Pain

[Guest guest]

Glad to hear it Delaine! Celebrex did nothing for me either.

a

----- Original Message -----

From: Jim & Delaine Lowry <keywest@...>

onelist < egroups>

Sent: Friday, August 04, 2000 12:07 PM

Subject: [ ] Pain

> I just got Vioxx 50 and it is wonderful. I've never had anything that

> helped

> pain as much as this. Celebrex did NOTHING. Read the message from

> some members having a lot of pain...wanted you to know that this has

> helped. Vioxx 25 didn't help very much...it took the 50's. Also, I

> have

> much less pain when I don't eat sugar, drink alcohol, cut out dairy

> products.

[Guest guest]

Lamar ...

I totally agree with you on the circumcision issue. When my two daughters

were contemplating having their three sons circumcised at birth, I tried my

best to talk them out of it. The ONLY reason they could come up with for

going ahead was possible future social pressure ... like taking showers with

other boys in gym class for instance. I tried to convince them that it was

the OTHER boys who were not " normal. " They elected to go ahead with the

circumcisions anyway. There are negatives to circumcision as well. For

example, there is always a chance of an accident (it has been known to

happen) and also there is a desensitizing of sexual feelings as well.

I am presently reading an informative book about three generations of women

who lived under the control of Mao in Communist China. In the Grandmother's

time, it was fashionable for women to have bound feet in order to keep the

feet abnormally small. This procedure entailed breaking all five toes,

folding the toes under the bottom of each foot (God, I thought MY feet

hurt!), then wrapping them tightly in that position so the foot wouldn't

grow. Small, bound feet in women were highly prized in China in the old days

.... In fact, if parents did not bind the girl child's feet, they were

considered to be inattentive parents and were ostracized for not caring about

their daughter's future marriage prospects. I see a parallel here with the

circumcision issue in this country.

There is an old joke re: Circumcision ... After Moses came down from the

Mountain, a group of Jews were huddled together in a corner ... One said to

the others: " Moses said we have to do WHAT ... ??? "

[Guest guest]

Lamar here,

Makes you wonder about the medically unnecessary procedure routinely performed

on male children, If you ever see a male circumcised and hear the screams, you

don't buy that they don't feel it.

----- Original Message -----

From: arew@...

egroups

Sent: Thursday, August 10, 2000 10:30 PM

Subject: [] Pain

The following article may be of interest to those of you pursuing

research on pain.

Regards, Alice

CA SLO Co. THE TRIBUNE 2000 July 28:

Study: Body remembers pain felt as baby

Research aimed at improving lives of premature babies

WASHINGTON (AP) For years, doctors operated on premature babies

without anesthesia in the belief that even if the infants felt the

pain, they would not remember it. New research with rats suggests

that

the body does remember the pain and is forever changed.

[Guest guest]

Hello ,

You can learn a lot from reading these messages, but always remember (my

doctor tells me this whenever I go there) just because you have CMT doesn't

mean you can't get or have something else. I have variety of pains in my

hands and feet. I always blame everything on CMT. So far I don't have

anything else.

Joan

[Guest guest]

I have pain in my hands and feet. I find that a little or no salt diet

helps lessen the pain. Also, I started having pain when eating citrus fruit.

It burns my hands when I peal it, burns my mouth, and burns my insides.

Since I have become aware of these causes, the pain lessened.

Also, I find that drinking plenty of water decreases muscle cramps.

But this rotten pain is so discouraging, I wonder what degree of pain each

day will bring. I take neuronton too.

Joan

Joan

[Guest guest]

do you also get pain that is lower? Sometimes the attacks alternate between

my stomach and my bowels.

>From: " pearly221 " <PEARLY2@...>

>Reply-gallstones

>gallstones

>Subject: Pain

>Date: Fri, 04 Jul 2003 12:02:20 -0000

>

>The pain cannot be mistaken for anything else but GB pain. It is identical

>to the attacks I had with my GB...only lighter.

>I get them in my back and then to the front.

>

>Pearl

>

_________________________________________________________________

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[Guest guest]

What do y'all do for MS pain? I have a lot of pain in my feet and often in my calves, as well. Sometimes, soaking my feet in warm water helps. What pain meds work?

Sally A.

[Guest guest]

Hi Sherrie,

I wish I could say I have found something to take away the pain completely, but I haven't Ilm afraid. The best mine has beenis to get it to a low background sort of level, it never goes completely....oh, sorry, it did the first time I had a cortisone injection, but it didn't last long.

