Olivia update

[Guest guest]

Glad you made it home safe and sound. I hear you have been getting a lot of

snow. I will be in touch with you soon.

~ and

Olivia Update

We arrived home late Sat. night, and recovery has gone smooth since then.

Its amazing what being at home can do for a speedy recovery! She only had

two pain pills yesterday, and being in an upright position (sitting/walking)

is getting easier with time. We are still in survival mode at this point,

so I wont post much, but wanted to say thanks again to everyone that sent

thoughts & prayers our way. It meant a lot and I am so lucky to have

genuine support from this group. I'll try and read posts this afternoon to

get caught up with everyone, and pray that you all are doing well.

I am ready to get back to work more than ever now, so if you need to reach

me, dont hesitate. I am hoping to get to the office today, but you can

always reach me on my cell.

Love,

HRH

**Sorry, about neglecting e-mails this past week. I will get to them today

& tomorrow, for sure!

________________________________________________________________________________\

____

Never miss a thing. Make Yahoo your home page.

http://www.yahoo.com/r/hs

[Guest guest]

Good luck! You will be in our prayers!

________________________________

From: infantile_scoliosis

[mailto:infantile_scoliosis ] On Behalf Of

heather@...

Sent: Friday, February 15, 2008 12:25 PM

To: infantile_scoliosis

Subject: Olivia update

Okay, heres the plan;

Primary cant get Liv on the surgery schedule until March 10th. I dont

feel comfortable being all the way out here in Denver, so we will head

out

to SLC sometime next week. If something should happen to Olivia(rib

erosion on the other side, infection, skin breakthrough, etc...)while we

are in Denver, we would be 8 hrs away from the hospitals in SLC, and 1

hr

by plane, weather pending. I doubt anything will happen, but I would

feel

better if we were only 20 mins from the hospital. Not to mention, if

there is a cancellation, we might be able to get this done, sooner. We

will stay at my brothers house mostly, but will probably hang out with

& Kylie quite a bit, too.

I will be available by phone and internet, should anyone need anything

from ISOP.

Wish us luck and I'll post when we get there!

HRH

[Guest guest]

,

Good Luck to you both---you guys could certainly use a break!!! We'll

be thinking of you -- If you need anything before you leave give

Rochelle a call. I'll keep plugging away here trying to get things

set up to get the word out.

Shara

In infantile_scoliosis , heather@... wrote:

>

> Okay, heres the plan;

> Primary cant get Liv on the surgery schedule until March 10th. I

dont

> feel comfortable being all the way out here in Denver, so we will

head out

> to SLC sometime next week. If something should happen to Olivia(rib

> erosion on the other side, infection, skin breakthrough, etc...)

while we

> are in Denver, we would be 8 hrs away from the hospitals in SLC,

and 1 hr

> by plane, weather pending. I doubt anything will happen, but I

would feel

> better if we were only 20 mins from the hospital. Not to mention,

if

> there is a cancellation, we might be able to get this done,

sooner. We

> will stay at my brothers house mostly, but will probably hang out

with

> & Kylie quite a bit, too.

> I will be available by phone and internet, should anyone need

anything

> from ISOP.

> Wish us luck and I'll post when we get there!

> HRH

>

[Guest guest]

Forgot to mention that Olivias current VEPTR (dual hybrid attached to

iliac crests) will be completely removed. She will recieve the VEPTR II,

attached to the lumbar spine. If spontaneous fusion occurs, it will be in

the lumbar area in only 2 small segments, so its not as big of a concern

as it always has been (to me). Hopefully, this new hardware will help

prevent future rib erosion and her gait will improve. While she didnt

have a significant " stooping " issue with her current type of VEPTR, it was

always a challenge for her to hold herself upright, especially when tired.

She is 10 years old, so we have made it a long way and she will continue

to do well. As always, thanks for the prayers, thoughts, and well wishes.

