Re: Sophia's Birmingham cast

[Guest guest]

Hi Tina,

Wow sounds like an adventure getting there! I am glad you made it safe and

sound. Dr. K is great and sounds like Sophia did great as well. How old is she

now? Very interesting what you relayed about the duration in cast. As a Mom I

always get concerned when the cast is getting to tight, but what Dr. K states

makes sense. It may be a bit uncomfortable for our little ones, but it is doing

them good. 11 degrees is great! Glad you are home safe and all went well.

and

Sophia's Birmingham cast

Sophia had her 6th cast done Thursday at Birmingham. This is our

first with Dr. K. It was a long 91/2 hour drive down through snow,

ice, and thunderstorms but so worth it! I will post pics of her

latest cast.

I can not say enough how impressed we were with the entire staff and

hospital there. It was night and day from what we had experienced at

Chicago. Everyone was so professional, kind, friendly and everyone

knew what was going on and communication was flawless even between

departments. Dr. Khoury was great too. He said Sophia didn't really

fit into any of the body types but was kind of in-between. He said

given her history, he had big shoes to fill (only the cast Dr. Metha

did has given us correction). He didn't make any promises, but wasn't

all gloom and doom either. He said she still has " moderate " rotation

which he was able to address with this cast. He also got her curve

from 19 degrees down to 11 degrees in cast and seemed happy with the

results. He said it should be a gentle correction and wasn't trying

to get her to zero in cast (which Chicago had but without much

attention paid to the rotation). He also said that one of the reasons

we might not have gotten correction in the last few casts was because

we weren't leaving them on long enough (had to cut a couple off early

at 6-7 weeks). He said Dr. Mehta teaches 12 weeks in cast, but his

average is 8-10. He said often the most correction comes in those

last couple weeks when the child is literally busting out of the

cast. We are going to go for 8 weeks with this one and then add a

week for the next (9 weeks). We are scheduled for April 9-10 to

return for clinic and recasting. I hope to see some of you next time

since I think we missed you by a day! Hope you all had an equally

positive experience.

Tina

________________________________________________________________________________\

____

Be a better friend, newshound, and

know-it-all with Yahoo! Mobile. Try it now.

http://mobile.yahoo.com/;_ylt=Ahu06i62sR8HDtDypao8Wcj9tAcJ

[Guest guest]

Tina

I am glad that you and Sophia had a succesful trip! Dr. K is great! We like

him more and more w/each visit. We are scheduled to go back May 1st. So we

will miss you again. Maybe sometime we will be there at the same tme!

misty and haley

tinamorris11 wrote:

Sophia had her 6th cast done Thursday at Birmingham. This is our

first with Dr. K. It was a long 91/2 hour drive down through snow,

ice, and thunderstorms but so worth it! I will post pics of her

latest cast.

I can not say enough how impressed we were with the entire staff and

hospital there. It was night and day from what we had experienced at

Chicago. Everyone was so professional, kind, friendly and everyone

knew what was going on and communication was flawless even between

departments. Dr. Khoury was great too. He said Sophia didn't really

fit into any of the body types but was kind of in-between. He said

given her history, he had big shoes to fill (only the cast Dr. Metha

did has given us correction). He didn't make any promises, but wasn't

all gloom and doom either. He said she still has " moderate " rotation

which he was able to address with this cast. He also got her curve

from 19 degrees down to 11 degrees in cast and seemed happy with the

results. He said it should be a gentle correction and wasn't trying

to get her to zero in cast (which Chicago had but without much

attention paid to the rotation). He also said that one of the reasons

we might not have gotten correction in the last few casts was because

we weren't leaving them on long enough (had to cut a couple off early

at 6-7 weeks). He said Dr. Mehta teaches 12 weeks in cast, but his

average is 8-10. He said often the most correction comes in those

last couple weeks when the child is literally busting out of the

cast. We are going to go for 8 weeks with this one and then add a

week for the next (9 weeks). We are scheduled for April 9-10 to

return for clinic and recasting. I hope to see some of you next time

since I think we missed you by a day! Hope you all had an equally

positive experience.

