Pain

[Guest guest]

I've got one for you, my dr suggested I get those braces for my hands/wrists to protect them when I am doing things, so I wear them to church, so when everyone gets up and shakes hands, people don't wrench me. I still have the same people saying week after week, "Aren't you feeling any better yet? What do you have, carpal tunnel?" That's enough to make me flip out hearing that all the time. Face it, people can be ignorant and that's all their is to it. It's sort of like when you see someone with a cast on their foot and you hear people saying, "What happened? Break your foot?" I mean really, use your head, right? ~yellow dancer <yellowplugempress@...> wrote:

you could get a ribbon, a cap or a scarf that is tasteful but that everyone could easily notice just by looking at you. choose a color (i like green)

and then let them know when they see that, that you're not having the best day, or that

you're coming on a flare up and you need some space and maybe a little extra consideration.

if they have a clue, it should work

love to you all

yellowjohn no_way <kentuckycowboy1@...> wrote:

scorn720 <scorn720@...> wrote:

what do you do when you have a realy bad day of pain and fatigue and no one understands they expect you to be able to do everything they expect you to do everyday they just don't understand sherrieHi there ,

i'm john im haveing a real bad time now allso , and would really like to have an answer to that question allso ? I know everyone will have an oppion and it may work for them and maybe a few others but i havent fould the one that works for me and those close to me so maybe its in my head maybe im feeling quilty for being in this shape and a family depending on me but i still have the feeling of nobody understading or careing about me or me punishing thru the day trying to make it a little futher where the answer is i just dont know i wish you better luck at finding it or someting that make youer mind more easy about it i know what a burdon in it self it is .

later john

Do you ?Check out the new Front Page. www.

__________________________________________________

[Guest guest]

Kay Simpson <Siwelyak@...> wrote:

,

I am so sorry you are having such a hard time. I don't catch all the posts and wondering if you are on any meds right now. Have you considered antibiotic therapy?? It is not that expensive and it helped me. I took Minocin for about 6 months and got better. I also took Lodine (anti-inflammatory) which controlled the inflammation.

Do not let the pain control you! If you allow it, it can consume you! I remember all the pain. Try to muster all your energy to hang on until you can get the pain under control. Don't be afraid to take some medicine to help. Get some help and you will feel better. You do NOT have to live in pain. I saw many doctors and tried many drugs. We are traveling down the same road and here to help each other. Make you a plan and see it thru.

Soft feelings and strong prayers,

Kay

Thanks Kay,

yes i have meds i got in to my rhumy today in the mist of this flare or whatever he said my knuckles , hands and knees looked awful and i wasnt doing well so he upped my mtx to 8 pills and put me back on remicaid and uped it to 800 mill.a ?? and im on volterian 75mg 3x aday ( miss spelled ) but nothing to get me through this flare still can hardly get up and then walk thanks ,

later john> > > __________________________________________________

[Guest guest]

Marcia Stoyle <marciastoyle@...> wrote:

hey, ! I tried the antibiotic therapy for 12months, but it did nothing for me. I tried allkinds of diet changes, but nothing seemed to makea difference. then I asked the family doctor fora referral to the Pain Clinic, and at last somerelief...it is attached to our university & largest hospital....when you go there, it istaken for granted that you have mega pain...youdo not have to convince anyone of that fact. gentle hugs, Marcia--- Kay Simpson <Siwelyak@...> wrote:> Thanks Kay,

well its mega in my mind but ive got so much on my plate i dont know how to handle anymore right now ?????

later john __________________________________________________>

[Guest guest]

,

I tried Voltaren for a while and it did not help me with inflammation. After trying several, I had more luck with Lodine XL. It is one of the older anti-inflammatories that I read is a bit easier on the stomach. I do hope you get some relief.

Can you sleep at night or is there too much pain?? They must help you get some rest somehow.

Kay

----- Original Message -----

From: john no_way

Rheumatoid Arthritis

Sent: Thursday, November 04, 2004 7:37 PM

Subject: Re: pain

Kay Simpson <Siwelyak@...> wrote:

,

I am so sorry you are having such a hard time. I don't catch all the posts and wondering if you are on any meds right now. Have you considered antibiotic therapy?? It is not that expensive and it helped me. I took Minocin for about 6 months and got better. I also took Lodine (anti-inflammatory) which controlled the inflammation.

