Guest guest Posted January 17, 2008 Report Share Posted January 17, 2008 I think it depends on how severe it is and when it bothers her most. I have reflux that I can usually control by chewing a couple of antacid tablets. Right now it's bad though and I have to take Omeprazole (stops all stomach acid production) and even that isn't controlling it right now. Here are some of the things that we've done: Avoid eating before bedtime Avoid heavy greasy foods Use antacid tablets prn (but be careful as too many of these cause rebound acid) Use PPIs (proton pump inhibitors) Use motility drugs to empty the contents of the stomach Try to find the specific foods that trigger it Eat little and often rather than big meals Don't take any NSAIDS Elevate the head of the bed We also use Gaviscon Infant which can be used by adults if she doesn't like the chewables There is also another type of drug but I can't remember what it is.... Can't think of any of the biomed stuff off the bat that helped, I'm very hungover.... Hope you find something that helps. Darla Edith has just confessed for the first time to reflux -- what do I do about it?Sally Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 18, 2008 Report Share Posted January 18, 2008 -Hi Sally, Katy's has been helped a little recently by s Aloe Vera juice,at least she has stopped neck stretching and spitting up.We have also been advised Zantac which you can get OTC.I've also added a tiny bit of Sod bicarb to her water which has also helped a bit. Her Gp prescribed Prevacid but couldn't tolerate this,I've been told by other parents Prisolec can help.I also been told Betaine Hydrochloride can help with the digestion,have not tried this. Sharon. -- In Autism-Biomedical-Europe , Eva family wrote: > > Edith has just confessed for the first time to reflux -- what do I do > about it? > Sally > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 18, 2008 Report Share Posted January 18, 2008 Just read something on this, apple cider vinegar, maybe try that..... reflux Edith has just confessed for the first time to reflux -- what do I do about it?Sally Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 18, 2008 Report Share Posted January 18, 2008 I am finding this thread quite upsetting. If bowel inflammation problems are indicated then Sulfasalazine should most definitely be implemented immediately - NOT after a period that he is suggesting. This is ludicrous. The reflux is not related in terms of bowel programme. The most effective treatment for massive and pervasive oesopahigitis with reflux is surgery to correct and prevent it. Adam has had two such operations, called Nissen Fundoplication surgery. I know of course that surgery is drastic but if refulux is a massive problem then the surgical correcion is a very kind, the only kind, option. After the first surgery, they told me that they found under the knife that his oesophagus was totally stripped of flesh and had been eaten away with acid. He must have been in total agony BUT BUT BUT you would not have known that from his behaviour. He had a life time of meds -all of the meds that you are discussing, but they had not stopped that!! I just want you all to be aware that reflux can be so much more than you think and the child demonstrates. It can be devestating pain wise and yet they can hide that from you. I did not know how much pain Adam was in until we did a Oesophageal PH probe study, computer monitoring of the acid rising up from stomach, I was so shocked by the level of acidity. Enough to make a grown person scream and scream but he did not - he just blanked it entirely so you would not know. The surgery has been totally effective for him and has been life changing in terms of pain elimination. Those meds you are all discussing - he has been on all of them over a period of years and they did not control it or deal with it or be worth it at all. They all have side effects and they are not really effective in treating the problem. I think some of them are very dubious indeed!!! For a remedy for instant relief I recommend Gaviscon. This helps hugely alleviate pain and Adam would constantly request it when he had reflux pain. Sorry to be so negative but this is such a huge issue for us. Celia -- In Autism-Biomedical-Europe , " Scorer " wrote: > > > Hi Steph, > > Sounds very much like the same approach he is taking with us. He has > suggested to start off treating the reflux oesophagitis and then in a > few months time look at prescribing sulfasalazine. > > I agree he is very cautious. He was cautious and did not want to start > treatment immediately with Sulphsalazine. There was increased > eosonophils found in the upper bowels this time but he admitted that > although his tests did not show this in the lower bowel this time, > Norman's first biopsy at GOSH 9 yrs ago showing eosonophili colitis > could not be discounted in view of the raised eosonophil count found in > the upper bowel this time. > > Steph, how is Tom doing on the sulfasalazine? Is it helping? Sorry, > what exactly did Dr Fell say Tom's problem is? > > emily xx > > > > > > > > > Where does Dr Fell work ? > > > > > > > > > Re: Re: Heard > > > > > > > > > > > > In a message dated 18/01/2008 12:52:55 GMT Standard Time, > > bbuyonline@ writes: > > > yes, can someone in the know give out info on other available > > options in the uk for > > > biomedical treatment and an idea of their waiting lists. > > > > > > >>Jon Tommey in Surrey, Muscroft in Chester and Lorene Amet > > in Edinburgh, all will work long distance after 1st consult, Jon comes > > to you to see child in own surroundings, all are parents of ASD kids, > > actually Jeans is formerly ASD having recovered > > > > > > Mandi x > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 19, 2008 Report Share Posted January 19, 2008 I think TOm had omeprazole prescribed not so much for reflux (he's never shown any signs of it, although based on Adam's experience, that's dreadful, what a living nightmare) but to assist with emptying hte stomach. Dr Fell also thinks it's useful to treat the middle bit that isn't reached with endoscopy/gastroscopy whatever it's called. Dr Balzola also prescribes omeprazole first but in his case he prescribes it alongside steroid and then sulfasalazine. tom was on omeprazole for 3 months and I'm in two minds whether to resume it. It probably did help a little but I worry about long term use of anything! > > > > > > > > Where does Dr Fell work ? > > > > > > > > > > > > Re: Re: Heard > > > > > > > > > > > > > > > > In a message dated 18/01/2008 12:52:55 GMT Standard Time, > > > bbuyonline@ writes: > > > > yes, can someone in the know give out info on other available > > > options in the uk for > > > > biomedical treatment and an idea of their waiting lists. > > > > > > > > >>Jon Tommey in Surrey, Muscroft in Chester and Lorene Amet > > > in Edinburgh, all will work long distance after 1st consult, Jon > comes > > > to you to see child in own surroundings, all are parents of ASD > kids, > > > actually Jeans is formerly ASD having recovered > > > > > > > > Mandi x > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 21, 2008 Report Share Posted January 21, 2008 > > Edith has just confessed for the first time to reflux -- what do I do > about it? > Sally > Hello Sally, I've just realized that my response to you was lost somewhere. FWIW, here it is again. I've known 5 people, including myself, who were able to treat reflux completely with increased ascorbic acid and/or enzymes. One of these people had serious long-term reflux—she used the enzymes and the ascorbic acid. Three others had mild, but long-term and just ascorbic acid worked for them. I had mild, very short term after doing a fast and needed ascorbic acid for only about one week. There is quite a bit of research to support the idea that reflux can often be a result of too little HCl. That was certainly my case after my fast. When I started the fast I was doing lemon juice, which increased my stomach acid (already good at that point). I didn't get reflux from too much stomach acid, but I did get these weird kind of belly aches. Anita Quote Link to comment Share on other sites More sharing options...
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