Re: Re: new group for kids!

[Guest guest]

I have info on the VEPTR II from San . It is only being offered to 4

sites right now to see how it is accepted and how it works for the patients. I

will be adding the info to our VEPTR Parent Manual in the next month or so.

Shellie Grant

wrote: I had contacted

Janet Cerrone at Shriners on another matter the other

day, and asked her about the VEPTR II which I had heard Dr. Betz was

involved in.

Here's what she replied:

" Yes, Dr. Betz was instrumental in VEPTR II development. Phila

Shriner's was the first in the country to implant this new and

improved VEPTR device in a patient about 10 days ago.

Janet "

I'd be happy to request more information if anyone is interested.

>

> i didn't know that shellie and moriah were in tx. of course, my

thoughts are with them.

>

> i'm glad you got more info on the veptr ii. i hope it will be a

better fit for olivia if you decide to go that route.

>

> my best,

> deshea

>

> ---- Original message ----

> >Date: Tue, 12 Feb 2008 10:33:08 -0500 (EST)

> >From: heather@...

> >Subject: Re: new group for kids!

> >To: infantile_scoliosis

> >

> > Im on it, Deshea! Thanks!

> > BTW, Shellie was able to get written info on the

> > VEPTR II for me

> > yesterday, since her and Moriah are currently in San

> > . As soon as

> > I read it, I'll scan and get it up on CAST.

> > Today is a big day for Moriah and Shellie, so please

> > send them strength

> > and good thoughts.

> > HRH

> >

> > > heather,

> > >

> > > what a wonderful idea! i'm sure when lucas is a

> > little older (next nov

> > > he'll be 7), he would like to join.

> > >

> > > one suggestion though -- i went to the site and

> > was able to read the first

> > > post. since these will be our kids writing, i

> > would suggest that you make

> > > the posts only readable by members.

> > >

> > > under management, group settings, messages -- edit

> > posting and archives --

> > > change everything to only members ESPECIALLY the

> > archive option access

> > > members. i believe the default is anyone.

> > >

> > > my best,

> > > deshea

> > >

> > > ---- Original message ----

> > >>Date: Tue, 12 Feb 2008 10:17:47 -0500 (EST)

> > >>From: heather@...

> > >>Subject: new group for kids!

> > >>To: infantile_scoliosis

> > >>

> > >> Hi,

> > >> I am so excited to announce that we just got the

> > >> support group for kids

> > >> up! If your child is 7-12 years, with scoli, and

> > >> needs an outlet to

> > >> communicate with others in a similar situation,

> > >> please send them to:

> > >> http://health.groups.yahoo.com/group/curvykids/

> > >> ~OR~

> > >> Just go to www.yahoogroups.com and search

> > >> Curvykids....That should get you

> > >> there.

> > >> Its brand new, so please check it out and feel

> > free

> > >> to make suggestions.

> > >> I want this group to be as supportive as CAST,

> > but

> > >> for kids....And, %100

> > >> safe.

> > >> So far Olivia is the only member, so please

> > consider

> > >> having your child

> > >> join, if he/she is of age and wants to make new

> > >> friends with scoliosis!

> > >> Sincerely,

> > >> HRH

> > >>

> > >>

> > >

> >

> >

>

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