HRH

> Okay, heres the plan;

> Primary cant get Liv on the surgery schedule until March 10th. I dont

> feel comfortable being all the way out here in Denver, so we will head out

> to SLC sometime next week. If something should happen to Olivia(rib

> erosion on the other side, infection, skin breakthrough, etc...)while we

> are in Denver, we would be 8 hrs away from the hospitals in SLC, and 1 hr

> by plane, weather pending. I doubt anything will happen, but I would feel

> better if we were only 20 mins from the hospital. Not to mention, if

> there is a cancellation, we might be able to get this done, sooner. We

> will stay at my brothers house mostly, but will probably hang out with

> & Kylie quite a bit, too.

> I will be available by phone and internet, should anyone need anything

> from ISOP.

> Wish us luck and I'll post when we get there!

> HRH

>

>

[Guest guest]

, The first messages I read are always yours, I want to keep up with your

daily work with little Liv, you never stop.. I know that when Olivia gets older

and understands everything you did, she will realize, as all of us do on this

group, what a wonderful and dedicated person you are. Not only are you

thinking about your daughter, but you are here on this group keeping all of us

motivated and inspired. You are an example for all of us. Olivia could never

have received a better mom...Thanks for keeping us up to date and I want you to

know how much you and Olivia are in my prayers. I don´t write too often, I know

you are busy and I see all the letters and thoughts from all these great parents

on this group. I really want to meet you two this summer. We had two sets of

friends come with us last year, so we were none stop traveling trying to see as

many states as possible in 7 weeks (we made it through part of the upper east

coast and a little of the west).. This

summer, the same friends are coming over, but I put down the rules, Wyoming,

Colorado... that is it.....Thus, it should be a little more mellow...time enough

for me to invite you and Olivia out for a good lunch in Denver, you name the

place.. Please take care and give Olivia a big kiss and hug from all of us in

Spain... Estamos esperando tu viaje para ver nos...Cuando tu quieres sabes que

puedes quedar con nosotros...Con muchos abrazos y un beso fuerte para Olivia...

Hasta la proxima,

Kelli Y Santiago

heather@... wrote: Forgot to

mention that Olivias current VEPTR (dual hybrid attached to

iliac crests) will be completely removed. She will recieve the VEPTR II,

attached to the lumbar spine. If spontaneous fusion occurs, it will be in

the lumbar area in only 2 small segments, so its not as big of a concern

as it always has been (to me). Hopefully, this new hardware will help

prevent future rib erosion and her gait will improve. While she didnt

have a significant " stooping " issue with her current type of VEPTR, it was

always a challenge for her to hold herself upright, especially when tired.

She is 10 years old, so we have made it a long way and she will continue

to do well. As always, thanks for the prayers, thoughts, and well wishes.

HRH

> Okay, heres the plan;

> Primary cant get Liv on the surgery schedule until March 10th. I dont

> feel comfortable being all the way out here in Denver, so we will head out

> to SLC sometime next week. If something should happen to Olivia(rib

> erosion on the other side, infection, skin breakthrough, etc...)while we

> are in Denver, we would be 8 hrs away from the hospitals in SLC, and 1 hr

> by plane, weather pending. I doubt anything will happen, but I would feel

> better if we were only 20 mins from the hospital. Not to mention, if

> there is a cancellation, we might be able to get this done, sooner. We

> will stay at my brothers house mostly, but will probably hang out with

> & Kylie quite a bit, too.

> I will be available by phone and internet, should anyone need anything

> from ISOP.

> Wish us luck and I'll post when we get there!

> HRH

>

>

---------------------------------

Looking for last minute shopping deals? Find them fast with Yahoo! Search.

[Guest guest]

Thank goodness you guys finally have a plan!!

As you know, Siobhan is doing very well, since taking the VEPTR's off

the pelvis - Way less stooping.

Let's hope these new VEPTR 11 work for Liv! Siobhan's supposed to get

hers in July....

(Dr D'Astous wants new x-rays sent down, as Siobhan is still having

some pain issues, only on her left side....)

