Guest guest Posted January 27, 2002 Report Share Posted January 27, 2002 Hi , Thank you so much for sending out this message from your friend, JB! I would love to do a Breast Implant brochure with one full page of 'real life' comments such as yours, and JB's, included. I believe this would add a positive note, which we have been lacking in past years. Thanks again Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 22, 2004 Report Share Posted November 22, 2004 I have read that RA can cause neuropathy and am curious if any of you experienced neuropathy BEFORE your RA diagnosis? My hands fall asleep at night....does this mean I have p. neurothopy? Pris Does your pig need a brush-up in manners or obedience? Or bored and wanting to learn tricks? "Potbellied Pig Behavior and Training" book www.valentinesperformingpigs.com Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 22, 2004 Report Share Posted November 22, 2004 Hi Heidi: Welcome to the group. It seems as though many people have their RA activated after some sort of illness. So it would follow that perhaps the peripheral neuropathy could have triggered something in your immune system. In any case, if you are not comfortable with the "wait and see" approach, I urge you to find another doctor, maybe a rheumatologist, to get another opinion. Sometimes the wait and see approach can just mean an unnecessary worsening of symptoms. If you do have RA, even though you may test negative, you want to get onto a drug regimen to stop any damage from occurring in your joints. Good luck to you. gloria Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 22, 2004 Report Share Posted November 22, 2004 hello Heidi, I do agree with Gloria, I was sick a lot last year with pneumonia and strep throat and this the Dr believes trigged the RA. My RA was so progressive at the beginning that I was near bed ridden and if not treated soon I would be an invalid now, the disease cannot be reversed if you let it go till damage is done so I have to agree to get a second opinion. Hi Heidi: Welcome to the group. It seems as though many people have their RA activated after some sort of illness. So it would follow that perhaps the peripheral neuropathy could have triggered something in gloria Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 22, 2004 Report Share Posted November 22, 2004 Hello Heidi. I recommend a different doctor. About 25% of people diagnosed with RA do not have a positive rheumatoid factor and I think a lot more have RA but are not diagnosed because they do not test positive. You need to get to a rheumatologist, and keep going to new ones until you find one that will treat you in a manner you find acceptable. RA is a disease of the immune system and when any part of the immune system goes bonkers it can cause a lot of different symptoms as the body tries to restore the immune system to a proper balance. Thus if you have one autoimmune problem you are at higher risk for developing another. It is very hard to say what is part of one disease and when a symptom becomes part of a different disease. Any autoimmune problem can come first followed very often by any other problem. God bless Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 23, 2004 Report Share Posted November 23, 2004 hi! my left hand=thumb and pinkie finger are fine, however, the 3 other fingers are numb, day and night, it's been 7 weeks now....please give me your thoughts on this...gentle hugs, Marcia --- yellow dancer <yellowplugempress@...> wrote: > oh is that what that is? > I've been getting that in my fingers and legs > since college > love to you all > > NELLIESTAR@... wrote: > > I have > read that RA can cause neuropathy and am > curious if any of you > experienced neuropathy BEFORE your RA > diagnosis? > > > My hands fall asleep at night....does this mean > I have p. neurothopy? > Pris > > > > Does your pig need a brush-up in manners or > obedience? > Or bored and wanting to learn tricks? > " Potbellied Pig Behavior and Training " book > www.valentinesperformingpigs.com > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 23, 2004 Report Share Posted November 23, 2004 Heidi, I totally understand the feeling of knowing that something is wrong within you but having everyone tell me that it's all in your head. I was sent to Mayo Clinic in ville and was seen by every "ologist" in their building, tested for everything they could think of, and when it was over, they found nothing, and told me that I should see a psychologist! We know our own bodies better than they do, so don't take their answers and final. Keep going to other doctors until you find one that believes that you do know your body and work to try and help you. God bless you and give you strength to endure the idiocy of the medical field! Lise -------------- Original message -------------- Thank you so much for your answers! You have really given me the confidence to seek a different opinion. I have seen so many doctors in the past and it has always been very discouraging. It took a trip to Mayo to really get to any answers at all. I do think I have RA and I think my original illness was an RA incident now that I am having more "traditional" symptoms. Hopefully I can FINALLY get to the bottom of this illness. It has been so difficult to know something is wrong and have everyone tell me nothing is wrong, you are just stressed out. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 24, 2004 Report Share Posted November 24, 2004 Marcia, It may be carpal tunnel, which my ra dr told me is very common with people like us. I was recommended to buy and wear wrist braces, not to do surgery, cause it causes more complications with RA and Fibromyalsia. Hope you feel better soon. I get that too from time to time. The braces help a lot. Wear them to bed especially. ~Marcia Stoyle <marciastoyle@...> wrote: hi! my left hand=thumb and pinkie finger arefine, however, the 3 other fingers are numb, dayand night, it's been 7 weeks now....please giveme your thoughts on this...gentle hugs, Marcia--- yellow dancer wrote:> oh is that what that is?> I've been getting that in my fingers and legs> since college> love to you all> > NELLIESTAR@... wrote:> > I have > read that RA can cause neuropathy and am> curious if any of you > experienced neuropathy BEFORE your RA> diagnosis? > > > My hands fall asleep at night....does this mean> I have p. neurothopy?> Pris> > > > Does your pig need a brush-up in manners or> obedience?> Or bored and wanting to learn tricks?> "Potbellied Pig Behavior and Training" book> www.valentinesperformingpigs.com > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 24, 2004 Report Share Posted November 24, 2004 thanks, shelly! I have tried a brace at nite, however, the fingers go numb as soon as I remove the brace...also, as a school secretary, I cannot type/keyboard with the brace. I belong to the arthritis.org and they send a monthly magazine, " Arthritis Today " . there is an ad from amerimark.com, which sells a carpal tunnel relief strap for $25. it appears to be a rubber palm support, adjustable, fitting across the lowest knuckles, and would not restrict finger movement. I think I am going to order one - gentle hugs, Marcia --- shelly smiegal <shelsmieg2000@...> wrote: > Marcia, It may be carpal tunnel, which my ra > dr told me is very common with people like us. > I was recommended to buy and wear wrist braces, > not to do surgery, cause it causes more > complications with RA and Fibromyalsia. Hope > you feel better soon. I get that too from time > to time. The braces help a lot. Wear them to > bed especially. ~ > > Marcia Stoyle <marciastoyle@...> wrote: > hi! my left hand=thumb and pinkie finger are > fine, however, the 3 other fingers are numb, > day > and night, it's been 7 weeks now....please give > me your thoughts on this...gentle hugs, Marcia > --- yellow dancer > wrote: > > > oh is that what that is? > > I've been getting that in my fingers and legs > > since college > > love to you all > > > > NELLIESTAR@... wrote: > > > > I have > > read that RA can cause neuropathy and am > > curious if any of you > > experienced neuropathy BEFORE your RA > > diagnosis? > > > > > > My hands fall asleep at night....does this > mean > > I have p. neurothopy? > > Pris > > > > > > > > Does your pig need a brush-up in manners or > > obedience? > > Or bored and wanting to learn tricks? > > " Potbellied Pig Behavior and Training " book > > www.valentinesperformingpigs.com > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 24, 2004 Report Share Posted November 24, 2004 Marcia, If you get one, let me know how it works for you. I am curious as to what may be out there to help people like us. I ran into a woman I worked with years ago, probably close to 10 years ago, and she had ra when we worked together, back then. Anyhow, I ran into her, and even though she is on remicade, her hands look like a twisted up mess. I felt so bad to see how much this disease has changed her in 10 years. She used to complain about her fingers back then, but dear God, her hands look horrible. I am not saying anything bad about her, but I just want to know, are we eventually going to look this way too? I have to know. ~Marcia Stoyle <marciastoyle@...