Re: Stool analysis and whinge - Long post (sorry)

[Guest guest]

I think you can increase the Sig with L.Rhamosus (sp)

Stool analysis and whinge - Long post (sorry)

Hi all,brain picking again, sorry, and thank you. We've got a meet with our doc on Thurs, we've had porphyrins back (posted them already, thank you for all your advice re chelation - looks like that might be next) These are our comp stool analysis results. Last May the results showed inflammatory markers within normal range, negative parasites, low level lactobacilli and bifido. Also had candida then (sorry I can't find the actual paper at the moment) Beneficial floraBifidobacter 4+E.coli 4+Lactobacillus 0+ Enterococcus Spp 0+ImbalancesGamma strep 4+mycology - all clearParasitology - all clearCampylobacter - negDigestion/Absorption - within green rangeInflammation everything green except Lysozyme -1240 (reference range of less than 600) Says links to IBD/ inflamed gut? My eldest has UC....Immunology sigA is at 17 (red) - reference 51-204 mg/DL.Short chain fatty acids all ok (green), same for intestinal health markersAny thoughts? This is inflammation and immune issues right? Maybe we're not ready to get the metals out? The reason i'm asking, is that the doc appt time seems to fly by, if i can have an understanding of what's going on, then i can have my questions ready. Sorry, I ask everyone what i should be doing!! i used to be good at making decisions and feeling in control...We're doing scd, and full supplementation incl mb12.thank you all again. We've been really trying hard these last 10 months, and don't seem to be getting anywhere - fast! He's still awake half the night. Flapping all day. No eye contact. We do however now have 2 words... up .... dee (for dvd) we've spent 6000 on vb prog. that's 3 grand a word by my reckoning. As quickly as he learns a new skill, or shows some sign of social development he loses it.When we stopped supps for a week just before having re tests done we didn't notice any regressions. So we left it for another week. Nothing. Do any of your children show no signs of responding? Am feeling p*ssed off today with no family support. Wider family are asking when am i going to let him be.Would love to hear something encouraging please :)miserable cow Jane

[Guest guest]

We've also seen it go up[non measurable for 10+ years to 19 so not in

range yet]with using a rotation diet, avoiding all allergens, some of

which I did not realize, and using heavy probiotics.

>

> I think you can increase the Sig with L.Rhamosus (sp)

> Stool analysis and whinge -

Long post (sorry)

>

>

>

> Hi all,

>

> brain picking again, sorry, and thank you. We've got a meet with

our

> doc on Thurs, we've had porphyrins back (posted them already,

thank

> you for all your advice re chelation - looks like that might be

next)

> These are our comp stool analysis results. Last May the results

> showed inflammatory markers within normal range, negative

parasites,

> low level lactobacilli and bifido. Also had candida then (sorry I

> can't find the actual paper at the moment)

>

> Beneficial flora

> Bifidobacter 4+

> E.coli 4+

> Lactobacillus 0+

> Enterococcus Spp 0+

>

> Imbalances

> Gamma strep 4+

>

> mycology - all clear

> Parasitology - all clear

> Campylobacter - neg

> Digestion/Absorption - within green range

>

> Inflammation

> everything green except Lysozyme -1240 (reference range of less

than

> 600) Says links to IBD/ inflamed gut? My eldest has UC....

>

> Immunology sigA is at 17 (red) - reference 51-204 mg/DL.

>

> Short chain fatty acids all ok (green), same for intestinal

health

> markers

>

> Any thoughts? This is inflammation and immune issues right? Maybe

> we're not ready to get the metals out? The reason i'm asking, is

that

> the doc appt time seems to fly by, if i can have an understanding

of

> what's going on, then i can have my questions ready. Sorry, I ask

> everyone what i should be doing!! i used to be good at making

> decisions and feeling in control...

>

> We're doing scd, and full supplementation incl mb12.

>

> thank you all again. We've been really trying hard these last 10

> months, and don't seem to be getting anywhere - fast! He's still

> awake half the night. Flapping all day. No eye contact. We do

however

> now have 2 words... up .... dee (for dvd) we've spent 6000 on vb

> prog. that's 3 grand a word by my reckoning. As quickly as he

learns

> a new skill, or shows some sign of social development he loses it.

> When we stopped supps for a week just before having re tests done

we

> didn't notice any regressions. So we left it for another week.

> Nothing. Do any of your children show no signs of responding? Am

> feeling p*ssed off today with no family support. Wider family are

> asking when am i going to let him be.

> Would love to hear something encouraging please

>

> miserable cow Jane

>

[Guest guest]

Doctor's Data CDSA results state Sacc B will increase

it

--- mbrookh wrote:

> We've also seen it go up[non measurable for 10+

> years to 19 so not in

> range yet]with using a rotation diet, avoiding all

> allergens, some of

> which I did not realize, and using heavy probiotics.

