Guest guest Posted January 3, 2008 Report Share Posted January 3, 2008 , Glad to hear the surgery went okay, but I'm so sorry poor Olivia had to go through that and is in so much pain. I will be keeping her in my prayers and I hope she starts feeling better soon. Olivia Thanks to all of you who have kept my darling daughter in your thoughts and prayers! Its meant a lot to me knowing that we have people pulling for her. Here's the low down; The VEPTR dual hybrid (attached to the pelvic structure, instead of the spine) has migrated through BOTH of her upper ribs (t-2 & 3). The one on the left had had completely eroded through, and the one on the right had almost...... The attachment was hanging on to a rib the size of a toothpick. The attachments were moved down to the next set of ribs. She is in a lot of pain, and yesterday we needed to have the meds increased. I am hoping & praying that today will be a better day. I have so much more to tell, but cant because she will be waking up at any moment and I must rush back to the room. This setback has definately inspired ISOP to keep working hard to get the word out on ET. No child should have to suffer like this, when there is an ET cure (gentle) available to our children with progressive i.s. Shell, thanks for everything! I'll post more on her progress as soon as I can. Love to you all. HRH ________________________________________________________________________________\ ____ Looking for last minute shopping deals? Find them fast with Yahoo! Search. http://tools.search.yahoo.com/newsearch/category.php?category=shopping Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 3, 2008 Report Share Posted January 3, 2008 Oh, ! My heart is breaking for you girls. You are absolutely in my thoughts and prayers and the prayers of many of my friends to whom I passed the information on to. If there is anything at all we can do, don't hesitate to ask! Love Sandi Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 3, 2008 Report Share Posted January 3, 2008 , I am so sorry Olivia is in such pain. Please know we will continue to pray for you both. I also sent an email to a long list of prayer warriors. Along with Olivia's story. I pray today is better than yesterday for that strong little girl. Take care, Tasha heather@... wrote: Thanks to all of you who have kept my darling daughter in your thoughts and prayers! Its meant a lot to me knowing that we have people pulling for her. Here's the low down; The VEPTR dual hybrid (attached to the pelvic structure, instead of the spine) has migrated through BOTH of her upper ribs (t-2 & 3). The one on the left had had completely eroded through, and the one on the right had almost......The attachment was hanging on to a rib the size of a toothpick. The attachments were moved down to the next set of ribs. She is in a lot of pain, and yesterday we needed to have the meds increased. I am hoping & praying that today will be a better day. I have so much more to tell, but cant because she will be waking up at any moment and I must rush back to the room. This setback has definately inspired ISOP to keep working hard to get the word out on ET. No child should have to suffer like this, when there is an ET cure (gentle) available to our children with progressive i.s. Shell, thanks for everything! I'll post more on her progress as soon as I can. Love to you all. HRH --------------------------------- Be a better friend, newshound, and know-it-all with Yahoo! Mobile. Try it now. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 3, 2008 Report Share Posted January 3, 2008 Tell Olivia to hang in there and you to. I am praying for you both. Please let my mom and I know if there is anything we can do for you here. My mom is working on contacting the doctors in Grand Junction and to start the process for ET in Grand Junction. love you guys Rochelle > > Thanks to all of you who have kept my darling daughter in your thoughts > and prayers! Its meant a lot to me knowing that we have people pulling > for her. > Here's the low down; > The VEPTR dual hybrid (attached to the pelvic structure, instead of the > spine) has migrated through BOTH of her upper ribs (t-2 & 3). The one on > the left had had completely eroded through, and the one on the right had > almost......The attachment was hanging on to a rib the size of a > toothpick. The attachments were moved down to the next set of ribs. She > is in a lot of pain, and yesterday we needed to have the meds increased. > I am hoping & praying that today will be a better day. I have so much > more to tell, but cant because she will be waking up at any moment and I > must rush back to the room. > This setback has definately inspired ISOP to keep working hard to get the > word out on ET. No child should have to suffer like this, when there is > an ET cure (gentle) available to our children with progressive i.s. > Shell, thanks for everything! I'll post more on her progress as soon as I > can. > Love to you all. > HRH > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 3, 2008 Report Share Posted January 3, 2008 Dear , I don't post a lot but I read all the messages on this group every day. I am so sorry to hear about Olivia and wish you both lots of strength to get through this. Hopefully Olivia's pain will go away quickly. Our thoughts are with you. All the best, Anneke Weenen Utrecht, Netherlands Daughter Frederiek (now 14 months)was diagnosed with scoliosis at 9 months (50 degrees). Now wearing her 4th (non Mehta) cast. In cast her curve (thoracic-lumbar) is now at 23 degrees. > > Thanks to all of you who have kept my darling daughter in your thoughts > and prayers! Its meant a lot to me knowing that we have people pulling > for her. > Here's the low down; > The VEPTR dual hybrid (attached to the pelvic structure, instead of the > spine) has migrated through BOTH of her upper ribs (t-2 & 3). The one on > the left had had completely eroded