Re: [Stillsdisease group & (question)

December 19, 2008

Thanks a bunch for the info.

Do you know IF the test for RA is ever Negative for RA even though a person

DOES have it? In a recent blood work muy RA test were neg. BUT the RD said I

have Inflamatory RA & I do have very inflamed joints, joints pains that move

around < like sometimes muy elbows'd be throbing, then the hips, then big

toes & thummbs, shoulders, etc. Most of time is in a phace about 2x mo. when

it's extremelly bad. for days, & I'll have other symptoms like the swweats.I

have been reading the board from the group since Jul/ & have every thing else

every one talks about & afew extras wt. our OWN issues !!. But I'm not yet

diagnosed.

Also deos EVERY body have the FEVERS? to be Stills? I have every thing

(severe drenching sweatts, ) but no fever. MY temp. does go up , for me & feel

feverish, hot to touch & burn.

I'll apreciate the restponses.

Thanks,

VIVI

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December 20, 2008

Hi Vivi

The Rheumatoid factor(RA factor) and the anti-nuclear antibody (ANA)

tests will be negative in almost every case of Still's Disease. Has

your rheumatologist done an ANA test. If not you should suggest it.

You say that you are not yet diagnosed. If you have the sweats, up and

down fevers, inflamed joints in almost every part of your body, and RA

which is negative, it sounds to me like Stills. Discuss this

possibility with your doctor.

Have you noticed any rashes on your body? Go to this link to see some

of the types of rashes that Stills patients have:

http://www.stillsdisease.org/stills_rash

There is much more information on this site which can help you and

your rheumatologist.

All the best

>

> Thanks a bunch for the info.

> Do you know IF the test for RA is ever Negative for RA even though a

person

> DOES have it? In a recent blood work muy RA test were neg. BUT the

RD said I

> have Inflamatory RA & I do have very inflamed joints, joints pains

that move

> around < like sometimes muy elbows'd be throbing, then the hips,

then big

> toes & thummbs, shoulders, etc. Most of time is in a phace about 2x

mo. when

> it's extremelly bad. for days, & I'll have other symptoms like the

swweats.I

> have been reading the board from the group since Jul/ & have every

thing else

> every one talks about & afew extras wt. our OWN issues !!. But I'm

not yet

> diagnosed.

> Also deos EVERY body have the FEVERS? to be Stills? I have every thing

> (severe drenching sweatts, ) but no fever. MY temp. does go up , for

me & feel

> feverish, hot to touch & burn.

> I'll apreciate the restponses.

> Thanks,

> VIVI

December 20, 2008

Hi Vivi

My son (32 yrs old) was diagnosed with AOSD about 3 months ago. He has

continuous severe night sweats but states he has no fever. Not sure how you can

have one without the other...but he states this is the case. He has many other

things as well, including swollen lymph nodes in his lungs; pericarditis;

enlarged liver; joint pain; fatigue;swollen hands; as well as other things,

depending on the day I guess. One time his throat seemed to swell shut.

Another time he was eating an apple and his jaw " froze " open and he couldn't

close it and it was extremely painful. He had black dots infront of one of his

eyes, and a dizzy spell. Also, very high pulse but extremely low blood

pressure. His blood work is completely " off the wall " as well but I do not know

enough about what the terms/names of the various blood tests. His Rhumy is

amazed at how well he is doing, in spite of his symptoms. States he hasn't met

anyone like him before. I have no idea how he is managing, but am very proud of

his courage and his resolve to continue onwards and not think too much about

what he has. I tend to think about it more than him, to tell you the truth.

Reading the various horror stories many of the Still Soldiers have experienced

makes me realize how lucky we are. God bless us all. Keep well, everyone. LH

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December 20, 2008