I have a friend with periferal neuropathy, she is 36 and virtually bedbound with her condition, the pain is so bad, she had a spinal stimulator fitted 18 months ago, even that didn't help much.

I k am sure one of the things we all pray for is one day they will find something that works to rid us of pain.

Take care, hugs, Lynne

[Guest guest]

Unfortunately I don't keep track of what people have as a diagnosis or what medicines they are on. The most important thing is to have a treatment plan that is expected to slow or stop permanent joint damage and then to keep the doctor informed if things don't go according to expectations. You need to know what to expect from your medicines. If your doctor doesn't give you hope or clear expectations it is time for a second opinion.

If joint damage has already occurred then pain management comes into the forefront. If conventional painkillers don't help then you need to see a pain management specialist. I'm pretty well controlled with Remicade and Methotrexate and usually I have occasional mild pain that I just ignore. If things get bad (usually just before another Remicade infusion) I go back on Prednisone at a low level for a few days. If that didn't help I would see a pain management doctor. God bless.

----- Original Message -----

From: scorn720

Rheumatoid Arthritis

Sent: Thursday, July 15, 2004 5:50 AM

Subject: pain

i would like to know what most of you do fore the pain it just dont go away i am allready on methadone but the pain is still there any ideasof how to deal with it sherrie

[Guest guest]

Hi Sherrie,

Several things may help with the pain, but each of us is different.

Is your RA under control? If you think it is and you're still

having a lot of pain, then it may be a flare, or you may not be as

well controlled as you thought (or hoped). Sometimes a higher dose

of one of your meds or a different pain med may help.

Trying to keep your mind off the pain can help (but isn't always

easy). I find that listening to music while I work will often help

me focus on my work and shove the pain down lower in my mind.

I do understand how you feel though - I've been having a flare for

the past week and feel like I'm living on vicodin. Even at that it

starts to wear off after about 3 hours. Hope you find something

that works soon.

Beth

> is there any thing you can do for the pain i am allready on

methadone

> the pain is still there any help would be of help i havent tryed

many

> different things but nothing seems to help

> sherrie

[Guest guest]

Methadone or Methotrexate?

Neither of those is a pain medication. Ask your doctor about an anti-inflammatory or something for pain.

Hugs, Jacy

~Sacred cows make the best hamburger

jacymail@...IM: jacygal - ICQ: 96949087www.geocities.com/mtn_rose

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-----Original Message-----From: scorn720 [mailto:scorn720@...]Sent: Thursday, July 15, 2004 06:50Rheumatoid Arthritis Subject: paini would like to know what most of you do fore the pain it just dont go away i am allready on methadone but the pain is still there any ideasof how to deal with it sherrie

[Guest guest]

In a message dated 8/31/2004 12:08:53 PM Mountain Daylight Time, mysticalherbalist@... writes:

Just wanting to make sure you didn't have a blind surgeon who didn't know what or where a uterus was located. LOL Or do you still have your fallopian tubes and ovaries?

Maybe that really was the problem and they just didn't want to admit it!!!

No, I have no female parts left, tubes, ovaries or uterus.

The first two Hysts were the same Dr. #3 was a different one and #4 a completely different one again.

Deborah

[Guest guest]

In a message dated 9/6/2004 6:01:56 PM Mountain Daylight Time, suziesgoats@... writes:

How about a nice hot relaxing bath prior to bed? How much sleep are you getting?

Suzi

Did that last night also. I was in bed for about 8 hours, from just past 10 -6, getting up once. Bath's don't help or hurt my sleep. I get to sleep easy, but then wake up often. I did have a sleep study at the hospital and found that I have sleep apnea. Couldn't stand the apparatus! Got rid of all that. This particular sleeping pill is the only thing that works for me. I can take a Dramamine and that will help for about 4 hours.

Deborah

[Guest guest]

In a message dated 9/6/2004 6:44:29 PM Mountain Daylight Time, suziesgoats@... writes:

If I sleep for 8 hours I am tired... too much sleep... I usually require about 5-6 normally, for me.. Maybe your body doesn't need as much as you think. I'll have to read up more on sleep apnea...

Remember that I am not sleeping 8 hours continuously. If I could get 6 hours solid continuous sleep, I would be fine. I can't. I have probably had 5 solid night's sleep in the past 25 years or so. When I don't sleep well for several night in a row - becuase I am not taking a sleep pill - then I HAVE to have that time. It just isn't "quality" sleep.

