Guest guest Posted January 4, 2008 Report Share Posted January 4, 2008 A stated main effect of ACE inhibitors as Enalapril is vasodilating effect. It is well known from brain imaging studies in Autism and ADHD that there is hypoperfusion and related hypofunction of frontal and temoral areas in their brains. One of the effect made by HEG Neurofeedback and HBOT is improving perfusion and oxygenation of these areas. A possible effect of enalapril could then be better brain perfusion - oxygenation and function... Geir Flatabø 2007/1/4, Eva family : > Some one sent a message saying that their child was mysteriously better > on enalapril. My brother is a doctor. He researched it and his opinion > is below. If you want to contact me I can put you in direct contact with > him and maybe you can develop this idea further > Sally > > > message follows below: > > > > Your friend on the biomedical Europe group sent a piece of data about the > son being much better clinically about 3 days after being given some > enalapril (an angiotensin converting enzyme I inhibitor). > > This is one of a series of similar compounds, most of the research onto > which has been done onto captopril, which has been around since around 1980. > > What has turned out when I did some searching is that these compounds > (ACEi)s stop the break down of peptides (small proteins) that are present > all over the body but most of the research has gone into ACE and NEP. They > are found in association with inflammation and with the brain transmitters, > but it clearly has not been possible to do experiments in autism. > > NEP used to be known as enkephalinase or endopeptidase 24.11 It is a > metallo-peptidase that releases generally 2 aminoacids from the end of the > peptide and causes it to become active or at least either change its > activity or starts to get rid of it. Angiotensin I for instance is turned > into angiotensin II by the enzyme, which is inhibited by the compound. > > Often this type of compound is active on other enzymes that we simply done > know about at this time. > > So. Your friend may well not be quite out of place with what she noticed and > I would suggest giving the child some more and asking someone else if any > changes have been seen. If possible it would be a good idea to do a blind > trial. As a doctor I could not do this without ethical permission and I > could not prescribe the drug at this point, but as an individual it is up to > her to some degree (assuming that she understands what she is doing). > > I've got a lot of data on the drug and its activity > > Steve > > > -- > No virus found in this incoming message. > Checked by AVG Free Edition. > Version: 7.5.516 / Virus Database: 269.17.13/1209 - Release Date: > 04/01/2008 12:05 > > > > > DISCLAIMER > No information contained in this post is to be construed as medical advice. If you need medical advice, please seek it from a suitably qualified practitioner. > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 4, 2008 Report Share Posted January 4, 2008 there is hypoperfusion and related hypofunction of frontal and temoral areas in their brains. Geir, can you explain what these mean to a layperson please? SARA Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 4, 2008 Report Share Posted January 4, 2008 yes, in addition (Sally, maybe your brother would be interested in this also) ACE inhibitors also act as powerful cytokine blockers. Their use has even been suggested, or tried, in cytokine storm. I guess this would be the second, or third, possible reason whey they would be beneficial in autism. Sally, I believe it was me who posted the original, although this was not something we use - I read about it a while ago and have now been able to trace the original poster and some more details of the story... it was a case of a child accidentally overdosing on his mum's medicine... well there may be some other cases that I don't know of too Natasa x > > A stated main effect of ACE inhibitors as Enalapril is vasodilating effect. > It is well known from brain imaging studies in Autism and ADHD that > there is hypoperfusion and related hypofunction of frontal and temoral > areas in their brains. > One of the effect made by HEG Neurofeedback and HBOT is improving > perfusion and oxygenation of these areas. > A possible effect of enalapril could then be better brain perfusion - > oxygenation and function... > > Geir Flatabø > > 2007/1/4, Eva family bobsallyeva@...: > > Some one sent a message saying that their child was mysteriously better > > on enalapril. My brother is a doctor. He researched it and his opinion > > is below. If you want to contact me I can put you in direct contact with > > him and maybe you can develop this idea further > > Sally > > > > > > message follows below: > > > > > > > > Your friend on the biomedical Europe group sent a piece of data about the > > son being much better clinically about 3 days after being given some > > enalapril (an angiotensin converting enzyme I inhibitor). > > > > This is one of a series of similar compounds, most of the research onto > > which has been done onto captopril, which has been around since around 1980. > > > > What has turned out when I did some searching is that these compounds > > (ACEi)s stop the break down of peptides (small proteins) that are present > > all over the body but most of the research has gone into ACE and NEP. They > > are found in association with inflammation and with the brain transmitters, > > but it clearly has not been