Re: Poo (yet again) - at my wit's end!

[Guest guest]

Margaret,

I'm not sure I entirely understand but I remember reading on an NT list of kids with toddlers who would hold their poo that it was common practice to give them mineral oil (liquid paraffin). The mineral oil does not loosen the stool (which I understand is not what you want) but it seems to not be broken down and lubricates the intestine so that the child cannot hold the poo, apparently it just slips out. I remember some parents saying that they had some problem with mineral oil leakage but once they got the dosage right they could even control this.

I don't know though how you would get Henry to take it as obviously I don't think taking a spoonful of oil will appeal.....

Anyway, I've been looking into this and I've just found an interesting article evaluating all the choices:

http://pmj.bmj.com/cgi/reprint/79/937/616

If you can't open this, let me know and I can try to email you the pdf file off the list.

Best wishes,

Darla

We see the doctor next Monday again at the hospital, who is a consultant paed with an interest in gastroenterology.The approach of more and more softeners eg Movicol and oxypowder was abandoned a few months ago because it had got to the point where, if H squatted, the stuff was literally dripping out, but he STILL wouldn't go to the toilet. In fact, one problem with softeners is that the person taking them doesn't get the normal hard urge to go. The dose was cut right back. His poo is soft and NEVER hard, though not a formed stool. He won't go. 5 pairs of soiled pants a day is the minimum.I had been using dulcolax (bisocodyl) suppositories and these usually would give a result if given when it was obvious he was in pain holding the stuff in. He was becoming phobic of these so I have had to stop using them and when I take him to the toilet I have to promise him "no suppository".I am sure there is underlying biology - poor motility, and stool always softish (not evident diarrhoea). probiotics aloe vera cod liver oil etc seemed not to help.He won't sweallow capsules, so enzymes have to be loose. He hates the taste; so do I! How can I totally disguise the taste, please?There is also a behavioural problem: he HATES pooing.We have a manual from the US: "The clean child" by a psychologist ( - no relation) and he advocates an approach which includes suppositories and enemas where necessary to retrain the lower bowel ie provide the strong stimulus to encourage release. But I can't use these.Please, what can I do?He is well-grown and looks health by the way.MargaretWhat can I do

[Guest guest]

Have you tried the OTC dulcolax oral option?

They're little round capsules, just over half the size of a tic tac.

I put one into a spoon of juice and give it to my son. He won't take

tablets, but thee are just about small enough to get down.

They seem to work and shouldn't cause as much anxiety as a

suppository.

>

> We see the doctor next Monday again at the hospital, who is a

> consultant paed with an interest in gastroenterology.

> The approach of more and more softeners eg Movicol and oxypowder

was

> abandoned a few months ago because it had got to the point where,

if

> H squatted, the stuff was literally dripping out, but he STILL

> wouldn't go to the toilet. In fact, one problem with softeners is

> that the person taking them doesn't get the normal hard urge to

go.

> The dose was cut right back. His poo is soft and NEVER hard,

though

> not a formed stool. He won't go. 5 pairs of soiled pants a day is

the

> minimum.

>

> I had been using dulcolax (bisocodyl) suppositories and these

usually

> would give a result if given when it was obvious he was in pain

> holding the stuff in. He was becoming phobic of these so I have

had

> to stop using them and when I take him to the toilet I have to

> promise him " no suppository " .

>

> I am sure there is underlying biology - poor motility, and stool

> always softish (not evident diarrhoea). probiotics aloe vera cod

> liver oil etc seemed not to help.

>

> He won't sweallow capsules, so enzymes have to be loose. He hates

the

> taste; so do I! How can I totally disguise the taste, please?

>

> There is also a behavioural problem: he HATES pooing.We have a

manual

> from the US: " The clean child " by a psychologist ( - no

> relation) and he advocates an approach which includes

suppositories

> and enemas where necessary to retrain the lower bowel ie provide

the

> strong stimulus to encourage release. But I can't use these.

>

> Please, what can I do?

>

> He is well-grown and looks health by the way.

>

> Margaret

>

> What can I do

>

[Guest guest]

I agree Margaret, I have been using Dulcolax pills with Adam for a

year or so now. Works well, two per night, coupled with 2 oxypowder

OR 2 sachets paediatric movicol, per day, backing down on that side

of it when stools get too runny. the Dulcolax though is essential

for him since he has a problem with evacuation even if consistency is

runny. He is 14 now, and it looks very long term to me as a need.

The pills are so tiny that you could hide them quite easily I would

have thought. You can get them on the NHS also.

Celia

-- In Autism-Biomedical-Europe , " oneill_liam "

wrote:

>

> Have you tried the OTC dulcolax oral option?

> They're little round capsules, just over half the size of a tic tac.

> I put one into a spoon of juice and give it to my son. He won't

take

> tablets, but thee are just about small enough to get down.

