Guest guest Posted August 6, 2002 Report Share Posted August 6, 2002 She's right ... just because something shows up on a food screen doesn't necessarily mean your child is allergic to it. In our case, he showed a positive to soy. We took it away for 5 weeks and then reintroduced it (big time) and saw no negative reaction. Now he eats it almost every day in his yogurt. We did the same thing with almonds and learned that the positive was not false ... he did have a reaction. So you need to use the food screen as a guide, not the final, definitive answer. Dave > Hi. I just want you to know that I know how you feel. When we had my son tested he was allergic to all of your items plus rice, beef, onion, garlic, some fruits and veggies, etc. So I know how overwhelming it can be. One thing to remember is that the positives can be false so at some point you can try to introduce the foods that your child is supposed to be allergic to and see what happens. If you eliminate the food and then add it back in later and see no change it may be a false positive. > > Also, Miss Roben has a great selection of mixes, etc. especially if you can do rice. If your child likes chicken nuggets I have a really easy way of doing those. Just let me know. Potatoes are a great source of ideas too. If your child likes mustard, I found a gluten free organic honey mustard dressing at Whole Foods that I put on salad and my son devours it. This is a kid who had no interest in salad but his diet is so limited I think he wanted something new and he loves the taste of mustard. > > Feel me to email me privately for more help. > good luck > -Noelle > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 27, 2003 Report Share Posted March 27, 2003 Hi, I think a psychologist not a psychiatrist may be your answer. Most people that I have known have better results with a psychologist if your dealing with everyday life pressures. Also you may not like the first one that you go to, its a personality thing. So if you find after at least 3 sessions that the person isn't helping you, try someone else. It will help you. Also I dont believe if they are a good psychologist that it should matter if they have dealt with special needs children or not. Be glad you got rid of that psychiatrist. Hope this has helped!!! We have all been in your shoes at one point or another!! Good Luck!! Kim K Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 27, 2003 Report Share Posted March 27, 2003 Hi Suzi, The hardest and most important step is realizing there is something wrong and reaching out for help. The fact that you are, shows all of us what a loving parent you truly are. Besides -you wouldn't be normal if you never lost it a bit -as long as you don't go over the edge. You know yourself best -so it does sound like it is wise to seek someone professional to talk to that can help work out a personal plan for you and your family to improve how things are now. You may want to seek a child psych for the children and a different one for you (and your husband?) to also talk to. Check with your insurance since many will cover each in your family separate. To find a psychologist who is knowledgeable about special needs children and the stress from that - check with your children's school psychologist, or ask here and say what state you are from, or ask friends and neighbors (you will be amazed how many know) I believe you were from California - so I'm posting this site from a child psychologist there who can perhaps refer you to a child psychologist near you if she is not. http://www.childpsychologist.com/ I also found this from the American Psychological Association " How may I use APA as a resource? 'Talk to Someone Who Can Help,' http://helping.apa.org/brochure/index.html brochure about psychotherapy and choosing a psychologist from the American Psychological Association can be ordered free of charge. Call 1-800- 964-2000 Get the facts: How to find help through psychotherapy ,a brief question-and-answer guide that provides basic information about psychotherapy and how it can help. http://www.helping.apa.org/therapy/psychotherapy.html Find a Psychologist, information on how to be connected with the state psychological association referral network in your area. This information is also available by calling: 1-800-964-2000. http://www.helping.apa.org/find.html Here are two articles from one of our favorite dads who has a child with special needs -and who also happens to be a child psychologist: Families need help and dignity, not punishment. (As it appeared in the Philadelphia Sunday Inquirer of January 9, 2000) Many people find it hard to fathom what could drive a couple like Dawn and Kelso of Chester County to abandon their fragile child, , at a hospital on the day after Christmas 1999. I for one do not. The image of the boy in a wheelchair who needs a respirator to breath jolted me as I read it while visiting relatives in Florida. By all accounts, the Kelsos had loved their child dearly. They have had round the clock nursing care in their home for years. I wish I could be baffled. If only my son was healthy, I would be on that side of the fence. If only he didn't have autism. If only he could speak and read and write. And if only my boy now twenty wasn't severely retarded. Then I could be morally offended. Then I might