> wrote: thanks, shelly! I have tried a brace at nite,however, the fingers go numb as soon as I removethe brace...also, as a school secretary, I cannottype/keyboard with the brace. I belong to thearthritis.org and they send a monthly magazine,"Arthritis Today". there is an ad fromamerimark.com, which sells a carpal tunnel reliefstrap for $25. it appears to be a rubber palmsupport, adjustable, fitting across the lowestknuckles, and would not restrict finger movement.I think I am going to order one - gentle hugs,Marcia--- shelly smiegal wrote:> Marcia, It may be carpal tunnel, which my ra> dr told me is very common with people like us. > I was recommended to buy and wear wrist braces,> not to do surgery, cause it causes more> complications with RA and Fibromyalsia. Hope> you feel better soon. I get that too from time> to time. The braces help a lot. Wear them to> bed especially. ~> > Marcia Stoyle wrote:> hi! my left hand=thumb and pinkie finger are> fine, however, the 3 other fingers are numb,> day> and night, it's been 7 weeks now....please give> me your thoughts on this...gentle hugs, Marcia> --- yellow dancer > wrote:> > > oh is that what that is?> > I've been getting that in my fingers and legs> > since college> > love to you all> > > > NELLIESTAR@... wrote:> > > > I have > > read that RA can cause neuropathy and am> > curious if any of you > > experienced neuropathy BEFORE your RA> > diagnosis? > > > > > > My hands fall asleep at night....does this> mean> > I have p. neurothopy?> > Pris> > > > > > > > Does your pig need a brush-up in manners or> > obedience?> > Or bored and wanting to learn tricks?> > "Potbellied Pig Behavior and Training" book> > www.valentinesperformingpigs.com > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 25, 2004 Report Share Posted November 25, 2004 Hi , If this co-worker had RA 10 years ago, she may have experienced permanent joint damage before the newer, more effective treatments came out. Remicade may be helping her to function now, but it can't make up for joint damage that's already happened. There's no guarantee how any of us will end up, even with the new medications that we're fortunate enough to have. But if you've been treated agressively from the start with DMARDs and/or biologics, there's a better chance that you won't end up with the damage. Have a great Thanksgiving everyone! I'm thankful that all of us have found each other and are able to share, support and help through the good and bad of this crazy disease. Beth > > > > > > I have > > > read that RA can cause neuropathy and am > > > curious if any of you > > > experienced neuropathy BEFORE your RA > > > diagnosis? > > > > > > > > > My hands fall asleep at night....does this > > mean > > > I have p. neurothopy? > > > Pris > > > > > > > > > > > > Does your pig need a brush-up in manners or > > > obedience? > > > Or bored and wanting to learn tricks? > > > " Potbellied Pig Behavior and Training " book > > > www.valentinesperformingpigs.com > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 25, 2004 Report Share Posted November 25, 2004 Thanks Beth! Happy Thanksgiving to all of you!! Stuff the turkey, not yourselves!! ~oregonbeth <broot@...> wrote: Hi ,If this co-worker had RA 10 years ago, she may have experienced permanent joint damage before the newer, more effective treatments came out. Remicade may be helping her to function now, but it can't make up for joint damage that's already happened.There's no guarantee how any of us will end up, even with the new medications that we're fortunate enough to have. But if you've been treated agressively from the start with DMARDs and/or biologics, there's a better chance that you won't end up with the damage.Have a great Thanksgiving everyone! I'm thankful that all of us have found each other and are able to share, support and help through the good and bad of this crazy disease.Beth> > > > > > I have > > > read that RA can cause neuropathy and am> > > curious if any of you > > > experienced neuropathy BEFORE your RA> > > diagnosis? > > > > > > > > > My hands fall asleep at night....does this> > mean> > > I have p. neurothopy?> > > Pris> > > > > > > > > > > > Does your pig need a brush-up in manners or> > > obedience?> > > Or bored and wanting to learn tricks?> > > "Potbellied Pig Behavior and Training" book> > > www.valentinesperformingpigs.com > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 25, 2004 Report Share Posted November 25, 2004 shelly smiegal <shelsmieg2000@...> wrote: Marcia, If you get one, let me know how it works for you. I am curious as to what may be out there to help people like us. I ran into a woman I worked with years ago, probably close to 10 years ago, and she had ra when we worked together, back then. Anyhow, I ran into her, and even though she is on remicade, her hands look like a twisted up mess. I felt so bad to see how much this disease has changed her in 10 years. She used to complain about her fingers back then, but dear God, her hands look horrible. I am not saying anything bad about her, but I just want to know, are we eventually going to look this way too? I have to know. ~ , Ive noticed my mom over the last few years less than ten shes been on emberal the last few years but they took her mtx a long time becauce her liver is ate up now ,any way over the past few years her hands have gotten very bad and shes gotten big things on her elbows ( sorry i forget what you call them ) they are as big as large eggs she