>

>

>

>

> >

> > I think you can increase the Sig with L.Rhamosus

> (sp)

> > Stool

> analysis and whinge -

> Long post (sorry)

> >

> >

> >

> > Hi all,

> >

> > brain picking again, sorry, and thank you. We've

> got a meet with

> our

> > doc on Thurs, we've had porphyrins back (posted

> them already,

> thank

> > you for all your advice re chelation - looks

> like that might be

> next)

> > These are our comp stool analysis results. Last

> May the results

> > showed inflammatory markers within normal range,

> negative

> parasites,

> > low level lactobacilli and bifido. Also had

> candida then (sorry I

> > can't find the actual paper at the moment)

> >

> > Beneficial flora

> > Bifidobacter 4+

> > E.coli 4+

> > Lactobacillus 0+

> > Enterococcus Spp 0+

> >

> > Imbalances

> > Gamma strep 4+

> >

> > mycology - all clear

> > Parasitology - all clear

> > Campylobacter - neg

> > Digestion/Absorption - within green range

> >

> > Inflammation

> > everything green except Lysozyme -1240

> (reference range of less

> than

> > 600) Says links to IBD/ inflamed gut? My eldest

> has UC....

> >

> > Immunology sigA is at 17 (red) - reference

> 51-204 mg/DL.

> >

> > Short chain fatty acids all ok (green), same for

> intestinal

> health

> > markers

> >

> > Any thoughts? This is inflammation and immune

> issues right? Maybe

> > we're not ready to get the metals out? The

> reason i'm asking, is

> that

> > the doc appt time seems to fly by, if i can have

> an understanding

> of

> > what's going on, then i can have my questions

> ready. Sorry, I ask

> > everyone what i should be doing!! i used to be

> good at making

> > decisions and feeling in control...

> >

> > We're doing scd, and full supplementation incl

> mb12.

> >

> > thank you all again. We've been really trying

> hard these last 10

> > months, and don't seem to be getting anywhere -

> fast! He's still

> > awake half the night. Flapping all day. No eye

> contact. We do

> however

> > now have 2 words... up .... dee (for dvd) we've

> spent 6000 on vb

> > prog. that's 3 grand a word by my reckoning. As

> quickly as he

> learns

> > a new skill, or shows some sign of social

> development he loses it.

> > When we stopped supps for a week just before

> having re tests done

> we

> > didn't notice any regressions. So we left it for

> another week.

> > Nothing. Do any of your children show no signs

> of responding? Am

> > feeling p*ssed off today with no family support.

> Wider family are

> > asking when am i going to let him be.

> > Would love to hear something encouraging please

>

> >

> > miserable cow Jane

> >

>

>

>

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[Guest guest]

>

> Immunology sigA is at 17 (red) - reference 51-204 mg/DL.

Epicor has been shown to increase secretory IgA quite significantly,

which is what I think you're talking about here. It's very easy to

dose too, and has a lot of other excellent benefits for people who

tolerate it (which is most everybody, from what I can tell).

>

> Short chain fatty acids all ok (green), same for intestinal health

> markers

>

>

> thank you all again. We've been really trying hard these last 10

> months, and don't seem to be getting anywhere - fast! He's still

> awake half the night. Flapping all day. No eye contact. We do

however

> now have 2 words... up .... dee (for dvd) we've spent 6000 on vb

> prog. that's 3 grand a word by my reckoning. As quickly as he

learns

> a new skill, or shows some sign of social development he loses it.

> When we stopped supps for a week just before having re tests done

we

> didn't notice any regressions. So we left it for another week.

> Nothing. Do any of your children show no signs of responding? Am

> feeling p*ssed off today with no family support. Wider family are

> asking when am i going to let him be.

> Would love to hear something encouraging please

My son is something like this. His needs have been different than a

majority of kids I've read about. He is also a lot more toxic

according to tests than I had thought possible (sorry, I missed your

porphyrins tests so I'm not sure where you're at there). He also

has viral issues, and I think those make things much more complex

than having " just " metal issues. I have heard from a few people,

including our homeopath, that kids who don't respond well often have

parasite problems. Not sure about the truth of that, but thought

I'd share anyhow.

What I've learned in the last three years is that I can do everything

at once. So, I worry much less about therapy than I do about

biomedical. We do floortime, which costs us nothing, and has good

results for us in terms of help ds become a warm, affectionate boy

(at least with me). I don't find Floortime stressful, the way VB is

in terms of running the program. Keep in mind I'm jsut trying to

incorporate VB on my own, but it really does seem much harder for

someone who is doing things alone. We need to work hard, but still

pace ourselves.