We leave on Wed (Feb 20th) for Siobhan's wish, so I'll call you when

we return !

Big hugs and try and stay calm!!!!!!!!!

(Don't forget you need to talk to Nat (Kylie's wish!!!!)

Love Jacki and Siobhan xxxx

>

> Forgot to mention that Olivias current VEPTR (dual hybrid attached

to

> iliac crests) will be completely removed. She will recieve the

VEPTR II,

> attached to the lumbar spine. If spontaneous fusion occurs, it

will be in

> the lumbar area in only 2 small segments, so its not as big of a

concern

> as it always has been (to me). Hopefully, this new hardware will

help

> prevent future rib erosion and her gait will improve. While she

didnt

> have a significant " stooping " issue with her current type of VEPTR,

it was

> always a challenge for her to hold herself upright, especially when

tired.

> She is 10 years old, so we have made it a long way and she will

continue

> to do well. As always, thanks for the prayers, thoughts, and well

wishes.

> HRH

>

>

> > Okay, heres the plan;

> > Primary cant get Liv on the surgery schedule until March 10th. I

dont

> > feel comfortable being all the way out here in Denver, so we will

head out

> > to SLC sometime next week. If something should happen to Olivia

(rib

> > erosion on the other side, infection, skin breakthrough, etc...)

while we

> > are in Denver, we would be 8 hrs away from the hospitals in SLC,

and 1 hr

> > by plane, weather pending. I doubt anything will happen, but I

would feel

> > better if we were only 20 mins from the hospital. Not to

mention, if

> > there is a cancellation, we might be able to get this done,

sooner. We

> > will stay at my brothers house mostly, but will probably hang out

with

> > & Kylie quite a bit, too.

> > I will be available by phone and internet, should anyone need

anything

> > from ISOP.

> > Wish us luck and I'll post when we get there!

> > HRH

> >

> >

>

[Guest guest]

Olivia is doing great! It was decided at the last minute, that we

would continue with the pelvic attachments. I am so grateful to

for bringing up the severe rotation question to me, prior to

surgery. Olivia has severe rotation and when I asked if the VEPTR 2

would maintain this rotation, the answer from both surgeons was not

reassuring enough for us to make the decision to attach the devices to

her spine. We know that the dual VEPTR hybrid attached to her iliac

crests HAS maintained her rotation, so we will continue this route

until we can no longer. The rod on the left was not replaced with the

V2, because they said it was stable and attached to a strong rib (no

erosion, yet...) The rod on the right was replaced with the V2 and is

attached to 3 ribs, instead of one. They only replaced the top part

of the right rod with the V2, not the entire rod. The hip attachment

remained in place. I am so relieved that both rods were not

removed/replaced in one surgery! I think it would have been too much

for my little girl. If/when the left rod erodes through again, the

upper portion will also be replaced with the V2. Two types of X-rays

were done at both hospitals, so as soon as I get back to Colorado, I

will get them up on the group. I was in such a hurry to get out of

the hospital that I neglected to get a baseline measurement from her

docs, but my trained eye is telling me that she is currently in the

50's. I will confirm this later..... Not bad for a child that has had

curve(s) over 100 twice in her life! Again, my hope is that we do not

have to touch her spine until absolutely necessary, and the docs

agree. She doesnt have a significant stooping issue with the pelvic

attachments, or any pain, so intuition says to stay the course. I am

open to doing this(spine attachments)when the time is right, but the

time is not right, now. We are very fortunate to have this type of

care. I am so grateful to both teams who are committed to the

children and have no issues communicating with eachother on how to

best treat these complicated cases.

I think we will be in SLC finishing recovery until this weekend. Cant

wait to go home, but my brothers house is the next best place to be

(with family & friends).

Thanks to all of you who sent us strength and prayers. I feel blessed

knowing that many of you were thinking of us during the last couple of

months, and especially last week.

Lots of love to you all!