think it a crime with the parents deserving their mug shots in the newspaper. Quite the contrary it seems to border on the absurd and the uncivilized to charge this couple with crimes. Children with special healthcare needs can be wonderfully endearing and lovable. They readily evoke our compassion. Simultaneously they can drain their parents to unfathomable lengths and be very difficult to live with from day to day. Parents often have to beg and scream to get services their child requires. Besides my own experiences, my sources include many families who are raising a child with a disability and who seek my counsel as a professional psychologist. Sometimes a sick baby will keep you up all night. You worry and you check to see that your infant is still breathing. What if your child never got better? What if all the love and the best medical care didn't change that but your child lived? Who would you become? What if you had a child like who reportedly had up to 30 seizures in a single day? I can tell you that it is a grief like no other. It will take you places you never wanted to go... (read the whole article at http://www.specialfamilies.com/inquirer_op_ed.htm ) " ...As Tariq continued to meet developmental milestones - including the development of a small but useful vocabulary - I began to dream of our future together. I imagined him playing Little League baseball. In my mind's eye, I beamed with pride as he fielded the ball and swiftly ran the bases. I would be the perfect father - there for him when he needed to talk, but able to give him space when he wanted it. I imagined the two of us having philosophical discussions. Our relationship would be close and warm. In June of 1981, when he was 18 months old, Tariq got sick with a virus. His illness was treated and went away, but my son never got better; he never spoke another word. I was sick with worry as Tariq's engaging personality became a mere memory. He seemed to have no interest in people, but would play with the same rattle for hours on end. When he was diagnosed with autism, I was flooded with the deepest grief of my life. ....I saw this dream as a sign that Tariq would speak to me again, if only I would work with him to make it happen. Desperate to document evidence of Tariq's progress, I taped his grunts, groans and babbling. I listened to these tapes for hours on end, straining to hear the emergence of meaningful communication. Eventually, I began to wake up from this dream feeling exhausted and overwhelmed. Whenever I'd worked hard at something in my life, I had gotten results. But now my hopes for Tariq's recovery were fading. It was hard to fathom that I might have no control over my child's condition, still more difficult to admit that love was not enough to help my son... (read the whole article at http://www.specialfamilies.com/healing_broken_dreams.htm ) While you seek the professional help I suggest you take some " me " time to do things just because you like to do them. If you can't find this time while your children are in school, then find someone that can watch the children (your husband, a neighbor, friends, family, a babysitter) and for an hour or two in the evening go to the mall, or to see a movie (comedy preferably), or to work out, or out to eat, or for a manicure, or for a nature walk, or take a pottery class, etc. Even if you never did one of the above before at 8:00 PM when most of the rest of the world is sitting in front of the TV -then do it for you. For that hour or two -the laundry won't get any stinkier, your family won't starve no matter how much they say they will, the IEP, therapy, advocacy track can wait for the sun to rise, and you deserve to relax. I can relate. Dakota and I almost died during delivery and I went from being the happy go lucky social butterfly to the crying lump on the couch under the blanket gently rocking Dakota's torn and crushed body with tears running down my face looking up at the ceiling and saying " why my baby, why me?! Never did anyone in the world feel sorrier for herself than me. That's how I felt. I didn't take my stress out on Dakota who was a baby at the time -or my friends or family or anyone but one person. I took all my anger out on my husband Glenn -who was always my best friend before Dakota was born. There were a few things that helped me, some of them included simple things like walks on the beach and hot chocolate with marshmallows (and for some reason watching the movie Oklahoma a hundred times), Here are however the three I found to be most important: 1. Acquiring the knowledge to help Dakota and Tanner and doing what I needed to do to help them so I didn't feel so helpless. It's a good feeling to know that you are doing all you possibly can -so there won't be any " if onlys " in the future. I learned about the " if onlys " because I started... 