>

> They seem to work and shouldn't cause as much anxiety as a

> suppository.

>

>

> >

> > We see the doctor next Monday again at the hospital, who is a

> > consultant paed with an interest in gastroenterology.

> > The approach of more and more softeners eg Movicol and oxypowder

> was

> > abandoned a few months ago because it had got to the point where,

> if

> > H squatted, the stuff was literally dripping out, but he STILL

> > wouldn't go to the toilet. In fact, one problem with softeners is

> > that the person taking them doesn't get the normal hard urge to

> go.

> > The dose was cut right back. His poo is soft and NEVER hard,

> though

> > not a formed stool. He won't go. 5 pairs of soiled pants a day is

> the

> > minimum.

> >

> > I had been using dulcolax (bisocodyl) suppositories and these

> usually

> > would give a result if given when it was obvious he was in pain

> > holding the stuff in. He was becoming phobic of these so I have

> had

> > to stop using them and when I take him to the toilet I have to

> > promise him " no suppository " .

> >

> > I am sure there is underlying biology - poor motility, and stool

> > always softish (not evident diarrhoea). probiotics aloe vera cod

> > liver oil etc seemed not to help.

> >

> > He won't sweallow capsules, so enzymes have to be loose. He hates

> the

> > taste; so do I! How can I totally disguise the taste, please?

> >

> > There is also a behavioural problem: he HATES pooing.We have a

> manual

> > from the US: " The clean child " by a psychologist ( - no

> > relation) and he advocates an approach which includes

> suppositories

> > and enemas where necessary to retrain the lower bowel ie provide

> the

> > strong stimulus to encourage release. But I can't use these.

> >

> > Please, what can I do?

> >

> > He is well-grown and looks health by the way.

> >

> > Margaret

> >

> > What can I do

> >

>

[Guest guest]

Dear Margaret,

I'm sure the other suggestions are better than this but I thought I

would just mention it anyway.

I took chamomile and cascara from Herbs Hands Healing) after a 5 day

juice cleanse a year ago. It was to improve motility - I guess to help

move things along after no solids for 5 days and psyllium husks and

clay etc to clear out. It certainly did something for me though I

should mention I felt a bit uncomfy at times though I suppose that was

it working.

Thinking of you and hope things improve.

Best wishes,

Sandy

[Guest guest]

Jean

recommend liquid paraffin for Tom once so it must be ok to try it but Tom

reacted badly to it. don’t remember how but she

said to stop it right away.

SARA

-----Original

Message-----

From:

Autism-Biomedical-Europe

[mailto:Autism-Biomedical-Europe ] On Behalf Of rexel45@...

Sent: 18 January 2008 16:55

To:

Autism-Biomedical-Europe

Subject: Re:

Poo (yet again) - at my wit's end!

Margaret,

I'm not

sure I entirely understand but I remember reading on an NT list of kids with

toddlers who would hold their poo that it was common practice to give them

mineral oil (liquid paraffin). The mineral oil does not loosen the stool

(which I understand is not what you want) but it seems to not be broken down

and lubricates the intestine so that the child cannot hold the poo, apparently

it just slips out. I remember some parents saying that they had some

problem with mineral oil leakage but once they got the dosage right they could

even control this.

I don't

know though how you would get Henry to take it as obviously I don't think

taking a spoonful of oil will appeal.....

Anyway,

I've been looking into this and I've just found an interesting article

evaluating all the choices:

http://pmj.bmj.com/cgi/reprint/79/937/616

If you

can't open this, let me know and I can try to email you the pdf file off the

list.

Best

wishes,

Darla

In a

message dated 18/01/2008 10:50:00 GMT Standard Time, m.collins9ntlworld

writes:

We see the doctor next Monday again at the hospital, who is

a

consultant paed with an interest in gastroenterology.

The approach of more and more softeners eg Movicol and oxypowder was

abandoned a few months ago because it had got to the point where, if

H squatted, the stuff was literally dripping out, but he STILL

wouldn't go to the toilet. In fact, one problem with softeners is

that the person taking them doesn't get the normal hard urge to go.

The dose was cut right back. His poo is soft and NEVER hard, though

not a formed stool. He won't go. 5 pairs of soiled pants a day is the

minimum.

I had been using dulcolax (bisocodyl) suppositories and these usually

would give a result if given when it was obvious he was in pain

holding the stuff in. He was becoming phobic of these so I have had

to stop using them and when I take him to the toilet I have to

promise him " no suppository " .

I am sure there is underlying biology - poor motility, and stool

always softish (not evident diarrhoea). probiotics aloe vera cod

liver oil etc seemed not to help.

He won't sweallow capsules, so enzymes have to be loose. He hates the

taste; so do I! How can I totally disguise the taste, please?