Olivia &

Hey everyone,

> > > Just wanted to let you know the surgery went well. Olivia has a

> > VEPTR

> > > 2 on her right side. They decided not to attach to the lumbar as

> > it

> > > might not hold her significant rotation. Thanks to

> > (Kylie's

> > > Mom)for talking with about that! They will leave the left

> > side

> > > as is until complications arise. Olivia is pretty riled up at the

> > > moment, so pray for both she and to get a good night's

> > rest.

> > > Also pray that she will recover quickly.

> > >

> > > Shellie

> > >

> > >

> > >

> > >

> > >

> > >

> > > ---------------------------------

> > > Looking for last minute shopping deals? Find them fast with Yahoo!

> > Search.

> > >

> > >

[Guest guest]

That sounds good, . I'm glad to hear Olivia is doing well and hope

that you'll be able to return home soon.

Love

Sandi

[Guest guest]

WONDERFUL! I am so happy things went well for her.

Keep us posted on her recovery.

Tasha

hrhandco wrote:

Olivia is doing great! It was decided at the last minute, that we

would continue with the pelvic attachments. I am so grateful to

for bringing up the severe rotation question to me, prior to

surgery. Olivia has severe rotation and when I asked if the VEPTR 2

would maintain this rotation, the answer from both surgeons was not

reassuring enough for us to make the decision to attach the devices to

her spine. We know that the dual VEPTR hybrid attached to her iliac

crests HAS maintained her rotation, so we will continue this route

until we can no longer. The rod on the left was not replaced with the

V2, because they said it was stable and attached to a strong rib (no

erosion, yet...) The rod on the right was replaced with the V2 and is

attached to 3 ribs, instead of one. They only replaced the top part

of the right rod with the V2, not the entire rod. The hip attachment

remained in place. I am so relieved that both rods were not

removed/replaced in one surgery! I think it would have been too much

for my little girl. If/when the left rod erodes through again, the

upper portion will also be replaced with the V2. Two types of X-rays

were done at both hospitals, so as soon as I get back to Colorado, I

will get them up on the group. I was in such a hurry to get out of

the hospital that I neglected to get a baseline measurement from her

docs, but my trained eye is telling me that she is currently in the

50's. I will confirm this later..... Not bad for a child that has had

curve(s) over 100 twice in her life! Again, my hope is that we do not

have to touch her spine until absolutely necessary, and the docs

agree. She doesnt have a significant stooping issue with the pelvic

attachments, or any pain, so intuition says to stay the course. I am

open to doing this(spine attachments)when the time is right, but the

time is not right, now. We are very fortunate to have this type of

care. I am so grateful to both teams who are committed to the

children and have no issues communicating with eachother on how to

best treat these complicated cases.

I think we will be in SLC finishing recovery until this weekend. Cant

wait to go home, but my brothers house is the next best place to be

(with family & friends).

Thanks to all of you who sent us strength and prayers. I feel blessed

knowing that many of you were thinking of us during the last couple of

months, and especially last week.

Lots of love to you all!

Olivia &

Hey everyone,

> > > Just wanted to let you know the surgery went well. Olivia has a

> > VEPTR

> > > 2 on her right side. They decided not to attach to the lumbar as

> > it

> > > might not hold her significant rotation. Thanks to

> > (Kylie's

> > > Mom)for talking with about that! They will leave the left

> > side

> > > as is until complications arise. Olivia is pretty riled up at the

> > > moment, so pray for both she and to get a good night's

> > rest.

> > > Also pray that she will recover quickly.

> > >

> > > Shellie

> > >

> > >

> > >

> > >

> > >

> > >

> > > ---------------------------------

> > > Looking for last minute shopping deals? Find them fast with Yahoo!

> > Search.

> > >

> > >

[Guest guest]

Hi - It's so great to hear from you! I can't quite picture

everything your talking about, but maybe the x-rays will help me. It

all sounds very complicated to me right now. BUT, it sounds like

things went as planned and Olivia is doing reasonably well. I'm sure

that you must be relieved to have this over with and I hope that you

all can get back to your 'life routine' soon!

