Re: Parents with 2 + children 1 or more with Scoli (Nat...

[Guest guest]

,

From the time Noah was only a few months old I was concerned about his lower

back. Where normally the spine curves in towards the waist, Noah's curved

out. His pedi was always very closely looking at his back because of Abby and

told me it was nothing to worry about, that as his muscles strengthened, it

would probably resolve. I always just felt something wasn't right so I

pushed for an x-ray. I think he was only about 3 months old. At that time

they

said it was Lumber Kyphosis...but they also saw an 8 degree curve of scoliosis

as well that they said could be positional. At that point I contacted

Abby's ortho and had Noah seen the following week. He seems to think the

kyphosis

will resolve as Noah starts walking but monitors him every three months

along with Abby so hopefully if something is wrong, it will be caught early.

And

now with Ameila being only 4 days old, I know I'll be watching her as well!

Just something that is always on your mind when you already have one child

with IS.

Keeping our finger's crossed!!!!

In a message dated 1/16/2008 11:05:31 A.M. Eastern Standard Time,

christinehrph@... writes:

-Deshea

Great to hear that things are stable for Lucas,It is nice to have a

local contact and a comfort I am sure...Deshea lets chat soon

......

We see Dr Emans in Boston but Adan has been casted from 23 months to

4 year. Now in a Boston brace holding 4 degree in Brace 15 out

started at 38 degrees

We get a 24 hr out Feb 6 th to see what this brace is doing he has

been in it 7 months

We are in Amherst ....formally from Dedham Mass

:

I am wondering when you decided to bring in

Noah for evaluation??Noa

I have a baby girl Abigail 5 months and so far I do not see anything

but I am always nervous. I am doing things with her that i vowed not

to do because i am not sure what external factor created Adan to get

scoliosis so young I am assuming it was from sleeping with me on his

same side for 3 months till I noticed his face flat then rotated him

but I did not see his back till about 9 months..

I am worried if I let Abigail sleep in our bed this might trigger

scoliosis but I love to sleep with her the difference is I keep her

flat on her back and rotated sides thought the night with

feedings....feedings....<WBR>..... The only in the problem with the famil

do tend to get a slight imbalance from the mattress ( I am afarid I

am being to crazy and not want to become insane ) but I want to keep

on top of it and want to be able to enjoy things

Anything you are doing differnet with the kids to prevent it?

Thanks for your advice

-- In _infantile_scoliosisinfantile_scoinf_

(mailto:infantile_scoliosis ) , Lkyla@... wrote:

>

> Hi Deshea,

> I'm so glad to hear that you liked Dr. Hresko. He's made us very

> comfortable from the start with Abby...and now also with Noah.

Abby started off at a

> 47 degree curve and is currently down to 8 degrees in brace. Noah

is just

> being watched at this point. He's going to be a year next month

and so far his

> back looks ok, but his ribs are starting to protrude on the right

side...plus

> he has the lumbar kyphosis. We have a follow up for both of them

next week

> including x-rays, so we're excited to see where they're at! Glad

to hear all

> is going so well with Lucas!!

> , mom to

> Abby (35 months),

> Noah (11 months) &

> our newest little angel, Amelia (Only 3 days old!!)

>

>

> In a message dated 1/15/2008 9:34:57 A.M. Eastern Standard Time,

> deshea@... writes:

>

>

>

>

> hi everyone,

>

> a little update from us. we decided to make contact with a local

ortho again

> just in case we ever need someone close. i was interested in dr.

hresko at

> children's in boston ever since i heard that he has referred

patients to dr.

> sanders and was even interested in doing casting but was never

able to get

> that up and running for unknown reasons. more recently i read that

he was the

> first ortho in boston to perform the vertebral stapling procedure

at

> children's. previously it was only done in philly.

>

> what a nice man. definitely different from our other experience at

> children's here. basically we went over lucas' history, and he

looked through his

> x-rays from montreal from the last year and a half. no new x-rays

were taken.

>

> dr. hresko said that he really likes the spinecor brace and has

been

> following the papers and developments of it. they used to use it

at children's for

> ais cases, but had some difficulty with compliance due to the

crotch straps in

> the teen age girls. i guess they didn't have as good as results as

dr.

> rivard's group. he mentioned how good lucas looks on x-ray and

just looking at his

> back. he thought that if we could continue with the spinecor for

as long as

> possible -- i guess meaning either until it doesn't hold the curve

if does

> progress or as long as lucas tolerates it, then he thought that

would be

> wonderful.

>

> i must say that i thought it was very interesting that he

didn't " push "

> stapling. i guess that i thought he might leave that door open as

an option to us

> now, but on the contrary, even when we asked about it, he did not

really

> elaborate or want to discuss it in detail.

>

> anyway, i guess we will stay the course. my husband came out of

the appt.

> quite relieved to hear from another ortho that lucas is doing

well.

>

> thanks for listening!

> deshea

> ____________ ____ ____ ____ ____ ____

> mom to lucas (6 yrs old) and ruby (3 yrs old and a handful!)

> north of boston, ma

>

> lucas was diagnosed with infantile scoliosis at 18 mos 68o/45o

> spinal detethering due to a tight/fatty filum at 22 mos

> tlso and charleston brace from 18 mos to 2 1/2 yrs old at

children's boston,

> ma

> serial plaster casting from 2 1/2 until 4 1/2 yrs old at shriners

in erie, pa

> now in a spinecor brace at 24o/18o from montreal.

>

>

>

>

>

>

> ************ ************<WBR>**Start the year off right. Easy wa

shape.

> _http://body.http://body.<WBRhttp://body.<WBR_

(http://body.aol.com/fitness/winter-exercise?)

NCID=aolcmp00300000NCID=a

>

>

> [Non-text portions of this message have been removed]

>

**************Start the year off right. Easy ways to stay in shape.

http://body.aol.com/fitness/winter-exercise?NCID=aolcmp00300000002489

[Guest guest]

Congratulations on Amelia!!!!!!!!

So good to hear about new babies.

Betty

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[Guest guest]

Betty,

Thank you so much!

In a message dated 1/16/2008 6:27:51 P.M. Eastern Standard Time,

missbetty37@... writes:

Congratulations on Amelia!!!!!!!!

So good to hear about new babies.

Betty

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