Fun in the Resort

[Guest guest]

Hello All,

Seems like several of us have decided to bless our closest resorts,with our

presence;) I had been having a hard time for the last 2 months. I thought I had

a respiratory bug 2 weeks ago,with cough,fever,runny nose. Got a bit better,and

then the night sweats came with a vengeance. I had an appointment with my

rheumy,we discussed that the Rituxan wasn't working any more. She wanted to

check all the usual rheumy labs. I didn't get to it until the next day,because I

had to get to work. I got my labs drawn at 5pm,got a phone call from the on-call

MD 2 hrs later,and knew that something was very wrong. My WBC count was very

low,and my neutrophile(first line crime fighters) were almost non-existent. So I

was instructed to pack a bag,go to the ER for a septic workup,and expect to

spend some days in the hospital. All of this with the wonderful Real-winter

weather in Seattle. Lucky for me I went to the ER I used to work in,and had my

very good friend,take care of me. My wife,Darya,had this horrible look on her

face. Fear. I have never seen this look on her face,ever. I got sicker with

every hour,and then lost track of events. I had to have a spinal tap,which took

6 attempts. A combo of poor technique,scar tissue from back surgery,and a stupid

nurse-anesthetist.My WBC count started at 3.5,by 11pm it fell to 2.2,and by 6am

the next morning it was down to 1. I was on the super-duper,kick-ass

antibiotics. I got 80mg of Solumedrol 4 times a day. Between the infectious

disease doctor,hematologist,and rheumy,they decided that it was our friend

Still's,kicking my ass. My counts came up,from the steroids. This was the first

time in many years that I have been truly scared. I could see the fear in

everyone's eyes when they looked at me. I kept thinking that if things continued

as they were going,I would be in the ICU. My brain wasn't working,my thoughts

were jumbled. Because of the weather,Darya had to keep everyone updated on the

phone.

So I am back on Enbrel,which worked a little bit. My rheumy wants to put me on

Actemra,which the FDA has not approved yet in the USA. I will have to go on one

of the IV osteoporosis meds,because of my thrashed esophagus. I am thankful for

all the family and friends who helped me limp through this whole scary business.

I am thankful that I have this group to help me,inform me,or just listen to me

when I am troubled. I am sending all the positive vibes I have, to all of you.

Merry Christmas,Happy Hannakuh,happy holidays to all of you,and your families.

Sorry this is so long!

Love,

Nissa

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2008

[Guest guest]

Nissa,

So sorry to hear that you will be in the resort for a bit longer. 7

days was plenty for me and glad to be home and back on track with my

meds. My son is so happy that I will be home for Christmas, he keeps

saying (signing) to everyone, " I got my Christmas wish, I got my

Christmas wish. My dad is home for Christmas " . He is not usually

one to show his emotions so I appreciate it more than ever.

You take care and we will all have a pact that no one will visit the

resort in 2009. Agrred!?

Tom

>

> Hello All,

>

> Seems like several of us have decided to bless our closest

resorts,with our presence;) I had been having a hard time for the

last 2 months. I thought I had a respiratory bug 2 weeks ago,with

cough,fever,runny nose.

[Guest guest]

Nissa

 dang you too what is it and every one wanting to viset the resorts this time of

year? I know I have been lucky in this part as I have stayed out of them for

years now how some times I even wonder but so far so good. I do know there is a

bug running around kicking butts hard I have had one now for over two months and

just can not get it to move on the thing has taken up house keepng in my dang

lungs . so now I have a soft horse voice to go with it and this all started back

when I had my uper Gi done thre day later I started to feel kind of sick and my

lungs have been fighting me even sence o well for me the resort is a no no place

for now so stop going there and get up get out and get better! Not only you but

all of yous stills people in or headed for the resorts stop it now and just

enjoy what yas can I know thats all I try to do .hmmmm mayb e a few days in a

resort may not be so bad when you think about it next to this nut house we call

home

hugs all

 

the  rednecks

Marty & G.

the redneck's my space http://www.myspace.com/martyg58

 To learn about Stills Disease  http://www.stillsdisease.org/stills_info

For conservitive minded people  http://www.americac2c.org " If  we ever forget

that we're one nation under God, then we will be a nation gone  under. " ~

Reagan

 

 In the old days a man who saved money was a miser; nowadays he's a wonder. 

~Author Unknown

 

 

A nation can survive its fools and even the ambitious. But it cannot survive

treason from within.~Cicero

                                                   

" The  most terrifying words in the English language are: I'm from the

government  and I'm here to help. "    ~  Reagan