Do not let the pain control you! If you allow it, it can consume you! I remember all the pain. Try to muster all your energy to hang on until you can get the pain under control. Don't be afraid to take some medicine to help. Get some help and you will feel better. You do NOT have to live in pain. I saw many doctors and tried many drugs. We are traveling down the same road and here to help each other. Make you a plan and see it thru.

Soft feelings and strong prayers,

Kay

Thanks Kay,

yes i have meds i got in to my rhumy today in the mist of this flare or whatever he said my knuckles , hands and knees looked awful and i wasnt doing well so he upped my mtx to 8 pills and put me back on remicaid and uped it to 800 mill.a ?? and im on volterian 75mg 3x aday ( miss spelled ) but nothing to get me through this flare still can hardly get up and then walk thanks ,

later john> > > __________________________________________________

[Guest guest]

Marcia,

Sorry antibiotic therapy did not help you. The Pain Clinic sounds great. So, how is the hip doing now??

Kay

----- Original Message -----

From: john no_way

Rheumatoid Arthritis

Sent: Thursday, November 04, 2004 7:52 PM

Subject: Re: pain

Marcia Stoyle <marciastoyle@...> wrote:

hey, ! I tried the antibiotic therapy for 12months, but it did nothing for me. I tried allkinds of diet changes, but nothing seemed to makea difference. then I asked the family doctor fora referral to the Pain Clinic, and at last somerelief...it is attached to our university & largest hospital....when you go there, it istaken for granted that you have mega pain...youdo not have to convince anyone of that fact. gentle hugs, Marcia--- Kay Simpson <Siwelyak@...> wrote:> Thanks Kay,

well its mega in my mind but ive got so much on my plate i dont know how to handle anymore right now ?????

later john __________________________________________________>

[Guest guest]

Gloria,

That was very well put. I find a short, funny answer to work also.

Kay

----- Original Message -----

From: gloriarex@...

Rheumatoid Arthritis

Sent: Thursday, November 04, 2004 8:30 PM

Subject: Re: pain

I have been limping for probably 3 years now. I have not really told people at work I have RA, but they have obviously figured out that something isn't right. Since I have had to take off some time to deal with a flare, I've decided to come out of the closet and start telling people about the disease. It's just easier than always saying "I have trouble with my foot." or "I kicked my husband too hard last night." or "yeah, I twisted it skydiving." (you'd be surprised how many people actually fell for that one.) I guess the main thing is to keep your sense of humor and know that usually people ask because they care and are concerned, not because they are boneheads.

gloria

[Guest guest]

Kay Simpson <Siwelyak@...> wrote:

Marcia,

Sorry antibiotic therapy did not help you. The Pain Clinic sounds great. So, how is the hip doing now??

Kay

----- Original Message -----

From: john no_way

Rheumatoid Arthritis

Sent: Thursday, November 04, 2004 7:52 PM

Subject: Re: pain

Marcia Stoyle <marciastoyle@...> wrote:

hey, ! I tried the antibiotic therapy for 12months, but it did nothing for me. I tried allkinds of diet changes, but nothing seemed to makea difference. then I asked the family doctor fora referral to the Pain Clinic, and at last somerelief...it is attached to our university & largest hospital....when you go there, it istaken for granted that you have mega pain...youdo not have to convince anyone of that fact. gentle hugs, Marcia--- Kay Simpson <Siwelyak@...> wrote:> Thanks Marcia,

well its mega in my mind but ive got so much on my plate i dont know how to handle anymore right now ?????

later john __________________________________________________>

[Guest guest]

Kay Simpson <Siwelyak@...> wrote:

Marcia,

Sorry antibiotic therapy did not help you. The Pain Clinic sounds great. So, how is the hip doing now??

Kay

----- Original Message -----

From: john no_way

Rheumatoid Arthritis

Sent: Thursday, November 04, 2004 7:52 PM

Subject: Re: pain

Marcia Stoyle <marciastoyle@...> wrote:

hey, ! I tried the antibiotic therapy for 12months, but it did nothing for me. I tried allkinds of diet changes, but nothing seemed to makea difference. then I asked the family doctor fora referral to the Pain Clinic, and at last somerelief...it is attached to our university & largest hospital....when you go there, it istaken for granted that you have mega pain...youdo not have to convince anyone of that fact. gentle hugs, Marcia--- Kay Simpson <Siwelyak@...> wrote:> Thanks Marcia,

well its mega in my mind but ive got so much on my plate i dont know how to handle anymore right now ?????

later john __________________________________________________>

[Guest guest]

Kay Simpson <Siwelyak@...> wrote:

Marcia,

Sorry antibiotic therapy did not help you. The Pain Clinic sounds great. So, how is the hip doing now??