Tina

---------------------------------

Never miss a thing. Make Yahoo your homepage.

[Guest guest]

Hi Tina,

I am so happy to hear that your visit with Dr. K. was very positive.

I know you've had along journey, but I commend you in not settling

and giving up.

Sophia is a sweetie and I continue to wish her and your fmaily all

the best.

Max's surgery is in the process of being rescheduled. He had

pneumonia early this past week. As much as I hate the thought of him

having surgery, his cast is getting small, not tight, just

shrinking, so I am eager to get a date. The OR is booked until May,

but they are working to get Max in sooner.

Look forward to more updates.

Aekta

>

> Sophia had her 6th cast done Thursday at Birmingham. This is our

> first with Dr. K. It was a long 91/2 hour drive down through snow,

> ice, and thunderstorms but so worth it! I will post pics of her

> latest cast.

>

> I can not say enough how impressed we were with the entire staff

and

> hospital there. It was night and day from what we had experienced

at

> Chicago. Everyone was so professional, kind, friendly and everyone

> knew what was going on and communication was flawless even between

> departments. Dr. Khoury was great too. He said Sophia didn't

really

> fit into any of the body types but was kind of in-between. He said

> given her history, he had big shoes to fill (only the cast Dr.

Metha

> did has given us correction). He didn't make any promises, but

wasn't

> all gloom and doom either. He said she still has " moderate "

rotation

> which he was able to address with this cast. He also got her curve

> from 19 degrees down to 11 degrees in cast and seemed happy with

the

> results. He said it should be a gentle correction and wasn't

trying

> to get her to zero in cast (which Chicago had but without much

> attention paid to the rotation). He also said that one of the

reasons

> we might not have gotten correction in the last few casts was

because

> we weren't leaving them on long enough (had to cut a couple off

early

> at 6-7 weeks). He said Dr. Mehta teaches 12 weeks in cast, but his

> average is 8-10. He said often the most correction comes in those

> last couple weeks when the child is literally busting out of the

> cast. We are going to go for 8 weeks with this one and then add a

> week for the next (9 weeks). We are scheduled for April 9-10 to

> return for clinic and recasting. I hope to see some of you next

time

> since I think we missed you by a day! Hope you all had an equally

> positive experience.

> Tina

>

[Guest guest]

Aekta,

Thanks! I hope that Max is better soon and recovering from the pneumonia. That

is always so scary. Please keep us posted on his surgery date. We think of you

often and hope your little one is doing well too!

Tina

Re: Sophia's Birmingham cast

Hi Tina,

I am so happy to hear that your visit with Dr. K. was very positive.

I know you've had along journey, but I commend you in not settling

and giving up.

Sophia is a sweetie and I continue to wish her and your fmaily all

the best.

Max's surgery is in the process of being rescheduled. He had

pneumonia early this past week. As much as I hate the thought of him

having surgery, his cast is getting small, not tight, just

shrinking, so I am eager to get a date. The OR is booked until May,

but they are working to get Max in sooner.

Look forward to more updates.

Aekta

>

> Sophia had her 6th cast done Thursday at Birmingham. This is our

> first with Dr. K. It was a long 91/2 hour drive down through snow,

> ice, and thunderstorms but so worth it! I will post pics of her

> latest cast.

>

> I can not say enough how impressed we were with the entire staff

and

> hospital there. It was night and day from what we had experienced

at

> Chicago. Everyone was so professional, kind, friendly and everyone

> knew what was going on and communication was flawless even between

> departments. Dr. Khoury was great too. He said Sophia didn't

really

> fit into any of the body types but was kind of in-between. He said

> given her history, he had big shoes to fill (only the cast Dr.