Last bit is that my son does seem to be getting more of a solid

foundation now. He had a fever not long ago, which a year ago would

have resulted in serious regression. Not this time. So, although

progress isn't really visible on many levels, I do think that we're

on much firmer ground now than before. If I think of things this

way, things like being non-verbal still are less upsetting, if you

know what I mean.

Best wishes,

Anita

>

> miserable cow Jane

>

[Guest guest]

Hi

>>>> We've also seen it go up [non measurable for 10+ years to 19 so

not in range yet] with using a rotation diet, avoiding all allergens,

some of which I did not realize, and using heavy probiotics.

Thank you - we are hoping SCD is slowly doing some good. I have

massively cleaned up our environment (the teenagers complain the house

smells like an old lady's house i.e p*ss and biscuits - that'll be my

scd baking and vinegar for cleaning then!) We've got some water and

lead testing kits coming from Mandimart, so i can see us having a

MASSIVE bootsale. We were also thinking of having an allergy test done

in the future.

>>>>> I think you can increase the Sig with L.Rhamosus (sp)

Thank you - will look into this probiotic

>>>>> Doctor's Data CDSA results state Sacc B will increase

it

Thank you Amy - we are using this but may throw in some more!

Jane

x

[Guest guest]

> Epicor has been shown to increase secretory IgA quite

significantly,

> which is what I think you're talking about here. It's very easy

to

> dose too, and has a lot of other excellent benefits for people who

> tolerate it (which is most everybody, from what I can tell).

Anita - thank you, I'll look into this.

> My son is something like this. His needs have been different than

a

> majority of kids I've read about. He is also a lot more toxic

> according to tests than I had thought possible (sorry, I missed

your

> porphyrins tests so I'm not sure where you're at there). He also

> has viral issues, and I think those make things much more complex

> than having " just " metal issues. I have heard from a few people,

> including our homeopath, that kids who don't respond well often

have parasite problems. Not sure about the truth of that, but

thought I'd share anyhow.

Nic too seems to be very metal toxic. Not yet sure about parasites,

but i don't think this is an issue. I'll see what the doc says on

Thurs

> What I've learned in the last three years is that I can do

everything

> at once. So, I worry much less about therapy than I do about

> biomedical. We do floortime, which costs us nothing, and has good

> results for us in terms of help ds become a warm, affectionate boy

> (at least with me). I don't find Floortime stressful, the way VB

is

> in terms of running the program. Keep in mind I'm jsut trying to

> incorporate VB on my own, but it really does seem much harder for

> someone who is doing things alone. We need to work hard, but

still

> pace ourselves.

I seem to have reached the point you mention, that you can't do

everything at once and so we're easing up on the ed therapies. I just

want to hang out with him while he heals. When he's ready we'll think

about learning then. Suspect we'll go back to rdi on a more serious

level.

> Last bit is that my son does seem to be getting more of a solid

> foundation now. He had a fever not long ago, which a year ago

would

> have resulted in serious regression. Not this time. So, although

> progress isn't really visible on many levels, I do think that we're

> on much firmer ground now than before. If I think of things this

> way, things like being non-verbal still are less upsetting, if you

> know what I mean.

Yes i do know what you mean. I want him to be healthy, the other

stuff is secondary at the moment (ask me next week when I've had a

good night's sleep and I'll say differntly I'm sure!)

Jane

[Guest guest]

Sandy,

Thanks, yes we did have big problems with yeast 7 months ago but I

can't see this anywhere on the new test results. I'll see what doc

says about that. It would be too much to hope that we've got yeast

under control!

We did try OoO mixed in with olive oil on his feet, but it really

itched so we abandoned it. This was a few moths ago so will have to

consider it again - more diluted this time.

Our ATEC has gone from 96 to 42 and is sticking there!

I know when I see that some of you have been working tirelessly for

years on your children I wonder where I'll get the strength. I hoped

it would come from family and old friends, but not so!

To everyone, thank you all for you kind words and help

Not such a miserable Jane now

xxx

P.S looking forward to meeting many of you at the P2P

> Hi Jane,

>

> He sounds quite yeasty to me.

> Also Gamma Strep was really stubborn for Eddie until we used

Oreganol

> (the really strong oregano oil) - it went from constant 4+ to 0 and

has

> stayed away. We saw a big improvement. But of course different

things

> work for us all - just thought I'd mention oreganol though.

>

> Eddie's sigA remains profoundly low and we are still working hard

on

> his health BUT he is being assessed for recovery from autism. It

has

> been 2.5 years with ups and downs - but your post reminded me that

we

> had quite a long plateau a few months in. I remember the ATEC

sticking

> between 40 and 50.

> Have you checked for clostridia on an organix?