Kay

----- Original Message -----

From: john no_way

Rheumatoid Arthritis

Sent: Thursday, November 04, 2004 7:52 PM

Subject: Re: pain

Marcia Stoyle <marciastoyle@...> wrote:

hey, ! I tried the antibiotic therapy for 12months, but it did nothing for me. I tried allkinds of diet changes, but nothing seemed to makea difference. then I asked the family doctor fora referral to the Pain Clinic, and at last somerelief...it is attached to our university & largest hospital....when you go there, it istaken for granted that you have mega pain...youdo not have to convince anyone of that fact. gentle hugs, Marcia--- Kay Simpson <Siwelyak@...> wrote:> Thanks Marcia,

well its mega in my mind but ive got so much on my plate i dont know how to handle anymore right now ?????

later john __________________________________________________>

[Guest guest]

Kay Simpson <Siwelyak@...> wrote:

Marcia,

Sorry antibiotic therapy did not help you. The Pain Clinic sounds great. So, how is the hip doing now??

Kay

----- Original Message -----

From: john no_way

Rheumatoid Arthritis

Sent: Thursday, November 04, 2004 7:52 PM

Subject: Re: pain

Marcia Stoyle <marciastoyle@...> wrote:

hey, ! I tried the antibiotic therapy for 12months, but it did nothing for me. I tried allkinds of diet changes, but nothing seemed to makea difference. then I asked the family doctor fora referral to the Pain Clinic, and at last somerelief...it is attached to our university & largest hospital....when you go there, it istaken for granted that you have mega pain...youdo not have to convince anyone of that fact. gentle hugs, Marcia--- Kay Simpson <Siwelyak@...> wrote:> Thanks Marcia,

well its mega in my mind but ive got so much on my plate i dont know how to handle anymore right now ?????

later john __________________________________________________>

[Guest guest]

That's great. I teach at a middle school so I can appreciate the non-

caustic sarcasm. You made your point. :-)

-

>

[Guest guest]

It really does suck. I hate it that you are in such pain.

Quality of life is such an issue with diseases like this.

I wish I could help...but I am here if you want to talk.

----- Original Message ----- From: today it is Skyelor

Rheumatoid Arthritis

Sent: Monday, March 14, 2005 09:47

Subject: PAIN

It just hit like a ton of bricks.. The pain is throught my bodyI just took all my am meds now for the others. I cannot take this much longer I sure wish some one was around to talk to..Skye

[Guest guest]

that is one of my favorite sayings. ) i also like " Speak your mind

even if your voice shakes. " and even if you wet your pants!!!!

that's me. boy, and incontinence at my young age they say is partly

due to the RA breaking everything down inside of me. great. more

great news.

but please talk to each other. i am online almost ALL of the time

for talking to or ranting to or crying with.

ly ly

--- In Rheumatoid Arthritis , " Jacy " <jacymail@c...>

wrote:

> It really does suck. I hate it that you are in such pain.

> Quality of life is such an issue with diseases like this.

> I wish I could help...but I am here if you want to talk.

>

> ----- Original Message -----

> From: today it is Skyelor

> Rheumatoid Arthritis

> Sent: Monday, March 14, 2005 09:47

> Subject: PAIN

>

>

>

> It just hit like a ton of bricks.. The pain is throught my body

> I just took all my am meds now for the others. I cannot take this

> much longer I sure wish some one was around to talk to..Skye

>

>

>

>

>

>

[Guest guest]

Call your dr. and see if he can see you earlier....and ask if you can take Aleve or some other pain reliever to get you through this tough spot (sounds like a flare)....I always feel a little better if I take a warm bath and rest....but I realize this isn't always an option. My heart goes out to you....I hope you find some relief soon. Til then...take care of yourself and know you aren't alone. Sherrie <scorn720@...> wrote: I am in alot of pain today and was wondering if there is any thing you can do to help it i do see my doctor in a few days but what can i do in the mean time any help would appreciated THANKS Sherrie

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[Guest guest]

Hi Sherri.

I am so sorry to hear that you are in so much pain. I have been there MANY times before. Depending on which joints are affected (is it in your hands only, feet only or is it involving your entire body?), you might want to try a hot hot hot bath, or use a parafin (hot wax) treatment (Homedics makes a good hot wax machine, and it is not very expensive...comes with all the wax and everything to get started....

