Guest guest Posted December 19, 2008 Report Share Posted December 19, 2008 My stuff is confusing as well I think, not sure, that they treat them all the same, depending on what the symptom of the day is.... Pain in the neck !! I wish you health and relief Liz NJ **************One site keeps you connected to all your email: AOL Mail, Gmail, and Yahoo Mail. Try it now. (http://www.aol.com/?optin=new-dp & icid=aolcom40vanity & ncid=emlcntaolcom00000025) Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 19, 2008 Report Share Posted December 19, 2008 My stuff is confusing as well I think, not sure, that they treat them all the same, depending on what the symptom of the day is.... Pain in the neck !! I wish you health and relief Liz NJ **************One site keeps you connected to all your email: AOL Mail, Gmail, and Yahoo Mail. Try it now. (http://www.aol.com/?optin=new-dp & icid=aolcom40vanity & ncid=emlcntaolcom00000025) Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 19, 2008 Report Share Posted December 19, 2008 My doctors have me so confused its not funny! I was diagnosed with Stills disease IN January 08 then they changed it to Lupus In June then Lupus with overlapping Fibro and now this month they call and say maybe Lupus with over lapping AS Ankylosing Spondylitis as well because they see my back fussing and also my hips that is rare in Lupus. Im thinking I dont have Lupus but Stills disease I have the salmon colored rash on my chest, worse after a shower... my back is fussing together cant it be caused from Stills? They said that is why they think I have AS stiff neck. I had the fevers daily but better on Plaquenil. My primary Doc says we will never know I had very high ferreting levels this past testing they Finley ran that test it was high! That says stills disease right? but the ANA showed positive 2 months ago and one other time and the anti ANA positive and 91 then as well. It came back negative this last time. 2 times back positive ANA blood test the other 6 negative. I have had sores in my mouth a few times so confused so are doctors they are just saying we are treating it like a connective tissue disease we may never know which one I have? Ugh my hands are getting wore they are starting to curl in and my legs hurt so bad at night its not funny. They took me off cellcept it was making me go deaf and terrible ear pain. It too had side effects of lymphoma cancer so glad to be off it. Percocet and advil are my best friends in the bad pain. Im going to start posting here again been away a long time tried to be in the Lupus support but never felt at home there. I still feel its Stills and I had Lupus like problems after Enbrel but I seem to never have the butterfly rash and just the salmon colored rash on chest and upper arms. Love you all and miss you hope all is well and you all have a good holiday vacation. Im back for good here! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 20, 2008 Report Share Posted December 20, 2008 Ann long time no read will like most of us your a confusing person so here at lest your normal LOl. All I know is some doctors do not like to say stills because there is no test for it and they will only say you have some thing they can test for not some thing they have to say with no test but by eliminating what you do not have. I know I have had one doc tell me I only have fibo not stills. one tell me there is no such thing as stills and that it was some thing i made up ( his words were " what is stills some thing you made up? " ) an a RA doctor who would not say still because he did not DX me and another RA did that he did not like ( egotistical sob) any hoot I have shown pos for ana and ra a few times never high just a bit and then the next few times nothing but my iron counts when flaring have always been high never as high as when first DX with stills but still high. the Doctor that told me about the feriton Iron being a indicator was Doctor at Stanford medical center California. but not a one has said that again tell the Ra doctor I have now 8 years later. so even doctors can not agree whats what with this crazy thing called stills. I do not know if you can or not but may be a trip to a mayo doctor my be in your best interest. just a red necks thought and opinion here so do with it what you like. any hoot hugs my friend the rednecks Marty & G. the redneck's my space http://www.myspace.com/martyg58 To learn about Stills Disease http://www.stillsdisease.org/stills_info For conservitive minded people http://www.americac2c.org " If we ever forget that we're one nation under God, then we will be a nation gone under. " ~ Reagan In the old days a man who saved money was a miser; nowadays he's a wonder. ~Author Unknown A nation can survive its fools and even the ambitious. But it cannot survive treason from within.~Cicero " The most terrifying words in the English language are: I'm from the government and I'm here to help. " ~ Reagan Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 20, 2008 Report Share Posted December 20, 2008 Ann long time no read will like most of us your a confusing person so here at lest your normal LOl. All I know is some doctors do not like to say stills because there is no test for it and they will only say you have some thing they can test for not some thing they have to say with no test but by eliminating what you do not have. I know I have had one doc tell me I only have fibo not stills. one tell me there is no such thing as stills and that it was some thing i made up ( his words were " what is stills some thing you made up? " ) an a RA doctor who would not say still because he did not DX me and another RA did that he did not like ( egotistical sob) any hoot I have shown pos for ana and ra a few times never high just a bit and then the next few times nothing but my iron counts when flaring have always been high never as high as when first DX with stills but still high. the Doctor that told me about the feriton Iron being a indicator was Doctor at Stanford medical center California. but not a one has said that again tell the Ra doctor I have now 8 years later. so even doctors can not agree whats what with this crazy thing called stills. I do not know if you can or not but may be a trip to a mayo doctor my be in your best interest. just a red necks thought and opinion here so do with it what you like. any hoot hugs my friend the rednecks Marty & G. the redneck's my space http://www.myspace.com/martyg58 To learn about Stills Disease http://www.stillsdisease.org/stills_info For conservitive minded people http://www.americac2c.org " If we ever forget that we're one nation under God, then we will be a nation gone under. " ~ Reagan In the old days a man who saved money was a miser; nowadays he's a wonder. ~Author Unknown A nation can survive its fools and even the ambitious. But it cannot survive treason from within.~Cicero " The most terrifying words in the English language are: I'm from the government and I'm here to help. " ~ Reagan Quote Link to comment Share on other sites More sharing options...
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