possible to do experiments in autism. > > > > NEP used to be known as enkephalinase or endopeptidase 24.11 It is a > > metallo-peptidase that releases generally 2 aminoacids from the end of the > > peptide and causes it to become active or at least either change its > > activity or starts to get rid of it. Angiotensin I for instance is turned > > into angiotensin II by the enzyme, which is inhibited by the compound. > > > > Often this type of compound is active on other enzymes that we simply done > > know about at this time. > > > > So. Your friend may well not be quite out of place with what she noticed and > > I would suggest giving the child some more and asking someone else if any > > changes have been seen. If possible it would be a good idea to do a blind > > trial. As a doctor I could not do this without ethical permission and I > > could not prescribe the drug at this point, but as an individual it is up to > > her to some degree (assuming that she understands what she is doing). > > > > I've got a lot of data on the drug and its activity > > > > Steve > > > > > > -- > > No virus found in this incoming message. > > Checked by AVG Free Edition. > > Version: 7.5.516 / Virus Database: 269.17.13/1209 - Release Date: > > 04/01/2008 12:05 > > > > > > > > > > DISCLAIMER > > No information contained in this post is to be construed as medical advice. If you need medical advice, please seek it from a suitably qualified practitioner. > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 4, 2008 Report Share Posted January 4, 2008 I could probably go back and find which message I forwarded to him. Shall we ask him to post the drug info that he has got to you? I think Pentosan polysulphate which the GP gives Edith is a cytokine receptor blocker. If we haven't got someone on it then we can't try a controlled experiment xx Sally natasa778 wrote: > > yes, in addition (Sally, maybe your brother would be interested in this > also) ACE inhibitors also act as powerful cytokine blockers. Their use > has even been suggested, or tried, in cytokine storm. I guess this would > be the second, or third, possible reason whey they would be beneficial > in autism. > > Sally, I believe it was me who posted the original, although this was > not something we use - I read about it a while ago and have now been > able to trace the original poster and some more details of the story... > it was a case of a child accidentally overdosing on his mum's > medicine... well there may be some other cases that I don't know of too > > Natasa x > > > > > > A stated main effect of ACE inhibitors as Enalapril is vasodilating > effect. > > It is well known from brain imaging studies in Autism and ADHD that > > there is hypoperfusion and related hypofunction of frontal and temoral > > areas in their brains. > > One of the effect made by HEG Neurofeedback and HBOT is improving > > perfusion and oxygenation of these areas. > > A possible effect of enalapril could then be better brain perfusion - > > oxygenation and function... > > > > Geir Flatabø > > > > 2007/1/4, Eva family bobsallyeva@...: > > > Some one sent a message saying that their child was mysteriously > better > > > on enalapril. My brother is a doctor. He researched it and his > opinion > > > is below. If you want to contact me I can put you in direct contact > with > > > him and maybe you can develop this idea further > > > Sally > > > > > > > > > message follows below: > > > > > > > > > > > > Your friend on the biomedical Europe group sent a piece of data > about the > > > son being much better clinically about 3 days after being given some > > > enalapril (an angiotensin converting enzyme I inhibitor). > > > > > > This is one of a series of similar compounds, most of the research > onto > > > which has been done onto captopril, which has been around since > around 1980. > > > > > > What has turned out when I did some searching is that these > compounds > > > (ACEi)s stop the break down of peptides (small proteins) that are > present > > > all over the body but most of the research has gone into ACE and > NEP. They > > > are found in association with inflammation and with the brain > transmitters, > > > but it clearly has not been possible to do experiments in autism. > > > > > > NEP used to be known as enkephalinase or endopeptidase 24.11 It is > a > > > metallo-peptidase that releases generally 2 aminoacids from the end > of the > > > peptide and causes it to become active or at least either change > its > > > activity or starts to get rid of it. Angiotensin I for instance is > turned > > > into angiotensin II by the enzyme, which is inhibited by the > compound. > > > > > > Often this type of compound is active on other enzymes that we > simply done > > > know about at this time. > > > > > > So. Your friend may well not be quite out of place with what she > noticed and > > > I would suggest giving the child some more and asking someone else > if any > > > changes have been seen. If possible it would be a good idea to do a > blind > > > trial. As a doctor I could not do this without ethical permission > and I > > > could not prescribe the drug at this point, but as an individual it > is up to > > > her to some degree (assuming that she understands what she is > doing). > > > > > > I've got a lot of data on the drug and its activity > > > > > > Steve > > > > > > > > > -- > > > No virus found in this incoming message. > > > Checked by AVG Free Edition. > > > Version: 7.5.516 / Virus Database: 269.17.13/1209 - Release