GOOD christmas gift idea for someone to get you!) Those feel WONDERFUL, and sooth your hands/feet joints. They also make your skin really soft.

Are you on any anti inflamatories? Do they help?

Hope these ideas help...

On 12/5/05, NKM <nkm2362@...> wrote:

Call your dr. and see if he can see you earlier....and ask if you can take Aleve or some other pain reliever to get you through this tough spot (sounds like a flare)....I always feel a little better if I take a warm bath and rest....but I realize this isn't always an option. My heart goes out to you....I hope you find some relief soon. Til then...take care of yourself and know you aren't alone.

Sherrie <scorn720@...> wrote:

I am in alot of pain today and was wondering if there is any thing you can do to help it i do see my doctor in a few days but what can i do in the mean time any help would appreciated THANKS Sherrie

PersonalsSkip the bars and set-ups and

start using Personals for free __________________________________________________

[Guest guest]

my rheumy told me that tylenol wouldn't react with prescribed meds. hot shower may help tooSherrie <scorn720@...> wrote: I am in alot of pain today and was wondering if there is any thing you can do to help it i do see my doctor in a few days but what can i do in the mean time any help would appreciated THANKS Sherrie

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[Guest guest]

Here's a link to a site where you can check drug interactions to see if any of the common pain relievers will have problems with any of your other medications. You can also check with a pharmacist because they specialize in medicines and usually know more about them than doctors do.

I usually try to keep a small supply of Prednisone on hand because that is a strong anti-inflammatiory that often gives quick relief for a flare. God bless.

http://www.drugdigest.org/DD/Home

----- Original Message -----

From: Sherrie

Rheumatoid Arthritis

Sent: Monday, December 05, 2005 5:15 AM

Subject: PAIN

I am in alot of pain today and was wondering if there is any thing you can do to help it i do see my doctor in a few days but what can i do in the mean time any help would appreciated THANKS Sherrie

[Guest guest]

Sherrie: A simple remedy might help if your stomach can handle aspirin. Try two full strength aspirins every four hours and see if that helps. Everybody body is different in drug absorption and this just might help.Oh, I suspect you'll receive a bundle of email with each their own remedy. Good luck and get well soon. JoeSherrie <scorn720@...> wrote: I am in alot of pain today and was wondering if there is any thing you can do to help it i do see my doctor in a few days but what can i do in the mean time any help would appreciated THANKS Sherrie

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[Guest guest]

I find that using ice to numb the area helps immediately. If there is no inflammation, then heat works. Get out the heating pad and relax. Try and distract yourself with a good movie, reading or something you enjoy doing. Movies always help me get out of myself. Yours, Deborah

[Guest guest]

yes I am on inflamatories but the pain is so intence that I

need some pain pills I just got off methadone and I am in a lot of

pain untill i see my doctor and get something else sor the pain i

just have to suffer untill then the hot showers do help as I sscan't

get in the tub any more

Sherrie

> >

> > I am in alot of pain today and was wondering if there is any

thing you

> > can do to help it i do see my doctor in a few days but what can

i do

> > in the mean time any help would appreciated THANKS Sherrie

> >

> >

> >

> >

> > ------------------------------

> > * Personals*

> > Skip the bars and set-ups and start using Personals for

free<http://us.rd./evt=36107/*http://personals./us/

reg/free7days+%0D%0A>

> >

> > __________________________________________________

> >

[Guest guest]

Hi Sherrie,

When I have a " flair " as I call them, a really intense flair of pain

in an isolated area, I knock it out with either a steriod pack & /or

hydrocodone.. a painreliever/narcotic. I only do this in those dire

times where it's unbearable but it works and at least for me those

times are luckily few & far between.

My Dr. lets me keep a perscription of the painrelievers at all times

for the times I need it. AND don't get me wrong, I only use them when

I feel it's absolutely necessary because I know it can become habit

forming if used / abused often. But it does knock out the pain until

the steroid /meds relieve the inflammation. I think I've had to do

that twice in the past year but it's reasurring for me to know I have

the pills for when the morning (or night) comes when I wake up unable

to move.