>

> Would be happy to chat on the phone if you ever need

encouragement. We

> were expected to just accept Eddie as he was (chipping my teeth and

> damaging the ceilings with his heel banging) - and now we are asked

who

> diagnosed him. Some children respond faster than others - but some

of

> us who just keep slogging along still get great results ... :-)

>

> Best wishes,

> Sandy

>

[Guest guest]

Hi Jane,

Lots and lots of vitamin A is recommended for low SiGa, use cod liver oil and I would also use either A, palmitate or acetate. And as Anita has suggested EpiCor is said to be good for raising levels as well as colostrum.

Good luck,

Stool analysis and whinge - Long post (sorry)

Hi all,brain picking again, sorry, and thank you. We've got a meet with our doc on Thurs, we've had porphyrins back (posted them already, thank you for all your advice re chelation - looks like that might be next) These are our comp stool analysis results. Last May the results showed inflammatory markers within normal range, negative parasites, low level lactobacilli and bifido. Also had candida then (sorry I can't find the actual paper at the moment) Beneficial floraBifidobacter 4+E.coli 4+Lactobacillus 0+ Enterococcus Spp 0+ImbalancesGamma strep 4+mycology - all clearParasitology - all clearCampylobacter - negDigestion/Absorption - within green rangeInflammation everything green except Lysozyme -1240 (reference range of less than 600) Says links to IBD/ inflamed gut? My eldest has UC....Immunology sigA is at 17 (red) - reference 51-204 mg/DL.Short chain fatty acids all ok (green), same for intestinal health markersAny thoughts? This is inflammation and immune issues right? Maybe we're not ready to get the metals out? The reason i'm asking, is that the doc appt time seems to fly by, if i can have an understanding of what's going on, then i can have my questions ready. Sorry, I ask everyone what i should be doing!! i used to be good at making decisions and feeling in control...We're doing scd, and full supplementation incl mb12.thank you all again. We've been really trying hard these last 10 months, and don't seem to be getting anywhere - fast! He's still awake half the night. Flapping all day. No eye contact. We do however now have 2 words... up .... dee (for dvd) we've spent 6000 on vb prog. that's 3 grand a word by my reckoning. As quickly as he learns a new skill, or shows some sign of social development he loses it.When we stopped supps for a week just before having re tests done we didn't notice any regressions. So we left it for another week. Nothing. Do any of your children show no signs of responding? Am feeling p*ssed off today with no family support. Wider family are asking when am i going to let him be.Would love to hear something encouraging please :)miserable cow Jane

[Guest guest]

Hi Jane

Hang in there, most of us are in the same

boat and fighting on. Great support from others

on this list. Look forward to meeting you

at P2P. Hope thinks are looking brighter today,

remember we are all allowed to have our ‘off’

days.

Sal x

-----Original

Message-----

From: Autism-Biomedical-Europe

[mailto:Autism-Biomedical-Europe ]

On Behalf Of brownsauce66

Sent: 15

January 2008 19:36

To: Autism-Biomedical-Europe

Subject:

Re: Stool analysis and whinge - Long post (sorry)

Sandy,

Thanks, yes we did have big problems with yeast 7 months ago but I

can't see this anywhere on the new test results. I'll see what doc

says about that. It would be too much to hope that we've got yeast

under control!

We did try OoO mixed in with olive oil on his feet, but it really

itched so we abandoned it. This was a few moths ago so will have to

consider it again - more diluted this time.

Our ATEC has gone from 96 to 42 and is sticking there!

I know when I see that some of you have been working tirelessly for

years on your children I wonder where I'll get the strength. I hoped

it would come from family and old friends, but not so!

To everyone, thank you all for you kind words and help

Not such a miserable Jane now

xxx

P.S looking forward to meeting many of you at the P2P

> Hi Jane,

>

> He sounds quite yeasty to me.

> Also Gamma Strep was really stubborn for Eddie until we used

Oreganol

> (the really strong oregano oil) - it went from constant 4+ to 0 and

has

> stayed away. We saw a big improvement. But of course different

things

> work for us all - just thought I'd mention oreganol though.

>

> Eddie's sigA remains profoundly low and we are still working hard

on

> his health BUT he is being assessed for recovery from autism. It

has

> been 2.5 years with ups and downs - but your post reminded me that

we

> had quite a long plateau a few months in. I remember the ATEC

sticking

> between 40 and 50.

> Have you checked for clostridia on an organix?

>

> Would be happy to chat on the phone if you ever need

encouragement. We

> were expected to just accept Eddie as he was (chipping my teeth and

> damaging the ceilings with his heel banging) - and now we are asked

who

> diagnosed him. Some children respond faster than others - but some

of

> us who just keep slogging along still get great results ... :-)

>

> Best wishes,

> Sandy

>

[Guest guest]

Hi ,

I'm interested in rethinking how much vitamin A - is there a protocol

somewhere you'd recommend that you could point me to?

Thanks :-)

Sandy