Pneumoniae....cognitively, I was all to hell....my CO2 levels were racing ahead

of my O2 levels...Patty finaally managed to wrestle me to the ER around

sundown...as soon as Triage saw me, they rushed me in to an exam room...the ER

Docs and nurses were immediately " all over me " ordering tests, xrays, taking

blood, trying to level-out the CO2/O2 and electrolytes.

Finally, the lead Doc asked me if I would go on a vent...

Do What?!  Patty said that was my expression...when I would not answer after

repeated requests, the Doc looked at Patty and said he didn't think I had a clue

as to what was going on....then he told Patty that she needed to make the

decision to vent me...to vent me would keep me alive..to not vent would probably

mean death...remember my broken ribs?  Well the doc and Patty knew that ANY

chest compresions would cause fractures to rupture internal organs leading to

painful death!  Soooooooo, I was vented for nearly a week....the morning after

my admittance to ICU, the Doctor spoke with Patty about my condition...he said

that I had three major systems failing:  Arteriole, Pulmonary, Kidneys....he

gave me a 10% survival rate!

Wow!  At any rate, I spent a week like this with a vent.  The Doctor also said

he believed that a higher power was definitely at work!!!  Amen!  A week later,

they removed the vent and, God brought me around, back to awareness and

life....I am very weak and still dealing with pneumoniae.  I am actually in

worse condition than upon initial onset of Still's Disease.

I am sorry for the length of this email...But, it is like the Doctor

said....folks like us CANNOT afford to overlook any signs/symptoms related to

Stills...like me, I ignored the discharge from my eyes for several days beyond

which I should.  I ignored several other s/s....it nearly cost me my life!

Anyway, I am very thankful to be able to report back alive...Everyone please pay

close attention to your signs and symptoms!

Many Blessings to all of you!

Larry B.

------------------------------------

Visit the Still's Disease Message Board

http://disc.server.com/Indices/148599.html

The materials and information contained in this message are not intended to

replace the services of a trained health professional or to be a substitute for

medical advice of physicians and/or other health care professionals. The

International Still's Disease Foundation is not engaged in rendering medical or

professional medical services. You should consult your physician on specific

medical questions, particularly in matters requiring diagnosis or medical

attention. The International Still's Disease Foundation makes no representations

or warranties with respect to any treatment, action, application, medication or

preparation by any person following the information offered or provided within

this support form. 

ion by any person following the information offered or provided within this

support form. 

[Guest guest]

In a message dated 6/2/2008 9:58:54 P.M. Eastern Daylight Time,

stillsman00@... writes:

Anyway, I am very thankful to be able to report back alive...Everyone please

pay close attention to your signs and symptoms!

Many Blessings to all of you!

Larry B.

Dear Dear Larry,

Thank G-d you are back amongst the living... I am soooooo happy to hear from

you dear friend and again thanks to your dear Patty for keeping us informed

on your ride. Wow. Your email was completely coherent, thankfully, so at least

the old noggin seems to be working all right.

You had so been on my mind in the past few weeks since Patty wrote and I'm

so happy that all the prayers from this loop got thru to your Higher Power. I

can just picture Him up there checking your records, ready to sign off on your

show's cancellation when He started getting a huge number of prayer

requests from all over the world telling Him that we really enjoyed Your Show

and

didn't want to lose it so He changed His mind and signed you for a new

contract. Again, thank G-d.

Please take it very easy and welcome back.

Carole from Hollywood FL

**************Get trade secrets for amazing burgers. Watch " Cooking with

Tyler Florence " on AOL Food.

(http://food.aol.com/tyler-florence?video=4? & NCID=aolfod00030000000002)

[Guest guest]

Larry

 you be one ruff and tuff man. is it not awesome to have the great power jump in

and handle things! I know i am glad for it more then once LOL so glad you still

here and your so right we can not and should not just over look things in our

lives and body when it comes to stills .not near as bad as you but doing it has

also put me into ICU a few times . again glad he wanted to keep ya down here a

bit longer but from what I heard He was afraid you would curopt every one up

there and the devil did not want you he to was afraid ya would take over the

place . any hoot please keep us informed how it is going

 

the  rednecks

Marty & G.

 Stills ; An illness I know to well!

To learn about Stills  http://www.stillsdisease.org/stills_info

  and Hancock:

We Recognize No Sovereign but God, and no King but Jesus! [April 18, 1775]

:

" The general principles upon which the Fathers achieved independence were the

general principals of Christianity... I will avow that I believed and now

believe that those general principles of Christianity are as eternal and

immutable as the existence and attributes of God. "

• " [July 4th] ought to be commemorated as the day of deliverance by solemn acts

of devotion to God Almighty. "

– in a letter written to Abigail on the day the Declaration was

approved by Congress

Jefferson

God who gave us life gave us liberty. And can the liberties of a nation be

thought secure when we have removed their only firm basis, a conviction in the

minds of the people that these liberties are a gift from God? That they are not

to be violated but with His wrath? Indeed I tremble for my country when I

reflect that God is just, and that His justice cannot sleep forever. " (excerpts

are inscribed on the walls of the Jefferson Memorial in the nations capital)

 

[Guest guest]

Larry

 you be one ruff and tuff man. is it not awesome to have the great power jump in

and handle things! I know i am glad for it more then once LOL so glad you still

here and your so right we can not and should not just over look things in our

lives and body when it comes to stills .not near as bad as you but doing it has

also put me into ICU a few times . again glad he wanted to keep ya down here a

bit longer but from what I heard He was afraid you would curopt every one up

there and the devil did not want you he to was afraid ya would take over the

place . any hoot please keep us informed how it is going

 

the  rednecks

Marty & G.

 Stills ; An illness I know to well!

To learn about Stills  http://www.stillsdisease.org/stills_info

  and Hancock:

We Recognize No Sovereign but God, and no King but Jesus! [April 18, 1775]

:

" The general principles upon which the Fathers achieved independence were the

general principals of Christianity... I will avow that I believed and now

believe that those general principles of Christianity are as eternal and

immutable as the existence and attributes of God. "

• " [July 4th] ought to be commemorated as the day of deliverance by solemn acts

of devotion to God Almighty. "

– in a letter written to Abigail on the day the Declaration was

approved by Congress

Jefferson

God who gave us life gave us liberty. And can the liberties of a nation be

thought secure when we have removed their only firm basis, a conviction in the

minds of the people that these liberties are a gift from God? That they are not

to be violated but with His wrath? Indeed I tremble for my country when I

reflect that God is just, and that His justice cannot sleep forever. " (excerpts

are inscribed on the walls of the Jefferson Memorial in the nations capital)