There is also a behavioural problem: he HATES pooing.We have a manual

from the US: " The clean child " by a psychologist ( - no

relation) and he advocates an approach which includes suppositories

and enemas where necessary to retrain the lower bowel ie provide the

strong stimulus to encourage release. But I can't use these.

Please, what can I do?

He is well-grown and looks health by the way.

Margaret

What can I do

[Guest guest]

That's what my mom used to

give us as kids, if we had any such problems. Never had any bad

effects in our house - unless, of course, you took a bit too much!!

Still nothing serious.

-Jenna

Sass and Rem wrote:

Jean

recommend liquid paraffin for Tom once so it must be ok to try it but

Tom

reacted badly to it. don’t remember how but

she

said to stop it right away.

SARA

-----Original

Message-----

From:

Autism-Biomedical-Europe

[mailto:Autism-Biomedical-Europe ] On Behalf Of rexel45aol

Sent: 18 January 2008

16:55

To:

Autism-Biomedical-Europe

Subject: Re:

Poo (yet again) - at my wit's end!

Margaret,

I'm not

sure I entirely understand but I remember reading on an NT list of kids

with

toddlers who would hold their poo that it was common practice to give

them

mineral oil (liquid paraffin). The mineral oil does not loosen the

stool

(which I understand is not what you want) but it seems to not be broken

down

and lubricates the intestine so that the child cannot hold the poo,

apparently

it just slips out. I remember some parents saying that they had some

problem with mineral oil leakage but once they got the dosage right

they could

even control this.

I don't

know though how you would get Henry to take it as obviously I don't

think

taking a spoonful of oil will appeal.....

Anyway,

I've been looking into this and I've just found an interesting article

evaluating all the choices:

http://pmj.bmj.com/cgi/reprint/79/937/616

If you

can't open this, let me know and I can try to email you the pdf file

off the

list.

Best

wishes,

Darla

In a

message dated 18/01/2008 10:50:00 GMT Standard Time, m.collins9ntlworld

writes:

We see

the doctor next Monday again at the hospital, who is

a

consultant paed with an interest in gastroenterology.

The approach of more and more softeners eg Movicol and oxypowder was

abandoned a few months ago because it had got to the point where, if

H squatted, the stuff was literally dripping out, but he STILL

wouldn't go to the toilet. In fact, one problem with softeners is

that the person taking them doesn't get the normal hard urge to go.

The dose was cut right back. His poo is soft and NEVER hard, though

not a formed stool. He won't go. 5 pairs of soiled pants a day is the

minimum.

I had been using dulcolax (bisocodyl) suppositories and these usually

would give a result if given when it was obvious he was in pain

holding the stuff in. He was becoming phobic of these so I have had

to stop using them and when I take him to the toilet I have to

promise him "no suppository".

I am sure there is underlying biology - poor motility, and stool

always softish (not evident diarrhoea). probiotics aloe vera cod

liver oil etc seemed not to help.

He won't sweallow capsules, so enzymes have to be loose. He hates the

taste; so do I! How can I totally disguise the taste, please?

There is also a behavioural problem: he HATES pooing.We have a manual

from the US: "The clean child" by a psychologist ( - no

relation) and he advocates an approach which includes suppositories

and enemas where necessary to retrain the lower bowel ie provide the

strong stimulus to encourage release. But I can't use these.

Please, what can I do?

He is well-grown and looks health by the way.

Margaret

What can I do

[Guest guest]

Hi Margaret,

I know Katy often seems the exception in the way she handles

things,but when she has problems , she has responded to stopping

laxatives and gut irritants and giving natural anti inflammatories .

Cutting back with her diet to more or less the SCD intro diet and

calming her gut down has helped. Have you thought of resting his gut

for one or two days ,perhaps just giving broth or SCD pancakes and

apple sauce and lots of water,probably easier said than done !

I hope he feels better soon.

Love Sharon.

PS I'm going to try Katy on Carnosine for her gut ,read it can also

help with muscles ,so perhaps this would help with bowel motility.

In Autism-Biomedical-Europe , " mcollins2001uk "

wrote:

>

> We see the doctor next Monday again at the hospital, who is a

> consultant paed with an interest in gastroenterology.

> The approach of more and more softeners eg Movicol and oxypowder

was

> abandoned a few months ago because it had got to the point where,

if

> H squatted, the stuff was literally dripping out, but he STILL

> wouldn't go to the toilet. In fact, one problem with softeners is

> that the person taking them doesn't get the normal hard urge to

go.

> The dose was cut right back. His poo is soft and NEVER hard,

though

> not a formed stool. He won't go. 5 pairs of soiled pants a day is

the

> minimum.

>

> I had been using dulcolax (bisocodyl) suppositories and these

usually

> would give a result if given when it was obvious he was in pain

> holding the stuff in. He was becoming phobic of these so I have

had

> to stop using them and when I take him to the toilet I have to

> promise him " no suppository " .

