update on me

[Guest guest]

First of all, welcome to all the new members! I haven't posted much lately,

been too much stress going on in my family. I was sick with a cold for 2 weeks

and my hubby tells me this morning that he's been having night sweats again for

quite a while. Since it took them 8 years to diagnose me with Still's, I can

understand his frustration at the docs not finding out what's wrong with him.

I went back to my doc yesterday, bloodwork still a little off, but " clinically "

I appear to be okay. I have had some mild fevers and joint pain for the last

several weeks and major stomach problems. Had to go off the Mtx B/C of the

cold,will be taking that again next week.

About a year ago, the doc noticed my Vitamin D level was severely low. He told

me to start taking 3 tablets every day. Then, last month, he gave me a

prescription for 50,000 units of Vitamin D to take once a week. When I first

started seeing him, he said my B12 was non-exisitent, so now I take shots for

that as well. Has anyone else had vitamin deficiency with Still's?

As some of you may remember, I also hav Hemachromatosis (iron loading disease).

My iron saturation is now at 56% (not bad, considering it's been in the 80's

before). Problem is, they have been unable to do a phlebotomy to correct this

b/c my red blood cell counts are below normal. They can't take a pint of blood

without it going lower. So, they are contacting Medicare to see if they will

pay for a new treatment where I would disolve this stuff into a drink and

swallow it every day. It's supposed to " bind " itself to the iron and will flush

out with my urine.

AND... I also have a suspicious looking spot that the doc says may be Psoriasis

~sigh~ Going to keep an eye on it, see if it gets worse.

Sorry so long, just wanted to check in. I do read your posts and respond if

it's something I think I can chime in on. Now I think I will unbend my back and

limp out to the den and catch up on the news.

Merry Christmas,

Gail (KY)