Deborah

[Guest guest]

My wife was on sleeping pills for years. It really bothered me that she seemed so dependant on them. I started her on valerian and chamomile tea about a half hour before bedtime. Now she falls asleep fine, stays asleep easier, and wakes up without that "sleeping pill hangover" feeling.

Don't know if you've tried valerian yet, if not, it might help.

KLSIRDDOGS@... wrote:

Did that last night also. I was in bed for about 8 hours, from just past 10 -6, getting up once. Bath's don't help or hurt my sleep. I get to sleep easy, but then wake up often. I did have a sleep study at the hospital and found that I have sleep apnea. Couldn't stand the apparatus! Got rid of all that. This particular sleeping pill is the only thing that works for me. I can take a Dramamine and that will help for about 4 hours.

Deborah__________________________________________________

[Guest guest]

Thanks Susie, this made a lot more sense to me. I found the other info a little confusing.

Thanks again, (smiles).

TerriLynne

Suzanne wrote:

Aspirin is a member of a family of chemicals called salicylates ...

[Guest guest]

Sherrie,

Who is this person or people who do not understand? Depending on who it is, maybe I can help you through it. ~scorn720 <scorn720@...> wrote:

what do you do when you have a realy bad day of pain and fatigue and no one understands they expect you to be able to do everything they expect you to do everyday they just don't understand sherrie

__________________________________________________

[Guest guest]

hi, sherrie! if I am at work, I get really

quiet. I try not to engage anyone in

conversation if at all possible. at home, I just

tell hubby that I need to rest and jump into bed

and pull the covers up all around me. it is

hard; unless a person has a chronic problem, they

do not understand. gentle hugs, Marcia

--- scorn720 <scorn720@...>

wrote:

>

> what do you do when you have a realy bad day of

> pain and fatigue and

> no one understands they expect you to be able

> to do everything they

> expect you to do everyday they just don't

> understand sherrie

>

>

>

>

__________________________________________________

[Guest guest]

If you have time and the others are sufficiently interested I find the Spoon Theory http://www.butyoudontlooksick.com/spoons.htm to be the best thing I have found to explain RA to others. God bless.

----- Original Message -----

From: scorn720

Rheumatoid Arthritis

Sent: Thursday, November 04, 2004 5:14 AM

Subject: pain

what do you do when you have a realy bad day of pain and fatigue and no one understands they expect you to be able to do everything they expect you to do everyday they just don't understand sherrie

[Guest guest]

Marcia Stoyle <marciastoyle@...> wrote:

hi, sherrie! if I am at work, I get reallyquiet. I try not to engage anyone inconversation if at all possible. at home, I justtell hubby that I need to rest and jump into bedand pull the covers up all around me. it ishard; unless a person has a chronic problem, theydo not understand. gentle hugs, Marcia Hello Marcia,

Well when i get quite everyone just gets on my case wants to know whats wrong with me , gesh isnt this crap enought in its own ?????? best wishs

later john > > > > __________________________________________________

[Guest guest]

In a message dated 11/4/04 10:33:29 AM, kentuckycowboy1@... writes:

what do you do when you have a realy bad day of pain and fatigue and

no one understands they expect you to be able to do everything they

expect you to do everyday they just don't

understand    

I sympathize with you.

I have learned to keep my mouth shut and try and do the best I can no matter how bad the pain...

If you try and explain to anyone close what you are going through more than a couple of times , I think if they care, it bothers and frustrates them because they cannot do nothing to help "fix it."

Especially MEN!

They get upset and the result is that it makes you feel worse!

If they don't really care, it is a moot point.

RA can be a very lonely disease.

My way of coping is to appreciate the little things in life.....and to remember that tomorrow may be a better day....

Hugs,

Pris

Animal Planet's PET STORY features 30 minutes of Valentine's Performing Pigs Nov. 4, 2:30 PM ET.

www.valentinesperformingpigs.com

[Guest guest]

you could get a ribbon, a cap or a scarf that is tasteful but that everyone could easily notice just by looking at you. choose a color (i like green)

and then let them know when they see that, that you're not having the best day, or that

you're coming on a flare up and you need some space and maybe a little extra consideration.