Date: > > > 04/01/2008 12:05 > > > > > > > > > > > > > > > DISCLAIMER > > > No information contained in this post is to be construed as medical > advice. If you need medical advice, please seek it from a suitably > qualified practitioner. > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 5, 2008 Report Share Posted January 5, 2008 Yes please, I would be interested in the full info - although no way of getting a prescription, only curiosity. Any results from Pentosan so far? Natasa x > > > > > > A stated main effect of ACE inhibitors as Enalapril is vasodilating > > effect. > > > It is well known from brain imaging studies in Autism and ADHD that > > > there is hypoperfusion and related hypofunction of frontal and temoral > > > areas in their brains. > > > One of the effect made by HEG Neurofeedback and HBOT is improving > > > perfusion and oxygenation of these areas. > > > A possible effect of enalapril could then be better brain perfusion - > > > oxygenation and function... > > > > > > Geir Flatabø > > > > > > 2007/1/4, Eva family bobsallyeva@: > > > > Some one sent a message saying that their child was mysteriously > > better > > > > on enalapril. My brother is a doctor. He researched it and his > > opinion > > > > is below. If you want to contact me I can put you in direct contact > > with > > > > him and maybe you can develop this idea further > > > > Sally > > > > > > > > > > > > message follows below: > > > > > > > > > > > > > > > > Your friend on the biomedical Europe group sent a piece of data > > about the > > > > son being much better clinically about 3 days after being given some > > > > enalapril (an angiotensin converting enzyme I inhibitor). > > > > > > > > This is one of a series of similar compounds, most of the research > > onto > > > > which has been done onto captopril, which has been around since > > around 1980. > > > > > > > > What has turned out when I did some searching is that these > > compounds > > > > (ACEi)s stop the break down of peptides (small proteins) that are > > present > > > > all over the body but most of the research has gone into ACE and > > NEP. They > > > > are found in association with inflammation and with the brain > > transmitters, > > > > but it clearly has not been possible to do experiments in autism. > > > > > > > > NEP used to be known as enkephalinase or endopeptidase 24.11 It is > > a > > > > metallo-peptidase that releases generally 2 aminoacids from the end > > of the > > > > peptide and causes it to become active or at least either change > > its > > > > activity or starts to get rid of it. Angiotensin I for instance is > > turned > > > > into angiotensin II by the enzyme, which is inhibited by the > > compound. > > > > > > > > Often this type of compound is active on other enzymes that we > > simply done > > > > know about at this time. > > > > > > > > So. Your friend may well not be quite out of place with what she > > noticed and > > > > I would suggest giving the child some more and asking someone else > > if any > > > > changes have been seen. If possible it would be a good idea to do a > > blind > > > > trial. As a doctor I could not do this without ethical permission > > and I > > > > could not prescribe the drug at this point, but as an individual it > > is up to > > > > her to some degree (assuming that she understands what she is > > doing). > > > > > > > > I've got a lot of data on the drug and its activity > > > > > > > > Steve > > > > > > > > > > > > -- > > > > No virus found in this incoming message. > > > > Checked by AVG Free Edition. > > > > Version: 7.5.516 / Virus Database: 269.17.13/1209 - Release Date: > > > > 04/01/2008 12:05 > > > > > > > > > > > > > > > > > > > > DISCLAIMER > > > > No information contained in this post is to be construed as medical > > advice. If you need medical advice, please seek it from a suitably > > qualified practitioner. > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 5, 2008 Report Share Posted January 5, 2008 Sally my step daughter takes captopril for a heart condition, is your brother saying this is the same thing? Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 5, 2008 Report Share Posted January 5, 2008 Steve has written the attached review -- he's right when he says it's pretty tough reading. He wants a list of treatments and their aims -- like: Diets GFCF reduction of digestive problems etc. Feinstein diets Specific Carbohydrate diet GFCFSF low sugar, low additives Omega 3, 6 oils (Cod Liver Oil) MorEpa chelators DMSA, DMPS, Alpha lipeoic acid, chlorella supps, vits etc Vit C, Bs, D3, High dose Vit A protocol (very high doses over very short period) supposed to clear measles virus, said to be used by WHO for this purpose) Anti Oxidants: Pycnogynol, vit E, selenium Brain stuff: GABA, melatonin, Secretin, digestive enzymes, Betaine Hcl (to boost stomach acid and digestive system). Enzymes specifically targetted at phenols and other trouble some parts of food. Epsom salts baths (to give missing sulphate) I think I asked for a list like this before. I may have it stored. What have a I missed? I don't know what he's planning to do with it. Sounds like he's staking some sort of claim to know what he's talking about when he talks about autism. I'd be interested to know who he's planning to talk to. At the least maybe we could put this on the site (maybe in a more people friendly form) and send it to journalists when we need to demonstrate that autism isn't just a lifestyle choice xx Sally yes, captopril will be