through, and the one on the right had > almost......The attachment was hanging on to a rib the size of a > toothpick. The attachments were moved down to the next set of ribs. She > is in a lot of pain, and yesterday we needed to have the meds increased. > I am hoping & praying that today will be a better day. I have so much > more to tell, but cant because she will be waking up at any moment and I > must rush back to the room. > This setback has definately inspired ISOP to keep working hard to get the > word out on ET. No child should have to suffer like this, when there is > an ET cure (gentle) available to our children with progressive i.s. > Shell, thanks for everything! I'll post more on her progress as soon as I > can. > Love to you all. > HRH > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 3, 2008 Report Share Posted January 3, 2008 So good to hear an update...we love you guys... Prayers are being said for you both. Hugs, and Evan heather@... wrote: Thanks to all of you who have kept my darling daughter in your thoughts and prayers! Its meant a lot to me knowing that we have people pulling for her. Here's the low down; The VEPTR dual hybrid (attached to the pelvic structure, instead of the spine) has migrated through BOTH of her upper ribs (t-2 & 3). The one on the left had had completely eroded through, and the one on the right had almost......The attachment was hanging on to a rib the size of a toothpick. The attachments were moved down to the next set of ribs. She is in a lot of pain, and yesterday we needed to have the meds increased. I am hoping & praying that today will be a better day. I have so much more to tell, but cant because she will be waking up at any moment and I must rush back to the room. This setback has definately inspired ISOP to keep working hard to get the word out on ET. No child should have to suffer like this, when there is an ET cure (gentle) available to our children with progressive i.s. Shell, thanks for everything! I'll post more on her progress as soon as I can. Love to you all. HRH --------------------------------- Be a better friend, newshound, and know-it-all with Yahoo! Mobile. Try it now. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 3, 2008 Report Share Posted January 3, 2008 Hi , Thanks for the update. I sure hope Olivia's pain is getting less by the day.My prayers are continuous for your family. The Lord will see you through this. Gloria **************Start the year off right. Easy ways to stay in shape. http://body.aol.com/fitness/winter-exercise?NCID=aolcmp00300000002489 Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 3, 2008 Report Share Posted January 3, 2008 , I am tearing up reading that Olivia is in such pain, especially after all that she has been through. Please know that you are both in our prayers and we wish her a speedy recovery. You are both so strong and an inspiration to us all. Give her a " gentle " hug for us! ((Hug)) Tina Olivia Thanks to all of you who have kept my darling daughter in your thoughts and prayers! Its meant a lot to me knowing that we have people pulling for her. Here's the low down; The VEPTR dual hybrid (attached to the pelvic structure, instead of the spine) has migrated through BOTH of her upper ribs (t-2 & 3). The one on the left had had completely eroded through, and the one on the right had almost......The attachment was hanging on to a rib the size of a toothpick. The attachments were moved down to the next set of ribs. She is in a lot of pain, and yesterday we needed to have the meds increased. I am hoping & praying that today will be a better day. I have so much more to tell, but cant because she will be waking up at any moment and I must rush back to the room. This setback has definately inspired ISOP to keep working hard to get the word out on ET. No child should have to suffer like this, when there is an ET cure (gentle) available to our children with progressive i.s. Shell, thanks for everything! I'll post more on her progress as soon as I can. Love to you all. HRH Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 3, 2008 Report Share Posted January 3, 2008 Hi , Please know that both you and Olivia are in my thoughts and prayers. Thank you for the update! e heather@... wrote: Thanks to all of you who have kept my darling daughter in your thoughts and prayers! Its meant a lot to me knowing that we have people pulling for her. Here's the low down; The VEPTR dual hybrid (attached to the pelvic structure, instead of the spine) has migrated through BOTH of her upper ribs (t-2 & 3). The one on the left had had completely eroded through, and the one on the right had almost......The attachment was hanging on to a rib the size of a toothpick. The attachments were moved down to the next set of ribs. She is in a lot of pain, and yesterday we needed to have the meds increased. I am hoping & praying that today will be a better day. I have so much more to tell, but cant because she will be waking up at any moment and I must rush back to the room. This setback has definately inspired ISOP to keep working hard to get the word out on ET. No child should have to suffer like this, when there is an ET cure (gentle) available to our children with progressive i.s. Shell, thanks for everything! I'll post more on her progress as soon as I can. Love to you all. HRH --------------------------------- Never miss a thing. Make Yahoo your homepage. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 4, 2008 Report Share Posted January 4, 2008 I am so sorry to that Olivia has to go through so much. I know she is in good hands and I pray for her speedy recovery. You both are in our thoughts. xoxo, and Family Olivia Thanks to all of you who have kept my darling daughter in your thoughts and prayers! Its meant a lot to me knowing that we have people pulling for her. Here's the low down; The VEPTR dual hybrid (attached to the pelvic structure, instead of the spine) has migrated through BOTH of her upper ribs (t-2 & 3). The one on the left had had completely eroded through, and the one on the right had almost...... The attachment was hanging on to a rib the size of a toothpick. The attachments were moved down to the next set of ribs. She is in a lot of pain, and yesterday we needed to have the meds increased. I am hoping & praying that today will be a better day. I have so much more to tell, but cant because she will be waking up at any moment and I must rush back to the room. This setback has definately inspired ISOP to keep working hard to get the word out on ET. No child should have to suffer like this, when there is an ET cure (gentle) available to our children with progressive i.s. Shell, thanks for everything! I'll post more on her progress as soon as I can. Love to you all. HRH ________________________________________________________________________________\ ____ Be a better friend, newshound, and know-it-all with Yahoo! Mobile. Try it now. http://mobile.yahoo.com/;_ylt=Ahu06i62sR8HDtDypao8Wcj9tAcJ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 4, 2008 Report Share Posted January 4, 2008 I have posted more details on 's website on my caringbridge website and people are really praying for you. My sister read (again) Olivia's whole story on ISOP and another family member asked for pictures so that they can keep her face in their minds as they pray for her. We pray that her pain will GO AWAY. She has a strong mommy, who will pull her through this. You are on my heart, all day! Is there anything we can send?? Is there anything that Olivia likes that we could send to help her through this? Toys, games, anything? Much love, > > Thanks to all of you who have kept my darling daughter in your thoughts > and prayers! Its meant a lot to me knowing that we have people pulling > for her. > Here's the low down; > The VEPTR dual hybrid (attached to the pelvic structure, instead of the > spine) has migrated through BOTH of her upper ribs (t-2 & 3). The one on > the left had had completely eroded through, and the one on the right had > almost......The attachment was hanging on to a rib the size of a > toothpick. The attachments were moved down to the next set of ribs. She > is in a lot of pain, and yesterday we needed to have the meds increased. > I am hoping & praying that today will be a better day. I have so much > more to tell, but cant because she will be waking up at any moment and I > must rush back to the room. > This setback has definately inspired ISOP to keep working hard to get the > word out on ET. No child should have to suffer like this, when there is > an ET cure (gentle) available to our children with progressive i.s. > Shell, thanks for everything! I'll post more on her progress as soon as I > can. > Love to you all. > HRH > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 4, 2008 Report Share Posted January 4, 2008 heather, it goes without saying that olivia and you continue to be in my prayers. i hope that they can get her pain under control soon and figure out a good game plan to avoid this in the future. my best, deshea > > > > > Thanks to all of you who have kept my darling > daughter in your thoughts > > and prayers! Its meant a lot to me knowing that we > have people pulling > > for her. > > Here's the low down; > > The VEPTR dual hybrid (attached to the pelvic > structure, instead of the > > spine) has migrated through BOTH of her upper ribs > (t-2 & 3). The > one on > > the left had had completely eroded through, and > the one on the right had > > almost......The attachment was hanging on to a rib > the size of a > > toothpick. The attachments were moved down to the > next set of ribs. > She > > is in a lot of pain, and yesterday we needed to > have the meds > increased. > > I am hoping & praying that today will be a better > day. I have so much > > more to tell, but cant because she will be waking > up at any moment and I > > must rush back to the room. > > This setback has definately inspired ISOP to keep > working hard to > get the > > word out on ET. No child should have to suffer > like this, when there is > > an ET cure (gentle) available to our children with > progressive i.s. > > Shell, thanks for everything! I'll post more on > her progress as > soon as I > > can. > > Love to you all. > > HRH > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 4, 2008 Report Share Posted January 4, 2008 Hi - Just wanted to let you know I told Judy at Make-A-Wish about Olivia. She wanted me to let you know she is thinking and praying for both of you. The rest of us are too!!! Hope things are going better. Shara -- In infantile_scoliosis , heather@... wrote: > > Thanks to all of you who have kept my darling daughter in your thoughts > and prayers! Its meant a lot to me knowing that we have people pulling > for her. > Here's the low down; > The VEPTR dual hybrid (attached to the pelvic structure, instead of the > spine) has migrated through BOTH of her upper ribs (t-2 & 3). The one on > the left had had completely eroded through, and the one on the right had > almost......The attachment was hanging on to a rib the size of a > toothpick. The attachments were moved down to the next set of ribs. She > is in a lot of pain, and yesterday we needed to have the meds increased. > I am hoping & praying that today will be a better day. I have so much > more to tell, but cant because she will be waking up at any moment and I > must rush back to the room. > This setback has definately inspired ISOP to keep working hard to get the > word out on ET. No child should have to suffer like this, when there is > an ET cure (gentle) available to our children with progressive i.s. > Shell, thanks for everything! I'll post more on her progress as soon as I > can. > Love to you all. > HRH > Quote Link to comment Share on other sites More sharing options...
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