2. Reaching out to help others first through Shop-In Service and then through the nonprofits Children's Apraxia Network/CHERAB -that helped me more than anything get over feeling sorry for myself -and made me once again feel thankful that we were both alive rather than sorry for what we went through. And then the one thing that helped amazingly I never credited because why would I since nobody told me this would happen when I... 3. Started taking the magic fish oil myself!!! I don't have to say anything else except try it -you will see what I and many of us mean. (must be why a goldfish even looks happy in a paper cup filled with three inches of tap water) It took hindsight to figure out that just when Glenn and I went back to best friends again and I went almost all the way back to my old self was when both of us started taking the fish oil to prevent heart disease since it runs in both our families. Another incredible side effect for me which I wasn't expecting anything was I got my memory back! I no longer -never - walk into a room and wonder why I'm there...which happened to me after Dakota was born at around only 30 years old! (and I lost even more of my incredible memory after Tanner was born) Now I once again can tell you who is doing what voice in an animated movie -and other silly stuff like it that doesn't matter but that will drive you crazy when you can't remember it! No research on this yet, only psychological (which may be in itself enough for you to give it a try!) -but again anecdotally almost all the parents I talk into trying the fish oil report the same about memory too. Having my memory back gives me happy feet too. We are here for you! ===== Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 27, 2003 Report Share Posted March 27, 2003 Hi Suzi, I know how you feel - and I only have one special needs child. Anyhow, have you contacted the Community Mental Health in your area? I know that they have alot of information there and could probably point you in the right direction as to who would be available for that. There is funding that is also available (like for my son, because of PDD and his ACM)it's a small amount per month available ($160.00) but it would cover a babysitter a couple of times a month where you could get out. Hope this helps, Kim --- luckygmstwife <suzi_knowles@...> wrote: > Okay, I've been feeling very overwhelmed this year > with all 3 kids > in school. I'm also snapping at my children a lot > and feel like I'm > not in good control at home. I'm also noticing lots > of issues > popping up for my kids as to how they are getting > along. > > In other words, I need help. I really want to find > a good > psychologist or psychiatrist that knows about > special needs kids. > Well, I'm having trouble finding someone. My > neurologist made a > recommendation for one psychiatrist, and when I > talked to him he > said he really didn't handle the situation I find > myself in. > > Anyone have any suggestions???? > > Thanks, > > Suzi Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 28, 2003 Report Share Posted March 28, 2003 Ok, Suzi - I've got to throw in my two cents (don't I always?)... There is such a thing as situational depression. It involves being chronically overwhelmed, feeling really low, feeling trapped...all things parents with special needs kids feel - only it's " different " and only you and a doc can decide if you're " clinically depressed " . If you have a family history of depression (treated or not) or if this " feeling " has continued for more than 2 weeks, you should see a doc. While I agree that often times psychologists can be more helpful from the therapy side of things (which is an important part to learn coping skills - and they're different for a depressed person), often times insurance wants an MD or a PhD in order for them to pay...or a rec from a MD/PhD, and that means a psychaiatrist. Consider taking an online depression screening test if this sounds like you... Also, just an FYI - our developmental assessments through children's hospital have psychologists and social workers as part of the assessment. Now, there is a 5 mo waiting list, but it's pretty great. Email me privately if you want more info...not sure where you are. Have a good day - hope I've not offended. Marina > Hi, > > I think a psychologist not a psychiatrist may be your answer. Most people > that I have known have better results with a psychologist if your dealing > with everyday life pressures. Also you may not like the first one that you > go to, its a personality thing. So if you find after at least 3 sessions > that the person isn't helping you, try someone else. It will help you. Also > I dont believe if they are a good psychologist that it should matter if they > have dealt with special needs children or not. Be glad you got rid of that > psychiatrist. > > Hope this has helped!!! > > We have all been in your shoes at one point or another!! > > Good Luck!! > > Kim K > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 28, 2003 Report Share Posted March 28, 2003 Hi Marina! Interesting points. Situational depression? I'm sure like me most of us didn't know there were different types other than regular and post partum depression. I believe this is important to post since most people don't have the bravery of Suzi to come forward -however based on some of the emails we've received here in the past, and the amount of those that don't post but just lurk, perhaps this information will help others too. I looked it up and found a site that talked about the various types of depressions called " Trapped Minds " " A site for adult and teenage depression alike. Combing live chat, and user feedback, support groups, and communities Trappedminds.org is quickly gaining popularity. Trappedminds.org prides