Metha

> did has given us correction). He didn't make any promises, but

wasn't

> all gloom and doom either. He said she still has " moderate "

rotation

> which he was able to address with this cast. He also got her curve

> from 19 degrees down to 11 degrees in cast and seemed happy with

the

> results. He said it should be a gentle correction and wasn't

trying

> to get her to zero in cast (which Chicago had but without much

> attention paid to the rotation). He also said that one of the

reasons

> we might not have gotten correction in the last few casts was

because

> we weren't leaving them on long enough (had to cut a couple off

early

> at 6-7 weeks). He said Dr. Mehta teaches 12 weeks in cast, but his

> average is 8-10. He said often the most correction comes in those

> last couple weeks when the child is literally busting out of the

> cast. We are going to go for 8 weeks with this one and then add a

> week for the next (9 weeks). We are scheduled for April 9-10 to

> return for clinic and recasting. I hope to see some of you next

time

> since I think we missed you by a day! Hope you all had an equally

> positive experience.

> Tina

>

[Guest guest]

Excellent news! I know that you must be relieved and I am glad that your

experience in B'ham was as you had hoped it would be. The duration of

jacket/cast time is different depending on age and growth rate. Sounds

;like Sophia is growing fast and treating her early in a series of POP

jackets is the best treatment she could be recieving. Dr. Khoury can

harness her rapid rate of growth properly, and she can grow straight,

gently & permanently! Dr. Khourys exactly right...... This is supposed

to be a gentle process. Its better to get the child aligned, derotated,

etc....and to not be so concerned with the #'s decrease...Its best to go

slow..If the spine is tweeked, decreased too fast, it will become more

rigid.

I am happy for you and your family!

HRH

> Sophia had her 6th cast done Thursday at Birmingham. This is our

> first with Dr. K. It was a long 91/2 hour drive down through snow,

> ice, and thunderstorms but so worth it! I will post pics of her

> latest cast.

>

> I can not say enough how impressed we were with the entire staff and

> hospital there. It was night and day from what we had experienced at

> Chicago. Everyone was so professional, kind, friendly and everyone

> knew what was going on and communication was flawless even between

> departments. Dr. Khoury was great too. He said Sophia didn't really

> fit into any of the body types but was kind of in-between. He said

> given her history, he had big shoes to fill (only the cast Dr. Metha

> did has given us correction). He didn't make any promises, but wasn't

> all gloom and doom either. He said she still has " moderate " rotation

> which he was able to address with this cast. He also got her curve

> from 19 degrees down to 11 degrees in cast and seemed happy with the

> results. He said it should be a gentle correction and wasn't trying

> to get her to zero in cast (which Chicago had but without much

> attention paid to the rotation). He also said that one of the reasons

> we might not have gotten correction in the last few casts was because

> we weren't leaving them on long enough (had to cut a couple off early

> at 6-7 weeks). He said Dr. Mehta teaches 12 weeks in cast, but his

> average is 8-10. He said often the most correction comes in those

> last couple weeks when the child is literally busting out of the

> cast. We are going to go for 8 weeks with this one and then add a

> week for the next (9 weeks). We are scheduled for April 9-10 to

> return for clinic and recasting. I hope to see some of you next time

> since I think we missed you by a day! Hope you all had an equally

> positive experience.

> Tina

>

>

[Guest guest]

> >

> > Sophia had her 6th cast done Thursday at Birmingham. This is our

> > first with Dr. K. It was a long 91/2 hour drive down through

snow,

> > ice, and thunderstorms but so worth it! I will post pics of her

> > latest cast.

> >

> > I can not say enough how impressed we were with the entire staff

> and

> > hospital there. It was night and day from what we had

experienced

> at

> > Chicago. Everyone was so professional, kind, friendly and

everyone

> > knew what was going on and communication was flawless even

between

> > departments. Dr. Khoury was great too. He said Sophia didn't

> really

> > fit into any of the body types but was kind of in-between. He

said

> > given her history, he had big shoes to fill (only the cast Dr.