a closely related drug. I will send some of the data. I enclose an attempt at a full review of the scientific literature (i.e. not just on google but necessarily on PubMed) on ASD leaving out Rett's and much of the data on ADHD. The work is purely on the biological and neurobiological aspects. It is not on the psychology and does not include much of the pharmacology or epidemiology data. It will be a bit difficult for anyone outside medical and biolgical science to read and is mainly aimed at making it possible for me to be able to say that I knew about the subject!!. It is 33 pages long. One section that I need from you and from your mates is on page 27 and basically it makes and initial list of claims of improvements to symptoms with specific treatments (apart from the ones already mentioned). See if you can think of some more. I started with Woody McGuinness's page on the internet and altered it. Steve enalapril ***************************************************************** This email has been checked by the e-Sweeper Service ***************************************************************** No virus found in this incoming message. Checked by AVG Free Edition. Version: 7.5.516 / Virus Database: 269.17.13/1209 - Release Date: 04/01/2008 12:05 Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 5, 2008 Report Share Posted January 5, 2008 He may want to try approach ARI for the database of treatments and parents responses/ratings, they have been collecting for years and have upped the efforts to reach more people in recent months (this reminded me to write in again Natasa > > Steve has written the attached review -- he's right when he says it's > pretty tough reading. He wants a list of treatments and their aims -- > like: > > Diets > GFCF reduction of digestive problems etc. > Feinstein diets > Specific Carbohydrate diet > GFCFSF > low sugar, low additives > > Omega 3, 6 oils (Cod Liver Oil) > MorEpa > > chelators DMSA, DMPS, Alpha lipeoic acid, chlorella > > supps, vits etc > > Vit C, Bs, D3, > > High dose Vit A protocol (very high doses over very short period) > supposed to clear measles virus, said to be used by WHO for this purpose) > > Anti Oxidants: > Pycnogynol, vit E, selenium > > Brain stuff: GABA, melatonin, > > Secretin, digestive enzymes, Betaine Hcl (to boost stomach acid and > digestive system). Enzymes specifically targetted at phenols and other > trouble some parts of food. > > Epsom salts baths (to give missing sulphate) > > I think I asked for a list like this before. I may have it stored. What > have a I missed? > > I don't know what he's planning to do with it. Sounds like he's staking > some sort of claim to know what he's talking about when he talks about > autism. I'd be interested to know who he's planning to talk to. > > At the least maybe we could put this on the site (maybe in a more people > friendly form) and send it to journalists when we need to demonstrate > that autism isn't just a lifestyle choice > xx Sally > > > > > > > > > > > > > > yes, captopril will be a closely related drug. I will send some of the data. > > I enclose an attempt at a full review of the scientific literature (i.e. not > just on google but necessarily on PubMed) on ASD leaving out Rett's and much > of the data on ADHD. The work is purely on the biological and > neurobiological aspects. It is not on the psychology and does not include > much of the pharmacology or epidemiology data. It will be a bit difficult > for anyone outside medical and biolgical science to read and is mainly aimed > at making it possible for me to be able to say that I knew about the > subject!!. It is 33 pages long. > > One section that I need from you and from your mates is on page 27 and > basically it makes and initial list of claims of improvements to symptoms > with specific treatments (apart from the ones already mentioned). See if > you can think of some more. > > I started with Woody McGuinness's page on the internet and altered it. > > Steve > > enalapril > > > > > > ***************************************************************** > This email has been checked by the e-Sweeper Service > ***************************************************************** > > > No virus found in this incoming message. > Checked by AVG Free Edition. > Version: 7.5.516 / Virus Database: 269.17.13/1209 - Release Date: 04/01/2008 12:05 > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 5, 2008 Report Share Posted January 5, 2008 He's included part of the very broad one that they publish (see page 27) -- is there a different database? Sally natasa778 wrote: > > He may want to try approach ARI for the database of treatments and > parents responses/ratings, they have been collecting for years and have > upped the efforts to reach more people in recent months (this reminded > me to write in again > Natasa > > > > > > Steve has written the attached review -- he's right when he says it's > > pretty tough reading. He wants a list of treatments and their aims -- > > like: > > > > Diets > > GFCF reduction of digestive problems etc. > > Feinstein diets > > Specific Carbohydrate diet > > GFCFSF > > low sugar, low additives > > > > Omega 3, 6 oils (Cod Liver Oil) > > MorEpa > > > > chelators DMSA, DMPS, Alpha lipeoic acid, chlorella > > > > supps, vits etc > > > > Vit C, Bs, D3, > > > > High dose Vit A protocol (very high doses over very short period) > > supposed to clear measles virus, said to be used by WHO for this > purpose) > > > > Anti Oxidants: > > Pycnogynol, vit