Hey my old pals

[Guest guest]

My doctors have me so confused its not funny! I was diagnosed with

Stills disease IN January 08 then they changed it to Lupus In June

then Lupus with overlapping Fibro and now this month they call and

say maybe Lupus with over lapping AS Ankylosing Spondylitis as well

because they see my back fussing and also my hips that is rare in

Lupus. Im thinking I dont have Lupus but Stills disease I have the

salmon colored rash on my chest, worse after a shower... my back is

fussing together cant it be caused from Stills? They said that is why

they think I have AS stiff neck.

I had the fevers daily but better on Plaquenil.

My primary Doc says we will never know I had very high ferreting

levels this past testing they Finley ran that test it was high!

That says stills disease right? but the ANA showed positive 2 months

ago and one other time and the anti ANA positive and 91 then as

well. It came back negative this last time.

2 times back positive ANA blood test the other 6 negative. I have

had sores in my mouth a few times so confused so are doctors they are

just saying we are treating it like a connective tissue disease we

may never know which one I have?

Ugh my hands are getting wore they are starting to curl in and my

legs hurt so bad at night its not funny. They took me off cellcept it

was making me go deaf and terrible ear pain. It too had side effects

of lymphoma cancer so glad to be off it. Percocet and advil are my

best friends in the bad pain.

Im going to start posting here again been away a long time tried to

be in the Lupus support but never felt at home there. I still feel

its Stills and I had Lupus like problems after Enbrel but I seem to

never have the butterfly rash and just the salmon colored rash on

chest and upper arms.

Love you all and miss you hope all is well and you all have a good

holiday vacation.

Im back for good here!