> Metha

> > did has given us correction). He didn't make any promises, but

> wasn't

> > all gloom and doom either. He said she still has " moderate "

> rotation

> > which he was able to address with this cast. He also got her

curve

> > from 19 degrees down to 11 degrees in cast and seemed happy with

> the

> > results. He said it should be a gentle correction and wasn't

> trying

> > to get her to zero in cast (which Chicago had but without much

> > attention paid to the rotation). He also said that one of the

> reasons

> > we might not have gotten correction in the last few casts was

> because

> > we weren't leaving them on long enough (had to cut a couple off

> early

> > at 6-7 weeks). He said Dr. Mehta teaches 12 weeks in cast, but

his

> > average is 8-10. He said often the most correction comes in

those

> > last couple weeks when the child is literally busting out of the

> > cast. We are going to go for 8 weeks with this one and then add

a

> > week for the next (9 weeks). We are scheduled for April 9-10 to

> > return for clinic and recasting. I hope to see some of you next

> time

> > since I think we missed you by a day! Hope you all had an

equally

> > positive experience.

> > Tina

> >

>HI, Tina glad that you had a good experiance with B'ham. We go Feb.

28 but mabey in future we will meet Janet

[Guest guest]

Thanks Tina,

Yes, this is one more thing to worry about. Max is getting well and

more himself. He's back at daycare.

Sam started his first day at daycare. He and I both did well.

I'll keep you posted!

Aekta

> >

> > Sophia had her 6th cast done Thursday at Birmingham. This is

our

> > first with Dr. K. It was a long 91/2 hour drive down through

snow,

> > ice, and thunderstorms but so worth it! I will post pics of

her

> > latest cast.

> >

> > I can not say enough how impressed we were with the entire

staff

> and

> > hospital there. It was night and day from what we had

experienced

> at

> > Chicago. Everyone was so professional, kind, friendly and

everyone

> > knew what was going on and communication was flawless even

between

> > departments. Dr. Khoury was great too. He said Sophia didn't

> really

> > fit into any of the body types but was kind of in-between. He

said

> > given her history, he had big shoes to fill (only the cast Dr.

> Metha

> > did has given us correction). He didn't make any promises, but

> wasn't

> > all gloom and doom either. He said she still has " moderate "

> rotation

> > which he was able to address with this cast. He also got her

curve

> > from 19 degrees down to 11 degrees in cast and seemed happy

with

> the

> > results. He said it should be a gentle correction and wasn't

> trying

> > to get her to zero in cast (which Chicago had but without much

> > attention paid to the rotation). He also said that one of the

> reasons

> > we might not have gotten correction in the last few casts was

> because

> > we weren't leaving them on long enough (had to cut a couple

off

> early

> > at 6-7 weeks). He said Dr. Mehta teaches 12 weeks in cast, but

his

> > average is 8-10. He said often the most correction comes in

those

> > last couple weeks when the child is literally busting out of

the

> > cast. We are going to go for 8 weeks with this one and then

add a

> > week for the next (9 weeks). We are scheduled for April 9-10

to

> > return for clinic and recasting. I hope to see some of you

next

> time

> > since I think we missed you by a day! Hope you all had an

equally

> > positive experience.

> > Tina

> >

>

>

>

>

>

>

[Guest guest]

Tina,

I'm so happy you all liked Birmingham. I think Dr. K is just the

bee's knees - and the support staff in EVERY department we dealt with

was just awesome (even with Jack screaming when someone would come in

the room - no one was condescending or snarky).

It sounds like you guys got some good results and I hope that maybe

this longer-in-the-cast theory plays out well for both our kiddos.

When will you return for the next one? We're scheduled for 4/11 which

seems SO far off. But, I'll do my best to keep this one on longer if

it means better results. (Granted, the last one held 10° for us).

I tell you what, nothing is worse than driving through that miserable

weather. We came through tons of wind shears and tornadoes en route

home and it was SCARY. But, I firmly believe we had angels on our

shoulders bringing us home safely and it was such a great feeling to

be home.

Is Sophia shoulderless for the first time? Jack seems to really

prefer the shape of this cast. He loves the little window in the back

where we can tickle him and scratch his back. He seems to be head

butting less, too, so I think the more skin contact he gets, the less

stimming he does.