>

> I am sure there is underlying biology - poor motility, and stool

> always softish (not evident diarrhoea). probiotics aloe vera cod

> liver oil etc seemed not to help.

>

> He won't sweallow capsules, so enzymes have to be loose. He hates

the

> taste; so do I! How can I totally disguise the taste, please?

>

> There is also a behavioural problem: he HATES pooing.We have a

manual

> from the US: " The clean child " by a psychologist ( - no

> relation) and he advocates an approach which includes

suppositories

> and enemas where necessary to retrain the lower bowel ie provide

the

> strong stimulus to encourage release. But I can't use these.

>

> Please, what can I do?

>

> He is well-grown and looks health by the way.

>

> Margaret

>

> What can I do

>

[Guest guest]

Margaret, if you cannot give liquid paraffin maybe worth trying sena -

if you haven't already. I suspect it is slightly bitter but a crushed

tablet ... you may be able to hide in juice, hopefully, or even mixed

with some foods. It has the similar effect to paraffin - does not

'liquidise' stools but rather lubricates the intestine.

Natasa

>

>

> Margaret,

> I'm not sure I entirely understand but I remember reading on an NT

list of

> kids with toddlers who would hold their poo that it was common

practice to give

> them mineral oil (liquid paraffin). The mineral oil does not loosen

the

> stool (which I understand is not what you want) but it seems to not be

broken

> down and lubricates the intestine so that the child cannot hold the

poo,

> apparently it just slips out. I remember some parents saying that

they had some

> problem with mineral oil leakage but once they got the dosage right

they could

> even control this.

>

> I don't know though how you would get Henry to take it as obviously I

don't

> think taking a spoonful of oil will appeal.....

>

> Anyway, I've been looking into this and I've just found an interesting

> article evaluating all the choices:

>

>

> _http://pmj.bmj.com/cgi/reprint/79/937/616_

> (http://pmj.bmj.com/cgi/reprint/79/937/616)

>

> If you can't open this, let me know and I can try to email you the pdf

file

> off the list.

>

> Best wishes,

> Darla

>

>

>

> In a message dated 18/01/2008 10:50:00 GMT Standard Time,

> m.collins9@... writes:

>

> We see the doctor next Monday again at the hospital, who is a

> consultant paed with an interest in gastroenterology.

> The approach of more and more softeners eg Movicol and oxypowder was

> abandoned a few months ago because it had got to the point where, if

> H squatted, the stuff was literally dripping out, but he STILL

> wouldn't go to the toilet. In fact, one problem with softeners is

> that the person taking them doesn't get the normal hard urge to go.

> The dose was cut right back. His poo is soft and NEVER hard, though

> not a formed stool. He won't go. 5 pairs of soiled pants a day is the

> minimum.

>

> I had been using dulcolax (bisocodyl) suppositories and these usually

> would give a result if given when it was obvious he was in pain

> holding the stuff in. He was becoming phobic of these so I have had

> to stop using them and when I take him to the toilet I have to

> promise him " no suppository " p

>

> I am sure there is underlying biology - poor motility, and stool

> always softish (not evident diarrhoea). probiotics aloe vera cod

> liver oil etc seemed not to help.

>

> He won't sweallow capsules, so enzymes have to be loose. He hates the

> taste; so do I! How can I totally disguise the taste, please?

>

> There is also a behavioural problem: he HATES pooing.We have a manual

> from the US: " The clean child " by a psychologist ( - no

> relation) and he advocates an approach which includes suppositories

> and enemas where necessary to retrain the lower bowel ie provide the

> strong stimulus to encourage release. But I can't use these.

>

> Please, what can I do?

>

> He is well-grown and looks health by the way.

>

> Margaret

>

> What can I do

>

[Guest guest]

His poo is soft and NEVER hard, though not a formed stool. He won't go. 5 pairs of soiled pants a day is the minimum.

>>Did you ever try the s Aloe Vera I sent you?

Mandi x

[Guest guest]

Slippery

elm really helped us with Tom’s permanent watery and explosive diarrhoea.

His stools are loads better now. We are lucky though that our local health shop

sells it. lots of the pre-packaged stuff comes with

lots of added crap in it. S x

-----Original

Message-----

From:

Autism-Biomedical-Europe

[mailto:Autism-Biomedical-Europe ] On Behalf Of Mum231ASD@...

Sent: 19 January 2008 15:52

To:

Autism-Biomedical-Europe

Subject: Re:

Poo (yet again) - at my wit's end!

In a

message dated 18/01/2008 10:49:59 GMT Standard Time, m.collins9ntlworld

writes:

His poo is soft and NEVER hard, though

not a formed stool. He won't go. 5 pairs of soiled pants a day is the

minimum.

>>Did you ever try the s Aloe Vera I

sent you?

Mandi x