has just gotten continuelessly worse all this time so as you i wonder to , and i myself after not being able to gain controll over my pain with such painfull flares all the time i have lost confidence so i dont know i just hope for the best .. later john__________________________________________________ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 26, 2004 Report Share Posted November 26, 2004 hi, shelly! sure I will let you know, I did order it yesterday, so with shipping and a good trial, I don't think i'll have much to tell for 4 weeks or so, but I will get back to you! speaking of hands, do you know the old-time character actor, Carradine? (his son, , was the star of the Kung Fu cowboy series back around 20 years.) anyways, was in a lot of the old western movies, and he had RA in his hands. if you pay attention to detail, you'll see in one Wayne western after another, how he ages and how his hands changed. by the time he was in " Cat Ballou " , his hands were so bent up, he could barely hold the reins of the horse/wagon. another star with RA was Coburn...but his hands didn't seem all that bad. hopefully, my enbrel will keep these fingers straight enough so I can type messages to you all. Happy Turkey Day! marcia --- shelly smiegal <shelsmieg2000@...> wrote: > Marcia, If you get one, let me know how it > works for you. I am curious as to what may be > out there to help people like us. I ran into a > woman I worked with years ago, probably close > to 10 years ago, and she had ra when we worked > together, back then. Anyhow, I ran into her, > and even though she is on remicade, her hands > look like a twisted up mess. I felt so bad to > see how much this disease has changed her in 10 > years. She used to complain about her fingers > back then, but dear God, her hands look > horrible. I am not saying anything bad about > her, but I just want to know, are we eventually > going to look this way too? I have to know. > ~ > > Marcia Stoyle <marciastoyle@...> wrote: > thanks, shelly! I have tried a brace at nite, > however, the fingers go numb as soon as I > remove > the brace...also, as a school secretary, I > cannot > type/keyboard with the brace. I belong to the > arthritis.org and they send a monthly magazine, > " Arthritis Today " . there is an ad from > amerimark.com, which sells a carpal tunnel > relief > strap for $25. it appears to be a rubber palm > support, adjustable, fitting across the lowest > knuckles, and would not restrict finger > movement. > I think I am going to order one - gentle hugs, > Marcia > --- shelly smiegal > wrote: > > > Marcia, It may be carpal tunnel, which my ra > > dr told me is very common with people like > us. > > I was recommended to buy and wear wrist > braces, > > not to do surgery, cause it causes more > > complications with RA and Fibromyalsia. Hope > > you feel better soon. I get that too from > time > > to time. The braces help a lot. Wear them to > > bed especially. ~ > > > > Marcia Stoyle wrote: > > hi! my left hand=thumb and pinkie finger are > > fine, however, the 3 other fingers are numb, > > day > > and night, it's been 7 weeks now....please > give > > me your thoughts on this...gentle hugs, > Marcia > > --- yellow dancer > > wrote: > > > > > oh is that what that is? > > > I've been getting that in my fingers and > legs > > > since college > > > love to you all > > > > > > NELLIESTAR@... wrote: > > > > > > I have > > > read that RA can cause neuropathy and am > > > curious if any of you > > > experienced neuropathy BEFORE your RA > > > diagnosis? > > > > > > > > > My hands fall asleep at night....does this > > mean > > > I have p. neurothopy? > > > Pris > > > > > > > > > > > > Does your pig need a brush-up in manners or > > > obedience? > > > Or bored and wanting to learn tricks? > > > " Potbellied Pig Behavior and Training " book > > > www.valentinesperformingpigs.com > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 4, 2007 Report Share Posted June 4, 2007 I just wanted to say hi and thank you for accepting me into this group! Blessings! Martha Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 5, 2007 Report Share Posted June 5, 2007 Welcome and blessings, Martha. It is really a wonderful group and even more so now that you are in it. Namaste, Kanta --- Martha <mshetline@...> wrote: > I just wanted to say hi and thank you for accepting > me into this group! > > Blessings! > Martha > > Hold an image of the life you want, and that image will become fact. -Dr. Norman Peale Imagination is only intelligence having fun. -Albert Einstein ________________________________________________________________________________\ ____ Get the free toolbar and rest assured with the added security of spyware protection. http://new.toolbar./toolbar/features/norton/index.php Quote Link to comment Share on other sites More sharing options...
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