Parents with 2 + children 1 or more with Scoli ()

[Guest guest]

-Deshea

Great to hear that things are stable for Lucas,It is nice to have a

local contact and a comfort I am sure...Deshea lets chat soon

......

We see Dr Emans in Boston but Adan has been casted from 23 months to

4 year. Now in a Boston brace holding 4 degree in Brace 15 out

started at 38 degrees

We get a 24 hr out Feb 6 th to see what this brace is doing he has

been in it 7 months

We are in Amherst ....formally from Dedham Mass

:

I am wondering when you decided to bring in

Noah for evaluation?????

I have a baby girl Abigail 5 months and so far I do not see anything

but I am always nervous. I am doing things with her that i vowed not

to do because i am not sure what external factor created Adan to get

scoliosis so young I am assuming it was from sleeping with me on his

same side for 3 months till I noticed his face flat then rotated him

but I did not see his back till about 9 months..

I am worried if I let Abigail sleep in our bed this might trigger

scoliosis but I love to sleep with her the difference is I keep her

flat on her back and rotated sides thought the night with

feedings......... The only in the problem with the family bed is you

do tend to get a slight imbalance from the mattress ( I am afarid I

am being to crazy and not want to become insane ) but I want to keep

on top of it and want to be able to enjoy things

Anything you are doing differnet with the kids to prevent it?

Thanks for your advice

-- In infantile_scoliosis , Lkyla@... wrote:

>

> Hi Deshea,

> I'm so glad to hear that you liked Dr. Hresko. He's made us very

> comfortable from the start with Abby...and now also with Noah.

Abby started off at a

> 47 degree curve and is currently down to 8 degrees in brace. Noah

is just

> being watched at this point. He's going to be a year next month

and so far his

> back looks ok, but his ribs are starting to protrude on the right

side...plus

> he has the lumbar kyphosis. We have a follow up for both of them

next week

> including x-rays, so we're excited to see where they're at! Glad

to hear all

> is going so well with Lucas!!

> , mom to

> Abby (35 months),

> Noah (11 months) &

> our newest little angel, Amelia (Only 3 days old!!)

>

>

> In a message dated 1/15/2008 9:34:57 A.M. Eastern Standard Time,

> deshea@... writes:

>

>

>

>

> hi everyone,

>

> a little update from us. we decided to make contact with a local

ortho again

> just in case we ever need someone close. i was interested in dr.

hresko at

> children's in boston ever since i heard that he has referred

patients to dr.

> sanders and was even interested in doing casting but was never

able to get

> that up and running for unknown reasons. more recently i read that

he was the

> first ortho in boston to perform the vertebral stapling procedure

at

> children's. previously it was only done in philly.

>

> what a nice man. definitely different from our other experience at

> children's here. basically we went over lucas' history, and he

looked through his

> x-rays from montreal from the last year and a half. no new x-rays

were taken.

>

> dr. hresko said that he really likes the spinecor brace and has

been

> following the papers and developments of it. they used to use it

at children's for

> ais cases, but had some difficulty with compliance due to the

crotch straps in

> the teen age girls. i guess they didn't have as good as results as

dr.

> rivard's group. he mentioned how good lucas looks on x-ray and

just looking at his

> back. he thought that if we could continue with the spinecor for

as long as

> possible -- i guess meaning either until it doesn't hold the curve

if does

> progress or as long as lucas tolerates it, then he thought that

would be

> wonderful.

>

> i must say that i thought it was very interesting that he

didn't " push "

> stapling. i guess that i thought he might leave that door open as

an option to us

> now, but on the contrary, even when we asked about it, he did not

really

> elaborate or want to discuss it in detail.

>

> anyway, i guess we will stay the course. my husband came out of

the appt.

> quite relieved to hear from another ortho that lucas is doing

well.

>

> thanks for listening!

> deshea

> __________________________________________________________

> mom to lucas (6 yrs old) and ruby (3 yrs old and a handful!)

> north of boston, ma

>

> lucas was diagnosed with infantile scoliosis at 18 mos 68o/45o

> spinal detethering due to a tight/fatty filum at 22 mos

> tlso and charleston brace from 18 mos to 2 1/2 yrs old at

children's boston,

> ma

> serial plaster casting from 2 1/2 until 4 1/2 yrs old at shriners

in erie, pa

> now in a spinecor brace at 24o/18o from montreal.

>

>

>

>

>

>

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>

>

>