-

Hey everyone,

> > > > Just wanted to let you know the surgery went well. Olivia has a

> > > VEPTR

> > > > 2 on her right side. They decided not to attach to the lumbar as

> > > it

> > > > might not hold her significant rotation. Thanks to

> > > (Kylie's

> > > > Mom)for talking with about that! They will leave the

left

> > > side

> > > > as is until complications arise. Olivia is pretty riled up at

the

> > > > moment, so pray for both she and to get a good night's

> > > rest.

> > > > Also pray that she will recover quickly.

> > > >

> > > > Shellie

> > > >

> > > >

> > > >

> > > >

> > > >

> > > >

> > > > ---------------------------------

> > > > Looking for last minute shopping deals? Find them fast with

Yahoo!

> > > Search.

> > > >

> > > >

[Guest guest]

So glad to hear how things are...I think you made a wise decision and I'm glad

you both feel comfortable with it. You're still in my thoughts and prayers.

Hugs and TTYS,

and Evan

hrhandco wrote:

Olivia is doing great! It was decided at the last minute, that we

would continue with the pelvic attachments. I am so grateful to

for bringing up the severe rotation question to me, prior to

surgery. Olivia has severe rotation and when I asked if the VEPTR 2

would maintain this rotation, the answer from both surgeons was not

reassuring enough for us to make the decision to attach the devices to

her spine. We know that the dual VEPTR hybrid attached to her iliac

crests HAS maintained her rotation, so we will continue this route

until we can no longer. The rod on the left was not replaced with the

V2, because they said it was stable and attached to a strong rib (no

erosion, yet...) The rod on the right was replaced with the V2 and is

attached to 3 ribs, instead of one. They only replaced the top part

of the right rod with the V2, not the entire rod. The hip attachment

remained in place. I am so relieved that both rods were not

removed/replaced in one surgery! I think it would have been too much

for my little girl. If/when the left rod erodes through again, the

upper portion will also be replaced with the V2. Two types of X-rays

were done at both hospitals, so as soon as I get back to Colorado, I

will get them up on the group. I was in such a hurry to get out of

the hospital that I neglected to get a baseline measurement from her

docs, but my trained eye is telling me that she is currently in the

50's. I will confirm this later..... Not bad for a child that has had

curve(s) over 100 twice in her life! Again, my hope is that we do not

have to touch her spine until absolutely necessary, and the docs

agree. She doesnt have a significant stooping issue with the pelvic

attachments, or any pain, so intuition says to stay the course. I am

open to doing this(spine attachments)when the time is right, but the

time is not right, now. We are very fortunate to have this type of

care. I am so grateful to both teams who are committed to the

children and have no issues communicating with eachother on how to

best treat these complicated cases.

I think we will be in SLC finishing recovery until this weekend. Cant

wait to go home, but my brothers house is the next best place to be

(with family & friends).

Thanks to all of you who sent us strength and prayers. I feel blessed

knowing that many of you were thinking of us during the last couple of

months, and especially last week.

Lots of love to you all!

Olivia &

Hey everyone,

> > > Just wanted to let you know the surgery went well. Olivia has a

> > VEPTR

> > > 2 on her right side. They decided not to attach to the lumbar as

> > it

> > > might not hold her significant rotation. Thanks to

> > (Kylie's

> > > Mom)for talking with about that! They will leave the left

> > side

> > > as is until complications arise. Olivia is pretty riled up at the

> > > moment, so pray for both she and to get a good night's

> > rest.

> > > Also pray that she will recover quickly.

> > >

> > > Shellie

> > >

> > >

> > >

> > >

> > >

> > >

> > > ---------------------------------

> > > Looking for last minute shopping deals? Find them fast with Yahoo!

> > Search.

