Re: Fwd: Announcement send unencrypted

January 14, 2008

Hi Shellie and all,

Dr. was THE kindest man I have ever met. When he walked into an exam

room, he acknowledged the child first, then the parents. The first meeting we

had with him, he gave Braydon his business card, then gave one to Mike and I.

He was so kind. I can't even begin to describe how kind and gentle he was.

When Braydon had his VEPTR implant done, I was worried about the catheter

(because of previous experiences). Dr. placed the catheter himself in the

operating room, being very careful to tape it in the correct position. He

didn't want us to have to worry about something like that. I could go on and on

about examples of the gentleness of this man. One of a kind, for sure. There

is an empty hole in our hearts today, but what great memories we have. We are

truly honored to have met him and had him operate on our son.

Carmell

Mom to Kara, idiopathic scoliosis and hypothyroidism, Blake 17, GERD, and

Braydon 12, VACTERL-congenital scoliosis (fusion surgery 5/96), VEPTR patient

#137 (implant 8/01), Thoracic Insufficiency Syndrome (TIS), rib anomalies,

missing coccyx, fatty filum/TC (released 4/99 & 12/06), anal stenosis, chronic

constipation, horseshoe (cross-fused) kidney, dbl ureter in left kidney,

ureterocele (excized 6/95), kidney reflux (reimplant surgery 1/97), neurogenic

bladder, dysplastic right leg w/right clubfoot with 8 toes (repaired 2/96, 3/96,

1/97, 3/04), tibial torsion, 4cm length discrepancy-wears 3cm lift, valgus

deformity, GERD, Gastroparesis, SUA, etc.

Congenital scoliosis support group

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January 14, 2008

Ditto, and tears!!!!

Shellie

Carmell Burns wrote:

Hi Shellie and all,

Dr. was THE kindest man I have ever met. When he walked into an exam room,

he acknowledged the child first, then the parents. The first meeting we had with

him, he gave Braydon his business card, then gave one to Mike and I. He was so

kind. I can't even begin to describe how kind and gentle he was. When Braydon

had his VEPTR implant done, I was worried about the catheter (because of

previous experiences). Dr. placed the catheter himself in the operating

room, being very careful to tape it in the correct position. He didn't want us

to have to worry about something like that. I could go on and on about examples

of the gentleness of this man. One of a kind, for sure. There is an empty hole

in our hearts today, but what great memories we have. We are truly honored to

have met him and had him operate on our son.