E, selenium > > > > Brain stuff: GABA, melatonin, > > > > Secretin, digestive enzymes, Betaine Hcl (to boost stomach acid and > > digestive system). Enzymes specifically targetted at phenols and other > > trouble some parts of food. > > > > Epsom salts baths (to give missing sulphate) > > > > I think I asked for a list like this before. I may have it stored. > What > > have a I missed? > > > > I don't know what he's planning to do with it. Sounds like he's > staking > > some sort of claim to know what he's talking about when he talks about > > autism. I'd be interested to know who he's planning to talk to. > > > > At the least maybe we could put this on the site (maybe in a more > people > > friendly form) and send it to journalists when we need to demonstrate > > that autism isn't just a lifestyle choice > > xx Sally > > > > > > > > > > > > > > > > > > > > > > > > > > > > yes, captopril will be a closely related drug. I will send some of the > data. > > > > I enclose an attempt at a full review of the scientific literature > (i.e. not > > just on google but necessarily on PubMed) on ASD leaving out Rett's > and much > > of the data on ADHD. The work is purely on the biological and > > neurobiological aspects. It is not on the psychology and does not > include > > much of the pharmacology or epidemiology data. It will be a bit > difficult > > for anyone outside medical and biolgical science to read and is mainly > aimed > > at making it possible for me to be able to say that I knew about the > > subject!!. It is 33 pages long. > > > > One section that I need from you and from your mates is on page 27 and > > basically it makes and initial list of claims of improvements to > symptoms > > with specific treatments (apart from the ones already mentioned). See > if > > you can think of some more. > > > > I started with Woody McGuinness's page on the internet and altered it. > > > > Steve > > > > enalapril > > > > > > > > > > > > ***************************************************************** > > This email has been checked by the e-Sweeper Service > > ***************************************************************** > > > > > > No virus found in this incoming message. > > Checked by AVG Free Edition. > > Version: 7.5.516 / Virus Database: 269.17.13/1209 - Release Date: > 04/01/2008 12:05 > > > > > ------------------------------------------------------------------------ > > No virus found in this incoming message. > Checked by AVG Free Edition. > Version: 7.5.516 / Virus Database: 269.17.13/1209 - Release Date: 04/01/2008 12:05 > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 6, 2008 Report Share Posted January 6, 2008 Hi Sally and Steve Additional treatments: Probiotics (Prof Glen Gibson et al, Reading University, UK would be good starting point. Their latest trial failed because parents refused to go on to placebo) Antibiotics (esp vancomycin)US work Bolte and SM Finegold Neurofeedback (Mark Darling in Oz is good contact and has had some impressive results; also used in US and, I think, good results listed by ARI) HBOT (anecdotal mainly though I think there are now 3 abstracts on PubMed, really all from one set of workers) HTH Patience > > Steve has written the attached review -- he's right when he says it's > pretty tough reading. He wants a list of treatments and their aims - - > like: > > Diets > GFCF reduction of digestive problems etc. > Feinstein diets > Specific Carbohydrate diet > GFCFSF > low sugar, low additives > > Omega 3, 6 oils (Cod Liver Oil) > MorEpa > > chelators DMSA, DMPS, Alpha lipeoic acid, chlorella > > supps, vits etc > > Vit C, Bs, D3, > > High dose Vit A protocol (very high doses over very short period) > supposed to clear measles virus, said to be used by WHO for this purpose) > > Anti Oxidants: > Pycnogynol, vit E, selenium > > Brain stuff: GABA, melatonin, > > Secretin, digestive enzymes, Betaine Hcl (to boost stomach acid and > digestive system). Enzymes specifically targetted at phenols and other > trouble some parts of food. > > Epsom salts baths (to give missing sulphate) > > I think I asked for a list like this before. I may have it stored. What > have a I missed? > > I don't know what he's planning to do with it. Sounds like he's staking > some sort of claim to know what he's talking about when he talks about > autism. I'd be interested to know who he's planning to talk to. > > At the least maybe we could put this on the site (maybe in a more people > friendly form) and send it to journalists when we need to demonstrate > that autism isn't just a lifestyle choice > xx Sally > > > > > > > > > > > > > > yes, captopril will be a closely related drug. I will send some of the data. > > I enclose an attempt at a full review of the scientific literature (i.e. not > just on google but necessarily on PubMed) on ASD leaving out Rett's and much > of the data on ADHD. The work is purely on the biological and > neurobiological aspects. It is not on the psychology and does not include > much of the pharmacology or epidemiology data. It will be a bit difficult > for anyone outside medical and biolgical science to read and is mainly aimed > at making it possible for me to be able to say that I knew about the > subject!!. It is 33 pages long. > > One section that I need from you and from your mates is on page 27 and > basically it makes and initial list of claims of improvements to symptoms > with specific treatments (apart from the ones already mentioned). See if > you can think of some more. > > I started with Woody