Hope that helps

[Guest guest]

Amen to that!! (Not a religious person here,,,but when the pain takes over..it's good to know you can get some relief and sleep/function enough to get through it. Wishing all a warm holiday season and pain free days in the future. : ) "bart.tracy@..." <bart.tracy@...> wrote: Hi Sherrie,When I have a "flair" as I call them, a really intense flair of pain in an isolated area, I knock it out with either a steriod pack & /or hydrocodone.. a painreliever/narcotic. I only do this in those dire times where it's unbearable but it works and at least for me those times are luckily few & far between. My Dr. lets me keep a perscription of the painrelievers at all times for the times I need it. AND don't get me wrong, I only use them when I feel it's absolutely

necessary because I know it can become habit forming if used / abused often. But it does knock out the pain until the steroid /meds relieve the inflammation. I think I've had to do that twice in the past year but it's reasurring for me to know I have the pills for when the morning (or night) comes when I wake up unable to move.Hope that helps

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[Guest guest]

Im in a flare right now. In addition to the flare I been having a really bad bout with hives. Has anybody experienced that? I have been really down, I am so tired of this pain... I'm 47 years old; yeat I feel like Im about 100 years old. My fiance is very supportive but, I think this is starting to wear on him. NKM <nkm2362@...> wrote: Amen to that!! (Not a religious person here,,,but when the pain takes over..it's good to know you can get some relief and sleep/function enough to get through it. Wishing all a warm holiday season and pain free days in the future. : ) "bart.tracy@..." <bart.tracy@...> wrote: Hi Sherrie,When I have

a "flair" as I call them, a really intense flair of pain in an isolated area, I knock it out with either a steriod pack & /or hydrocodone.. a painreliever/narcotic. I only do this in those dire times where it's unbearable but it works and at least for me those times are luckily few & far between. My Dr. lets me keep a perscription of the painrelievers at all times for the times I need it. AND don't get me wrong, I only use them when I feel it's absolutely necessary because I know it can become habit forming if used / abused often. But it does knock out the pain until the steroid /meds relieve the inflammation. I think I've had to do that twice in the past year but it's reasurring for me to know I have the pills for when the morning (or night) comes when I wake up unable to move.Hope that helps Find Great Deals on Holiday Gifts at

[Guest guest]

hives sound like a reaction to one of the drugs? have you tried Celebrex? there are so many different alternatives for the pain. your doctor should be able to give you some samples(that the drug companies give them) for free until you find one that works for you. for example, before they pulled Vioxx, it worked really well for me but did nothing for my dad.Ronnie <rhondamccardell@...> wrote: Im in a flare right now. In addition to the flare I been having a really bad bout with hives. Has anybody experienced that? I have been really down, I am so tired of this pain... I'm 47 years old; yeat I feel like Im about 100 years old. My fiance is very supportive but, I think this is starting to wear on him. NKM <nkm2362@...> wrote: Amen to that!! (Not a religious person here,,,but when the pain takes over..it's good to know you can get some relief and sleep/function enough to get through it. Wishing all a warm holiday season and pain free days in the future. : ) "bart.tracy@..." <bart.tracy@...> wrote: Hi Sherrie,When I have a "flair" as I call them, a really intense flair of pain in an isolated area, I knock it out with either a steriod pack & /or hydrocodone.. a painreliever/narcotic. I only do this in those dire times where it's unbearable but it works and at least for me those times are luckily few & far between. My Dr. lets me keep a perscription of the painrelievers at all times for the times I

need it. AND don't get me wrong, I only use them when I feel it's absolutely necessary because I know it can become habit forming if used / abused often. But it does knock out the pain until the steroid /meds relieve the inflammation. I think I've had to do that twice in the past year but it's reasurring for me to know I have the pills for when the morning (or night) comes when I wake up unable to move.Hope that helps Find Great Deals on Holiday Gifts at

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[Guest guest]

Ronnie <rhondamccardell@...> wrote: Im in a flare right now. In addition to the flare I been having a really bad bout with hives. Has anybody experienced that? I have been really down, I am so tired of this pain... I'm 47 years old; yeat I feel like Im about 100 years old. My fiance is very supportive but, I think this is starting to wear on him. Hello Ronnie , I like some of the others keep an precription for steroride pac or extra predison and make my on as per my family dr and he lets me keep some pain pills on hand for those times thats so bad to other than that its just ice and sleep and if youer like me if youer not totaly fatiqed out sleep doesnt come easy either , so its a hard time but youer not alone it'll pass and sometimes it

seems longer than it really is . as hives I've olny had them once and wouldnt wish them on any body ,umm wait haha na better not go there ( karma ) LOL try and get your mind to something else and maybe it will help some i cannt remember what I did about the hives it was so long ago was when my frist wife left me , boy if i knew then what i know now I would n't of wasted that energy , any way take care and keep warm john

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