Guest guest Posted November 21, 2008 Report Share Posted November 21, 2008 Dear friends and family, I apologize to those of you who have been expecting to hear from me lately, but Dawn has been having a rough few days, which is what I wanted to let you know about. Late Tuesday night Dawn began to have severe abdominal pains and was vomiting blood. (This was after about a week of similar but milder pain associated with her Crohn's disease.) Her GI specialist told her to go to the ER to be checked for any perforations or anything like that, so I took her to the hospital. X-rays and lab work showed nothing abnormal other than her Crohn's disease, so the ER doctor figured this was just a flare-up of those symptoms. But since Dawn's pain was uncontrollable, she was kept overnight. (I got home around 3:30am.) On Wednesday a CT scan was done, which showed nothing. But Dawn's GI doctor was concerned about some of the lab work, so he ordered a colonoscopy. The colonoscopy was done Thursday. Her GI doctor has concluded that Dawn has pancreatitis in addition to the Crohn's but that the pancreatitis is probably a side effect of medication. The medication in question is her headache medication. Her doctor wants to get her off this and some other things that were treating the Crohn's for a while. Unfortunately, as far as Dawn's migraines are concerned, she is on the only medication that has brought her some long-term reduction in symptoms (Depakote). We know from past experience that getting off the Depakote will probably mean an increase in the severity of the headaches. No other medications have ever helped her consistently in the past. However, if the doctor is correct, staying on Depakote will keep the pancreatitis going, which could theoretically be fatal (which I'm not sure would necessarily bother Dawn after living in chronic pain for so long). Dawn will not be coming home today (Friday). She has been taken off food so that her pancreas can be checked. She has also been taken off her Depakote (the migraine medication) and the Pentasa which she has been using for Crohn's. This is likely to have a harsh impact on her because normally you are not supposed to stop Depakote so drastically. Once the pancreatitis is reevaluated, doctors will figure out what to do next (hopefully). But as of now she definitely will not be coming home from the hospital until at least Saturday. Thanks again for your thoughts and prayers. Quote Link to comment Share on other sites More sharing options...
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