McGuinness's page on the internet and altered it. > > Steve > > enalapril > > > > > > ***************************************************************** > This email has been checked by the e-Sweeper Service > ***************************************************************** > > > No virus found in this incoming message. > Checked by AVG Free Edition. > Version: 7.5.516 / Virus Database: 269.17.13/1209 - Release Date: 04/01/2008 12:05 > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 6, 2008 Report Share Posted January 6, 2008 thanks Patience. I'll forward it to him xx Sally onthesosh wrote: > > Hi Sally and Steve > > Additional treatments: > > Probiotics (Prof Glen Gibson et al, Reading University, UK would be > good starting point. Their latest trial failed because parents > refused to go on to placebo) > > Antibiotics (esp vancomycin)US work Bolte and SM Finegold > > Neurofeedback (Mark Darling in Oz is good contact and has had some > impressive results; also used in US and, I think, good results listed > by ARI) > > HBOT (anecdotal mainly though I think there are now 3 abstracts on > PubMed, really all from one set of workers) > > HTH > Patience > > > > > > Steve has written the attached review -- he's right when he says > it's > > pretty tough reading. He wants a list of treatments and their aims - > - > > like: > > > > Diets > > GFCF reduction of digestive problems etc. > > Feinstein diets > > Specific Carbohydrate diet > > GFCFSF > > low sugar, low additives > > > > Omega 3, 6 oils (Cod Liver Oil) > > MorEpa > > > > chelators DMSA, DMPS, Alpha lipeoic acid, chlorella > > > > supps, vits etc > > > > Vit C, Bs, D3, > > > > High dose Vit A protocol (very high doses over very short period) > > supposed to clear measles virus, said to be used by WHO for this > purpose) > > > > Anti Oxidants: > > Pycnogynol, vit E, selenium > > > > Brain stuff: GABA, melatonin, > > > > Secretin, digestive enzymes, Betaine Hcl (to boost stomach acid and > > digestive system). Enzymes specifically targetted at phenols and > other > > trouble some parts of food. > > > > Epsom salts baths (to give missing sulphate) > > > > I think I asked for a list like this before. I may have it stored. > What > > have a I missed? > > > > I don't know what he's planning to do with it. Sounds like he's > staking > > some sort of claim to know what he's talking about when he talks > about > > autism. I'd be interested to know who he's planning to talk to. > > > > At the least maybe we could put this on the site (maybe in a more > people > > friendly form) and send it to journalists when we need to > demonstrate > > that autism isn't just a lifestyle choice > > xx Sally > > > > > > > > > > > > > > > > > > > > > > > > > > > > yes, captopril will be a closely related drug. I will send some of > the data. > > > > I enclose an attempt at a full review of the scientific literature > (i.e. not > > just on google but necessarily on PubMed) on ASD leaving out Rett's > and much > > of the data on ADHD. The work is purely on the biological and > > neurobiological aspects. It is not on the psychology and does not > include > > much of the pharmacology or epidemiology data. It will be a bit > difficult > > for anyone outside medical and biolgical science to read and is > mainly aimed > > at making it possible for me to be able to say that I knew about the > > subject!!. It is 33 pages long. > > > > One section that I need from you and from your mates is on page 27 > and > > basically it makes and initial list of claims of improvements to > symptoms > > with specific treatments (apart from the ones already mentioned). > See if > > you can think of some more. > > > > I started with Woody McGuinness's page on the internet and altered > it. > > > > Steve > > > > enalapril > > > > > > > > > > > > ***************************************************************** > > This email has been checked by the e-Sweeper Service > > ***************************************************************** > > > > > > No virus found in this incoming message. > > Checked by AVG Free Edition. > > Version: 7.5.516 / Virus Database: 269.17.13/1209 - Release Date: > 04/01/2008 12:05 > > > > > ------------------------------------------------------------------------ > > No virus found in this incoming message. > Checked by AVG Free Edition. > Version: 7.5.516 / Virus Database: 269.17.13/1209 - Release Date: 04/01/2008 12:05 > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 6, 2008 Report Share Posted January 6, 2008 just re-read the list, many antipathogenic treatments are missing, antivirals like Valtrex are major part of many kid's protocols, mostly combined with antifungals - Diflucan mainly, but some are doing well on others. Also other antivirals: herbals for example OLE is big for some kids, then monolaurin/lauricidin. Immune modulators/boosters like Transfer Factor, immunol (?sp). Not only mg sulphate baths, but magnesium on its own, glycinate and citrate are mostly used. re vitamins, many do well on K2. nx > > > > Steve has written the attached review -- he's right when he says > it's > > pretty tough reading. He wants a list of treatments and their aims - > - > > like: > > > > Diets > > GFCF reduction of digestive problems etc. > > Feinstein diets > > Specific Carbohydrate diet > > GFCFSF > > low sugar, low additives > > > > Omega 3, 6 oils (Cod Liver Oil) > > MorEpa > > > > chelators DMSA, DMPS, Alpha lipeoic acid, chlorella > > > > supps, vits etc > > > > Vit C, Bs, D3, > > > > High dose Vit A