itself on providing a safe haven for depression suffers. It's our goal to ease the burden of depression by helping people cope, manage, and provide a vital understanding... When depression is serious enough to require treatment, it is called clinical depression. When the symptoms are more severe, someone is said to be suffering from major depression. This condition tends to be episodic in nature. Clinical, or major depression is the world's No. 1 mental disorder, the 2nd most disabling condition in the world behind heart disease. And it's growing at an alarming rate Mild Depression - Dysthymia Although many people suffer episodes of depression, others suffer from recurrent, or long-lasting depression, and are diagnosed with dysthymia. For persons with dysthymia who experience an additional major depressive episode, the diagnosis is double depression. Bipolar disorder Bipolar disorder, also known as manic depression, consists of terrible lows that alternate with unexplainable highs. Experts believe this is attributable to imbalances in brain chemistry. Medications can correct the imbalance about 80 percent of the time. Seasonal affective disorder (SAD) The winter blues are not all in your head. Researchers believe that some people respond to changes in the amount of light they are exposed to, and therapies focus on adjusting light exposure. Post Partum Depression Eighty percent of women experience the " baby blues " after the birth of a child: hormonal changes, the physical stresses of birth, and the emotional strain of new responsibilities can make the first few weeks after a birth emotionally trying. The " blues " usually last two to three weeks, and then resolve without any need for treatment. For ten percent of new mothers, however, the blues don't go away. Instead, they develop into post partum depression. Without treatment, post partum depression can develop into a major depression or dysthymia. Situational Depression Situational depression is a normal reaction to a painful life event, such as the death of a loved one, the loss of a job or a divorce. It is not a biochemical illness like chronic depression. Symptoms of situational depression are the same as those of a major depression. They may include despair, trouble sleeping, irritability, change in appetite, difficulty concentrating and emotional withdrawal " http://www.trappedminds.org/types.html ===== Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 28, 2003 Report Share Posted March 28, 2003 Hey everyone, Thanks for all of the great input. I've already scheduled an appointment with the Children's Health Council in Palo Alto. I talked to a coordinator there, and I think they will be able to put on the right track of getting help with our family. I think I need someone to figure out ways for us to get all of our schooling and therapy needs met. Actually, I'm having more trouble with my 8 year old than with the girls. He's having so much school work, and he is very, very slow at getting writing assignments done. He was also sick all of last week, and now he has to play catch up. He has a tic disorder, and that can make writing more difficult. I'm trying to see if I need to have some official accomodations made for him. I just don't want him to feel like he's different. I'm not sure what to do. As for depresssion, I'm all too familiar with it. My mother is a manic depressive, and her side of the family is full of either manic depressives or just depressed people. That's why I'd like to talk to a psychiatrist because I see a few alarming trends in 2 of my kids. I just want to make sure that everything is okay with them (and me). I've actually tried anti-depressants, but they only temporarily help. It doesn't keep you from having too much on your plate. It also doesn't solve any real problems. I'd like someone to help me figure out a good homework situation for all 3 kids. I'd also like someone to help me figure out how to get the kids to get along better. I think is getting a little jealous of the attention that gets, and I think is getting tired of beating her at everything. Thanks to this group and other online resources, I should get the help I need. Suzi Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 28, 2004 Report Share Posted January 28, 2004 Hello to all, I have subscribed to this web site and I sit and read it every night. And it scares me. It all sounds so overwhelming. How do you get your beautiful children to take all this stuff? How do they swallow it? Please help me understand. Thank You! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 28, 2004 Report Share Posted January 28, 2004 Hi, Let me just start by saying......It IS overwhelming and scary! I have been at this for about one year now & I can't believe a whole year went by!! When you find out your child has autism, you want to LEARN everything & DO everything you can to help him! So you dive into this mysterious & complicated world of autism. But at some point you need to slow down & catch your breath and realize you can't do it all at once. So sit down & write out a game plan as to what steps you want to take (diet, supps, yeast/bacteria, chelation, etc.) Then try to tackle one thing at a time. Keep reading & learning as much as you can. This list is a great place to start! BTW, my son is 3 yrs old and I put all of his supps (even Cod Liver Oil!) in his juice cup. He doesn't seem to mind & he takes alot of supps!! I never give him juice without something in it, sometimes it feels like a science experiment! But if your child rejects his drink because he can taste it, you can try mixing it with his food, maple syrup, honey, peanut butter, etc. If you have any other questions about anything, just ask. There are so many people here to help. > Hello to all, > > I have subscribed to this web site and I sit and read it every night. And it > scares me. It all sounds so overwhelming. How do you get your beautiful > children to take all this stuff? How do they swallow it? Please help me understand. > Thank You! > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 28, 2004 Report Share Posted January 28, 2004 Just a quick note to say that I lurked on this board for a year before starting the chelating process on my now nearly 6 year old daughter. It scared me to, and I purchased the ALA and supplements months before I had the nerve to use them. I remember looking at her one evening and thinking " Something better happen because you are just LOST in your old world " . I gave her the first dose right then and was fine with it after that. I'm no expert, so I'll let the others give you advise. But wanted to let you know I'd been where you are (along with many others on this list). Valeri, mom to: Jenna 2/98 2/99 LeeLee 2/01 [ ] Re: [ ) overwhelmed Hello to all, I have subscribed to this web site and I sit and read it every night. And it scares me. It all sounds so overwhelming. How do you get your beautiful children to take all this stuff? How do they swallow it? Please help me understand. Thank You! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 29, 2004 Report Share Posted January 29, 2004 I remember quite clearly being where you are now - hang in there How do we get this stuff in them, well, persistence, determination, creative mixing. Metals aren't an issue for everybody, get a hair test done at DDI and see if you need to figure all this out - concentrates the mind and spurs you on if you KNOW you HAVE to learn. Info on the hair testing at this link :- http://home.earthlink.net/~moriam/ HTH Mandi in UK > I have subscribed to this web site and I sit and read it every night. And > it > scares me. It all sounds so overwhelming. How do you get your beautiful > children to take all this stuff? How do they swallow it? Please help me > understand. > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 29, 2004 Report Share Posted January 29, 2004 Thank you for your reply. My son is 5 years old and was diagnosed when he was 3.5. We have 40hrs of Aba he is on dmg and super thera supplements. But we cant even always get the full amount of that in him because he is so picky. He only drinks water. So he can taste any thing we put in it. We put most of it in his mac and cheese but he only eats that once a day and you cant put it all in that. I try to do everything I can for my son and he is doing Great, but when I read this web site I feel like I am not doing enough. Thank you for your time!!!! Cherie Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 29, 2004 Report Share Posted January 29, 2004 Hi Cherie, Obviously you've been at this for awhile now! For some reason I thought you were new to this. Good to hear your son is doing well. Believe me, I feel the same way you do, about not doing enough. Let's face it, it will NEVER be enough, until our kids are recovered!! Have you started chelation yet? If so, I'd like to hear about your experience with that. That's my next step. > Thank you for your reply. My son is 5 years old and was diagnosed when > he was 3.5. We have 40hrs of Aba he is on dmg and super thera supplements. But > we cant even always get the full amount of that in him because he is so > picky. He only drinks water. So he can taste any thing we put in it. We put most > of it in his mac and cheese but he only eats that once a day and you cant put > it all in that. > > I try to do everything I can for my son and he is doing Great, but when I > read this web site I feel like I am not doing enough. Thank you for your time!!!! > > Cherie > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 29, 2004 Report Share Posted January 29, 2004 I make a sort of vitamin cocktail for my son 3 times daily. I put all of the hard pills and tablets in a coffee grinder (don't plan on using it for your coffee anymore), grind, then mix with the liquid vitamins and supplements, then mix it with something meant to camoflage the taste. The best we can do is orange pop, which does have sugar, but at least my son will drink all of the other important stuff. As you might have guessed, my son doesn't swallow pills. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 30, 2004 Report Share Posted January 30, 2004 There's a file on stategies for getting kids to take various supplements in different forms. S > Hello to all,<BR> <BR> I have subscribed to this web site and I sit and read it every night. And it <BR> scares me. It all sounds so overwhelming. How do you get your beautiful <BR> children to take all this stuff? How do they swallow it? Please help me understand. <BR> Thank You!