> > >

> > >

[Guest guest]

,

I hope you know that we've been thinking of you and Olivia this past week. We

were in SLC on Saturday, but didn't have time to stop at the hospital to visit

(even if you were up to visitors). I know you are in good hands there.

Hopefully each day brings more good hours than not-so-good ones. I know you've

made the best choices possible for her. I hope you can make it home soon to

rest and release some of that anxiety you've had going for a while now. MANY

wishes that this repair will hold and Olivia will have several months of

pain-free times to be healthy and active! I'm anxious to see the xrays when you

get a chance. Sounds like the new attachment will be great.

(oh, I had sent a message about contact information for Joanne - na's mom,

but I didn't send it to the right email address. If you still would like to

visit with her while you are in SLC, I'll send you another note. Sorry about

that.)

Take care!

Carmell

Mom to Kara, idiopathic scoliosis and hypothyroidism, Blake 17, GERD, and

Braydon 12, VACTERL-congenital scoliosis (fusion surgery 5/96), VEPTR patient

#137 (implant 8/01), Thoracic Insufficiency Syndrome (TIS), rib anomalies,

missing coccyx, fatty filum/TC (released 4/99 & 12/06), anal stenosis, chronic

constipation, horseshoe (cross-fused) kidney, dbl ureter in left kidney,

ureterocele (excized 6/95), kidney reflux (reimplant surgery 1/97), neurogenic

bladder, dysplastic right leg w/right clubfoot with 8 toes (repaired 2/96, 3/96,

1/97, 3/04), tibial torsion, 4cm length discrepancy-wears 3cm lift, valgus

deformity, GERD, Gastroparesis, SUA, etc.

http://carmellb-ivil.tripod.com/myfamily/

Congenital scoliosis support group

http://health.groups.yahoo.com/group/CongenitalScoliosisSupport/

---------------------------------

Never miss a thing. Make Yahoo your homepage.

[Guest guest]

Carmell,

Sorry, I wasnt able to call you on Sat. She was still in " full-on "

recovery mode. I think she is in a good place and I am grateful for the

guidance that you have given me and everyone on this group. Things are

slowing down a little, so I plan on contacting you before we leave SLC.

I'll send the films as soon as I can. I can tell the docs were impressed

with the new hardware and I feel lucky that Olivia had access to it.

Thanks again for your knowledge and being so level headed. I dont ever

mind the lectures, because I know they come from experience and that you

are genuine. In trying times, I appreciate people like you calming me

down.

Talk soon,

HRH

> ,

>

> I hope you know that we've been thinking of you and Olivia this past week.

> We were in SLC on Saturday, but didn't have time to stop at the hospital

> to visit (even if you were up to visitors). I know you are in good hands

> there. Hopefully each day brings more good hours than not-so-good ones.

> I know you've made the best choices possible for her. I hope you can make

> it home soon to rest and release some of that anxiety you've had going for

> a while now. MANY wishes that this repair will hold and Olivia will have

> several months of pain-free times to be healthy and active! I'm anxious

> to see the xrays when you get a chance. Sounds like the new attachment

> will be great.

>

> (oh, I had sent a message about contact information for Joanne - na's

> mom, but I didn't send it to the right email address. If you still would

> like to visit with her while you are in SLC, I'll send you another note.

> Sorry about that.)

>

> Take care!

> Carmell

>

>

>

>

> Mom to Kara, idiopathic scoliosis and hypothyroidism, Blake 17, GERD, and

> Braydon 12, VACTERL-congenital scoliosis (fusion surgery 5/96), VEPTR

> patient #137 (implant 8/01), Thoracic Insufficiency Syndrome (TIS), rib

> anomalies, missing coccyx, fatty filum/TC (released 4/99 & 12/06), anal

> stenosis, chronic constipation, horseshoe (cross-fused) kidney, dbl ureter

> in left kidney, ureterocele (excized 6/95), kidney reflux (reimplant

> surgery 1/97), neurogenic bladder, dysplastic right leg w/right clubfoot

> with 8 toes (repaired 2/96, 3/96, 1/97, 3/04), tibial torsion, 4cm length

> discrepancy-wears 3cm lift, valgus deformity, GERD, Gastroparesis, SUA,

> etc. http://carmellb-ivil.tripod.com/myfamily/

>

> Congenital scoliosis support group

> http://health.groups.yahoo.com/group/CongenitalScoliosisSupport/

>

> ---------------------------------

> Never miss a thing. Make Yahoo your homepage.