protocol (very high doses over very short period) > > supposed to clear measles virus, said to be used by WHO for this > purpose) > > > > Anti Oxidants: > > Pycnogynol, vit E, selenium > > > > Brain stuff: GABA, melatonin, > > > > Secretin, digestive enzymes, Betaine Hcl (to boost stomach acid and > > digestive system). Enzymes specifically targetted at phenols and > other > > trouble some parts of food. > > > > Epsom salts baths (to give missing sulphate) > > > > I think I asked for a list like this before. I may have it stored. > What > > have a I missed? > > > > I don't know what he's planning to do with it. Sounds like he's > staking > > some sort of claim to know what he's talking about when he talks > about > > autism. I'd be interested to know who he's planning to talk to. > > > > At the least maybe we could put this on the site (maybe in a more > people > > friendly form) and send it to journalists when we need to > demonstrate > > that autism isn't just a lifestyle choice > > xx Sally > > > > > > > > > > > > > > > > > > > > > > > > > > > > yes, captopril will be a closely related drug. I will send some of > the data. > > > > I enclose an attempt at a full review of the scientific literature > (i.e. not > > just on google but necessarily on PubMed) on ASD leaving out Rett's > and much > > of the data on ADHD. The work is purely on the biological and > > neurobiological aspects. It is not on the psychology and does not > include > > much of the pharmacology or epidemiology data. It will be a bit > difficult > > for anyone outside medical and biolgical science to read and is > mainly aimed > > at making it possible for me to be able to say that I knew about the > > subject!!. It is 33 pages long. > > > > One section that I need from you and from your mates is on page 27 > and > > basically it makes and initial list of claims of improvements to > symptoms > > with specific treatments (apart from the ones already mentioned). > See if > > you can think of some more. > > > > I started with Woody McGuinness's page on the internet and altered > it. > > > > Steve > > > > enalapril > > > > > > > > > > > > ***************************************************************** > > This email has been checked by the e-Sweeper Service > > ***************************************************************** > > > > > > No virus found in this incoming message. > > Checked by AVG Free Edition. > > Version: 7.5.516 / Virus Database: 269.17.13/1209 - Release Date: > 04/01/2008 12:05 > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 6, 2008 Report Share Posted January 6, 2008 He's re-written pages 30-33. I'll send it to you off list. xx Sally natasa778 wrote: > > just re-read the list, many antipathogenic treatments are missing, > antivirals like Valtrex are major part of many kid's protocols, mostly > combined with antifungals - Diflucan mainly, but some are doing well on > others. > > Also other antivirals: herbals for example OLE is big for some kids, > then monolaurin/lauricidin. > > Immune modulators/boosters like Transfer Factor, immunol (?sp). > > Not only mg sulphate baths, but magnesium on its own, glycinate and > citrate are mostly used. > > re vitamins, many do well on K2. > > nx > > > > > > > > Steve has written the attached review -- he's right when he says > > it's > > > pretty tough reading. He wants a list of treatments and their aims - > > - > > > like: > > > > > > Diets > > > GFCF reduction of digestive problems etc. > > > Feinstein diets > > > Specific Carbohydrate diet > > > GFCFSF > > > low sugar, low additives > > > > > > Omega 3, 6 oils (Cod Liver Oil) > > > MorEpa > > > > > > chelators DMSA, DMPS, Alpha lipeoic acid, chlorella > > > > > > supps, vits etc > > > > > > Vit C, Bs, D3, > > > > > > High dose Vit A protocol (very high doses over very short period) > > > supposed to clear measles virus, said to be used by WHO for this > > purpose) > > > > > > Anti Oxidants: > > > Pycnogynol, vit E, selenium > > > > > > Brain stuff: GABA, melatonin, > > > > > > Secretin, digestive enzymes, Betaine Hcl (to boost stomach acid and > > > digestive system). Enzymes specifically targetted at phenols and > > other > > > trouble some parts of food. > > > > > > Epsom salts baths (to give missing sulphate) > > > > > > I think I asked for a list like this before. I may have it stored. > > What > > > have a I missed? > > > > > > I don't know what he's planning to do with it. Sounds like he's > > staking > > > some sort of claim to know what he's talking about when he talks > > about > > > autism. I'd be interested to know who he's planning to talk to. > > > > > > At the least maybe we could put this on the site (maybe in a more > > people > > > friendly form) and send it to journalists when we need to > > demonstrate > > > that autism isn't just a lifestyle choice > > > xx Sally > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > yes, captopril will be a closely related drug. I will send some of > > the data. > > > > > > I enclose an attempt at a full review of the scientific literature > > (i.e. not > > > just on google but necessarily on PubMed) on ASD leaving out Rett's > > and much > > > of the data on ADHD. The work is purely on the biological and > > > neurobiological aspects. It is not on the psychology and does not > > include > > > much of the pharmacology or epidemiology data. It will be a bit > > difficult > > > for anyone outside medical and biolgical science to read and is > > mainly aimed > > > at making it possible for me to be