<BR> <BR> <BR> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 30, 2004 Report Share Posted January 30, 2004 > I have subscribed to this web site and I sit and read it every night. And it > scares me. It all sounds so overwhelming. Consider things one at a time. >> How do you get your beautiful > children to take all this stuff? How do they swallow it? I have never given the vast quantities of supplements that others give their kids. If you want a description of things I have tried, click here http://www.danasview.net/chel6380.htm Always start things at low dose, one at a time, to see any reactions, good or bad. I mix all my son's supplements into peanut butter and occasionally I add a drop or so of honey, if the supplement tastes bad. This works for him. He now also has the option of swallowing the capsules, if he wants. Good luck. Dana Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 1, 2004 Report Share Posted March 1, 2004 > > I am feeling so overwhelmed lately with everything. I have 3 teenagers and a 21 year old and I can't seem to catch up with anything. Maybe I need a good night's sleep. My husband helps but I feel like I'm doing all of the " thinking " for everyone. You know, doctor's appointments, school sport schedules, etc. Does anyone else get like this? I guess I've been facing the reality of RA and what the future could really be. My head is spinning at the moment. > > Becky I would suggest calling a family meeting. Describe how you feel, what needs to get accomplished, and ask for help. Let them come up with ideas. You may be surprised with the creativity and helpfulness that emerges. Sierra Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 1, 2004 Report Share Posted March 1, 2004 Dear Becky, I certainly understand how you feel. While I don't have any children to care for, it sometimes feel like I still do have to do all the thinking and remembering. My husband is really good, helps a lot, very supportive, but still was expecting his dinner on Mondays when I work, the only day I work. I finally had to say that I am NOT cooking or doing anything around the house on Mondays. If he wants to eat, he either has to cook it, or kill it and bring it home, I am coming home and planting my butt on the couch and that's it! The first week he didn't quite " get it " and he did fix dinner, but left the dirty dishes. When they were still there at bed time, I yawned, started up the stairs and casually reminded him that they wouldn't put themselves into the dishwasher. Since then, Mondays have gone much better, and since he is " dishwasher challenged " he usually goes and gets something for us to eat. You may have to go on strike, your kids and husband are well able to cope for themselves, and they'd better realize that Mom needs all her spoons to get through each day. Can you schedule one day just for yourself, and tell them that this is your day, and that they are on their own? I think my family finally realized how hard things had become for me recently when I had a few days when I could not go up and down stairs from bedroom to living room without help and it's amazing just how much more understanding they are. Our families just get so used to us being pillars of strength, they can't grasp it when we're not. I'll pray up an angel to comfort you, Judi Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 1, 2004 Report Share Posted March 1, 2004 Becky,....I feel like this all the time. It seems I have to do everything, like more is put on me. My hubby is gone most of the time, and it really is. I have a 9 year old at home, so it's hard sometimes. It is hard to face the life of RA, you just have to do the best you can. You shouldn't have everything piled on you, with all the older ones in your house, I think they should help. They need to understand what you are going through. Have you sat down and had a talk with your family? You should let them know your feelings, and how you just can't do things like you use to, and maybe they will all take off some of your to-do list. Take care, Tawny > > I am feeling so overwhelmed lately with everything. I have 3 teenagers and a 21 year old and I can't seem to catch up with anything. Maybe I need a good night's sleep. My husband helps but I feel like I'm doing all of the " thinking " for everyone. You know, doctor's appointments, school sport schedules, etc. Does anyone else get like this? I guess I've been facing the reality of RA and what the future could really be. My head is spinning at the moment. > > Becky > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 1, 2004 Report Share Posted March 1, 2004 Hi Becky, I would get that overwhelmed even if I didn't have RA. That's a lot of work and doing. In a previous marriage I used to do all of the work and thinking, but did it voluntarily. I guess that I didn't want to feel the dicomfort of letting them make mistakes and learn from them. And it let me be more in charge. Since the RA, I have slowly come to tear that superwoman S of my chest and I actually let things flow a bit more. Reluctantly, though. For me that also means letting my husband make his mistakes and pay for the consequences. And now, I am so tired, that I don't have a choice about it, even if I tried. And I have a mild form of the illness. I guess what I am saying is that I understand how hard it is. I work as a nanny and often I have to do what you are doing. Difference is that I get to