Olivia

[Guest guest]

Thanks to all of you who have kept my darling daughter in your thoughts

and prayers! Its meant a lot to me knowing that we have people pulling

for her.

Here's the low down;

The VEPTR dual hybrid (attached to the pelvic structure, instead of the

spine) has migrated through BOTH of her upper ribs (t-2 & 3). The one on

the left had had completely eroded through, and the one on the right had

almost......The attachment was hanging on to a rib the size of a

toothpick. The attachments were moved down to the next set of ribs. She

is in a lot of pain, and yesterday we needed to have the meds increased.

I am hoping & praying that today will be a better day. I have so much

more to tell, but cant because she will be waking up at any moment and I

must rush back to the room.

This setback has definately inspired ISOP to keep working hard to get the

word out on ET. No child should have to suffer like this, when there is

an ET cure (gentle) available to our children with progressive i.s.

Shell, thanks for everything! I'll post more on her progress as soon as I

can.

Love to you all.

HRH