able to say that I knew about the > > > subject!!. It is 33 pages long. > > > > > > One section that I need from you and from your mates is on page 27 > > and > > > basically it makes and initial list of claims of improvements to > > symptoms > > > with specific treatments (apart from the ones already mentioned). > > See if > > > you can think of some more. > > > > > > I started with Woody McGuinness's page on the internet and altered > > it. > > > > > > Steve > > > > > > enalapril > > > > > > > > > > > > > > > > > > ***************************************************************** > > > This email has been checked by the e-Sweeper Service > > > ***************************************************************** > > > > > > > > > No virus found in this incoming message. > > > Checked by AVG Free Edition. > > > Version: 7.5.516 / Virus Database: 269.17.13/1209 - Release Date: > > 04/01/2008 12:05 > > > > > > > > ------------------------------------------------------------------------ > > No virus found in this incoming message. > Checked by AVG Free Edition. > Version: 7.5.516 / Virus Database: 269.17.13/1209 - Release Date: 04/01/2008 12:05 > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 6, 2008 Report Share Posted January 6, 2008 Hi Sally, Could I have a copy of the new pages 30-33 please? I should have read the review before I posted earlier - it's very impressive. Patience Eva family wrote: He's re-written pages 30-33. I'll send it to you off list.xx Sallynatasa778 wrote:>> just re-read the list, many antipathogenic treatments are missing,> antivirals like Valtrex are major part of many kid's protocols, mostly> combined with antifungals - Diflucan mainly, but some are doing well on> others.>> Also other antivirals: herbals for example OLE is big for some kids,> then monolaurin/lauricidin.>> Immune modulators/boosters like Transfer Factor, immunol (?sp).>> Not only mg sulphate baths, but magnesium on its own, glycinate and> citrate are mostly used.>> re vitamins, many do well on K2.>> nx>> > > >> > > Steve has written the attached review -- he's right when he says> > it's> > > pretty tough reading. He wants a list of treatments and their aims -> > -> > > like:> > >> > > Diets> > > GFCF reduction of digestive problems etc.> > > Feinstein diets> > > Specific Carbohydrate diet> > > GFCFSF> > > low sugar, low additives> > >> > > Omega 3, 6 oils (Cod Liver Oil)> > > MorEpa> > >> > > chelators DMSA, DMPS, Alpha lipeoic acid, chlorella> > >> > > supps, vits etc> > >> > > Vit C, Bs, D3,> > >> > > High dose Vit A protocol (very high doses over very short period)> > > supposed to clear measles virus, said to be used by WHO for this> > purpose)> > >> > > Anti Oxidants:> > > Pycnogynol, vit E, selenium> > >> > > Brain stuff: GABA, melatonin,> > >> > > Secretin, digestive enzymes, Betaine Hcl (to boost stomach acid and> > > digestive system). Enzymes specifically targetted at phenols and> > other> > > trouble some parts of food.> > >> > > Epsom salts baths (to give missing sulphate)> > >> > > I think I asked for a list like this before. I may have it stored.> > What> > > have a I missed?> > >> > > I don't know what he's planning to do with it. Sounds like he's> > staking> > > some sort of claim to know what he's talking about when he talks> > about> > > autism. I'd be interested to know who he's planning to talk to.> > >> > > At the least maybe we could put this on the site (maybe in a more> > people> > > friendly form) and send it to journalists when we need to> > demonstrate> > > that autism isn't just a lifestyle choice> > > xx Sally> > >> > >> > >> > >> > >> > >> > >> > >> > >> > >> > >> > >> > >> > > yes, captopril will be a closely related drug. I will send some of> > the data.> > >> > > I enclose an attempt at a full review of the scientific literature> > (i.e. not> > > just on google but necessarily on PubMed) on ASD leaving out Rett's> > and much> > > of the data on ADHD. The work is purely on the biological and> > > neurobiological aspects. It is not on the psychology and does not> > include> > > much of the pharmacology or epidemiology data. It will be a bit> > difficult> > > for anyone outside medical and biolgical science to read and is> > mainly aimed> > > at making it possible for me to be able to say that I knew about the> > > subject!!. It is 33 pages long.> > >> > > One section that I need from you and from your mates is on page 27> > and> > > basically it makes and initial list of claims of improvements to> > symptoms> > > with specific treatments (apart from the ones already mentioned).> > See if> > > you can think of some more.> > >> > > I started with Woody McGuinness's page on the internet and altered> > it.> > >> > > Steve> > >> > > enalapril> > >> > >> > >> > >> > >> > > *****************************************************************> > > This email has been checked by the e-Sweeper Service> > > *****************************************************************> > >> > >> > > No virus found in this incoming message.> > > Checked by AVG Free Edition.> > > Version: 7.5.516 / Virus Database: 269.17.13/1209 - Release Date:> > 04/01/2008 12:05> > >> >>> > ---------------------------------------------------------->> No virus found in this incoming message.> Checked by AVG Free Edition. > Version: 7.5.516 / Virus Database: 269.17.13/1209 - Release Date: 04/01/2008 12:05> Sent from Yahoo! - a smarter inbox. Quote Link to comment Share on other sites More sharing options...
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