go home. Have you thought of just letting them do their thinking? They might surprise you. Take care, Jutta Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 1, 2004 Report Share Posted March 1, 2004 Thank you. I am somewhat on strike since last night. I have only done for myself and even this morning I refused to make my daughter's pony tail. She's 15, time she get it right on her own. I told her to have her dad do it and he tried and messed it up. I said try again, like I do with my sore fingers putting in that rubberband. He did and it was perfect the next time. He used to do pony tails and pig tails all the time when she was little better than me! I won't let him try a curling iron, though, my daughter learned the hard way on that one. It's kind of funny this morning to see the look on their faces for the littlest things they assumed I should do. One of my doggies needs ear drops for her ear infection. I didn't put them in, didn't mention it. About an hour ago my husband asked if she had her ear drops. I said no and walked away. He put them in. I would never refuse my little doggie her medication. But it was almost midnight last night when she got the drops so I knew I could wait until noon to put them in if no one realized it. I think it's starting to sink in. My 16 year old has been warned that I do not care to hear what he has to say about house rules and consequences. I have been saying " it's not negotiable " instead of arguing over and over with him. He hates it when I say not negotiatable but is finally catching on. He only tried once this morning (no school today) for the same subject he's been hounding me on. I gave him my LOOK and said not negotiatable. I actually saw a look of fear in his eyes! I am no longer planning or cooking dinner. The freezer is full (plenty of Schwan ready made stuff too) and three teenagers and a 21 year old can find food when they need to, only this time the have to set the table for everyone and make it for everyone if they want to eat. I sent my husband to the store last night and half the stuff he bought was wrong or not enough. I wanted a roast and he bought a small one, enough to feed maybe 3 people. I just told him I guess we won't have a roast until he buys more. He looked shocked, like he didn't get it. He was out of toothpaste this morning. Guess he didn't read the grocery list. It's not taking long for them to see where the organization and order was in this house! Becky [ ] Re: Overwhelmed Dear Becky, I certainly understand how you feel. While I don't have any children to care for, it sometimes feel like I still do have to do all the thinking and remembering. My husband is really good, helps a lot, very supportive, but still was expecting his dinner on Mondays when I work, the only day I work. I finally had to say that I am NOT cooking or doing anything around the house on Mondays. If he wants to eat, he either has to cook it, or kill it and bring it home, I am coming home and planting my butt on the couch and that's it! The first week he didn't quite " get it " and he did fix dinner, but left the dirty dishes. When they were still there at bed time, I yawned, started up the stairs and casually reminded him that they wouldn't put themselves into the dishwasher. Since then, Mondays have gone much better, and since he is " dishwasher challenged " he usually goes and gets something for us to eat. You may have to go on strike, your kids and husband are well able to cope for themselves, and they'd better realize that Mom needs all her spoons to get through each day. Can you schedule one day just for yourself, and tell them that this is your day, and that they are on their own? I think my family finally realized how hard things had become for me recently when I had a few days when I could not go up and down stairs from bedroom to living room without help and it's amazing just how much more understanding they are. Our families just get so used to us being pillars of strength, they can't grasp it when we're not. I'll pray up an angel to comfort you, Judi Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 1, 2004 Report Share Posted March 1, 2004 Yes, we've sat down but they just really don't seem to get it. My husband helps as much as he can but the thinking part is what gets me. I am the thinker and list maker. I turned it all over to him. I take care of all of the finances, balancing check book, etc. I gave it to him and said to figure it out. I tried this once before and everything was late and messed up so I took it back so our credit rating wasn't ruined. I think I'll have to keep a close watch on it for a while. I have most things automatically taken out to make it easier but he has to know when that is and be sure the money is there. I guess my kids are mostly all teens, they don't have the maturity to really understand this all since I've been the strong one all this time. But, I was an only child and my dad became an invalid when I was 15. I was forced to grow up and did what was necessary. They are going to have to learn that life isn't fair and that's the way it is. I'm feeling much better today now that I have a plan. Becky [ ] Re: Overwhelmed > > I am feeling so overwhelmed lately with everything. I have 3 teenagers and a 21 year old and I can't seem to catch up with anything. Maybe I need