>

>

[Guest guest]

,

I recieved your call a couple of days ago and plan on calling you this

afternoon, after your darling kiddos get down for nap. Thanks for talking

to our Capital Campaign Director, last week about future fundraising!! I

cant wait to start planning again with you! Your the best, ! Talk

to you in a bit.

Love,

HRH

> So glad to hear how things are...I think you made a wise decision and I'm

> glad you both feel comfortable with it. You're still in my thoughts and

> prayers.

>

> Hugs and TTYS,

> and Evan

>

> hrhandco wrote:

> Olivia is doing great! It was decided at the last minute, that

> we

> would continue with the pelvic attachments. I am so grateful to

> for bringing up the severe rotation question to me, prior to

> surgery. Olivia has severe rotation and when I asked if the VEPTR 2

> would maintain this rotation, the answer from both surgeons was not

> reassuring enough for us to make the decision to attach the devices to

> her spine. We know that the dual VEPTR hybrid attached to her iliac

> crests HAS maintained her rotation, so we will continue this route

> until we can no longer. The rod on the left was not replaced with the

> V2, because they said it was stable and attached to a strong rib (no

> erosion, yet...) The rod on the right was replaced with the V2 and is

> attached to 3 ribs, instead of one. They only replaced the top part

> of the right rod with the V2, not the entire rod. The hip attachment

> remained in place. I am so relieved that both rods were not

> removed/replaced in one surgery! I think it would have been too much

> for my little girl. If/when the left rod erodes through again, the

> upper portion will also be replaced with the V2. Two types of X-rays

> were done at both hospitals, so as soon as I get back to Colorado, I

> will get them up on the group. I was in such a hurry to get out of

> the hospital that I neglected to get a baseline measurement from her

> docs, but my trained eye is telling me that she is currently in the

> 50's. I will confirm this later..... Not bad for a child that has had

> curve(s) over 100 twice in her life! Again, my hope is that we do not

> have to touch her spine until absolutely necessary, and the docs

> agree. She doesnt have a significant stooping issue with the pelvic

> attachments, or any pain, so intuition says to stay the course. I am

> open to doing this(spine attachments)when the time is right, but the

> time is not right, now. We are very fortunate to have this type of

> care. I am so grateful to both teams who are committed to the

> children and have no issues communicating with eachother on how to

> best treat these complicated cases.

> I think we will be in SLC finishing recovery until this weekend. Cant

> wait to go home, but my brothers house is the next best place to be

> (with family & friends).

> Thanks to all of you who sent us strength and prayers. I feel blessed

> knowing that many of you were thinking of us during the last couple of

> months, and especially last week.

> Lots of love to you all!

> Olivia &

>

> Hey everyone,

>> > > Just wanted to let you know the surgery went well. Olivia has a

>> > VEPTR

>> > > 2 on her right side. They decided not to attach to the lumbar as

>> > it

>> > > might not hold her significant rotation. Thanks to

>> > (Kylie's

>> > > Mom)for talking with about that! They will leave the left

>> > side

>> > > as is until complications arise. Olivia is pretty riled up at the

>> > > moment, so pray for both she and to get a good night's

>> > rest.

>> > > Also pray that she will recover quickly.

>> > >

>> > > Shellie

>> > >

>> > >

>> > >

>> > >

>> > >

>> > >

>> > > ---------------------------------

>> > > Looking for last minute shopping deals? Find them fast with Yahoo!

>> > Search.

>> > >

>> > >