Best to you all

S

[Guest guest]

Hi Sandi,

We are going to be back down in Birmingham 4/9-4/10!! I hope we see you guys and

can catch up. Sophia's first cast that Dr. did in Erie back in June was

under the arm, but I don't know if she remembers it. She has had 4 over the

should ones since then. She also seems to be so much happier in this cast. Even

though it is really tight, the larger cut outs are great. She has starting

eating like crazy!! She is running around laughing and giggling, something we

hadn't seen much of lately. We are really happy with the decision to go south. I

hope they both get great results. I will be counting down to April with you!

Tina

Re: Re: Sophia's Birmingham cast

Tina,

I'm so happy you all liked Birmingham. I think Dr. K is just the

bee's knees - and the support staff in EVERY department we dealt with

was just awesome (even with Jack screaming when someone would come in

the room - no one was condescending or snarky).

It sounds like you guys got some good results and I hope that maybe

this longer-in-the-cast theory plays out well for both our kiddos.

When will you return for the next one? We're scheduled for 4/11 which

seems SO far off. But, I'll do my best to keep this one on longer if

it means better results. (Granted, the last one held 10° for us).

I tell you what, nothing is worse than driving through that miserable

weather. We came through tons of wind shears and tornadoes en route

home and it was SCARY. But, I firmly believe we had angels on our

shoulders bringing us home safely and it was such a great feeling to

be home.

Is Sophia shoulderless for the first time? Jack seems to really

prefer the shape of this cast. He loves the little window in the back

where we can tickle him and scratch his back. He seems to be head

butting less, too, so I think the more skin contact he gets, the less

stimming he does.

Best to you all

S

[Guest guest]

Oh yeah - Jack, too (and I had forgotten to update you guys on that).

Jack eats SO much more now. He still has a lot of sensory issues and

will spit things out, but he is eating a TON more than he was, for

sure. Yay!! I bet the larger cut-outs make the difference here,

too. And, I think it's so interesting to see that this cast is way

different - almost a mirror image of what we had in Chicago. The rib

deformity was significant in Jack's case, and I find it really

interesting (and exciting) to see that Dr. K took a totally different

approach with where the cast should be lower on the one hip as well as

a larger opening on the opposing side.

S

[Guest guest]

I know what you mean. I was worried about how low this cast is since Sophia had

so much problem with skin issues on her hip bones. But I think this one is not

causing those irritations because it goes past that point, so it is not rubbing

as much. I hope Jack's new cast helps with his ribs. I will be really interested

to see what the next visit holds for them both!

Re: Re: Sophia's Birmingham cast

Oh yeah - Jack, too (and I had forgotten to update you guys on that).

Jack eats SO much more now. He still has a lot of sensory issues and

will spit things out, but he is eating a TON more than he was, for

sure. Yay!! I bet the larger cut-outs make the difference here,

too. And, I think it's so interesting to see that this cast is way

different - almost a mirror image of what we had in Chicago. The rib

deformity was significant in Jack's case, and I find it really

interesting (and exciting) to see that Dr. K took a totally different

approach with where the cast should be lower on the one hip as well as

a larger opening on the opposing side.

S

[Guest guest]

That is so awesome, Sandi! 's cast is also very open in areas,

as that's how Dr. Kishan does it. I think it really does help. I

didn't get to see pictures of Jack's cast. Could I see a few?

-

>

> Oh yeah - Jack, too (and I had forgotten to update you guys on that).

> Jack eats SO much more now. He still has a lot of sensory issues and

> will spit things out, but he is eating a TON more than he was, for

> sure. Yay!! I bet the larger cut-outs make the difference here,

> too. And, I think it's so interesting to see that this cast is way

> different - almost a mirror image of what we had in Chicago. The rib

> deformity was significant in Jack's case, and I find it really

> interesting (and exciting) to see that Dr. K took a totally different

> approach with where the cast should be lower on the one hip as well as

> a larger opening on the opposing side.

>

> S

>