a good night's sleep. My husband helps but I feel like I'm doing all of the " thinking " for everyone. You know, doctor's appointments, school sport schedules, etc. Does anyone else get like this? I guess I've been facing the reality of RA and what the future could really be. My head is spinning at the moment. > > Becky I would suggest calling a family meeting. Describe how you feel, what needs to get accomplished, and ask for help. Let them come up with ideas. You may be surprised with the creativity and helpfulness that emerges. Sierra Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 1, 2004 Report Share Posted March 1, 2004 What is considered reasonable chores for teens? One has to clean one bathroom every week, the other cleans another bathroom every week (their own bathrooms). Another cleans 2 bathrooms floors and the kitchen floor every week. Plus, they are expected to keep their rooms tidy, take their clothes to the laundry room and bring their clean clothes (that I wash) back from the laundry room, make their own lunches for school, and help out when asked for things. The two middle boys have to cut grass in the summer (one riding more, one push mower for trimming), the driving kids have to pay their own gas (I have provided an extra vehicle and pay the insurance) and drive the other two to activities if needed, which isn't often. One must fold towels, washcloths, and socks out of the dryer and put away. One washes whatever dishes that do not go in the dishwasher and load and unload the dishwasher. One has to take out the trash. I suppose since there are 4 kids ages 15-21, that isn't violating any child labor laws! Am I expecting too much or should they do more? Two of them work part-time, one only in the summer, the 21 year old year round (he is disabled and on SSI). I'm really second guessing everything here as my 16 year old feels he is " doing everything and none of his friends have to do this kind of stuff " . I'm sure you can guess what my answer to him has been! Becky [ ] Re: Overwhelmed Becky,....I feel like this all the time. It seems I have to do everything, like more is put on me. My hubby is gone most of the time, and it really is. I have a 9 year old at home, so it's hard sometimes. It is hard to face the life of RA, you just have to do the best you can. You shouldn't have everything piled on you, with all the older ones in your house, I think they should help. They need to understand what you are going through. Have you sat down and had a talk with your family? You should let them know your feelings, and how you just can't do things like you use to, and maybe they will all take off some of your to-do list. Take care, Tawny > > I am feeling so overwhelmed lately with everything. I have 3 teenagers and a 21 year old and I can't seem to catch up with anything. Maybe I need a good night's sleep. My husband helps but I feel like I'm doing all of the " thinking " for everyone. You know, doctor's appointments, school sport schedules, etc. Does anyone else get like this? I guess I've been facing the reality of RA and what the future could really be. My head is spinning at the moment. > > Becky > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 1, 2004 Report Share Posted March 1, 2004 Thank you. This just hit the nail on the head and I didn't even realize it before. Yes, they will have to do their own thinking and learn the way I did, by doing and making mistakes. What an eye opener to me. Really! Thank you! The S has been removed. My husband's mother never worked (actually 6 months in her whole adult life) and had 4 kids. Her big decision of the day was always (after cooking a huge daily lunch and supper) was what she would make for dessert! My dessert, if there happens to be one, is Krispy Creme donuts! Becky Re: [ ] Overwhelmed Hi Becky, I would get that overwhelmed even if I didn't have RA. That's a lot of work and doing. In a previous marriage I used to do all of the work and thinking, but did it voluntarily. I guess that I didn't want to feel the dicomfort of letting them make mistakes and learn from them. And it let me be more in charge. Since the RA, I have slowly come to tear that superwoman S of my chest and I actually let things flow a bit more. Reluctantly, though. For me that also means letting my husband make his mistakes and pay for the consequences. And now, I am so tired, that I don't have a choice about it, even if I tried. And I have a mild form of the illness. I guess what I am saying is that I understand how hard it is. I work as a nanny and often I have to do what you are doing. Difference is that I get to go home. Have you thought of just letting them do their thinking? They might surprise you. Take care, Jutta Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 1, 2004 Report Share Posted March 1, 2004 Becky, hang in there, it'll get better.Once upon a time we could take on the world and now we either have to delegate or depend on someone else to get things done. But they get done, one way or the other and if they don't it's not the end of the world.You can only do so much.Take it one step at a time.maybe then it won't seem quite so daunting.I think we all go through it. Gentleness,Boo. Quote Link to comment Share on other sites More sharing options...
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