if they have a clue, it should work

love to you all

yellowjohn no_way <kentuckycowboy1@...> wrote:

scorn720 <scorn720@...> wrote:

what do you do when you have a realy bad day of pain and fatigue and no one understands they expect you to be able to do everything they expect you to do everyday they just don't understand sherrieHi there ,

i'm john im haveing a real bad time now allso , and would really like to have an answer to that question allso ? I know everyone will have an oppion and it may work for them and maybe a few others but i havent fould the one that works for me and those close to me so maybe its in my head maybe im feeling quilty for being in this shape and a family depending on me but i still have the feeling of nobody understading or careing about me or me punishing thru the day trying to make it a little futher where the answer is i just dont know i wish you better luck at finding it or someting that make youer mind more easy about it i know what a burdon in it self it is .

later john

Do you ?Check out the new Front Page. www. __________________________________________________

[Guest guest]

I have been limping for probably 3 years now. I have not really told people at work I have RA, but they have obviously figured out that something isn't right. Since I have had to take off some time to deal with a flare, I've decided to come out of the closet and start telling people about the disease. It's just easier than always saying "I have trouble with my foot." or "I kicked my husband too hard last night." or "yeah, I twisted it skydiving." (you'd be surprised how many people actually fell for that one.) I guess the main thing is to keep your sense of humor and know that usually people ask because they care and are concerned, not because they are boneheads.

gloria

[Guest guest]

,

I am so sorry you are having such a hard time. I don't catch all the posts and wondering if you are on any meds right now. Have you considered antibiotic therapy?? It is not that expensive and it helped me. I took Minocin for about 6 months and got better. I also took Lodine (anti-inflammatory) which controlled the inflammation.

Do not let the pain control you! If you allow it, it can consume you! I remember all the pain. Try to muster all your energy to hang on until you can get the pain under control. Don't be afraid to take some medicine to help. Get some help and you will feel better. You do NOT have to live in pain. I saw many doctors and tried many drugs. We are traveling down the same road and here to help each other. Make you a plan and see it thru.

Soft feelings and strong prayers,

Kay

----- Original Message -----

From: john no_way

Rheumatoid Arthritis

Sent: Thursday, November 04, 2004 12:47 PM

Subject: Re: pain

Marcia Stoyle <marciastoyle@...> wrote:

hi, sherrie! if I am at work, I get reallyquiet. I try not to engage anyone inconversation if at all possible. at home, I justtell hubby that I need to rest and jump into bedand pull the covers up all around me. it ishard; unless a person has a chronic problem, theydo not understand. gentle hugs, Marcia Hello Marcia,

Well when i get quite everyone just gets on my case wants to know whats wrong with me , gesh isnt this crap enought in its own ?????? best wishs

later john > > > > __________________________________________________

[Guest guest]

hey, ! I tried the antibiotic therapy for 12

months, but it did nothing for me. I tried all

kinds of diet changes, but nothing seemed to make

a difference. then I asked the family doctor for

a referral to the Pain Clinic, and at last some

relief...it is attached to our university &

largest hospital....when you go there, it is

taken for granted that you have mega pain...you

do not have to convince anyone of that fact.

gentle hugs, Marcia

--- Kay Simpson <Siwelyak@...> wrote:

> ,

> I am so sorry you are having such a hard

> time. I don't catch all the posts and

> wondering if you are on any meds right now.

> Have you considered antibiotic therapy?? It is

> not that expensive and it helped me. I took

> Minocin for about 6 months and got better. I

> also took Lodine (anti-inflammatory) which

> controlled the inflammation.

>

> Do not let the pain control you! If you

> allow it, it can consume you! I remember all

> the pain. Try to muster all your energy to

> hang on until you can get the pain under

> control. Don't be afraid to take some medicine

> to help. Get some help and you will feel

> better. You do NOT have to live in pain. I

> saw many doctors and tried many drugs. We are

> traveling down the same road and here to help

> each other. Make you a plan and see it thru.

>

> Soft feelings and strong prayers,

> Kay

> ----- Original Message -----

> From: john no_way

> Rheumatoid Arthritis

> Sent: Thursday, November 04, 2004 12:47 PM

> Subject: Re: pain

>

>

>

>

> Marcia Stoyle <marciastoyle@...> wrote:

>

> hi, sherrie! if I am at work, I get really

> quiet. I try not to engage anyone in

> conversation if at all possible. at home,

> I just

> tell hubby that I need to rest and jump

> into bed

> and pull the covers up all around me. it

> is

> hard; unless a person has a chronic

> problem, they

> do not understand. gentle hugs, Marcia

>

>

>

> Hello Marcia,

>

> Well when i get quite everyone just

> gets on my case wants to know whats wrong with

> me , gesh isnt this crap enought in its own

> ?????? best wishs

>

> later john

>

> >

> >

> >

> >

>

>

>

>

__________________________________________________

>